Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 You should be able to pre-mix the enzymes in a drink kept cold for about four hours. As for the soy milk, it will probably not taste too good with the Peptizyde in it. I would try juice or some other stong flavored drink. > Hi Everyone!! This is about my third time trying to put this message > on the board. Here it goes... > > I have been reading the board for sometime now. I have decide to use > the enzymes for my daughter. I received them this past Friday 8/10. > I immediately started using the peptizyde on Saturday. > > Before I go on, My daughter, na, is 2 1/2 year old, she's > diagnose with PDD-NOS this year. She has a twin sister, Selina. > Both girls where developing normally until they turned 14-15 months. > Selina continue developing while na started falling behind. > (About the same time both girls received their MMR Shot - > coincidence, hummm...) na lacks of social interaction with her > peers(but love to interact with adults), language, and imaginative > play. na has short attention span and easily agitated when she > doesn't get her way or things are taking away from her. Other than > that, na is intelligent, loveable affectionate little girl. She > has great eye contact(but being on gfcf diet her eye contact has been > 100% better). She's not 100% gf(can't find substitute for cheerios > and pasta-spaghetti), she has been socially interacting with her > sister and peers(not as I would like it to be but at least she's > trying). Also with the diet, she would now look through a book and > is interested in the pictures, before she would fan the pages of the > book instead. She is more aware of the environment. I love it when > we take walks and she actually noticing things. Especially fire > engine siren. > > na does alot of humming and babbling(she does say words like all > done, sit down, chicken and her favorite DADDY not MOMMY ). I see > her trying so hard to vocalize. Sometimes I hear her saying > constants sounds. But most of her communication is through signs and > gestures. She also very active (imagine me chasing her through a > department store--won't stay put). > > Because na intake is limited to 7 food,not because of the diet, > she been a very picky eater and won't try anything new. I decided to > use the enzymes. I started with 1 peptizyde this past saturday at > dinner time. Later on in the day, na actually took the telphone > and place in on her ear to hear the dial tone. She never did that > before. You don't know how many times I tried to show her how to use > a phone. Before she just push buttons. She let me place it on her > ear and show her how to talk into it. She even place it on my ear > for me to talk into it. To me, that was imaginative play. 2nd thing: > I have a kangroo climber/slide inside the house, na usually > climbs but never used the side steps to climb over. Now she is > actually using the side steps to climb. 3rd thing: She always get > close to the tv to watch her video. I have consistently sit her down > away from the tv. Now she's actually sitting down on the sofa or the > bean bag to watch her video on tv. Yesterday she join in group play > with my husband, sister, and I. All of this in 3 days using > peptizyde. On Sunday I started given peptizyde for lunch also. > > Even though she has only been on peptizyde for 3 days and SNT and > Zinc for 1 week, and 75% gfcf, she has made some improvements. I > still have a long road ahead but seeing these little improvements it > worth it. na is taking less than 1/4 SNT, and Zinc. > > I'm planning to start using HN-Zyme prime after 2 wks on peptizyde. > > I'm sorry if the message is long but I had to share this information > with everyone on the board. I think by my observation that added the > enzyme made a big difference. I would keep everyone posted on my > daughter's progress. I'm praying that it would continue.... > > I have two questions about the enzyme's, how long does it last in a > drink and can I place the enzyme in her soy milk? > > Thanks Devin!!!! and Thanks everyone for listening. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 Welcome to the group, ! Sorry that you have fevers and such debilitating fatigue. What's your diagnosis and how are you being treated? Often symptoms, even fatigue, improve with the appropriate treatment for your condition. [ ] New to the board > Hi, > > I am newly diagnosed: 33 years old, mother of three. The biggest > problem I am having is the fatigue and the fevers. I was hoping > someone might have some advice on how to deal with this. Is there a > drug they give you for the fatigue? It is like nothing I have ever > known. I am concerned... how will I care for my children? > > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 In a message dated 04/01/2004 12:21:53 Central Standard Time, cathers1@... writes: > it doesn't address treatment for the fatigue... > just makes it sound like something we have to live with? > > > Hi I am 39 and have seronegative RA. I was diagnosed a year ago, but have probably had it for 10 years or more. For me, the fatigue is often much worse than the pain. But when I get my Remicade infusions, as the pain and swelling recede, so does the fatigue. I think that whatever treatment you get that works for the RA, it helps with fatigue as well as all the other nasty symptoms. Hope that helps give you some hope! Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 Hi, , My diagnosis is RA. My titer is like 80, I think. I received the test results two weeks ago and see a specialist Friday. But, everything I read... it doesn't address treatment for the fatigue... just makes it sound like something we have to live with? > Welcome to the group, ! > > Sorry that you have fevers and such debilitating fatigue. What's your > diagnosis and how are you being treated? > > Often symptoms, even fatigue, improve with the appropriate treatment for > your condition. > > > > > > [ ] New to the board > > > > Hi, > > > > I am newly diagnosed: 33 years old, mother of three. The biggest > > problem I am having is the fatigue and the fevers. I was hoping > > someone might have some advice on how to deal with this. Is there a > > drug they give you for the fatigue? It is like nothing I have ever > > known. I am concerned... how will I care for my children? > > > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 Welcome ,My name is Boo.You've found a really wonderful support system. These people are really wonderful.As ill as they are thier always available for help or a kind word.So welcome to the group.Gentleness,Boo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Hi there Crystal and welcome to the group.. It sounds like you always had an inkling something wasn't quite right with your son's headshape, but- like me- you didn't know what it was. I think Cranio Technologies will band up to 18 months. They won't be able to promise any change, just give your son an opportunity to see a little more rounding if he has a growth spurt. If you did want to go down that route, you do need to move pretty quickly and get an appointment straight away for an assessment.There may be other places that band later, but I don't know how late. I hope that you find this a source of support Good luck Hannah (mum to Lucia, London,UK) Plagio, Cranio helmet, 4th July '04 > > Hi, my name is Crystal s. My son is , 16 months old. > We just found out a few days ago that he has Positional > Plagiochephaly. I have known since he was only a week or so old > that something was wrong with his head. His first doctor told me it > was Cephalahematoma (sp?). His next would tell me to stop worrying, > that there was nothing wrong, is was just " slightly abnormal " . > Finally, at 16 months, his new doctor just diagnosed him. She said > at this point she feels it is too late to do anything, but at least > gave us the option of seeking treatment (which before I hadn't even > known existed). I feel better now having a " name " being put to his > condition. I only wish I would have known soon enough to do > something months ago. I hope as he grows older, the shape of his > head doesn't bother him too greatly. To me, that's just how he is, > and always has been. And with his hair now, it is getting a little > less noticeable. But anyways, I thought I would introduce > myself. ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Hi there Crystal and welcome to the group! I just wanted to say... you can definately try to seek treatment!! CT or Hanger will band older babies. My son was diagnosed with plagio a year ago - and we did receive a helmet when he was 5 months old- he wore it until April. There was correction, but he grew out of that helmet and they didn't recast him. However, after several months of me worrying, and knowing that he was still pretty flat, I took him to Hanger. This was last week. He is now just over 15 months and we are currently waiting for the new helmet. He had to go in for Xrays last week to see if his sutures were fused, if so, then of course the helmet won't help (from my understanding). I say, go for treatment if you want it. It doesn't hurt to TRY!! Best of luck to you.. Kim > > Hi, my name is Crystal s. My son is , 16 months old. > We just found out a few days ago that he has Positional > Plagiochephaly. I have known since he was only a week or so old > that something was wrong with his head. His first doctor told me it > was Cephalahematoma (sp?). His next would tell me to stop worrying, > that there was nothing wrong, is was just " slightly abnormal " . > Finally, at 16 months, his new doctor just diagnosed him. She said > at this point she feels it is too late to do anything, but at least > gave us the option of seeking treatment (which before I hadn't even > known existed). I feel better now having a " name " being put to his > condition. I only wish I would have known soon enough to do > something months ago. I hope as he grows older, the shape of his > head doesn't bother him too greatly. To me, that's just how he is, > and always has been. And with his hair now, it is getting a little > less noticeable. But anyways, I thought I would introduce > myself. ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Thank you all for the welcome. ) I know it isn't really too late for treatment. There are a few things keeping me from seeking any, though. #1- From what I have heard, even if my son does recieve treatment soon, there is no guarantee it would work. #2- His doctor said at this point it would be mainly for " cosmetic " purposes. #3- My son HATES wearing hats...I really don't think he would like wearing the band. I don't want to put him through that if it is not necessary. My only real concern would be how he felt about his head shape in the future. But because of the reasons stated above, I feel at this point, I would feel more comfortable, and I think my son would, too, if we didn't seek treatment with the band. If I had known months ago, things would be different. I will try and post pictures of Danny soon--again, thank you for the welcome!! I'm glad to be a part of the community. Crystal s Mommy to , 16 months CrysNel@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Hi Crystal, welcome to this group. I'm so sorry to hear that your Dr's weren't very proactive about this. I'm glad to hear though that is not that noticeable. Are you just starting out in your research? There is tons of information in our FILES and LINKS sections for you to read. Please let us know if you have any questions. Sue Colin F., 13 mos. STARband grad > > Hi, my name is Crystal s. My son is , 16 months old. > We just found out a few days ago that he has Positional > Plagiochephaly. I have known since he was only a week or so old > that something was wrong with his head. His first doctor told me it > was Cephalahematoma (sp?). His next would tell me to stop worrying, > that there was nothing wrong, is was just " slightly abnormal " . > Finally, at 16 months, his new doctor just diagnosed him. She said > at this point she feels it is too late to do anything, but at least > gave us the option of seeking treatment (which before I hadn't even > known existed). I feel better now having a " name " being put to his > condition. I only wish I would have known soon enough to do > something months ago. I hope as he grows older, the shape of his > head doesn't bother him too greatly. To me, that's just how he is, > and always has been. And with his hair now, it is getting a little > less noticeable. But anyways, I thought I would introduce > myself. ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Crystal: I hadn't read this post yet when I just replied to you. :-) I totally understand your concerns. It really sounds like you have carefully weighed the pros and cons. I'd love to see a pic of Danny too! Sue Colin F., 13 mos. STARband grad > > Thank you all for the welcome. ) > > I know it isn't really too late for treatment. There are a few > things keeping me from seeking any, though. > > #1- From what I have heard, even if my son does recieve treatment > soon, there is no guarantee it would work. > > #2- His doctor said at this point it would be mainly for " cosmetic " > purposes. > > #3- My son HATES wearing hats...I really don't think he would like > wearing the band. I don't want to put him through that if it is not > necessary. > > My only real concern would be how he felt about his head shape in > the future. But because of the reasons stated above, I feel at this > point, I would feel more comfortable, and I think my son would, too, > if we didn't seek treatment with the band. If I had known months > ago, things would be different. I will try and post pictures of > Danny soon--again, thank you for the welcome!! I'm glad to be a > part of the community. > > Crystal s > Mommy to , 16 months > CrysNel@h... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Crystal, There is still time to do something if you want. My oldest daughter Tatijana is now 5, but she was banded with the DOC band at 19 months of age and graduated at 21 months of age. She got results I could never have dreamed of getting into the band at such a late stage. Johanna mommy to Tatijana DOC grad 5/02 and Repo'in lyse >From: CrysNel@... >Reply-Plagiocephaly >Plagiocephaly >Subject: New to the board >Date: Mon, 25 Oct 2004 04:06:41 -0000 > Rock, jazz, country, soul more. Find the music you love on MSN Music! Hi, my name is Crystal s. My son is , 16 months old. We just found out a few days ago that he has Positional Plagiochephaly. I have known since he was only a week or so old that something was wrong with his head. His first doctor told me it was Cephalahematoma (sp?). His next would tell me to stop worrying, that there was nothing wrong, is was just " slightly abnormal " . Finally, at 16 months, his new doctor just diagnosed him. She said at this point she feels it is too late to do anything, but at least gave us the option of seeking treatment (which before I hadn't even known existed). I feel better now having a " name " being put to his condition. I only wish I would have known soon enough to do something months ago. I hope as he grows older, the shape of his head doesn't bother him too greatly. To me, that's just how he is, and always has been. And with his hair now, it is getting a little less noticeable. But anyways, I thought I would introduce myself. ) For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Hi Crystal, I just wanted to say welcome to the group. You have already got some good input so I will just stop at welcome and please feel free to ask any questions you may have. Becky (’s mom) in Pittsburgh, PA New to the board Hi, my name is Crystal s. My son is , 16 months old. We just found out a few days ago that he has Positional Plagiochephaly. I have known since he was only a week or so old that something was wrong with his head. His first doctor told me it was Cephalahematoma (sp?). His next would tell me to stop worrying, that there was nothing wrong, is was just " slightly abnormal " . Finally, at 16 months, his new doctor just diagnosed him. She said at this point she feels it is too late to do anything, but at least gave us the option of seeking treatment (which before I hadn't even known existed). I feel better now having a " name " being put to his condition. I only wish I would have known soon enough to do something months ago. I hope as he grows older, the shape of his head doesn't bother him too greatly. To me, that's just how he is, and always has been. And with his hair now, it is getting a little less noticeable. But anyways, I thought I would introduce myself. ) For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Hi Crystal, Welcome to the group. Your son is not too old to be treated by Cranial Technologies. Where are you located? They may have a clinic near you. They treat children up to 24 months. We have had quite a few members with older babies get good correction. However tiem is of the essence. Are there any questions we can answer for you? www.cranialtech.com mom to na DOC Grad SCCrysNel@... wrote: Hi, my name is Crystal s. My son is , 16 months old. We just found out a few days ago that he has Positional Plagiochephaly. I have known since he was only a week or so old that something was wrong with his head. His first doctor told me it was Cephalahematoma (sp?). His next would tell me to stop worrying, that there was nothing wrong, is was just "slightly abnormal". Finally, at 16 months, his new doctor just diagnosed him. She said at this point she feels it is too late to do anything, but at least gave us the option of seeking treatment (which before I hadn't even known existed). I feel better now having a "name" being put to his condition. I only wish I would have known soon enough to do something months ago. I hope as he grows older, the shape of his head doesn't bother him too greatly. To me, that's just how he is, and always has been. And with his hair now, it is getting a little less noticeable. But anyways, I thought I would introduce myself. )For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Hi and welcome to the group. I see you have received some great replies so I will not repeat them. Please let us know if we can answer any questions. Angie and Jenna(STAR grad) New to the board > > > Hi, my name is Crystal s. My son is , 16 months old. > We just found out a few days ago that he has Positional > Plagiochephaly. I have known since he was only a week or so old > that something was wrong with his head. His first doctor told me it > was Cephalahematoma (sp?). His next would tell me to stop worrying, > that there was nothing wrong, is was just " slightly abnormal " . > Finally, at 16 months, his new doctor just diagnosed him. She said > at this point she feels it is too late to do anything, but at least > gave us the option of seeking treatment (which before I hadn't even > known existed). I feel better now having a " name " being put to his > condition. I only wish I would have known soon enough to do > something months ago. I hope as he grows older, the shape of his > head doesn't bother him too greatly. To me, that's just how he is, > and always has been. And with his hair now, it is getting a little > less noticeable. But anyways, I thought I would introduce > myself. ) > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 ) Again, thank you all for being so kind and welcoming. I guess I do have a couple of questions. I have done some looking around online, and was interested to see if there were any specialists in my area, and I haven't found any. I live in the Metro-Detroit (Michigan) area. Even if I did find one, would I need a referral from my son's doctor? And if I did go to talk to a specialist, would they pressure me into getting treatment done? I still think I would opt not to, but I would like to hear what a specialist has to say. Thanks again! Crystal s Mommy to Danny, 16 months CrysNel@... --- In Plagiocephaly , " Angie Pope " <apope04@c...> wrote: > Hi and welcome to the group. I see you have received some great replies so > I will not repeat them. Please let us know if we can answer any questions. > > Angie and Jenna(STAR grad) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Crystal, Depending on your ins. you may need a referral from your ped. Either way, call your ped's office and ask them who they would refer you to: either a pediatric neurosurgeon or a pediatric cranio-facial specialist. We saw a ped neuro and NO, he did not push the helmet. Most neuro's do not advocate it's use and believe that a child will grow out of the plagio to some extent. It is usually left to the parent to decide what they want to do based on their own degree of happiness/acceptance with their child's current headshape. I don't have any experience with a cranio-facial specialist but one might think that they would be more sensitive to appearance than a neuro. Maybe not, I don't know. The specialists in our area were located at and affiliated with the Children's Hospital; perhaps that is where yours will be too. Good luck! It never hurts to get a 2nd opinion and most likely they will just reassure you, not push the helmet at all. Sue Colin F., 13 mos. STARband grad > > Hi and welcome to the group. I see you have received some great > replies so > > I will not repeat them. Please let us know if we can answer any > questions. > > > > Angie and Jenna(STAR grad) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 Jodi, I live in MA and I went to Dr and I think he's a complete fool. He dismissed everything I had to say and all my concerns. Bearing even looked at my son. My son also has tort and Dr. told me that tort is not a condition that it totally goes away on its own and needs no intervention. Hello???? Anyone with a half a brain knows that anything muscular needs intervention. When i told him all the streching I was doing he said why? I already said it goes away on its own. Your son is fine. I dont know about Dr Proctor. Overall my experience was horrible it was at least a 3 hr wait just to be seen for a 5 min "evaluation". The lab (I'm having a brain freeze on the name-the one down stars that makes the casting and "pillow" is even more horrible. I spent two hundred and something for a pillow that they cut wrong. It's suppose to hold the head neutral. How can the head be neutral if the cut out is crooked-spelling? See someone else if you can. Louise New To the Board Hello! I would like to introduce myself. My name is Jodi and My son is 6 months old. He has a large flat spot on the back of his head. We went up to Dartmouth Hitchcock Medical Center in Lebenon NH for a consultation. They told us to wait it out to see if it gets any better since sleeps on his tummy now.Yesterday we had 's 6 month appointment. The ped. is not satisfied with any changes and wants us to pursue this more. I am looking to see if anyone has gone to the Boston Children's Hospital (Dr. or Dr. Proctor). How was your experience?My issue is that the Hospital they referred us to is 1 1/2 hours if not more to get to and Boston is only about 1/2 hour away. How do I get my ped. to refer us to a different doctor than he suggested?Thanks in advance!For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 Jodi, I live in MA and I went to Dr and I think he's a complete fool. He dismissed everything I had to say and all my concerns. Bearing even looked at my son. My son also has tort and Dr. told me that tort is not a condition that it totally goes away on its own and needs no intervention. Hello???? Anyone with a half a brain knows that anything muscular needs intervention. When i told him all the streching I was doing he said why? I already said it goes away on its own. Your son is fine. I dont know about Dr Proctor. Overall my experience was horrible it was at least a 3 hr wait just to be seen for a 5 min "evaluation". The lab (I'm having a brain freeze on the name-the one down stars that makes the casting and "pillow" is even more horrible. I spent two hundred and something for a pillow that they cut wrong. It's suppose to hold the head neutral. How can the head be neutral if the cut out is crooked-spelling? See someone else if you can. Louise New To the Board Hello! I would like to introduce myself. My name is Jodi and My son is 6 months old. He has a large flat spot on the back of his head. We went up to Dartmouth Hitchcock Medical Center in Lebenon NH for a consultation. They told us to wait it out to see if it gets any better since sleeps on his tummy now.Yesterday we had 's 6 month appointment. The ped. is not satisfied with any changes and wants us to pursue this more. I am looking to see if anyone has gone to the Boston Children's Hospital (Dr. or Dr. Proctor). How was your experience?My issue is that the Hospital they referred us to is 1 1/2 hours if not more to get to and Boston is only about 1/2 hour away. How do I get my ped. to refer us to a different doctor than he suggested?Thanks in advance!For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 Jodi, Hello and welcome. This is such a confusing time, but we all will try and help you stay sane and help you find the best options for you. is in the Mass area and can help you with options. She drove o Conn. to use Cranial Technologies. You can look at thier website and get alot of info. www.cranialtech.com Louise who just posted to you has just searched for a band provider in that area so you can also ask her who she dealt with and what they had to say. I see she already told you about Boston, maybe that is why your doc was sending you somewhere else. Which hospital is your doc recommending, maybe someone has used it before. Post any questions you have, we'll be here for ya. CAROLG > Hello! I would like to introduce myself. My name is Jodi and My son > is 6 months old. He has a large flat spot on the back of his > head. We went up to Dartmouth Hitchcock Medical Center in Lebenon NH > for a consultation. They told us to wait it out to see if it gets any > better since sleeps on his tummy now. > > Yesterday we had 's 6 month appointment. The ped. is not > satisfied with any changes and wants us to pursue this more. > > I am looking to see if anyone has gone to the Boston Children's > Hospital (Dr. or Dr. Proctor). How was your experience? > > My issue is that the Hospital they referred us to is 1 1/2 hours if not > more to get to and Boston is only about 1/2 hour away. > > How do I get my ped. to refer us to a different doctor than he > suggested? > > Thanks in advance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 Jodi, Hello and welcome. This is such a confusing time, but we all will try and help you stay sane and help you find the best options for you. is in the Mass area and can help you with options. She drove o Conn. to use Cranial Technologies. You can look at thier website and get alot of info. www.cranialtech.com Louise who just posted to you has just searched for a band provider in that area so you can also ask her who she dealt with and what they had to say. I see she already told you about Boston, maybe that is why your doc was sending you somewhere else. Which hospital is your doc recommending, maybe someone has used it before. Post any questions you have, we'll be here for ya. CAROLG > Hello! I would like to introduce myself. My name is Jodi and My son > is 6 months old. He has a large flat spot on the back of his > head. We went up to Dartmouth Hitchcock Medical Center in Lebenon NH > for a consultation. They told us to wait it out to see if it gets any > better since sleeps on his tummy now. > > Yesterday we had 's 6 month appointment. The ped. is not > satisfied with any changes and wants us to pursue this more. > > I am looking to see if anyone has gone to the Boston Children's > Hospital (Dr. or Dr. Proctor). How was your experience? > > My issue is that the Hospital they referred us to is 1 1/2 hours if not > more to get to and Boston is only about 1/2 hour away. > > How do I get my ped. to refer us to a different doctor than he > suggested? > > Thanks in advance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hi, We live in MA and saw Dr. Proctor at Children's. He is supportive of banding and gave us the prescription for my son's helmet. He got a STARband from NOPCO (at Children's) and graduated in May. We had a good experience with everyone at Children's. Mommy to Sam 10.5 months(STARband grad)and , 3.5 years > Hello! I would like to introduce myself. My name is Jodi and My son > is 6 months old. He has a large flat spot on the back of his > head. We went up to Dartmouth Hitchcock Medical Center in Lebenon NH > for a consultation. They told us to wait it out to see if it gets any > better since sleeps on his tummy now. > > Yesterday we had 's 6 month appointment. The ped. is not > satisfied with any changes and wants us to pursue this more. > > I am looking to see if anyone has gone to the Boston Children's > Hospital (Dr. or Dr. Proctor). How was your experience? > > My issue is that the Hospital they referred us to is 1 1/2 hours if not > more to get to and Boston is only about 1/2 hour away. > > How do I get my ped. to refer us to a different doctor than he > suggested? > > Thanks in advance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Oh, Dr. Proctor also agreed that Sam had tort and was happy to hear that (at the time) we were in the process of getting him into PT (through Early Intervention) to have it treated. > Jodi, > I live in MA and I went to Dr and I think he's a complete fool. He dismissed everything I had to say and all my concerns. Bearing even looked at my son. My son also has tort and Dr. told me that tort is not a condition that it totally goes away on its own and needs no intervention. Hello???? Anyone with a half a brain knows that anything muscular needs intervention. When i told him all the streching I was doing he said why? I already said it goes away on its own. Your son is fine. I dont know about Dr Proctor. > Overall my experience was horrible it was at least a 3 hr wait just to be seen for a 5 min " evaluation " . The lab (I'm having a brain freeze on the name-the one down stars that makes the casting and " pillow " is even more horrible. I spent two hundred and something for a pillow that they cut wrong. It's suppose to hold the head neutral. How can the head be neutral if the cut out is crooked-spelling? See someone else if you can. Louise > New To the Board > > > Hello! I would like to introduce myself. My name is Jodi and My son > is 6 months old. He has a large flat spot on the back of his > head. We went up to Dartmouth Hitchcock Medical Center in Lebenon NH > for a consultation. They told us to wait it out to see if it gets any > better since sleeps on his tummy now. > > Yesterday we had 's 6 month appointment. The ped. is not > satisfied with any changes and wants us to pursue this more. > > I am looking to see if anyone has gone to the Boston Children's > Hospital (Dr. or Dr. Proctor). How was your experience? > > My issue is that the Hospital they referred us to is 1 1/2 hours if not > more to get to and Boston is only about 1/2 hour away. > > How do I get my ped. to refer us to a different doctor than he > suggested? > > Thanks in advance! > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Tefr2- Who did you see at the Clinton CT? Re: New To the Board Hi Jodi. I live in the Boston area and saw a neurosurgeon at Mass General (he told me my daughter's head would round out on it's own. Then when I was not satisfied with that answer, I took her to see Dr. at Childrens. He said that heads do not round out, that they just look less severe as the child grows. He also said not to bother doing exercises for tort. Lastly, he said that helmets don't help facial assymetry (something that I've learned from here as well as CT is untrue.) Basically, all I got from both specialists was some truths as well as misinformation. Honestly, if I had to do it all over again, I wouldn't have brought my daughter to either doctor. I would have just saved time and made the appointment with CT and gotten a prescription through her pediatrician. My daughter will be 6 months the end of July. You could always make an appointment with whatever helmet place you are thinking about as well as the doctor so you don't waste weeks waiting for an appointment after you confirm her diagnosis. If you do decide to go to CT, they are in Clinton Connecticut...it's about a 2 1/2 hour drive from the Boston area. I just had my daughter casted there. Good luck with your decision. > Hello! I would like to introduce myself. My name is Jodi and My son > is 6 months old. He has a large flat spot on the back of his > head. We went up to Dartmouth Hitchcock Medical Center in Lebenon NH > for a consultation. They told us to wait it out to see if it gets any > better since sleeps on his tummy now.> > Yesterday we had 's 6 month appointment. The ped. is not > satisfied with any changes and wants us to pursue this more. > > I am looking to see if anyone has gone to the Boston Children's > Hospital (Dr. or Dr. Proctor). How was your experience?> > My issue is that the Hospital they referred us to is 1 1/2 hours if not > more to get to and Boston is only about 1/2 hour away. > > How do I get my ped. to refer us to a different doctor than he > suggested?> > Thanks in advance!For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Tefr2- Who did you see at the Clinton CT? Re: New To the Board Hi Jodi. I live in the Boston area and saw a neurosurgeon at Mass General (he told me my daughter's head would round out on it's own. Then when I was not satisfied with that answer, I took her to see Dr. at Childrens. He said that heads do not round out, that they just look less severe as the child grows. He also said not to bother doing exercises for tort. Lastly, he said that helmets don't help facial assymetry (something that I've learned from here as well as CT is untrue.) Basically, all I got from both specialists was some truths as well as misinformation. Honestly, if I had to do it all over again, I wouldn't have brought my daughter to either doctor. I would have just saved time and made the appointment with CT and gotten a prescription through her pediatrician. My daughter will be 6 months the end of July. You could always make an appointment with whatever helmet place you are thinking about as well as the doctor so you don't waste weeks waiting for an appointment after you confirm her diagnosis. If you do decide to go to CT, they are in Clinton Connecticut...it's about a 2 1/2 hour drive from the Boston area. I just had my daughter casted there. Good luck with your decision. > Hello! I would like to introduce myself. My name is Jodi and My son > is 6 months old. He has a large flat spot on the back of his > head. We went up to Dartmouth Hitchcock Medical Center in Lebenon NH > for a consultation. They told us to wait it out to see if it gets any > better since sleeps on his tummy now.> > Yesterday we had 's 6 month appointment. The ped. is not > satisfied with any changes and wants us to pursue this more. > > I am looking to see if anyone has gone to the Boston Children's > Hospital (Dr. or Dr. Proctor). How was your experience?> > My issue is that the Hospital they referred us to is 1 1/2 hours if not > more to get to and Boston is only about 1/2 hour away. > > How do I get my ped. to refer us to a different doctor than he > suggested?> > Thanks in advance!For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Welcome to the group! My best advice would be to listen to (mom to Hannah). LOL! Sue mom to Colin F., 21 mos. STARband grad > Hello! I would like to introduce myself. My name is Jodi and My son > is 6 months old. He has a large flat spot on the back of his > head. We went up to Dartmouth Hitchcock Medical Center in Lebenon NH > for a consultation. They told us to wait it out to see if it gets any > better since sleeps on his tummy now. > > Yesterday we had 's 6 month appointment. The ped. is not > satisfied with any changes and wants us to pursue this more. > > I am looking to see if anyone has gone to the Boston Children's > Hospital (Dr. or Dr. Proctor). How was your experience? > > My issue is that the Hospital they referred us to is 1 1/2 hours if not > more to get to and Boston is only about 1/2 hour away. > > How do I get my ped. to refer us to a different doctor than he > suggested? > > Thanks in advance! Quote Link to comment Share on other sites More sharing options...
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