FW: SF Bay Area Celiac News...February 24

[Guest guest]

Lots of celiac doings coming up: ROCK meeting in the east bay, focus group

Los Gatos, April meetings in Napa, Santa Cruz, and Santa Clara, a celiac

cook-off in June, two celiac summer camps, and a new store in Danville.

There is also information on the latest FDA labeling efforts; be sure to let

them know if the guideline make sense to you.

Also, a request for volunteers to help keep things going. We all have busy

lives, but I hope you will consider helping, even if it's only for a short

time.

Pam

-----Original Message-----

From: Bay Area Celiac List [mailto:BayAreaCeliac@...]

Sent: Sunday, February 25, 2007 5:36 PM

BayAreaCeliac@...

Subject: SF Bay Area Celiac News...February 24

BAY AREA CELIAC NEWS..FEBRUARY 2007

Events on the Calendar:

EAST BAY/TRI-VALLEY ROCK, MARCH 4

Ann Reigelman, areigelman@...

On Sunday, March 4, at 2pm, the Tri-Valley Rock Group

will have a get together at the Walnut Creek home of

Serge and Babka. Everyone please bring a gluten

free dish to share. The Kids love these get togethers!

Please RSVP to Serge and :

roadpir8@... or 988-9573

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GF CEREAL TASTING, LOS GATOS, MARCH 17

AltiPlano Gold invites interested celiacs to participate in a

focus group to sample and critique our newest hot cereal

flavor. AltiPlano Gold, based in San Francisco, manufactures

a line of high fiber, high protein instant hot quinoa cereals.

Our cereals are 100% certified gluten free and vegan. Flavors

include Spiced Apple Raisin, Oaxacan Chocolate, Natural,

Chai Almond and Orange Date. The event will take place

at the Los Gatos Community Center, 208 East Main Street,

Los Gatos, on Saturday, March 17th, 10:30am-12pm. We

request your presence to try our new cereal flavor, fill out

our product questionnaire, and add any other feedback you

may have about the product. Please visit our website to

learn more about our products: http://altiplanogold.com

Please RSVP with name and number of people attending

to christina@... with the word " attend "

in the subject line, or call 415-380-5050. We look forward

to seeing you there!

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SANTA CRUZ, APRIL 7

Pam Newbury 831-423-6904, pknewbury@...

The next meeting of the Santa Cruz Celiac Support Group

will be on Saturday, April 7, at 11am in meeting room 1 at

Dominican Hospital, 1555 Soquel Drive, Santa Cruz.

This month I have invited Deane Bussiere, Dominican

Hospitals Executive Chef, to attend our meeting and

talk about the hospital's gluten free food policies and

his efforts to better serve the celiac community. He

will be stopping in at 12:30, so we will reverse our usual

meeting schedule and have an early potluck brunch,

concluding with the speaker.

Please bring a gluten-free brunch item (and a list of

ingredients or the recipe) to share (optional for those

who are very ill or unfamiliar with the gluten free diet).

The meeting is open to all interested in this topic.

For more information please contact Pam.

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NEW SUPPORT GROUP IN NAPA, APRIL 21

Ann Lowe, 707-224-1469, madlowe@...

Napa Celiacs are now holding quarterly meetings on the

3rd Saturday of the month with leader Ann Lowe.

The next meeting will be on April 21 at 10am, at the Queen

of the Valley Hospital, 1000 Trancas St., Napa. We are

hoping to go from there to our local Raley's store for a tour

of their gluten free goods.

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SANTA CLARA KAISER GROUP APRIL 25

Contact: Barbara Dodson, Barbara.dodson@...

Our next Celiac Support meeting will be Wednesday,

April 25 from 6-8 pm in meeting room A-5 on the first

floor of the Kaiser Medical Office Building, 710 Lawrence

Expressway, Santa Clara. The Medical Office Building is

the large building on the corner at Homestead. We are a

Pediatric GI Specialty Clinic and therefore focus on the

needs of our younger patients and their families. Adults

and anyone interested in Celiac Disease are welcome.

You do not need to be a member or Kaiser to attend.

We welcome your questions! We try to address any

questions submitted prior to our meetings. So far we

have been asked to discuss the proposed Gluten Free

Labeling Law proposed by the FDA. Dr Abramson will

be addressing this issue.

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NATIONAL FOUNDATION for CELIAC AWARENESS

JUNE 8 EVENT

Margaret Fearey Walsh, msfw@...

The Hyatt Regency San Francisco will be hosting the first

San Francisco Bay Area Celiac Cook-Off, sponsored by

the National Foundation for Celiac Awareness, on June 8,

6:30-9:30pm. Ten doctors from ten local hospitals will

compete for the best gluten free recipe. Winner receives

10% of the proceeds from this event. Please join us for

the party: there will be a raffle, music and great food! More

details will be sent later. Check out the NFCA web site to

read about other cooking events around the country:

http://www.celiaccentral.org/

_________________________________________________

New Support Group:

NOVATO (Northern Marin)

Belingheri 415-898-7395, Bel@....

A very small group of Celiacs met at Flour Chylde (Bakery

on Grant Ave with gluten free pastries) on Saturday, Jan 27

to discuss creating a Novato Celiac Support Group. The

discussion focused on educating local restaurants and

grocery stores about Celiac Disease and gluten free products.

If you live in Novato or Northern Marin, we would like to offer

the invitation to join in future meetings and discussions.

If you are interested please contact .

Note: Flour Chyld sells individual sized tortes (chocolate,

vanilla bean, lemon) that are gluten free at the Sunday

Farmer's Market in San , located at the Marin County

Civic Center parking lot; Sunday 8am to 1pm. They also

have a bakery at 850 Grant Ave in Novato, 415-893-7700.

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Camp Info:

Camp Kanata, run by the YMCA, will again be offering a

gluten free week of summer camp, July 8 to 14, for kids

ages 6 to 15. The national Gluten Intolerance Group has

worked with the camp for about 4 years now to provide a

week of carefully prepared gluten-free meals for the campers

who need them. The camp is in Wake Forest, North Carolina,

and you can read more about the GF week at

http://www.ymcatriangle.org/kanata/news.html

Locally, Maureen O'Grady has copies of the camp brochure

and DVD available. Email her at marcianar@...

for a copy. Last year the gluten-free slots filled very quickly,

so do check into now if you're interested.

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" Get On A Mission Of Nutrition " Family Camp in New Mexico

All ages welcome

When: Sunday afternoon, July 1 to Friday after lunch, July 6

Where: Jemez Springs, New Mexico (located in scenic

mountains, about one hour northwest of Albuquerque) at

YMCA Camp Shaver (www.campshaver.org)

Cost: $279 adults and children over age 12; $229 children

ages 5-12; children under 5 are free, includes 15 meals plus

snacks and lodging in cabins (cabins hold up to 8 people) for

5 days

Food: Not only is it gluten-free, it is also organic, healthy,

and catered to other food sensitivities (dairy-free, yeast-free,

egg-free, and soy-free). Please let us know when you register

if you have food sensitivities other than gluten-free so that we

may plan accordingly.

Activities: There are activities for both parents and children,

coordinated by YMCA staff. Some activities include hiking to

dig for fossils and swim in warm springs, archery, riflery, wall

climbing, high ropes, team sports, arts and crafts, etc.

Please call or email me if you have questions: Ashworth,

Camp Coordinator, 804-247-1655, agashworth@....

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New store in Danville offering gluten free products: Green Body

294 A Railroad Ave., Danville, CA 94526, 925-820-3131

We are also looking to offer food products from Natural Food

Works in (www.naturalfoodworks.com) - including fresh

gluten (and Casein in most cases) free pastas, breads, cookies,

brownies, rolls, pizza crusts, and other desserts including

cheesecake (which is quite good by everyone's standards) and

apple pie. All of their foods will also be able to be pre-ordered

through us in order to make the foods more convenient for the

families who would like to enjoy them more frequently than the

drive to allows.

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From the American Celiac Disease Alliance...

ACDA Launches Survey to Assist FDA on Gluten-Free Labeling

The FDA's proposal for labeling products 'gluten-free' was

published on January 23, 2007. The FDA has requested

feedback from consumers on several issues relating to the

gluten-free diet, and how individuals make choices about

gluten-free products.

The American Celiac Disease Alliance (ACDA) is launching

a survey focused on several questions posed by the FDA.

The survey was developed by dietitians with expertise in the

gluten-free diet and who are associated with the Dietitians in

Gluten Intolerance Diseases (DIGID), a specialty subunit of

the American Dietetic Association.

Please take a few moments to complete this very important

survey. The results will be compiled and presented to the

FDA by the ACDA.

To access the survey go to the ACDA website

www.americanceliac.org/news.htm .

Your comments will help the FDA decide what type of GF

labeling will be allowed in the United States. The survey

closes on March 15.

Thank you for being an advocate for celiacs.

About the ACDA

The American Celiac Disease Alliance was established in

March 2003 to provide leadership on public policy issues

affecting those with celiac disease. The non-profit serves

as a national umbrella organization representing all segments

of the celiac community -- research centers, physicians,

patients, food manufacturers, print media, and the service

industry.

More information on the FDA proposal:

The FDA has prepared a series of questions and answers to

help consumers understand the provisions of the proposal.

For a copy go to: http://www.cfsan.fda.gov/~dms/glutqa.html.

For a copy of the gluten-free labeling guidelines go to:

http://www.cfsan.fda.gov/~lrd/fr070123.html.

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Other Local Celiac Contacts:

Oakland

Ellen Switkes, 510-655-0215, ellen@...

Stanford/Palo Alto

Rohlfs, 650-868-2315, krohlfs@...

North Bay R.O.C.K

Iscol, 707-824-5830, iscol@...

Bay Area R.O.C.K.

Velez, 650-216-6405, kelly.velez@...

Berkeley

Schinnerer, 510-524-3774, jamesoutwest@...

San

Hersom, 408-723-0804, susan.hersom@...

Marin

Trudy Verzosa, 415-350-1244, tverzosa@...

Santa

Dr. Chrysa Caulfield, 707-575-9009, DrCaulfield@...

Sacramento

Joan Leforestier 916-487-3459, oscar368@...

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NEED VOLUNTEERS..................

Our BayAreaCeliacs.org web site is still active, providing

the celiac news feed that is also offered on www.celiac.com,

but the local information has not been updated since April

2006 and the site owner is no longer available. If anyone

has an interest in providing a web site for local celiac

information, this could be a very useful resource not only

for us living in the SF Bay area but also for visiting celiacs.

Another need: we no longer have anyone listed as a contact

for the city of San Francisco. While general questions about

celiac issues can be directed to any of the support volunteers,

if there are questions about gluten free resources in the city it

is helpful to talk with those who live there. If anyone is willing

to share email and telephone information and offer this sort of

assistance, please let me know.

Finally, I want to encourage any of you who would enjoy meeting

with other celiacs to organize an informal gathering in your own

neighborhood. Sharing gluten free baked goods would not be

required, nor would a continuing commitment be expected. We

all benefit from personal contacts with those who live gluten free!

Just send me the information to announce in the news.

THANKS!

Martha

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