new member introduction

Posted December 30, 2001 · December 30, 2001

Hey this came from your email addy but it is not you!

j

Posted August 29, 2002 · August 29, 2002

: Welcome to the support list!

You're only 21, so slow down. No need to rush things. If you're already

thin, you should just start with the ON part (Optimal Nutrition). Read the

support list file " CR Made Easy " and start with that. In fact I get the

impression, people are not reading the files, so I'm going to send the CR

Made Easy file to the list once a month. Don't attempt too much at once, or

you'll lose your resolve and stop (as you already did once). Don't rush out

and buy any special fridge/freezers until you are well under way and can

better ascertain if that's what you'll need/want. You do not need to follow

Walford's megameals to the letter. Many of us don't. They're just a guide.

Also, we have many easier to make recipes in the files here on the list.

To access the files, just go to our home page:

/

At the left, click on " files " . Then click on the file you want to read.

Thats all.

Please let us hear from you again.

on 8/29/2002 6:04 AM, alexmatul at alrmatul@... wrote:

> In short: I made a careless attempt to switch to a CRON-diet, wich

> left me with a loss of weight and improved eating habits.

>

> So now it's time to really switch to a CRON regimen. At the moment,

> during the holidays, I will go analyzing my daily foodintake using

> DWIDP 2.0, start cooking megameals and freezing them, planning my

> daily foodintake.

>

> This really looks like a cool and valuable list, I'm glad I've joined

> it.

> Greetings,

> .

Posted August 30, 2002 · August 30, 2002

> : Welcome to the support list!

>

> You're only 21, so slow down.

Well 21 is a fine age to start CR!! Most of the lifespan benefits of

CR, to the extent there are lifespan benefits to human CR, will

adhere to those who started while younger.

> No need to rush things.

I agree with this though. Slow weight loss is better and all that ...

Posted August 31, 2002 · August 31, 2002

I read online that the optimum age to start is in the 20's, since

babies/children/teens need a different diet to fulfill their

daily vitamin and mineral quota. So 21 sounds about perfect

I think mostly it is more difficult for those whose goal is

weightloss, than it is when it comes down to just being healthy. Let

it not be about body image.. or it can ruin you. (not the cr diet.. i

am saying any diet can if you base it on weightlossalone).

Anai

> > : Welcome to the support list!

> >

> > You're only 21, so slow down.

>

> Well 21 is a fine age to start CR!! Most of the lifespan benefits

of

> CR, to the extent there are lifespan benefits to human CR, will

> adhere to those who started while younger.

>

> > No need to rush things.

>

> I agree with this though. Slow weight loss is better and all that

....

Posted July 17, 2003 · July 17, 2003

In a message dated 7/17/2003 7:32:56 AM Eastern Daylight Time, Tripletmom@... writes:

Hello, my name is Colleen and I have 2 year old triplet boys. We

live on the north east side of Lorain County.

Hi Colleen,

My name is Jackie. We live in Ashland Cty but we also have triplets. They are 5, a girl & 2 boys. is nonverbal and has PDD, and has CP and what is dx'd as Intermittent Explosive Disorder (to me resembles traits like AS).

If you are interested I am also on a triplets w/special needs list through MOST (mothers of Supertwins). Let me know if you'd like the address.

Jackie

mommy to (NT), (nonverbal, gfcf diet, PDD, sensory issues), (CP, walker & canes, intermittent explosive disorder) (12/23/97 @ 28wks) and Will (NT)(11/16/00)

Posted July 18, 2003 · July 18, 2003

Hi ,

Welcome to our group! Best wishes for you as you venture into your career helping parents with their children's needs.

Keep in touch...

~n

vbshorty14@... writes:

Hi! I am a new member to this group. I will be starting my final year of college at Ohio University, where I am studying to become a speech pathologist. Currently I live in Akron, working as an ABA therapist. I am working with one family but looking for more work if anyone could use any help until I leave in September.

Posted October 15, 2004 · October 15, 2004

Hi ! Welcome to the list! You sound very busy. I'm sure your 3 preschool children are always on the go! I too have 3 children and my oldest just started kindergarten this year, so I know what it's like to try to constantly keep up with the little ones.

Marotta, mom to Bobby (5, ASD), Ian and Yoli (4 & 1, NT)

----- Original Message -----

From: melissa dlugolinski

Sent: Wednesday, October 13, 2004 11:28 PM

Subject: [ ] new member introduction

Hi, my name is and I'm in Cuyahoga County (North Royalton). I have a 4 yr old daughter named . She is diagnosed as PDD. I also have twin 2 yr olds named and Hailey. I am a very busy stay at home mom who is interested in meeting others for support. I'm looking forward to hearing from the group!!!!\

Posted June 16, 2005 · June 16, 2005

There's a good news/bad news sort of thing here, Marie. The bad news is that

you have RA, the good news is that there are so many new treatments since

your mom was diagnosed. Several new drugs in the TNF-blocking category

include Enbrel and Humira. I have been on them since 6 months into my

diagnosis and I have no deformity except for slightly larger hands and feet

and permanently swollen ankles. If you didn't know me, you probably

wouldn't notice though. I feel fortunate to have been diagnosed in a time

where there are so many treatment possibilities.

Good luck,

> I was just diagnosed, though this was not a shock. My mother has RA

> and was diagnosed in her 40s. I am 40 married for 20+ yrs and have 6

> children. I have had hand feet and hip pain for several years. but

> did not want to admit it. hips are worst. it go to the point where I

> could not go up and down stairs in the morning without much pain.

>

> Although the diagnosis was not a shock I am still very down. It's not

> the pain I am most upset about, my mothers hands and feet are so mis-

> shapen that It hurts to look at them. I really don't want to get

> like that.

>

> Marie

Posted June 17, 2005 · June 17, 2005

Hi Marie - welcome to the group!

I was diagnosed about 2 years ago - and I'm now 45. I have had some of the same worries, as I read that within 10 years of onset, 50% are on disability. I know I can't live on disability and keep my house so that really worried me. I told my doc that and she said, that is old news.

So as my mother has so kindly suggested, "don't worry about what you can't control in your future, it will only makes things worse." As stress I believe definitely impacts this disease. I got divorced, then got diagnosed 4 months later with R.A., diabetes and liver disease. Fortunately, the liver disease is now okay with meds I have taken.

My motto now is to "live each and every day the best you can as you never know what tomorrow will bring."

I'm a planner, so I wish I knew how I'll be feeling in ten years. As maybe I'd do some things now I won't be able to do later. But that isn't possible. So again, I live my the above motto.

And I try to be optimistic and happy as I can be. I rest a lot as I work FT, 5 days a week. So I get tired easy and I can't lift over 5-10 lbs. Sometimes I can barely start my car, and it takes 2 hands or a friend. But it could always be worse, thats my thought anyway. At least I'm able to work, walk, talk, most of the time! So my house is a disaster - that's life with R.A.!!!

My mother who is almost 70 is in better health than me and physically stronger. So she came up on Sat. and helped clean, and ironed half my closet. That was so much help! She is so loving and helpful, I don't know what I will do without her, although sometimes I think I'll be gone before she is. But she has said, she wishes she could switch bodies, as she hates seeing me in this much pain every day. She didn't realize it is a daily battle and that I'm always in some degree of pain. I just have my good days and bad. It basically efffects my wrists and feet the most. I got misdiagnosed for over a year but finally found a good rheumy - that is very important!

Good luck - keep your chin up - you'll be just fine - I've also heard there are new drugs not approved yet by the FDA, one by Bristol Meyers - no I'm not promoting it - my doc just told me as I had asked her if anything new was on the horizon. She said it looks promising but is an infusion.

Sports Rekindle the Rivalries. Sign up for Fantasy Football

Posted June 17, 2005 · June 17, 2005

This really sad when you reply to your own message

But I forgot to mention that the meds out now are so much better than ever before and it prevents joint damage that has inflicted so many other R.A. sufferers who have had this disease for over 7 years. Those drugs weren't available then. I suggest getting a good consult with a really good rheumy. They should be able to help prevent you from getting as bad as your mom.

My mom told me she has a friend with a really crippled hand - but wouldn't take the meds for years - but then got on them and did a lot better - maybe wouldn't have gotten so crippled - ya never know.

They certainly have worked for me! I think Enbrel, Remicade or Humiri are great meds usually coupled with something else to help prevent joint damage. They all act similar, but everyone is different on the effects it has on them it appears, so sometimes it is a trial and error and sometimes you just have bad flare-ups! I've been on all 3 in 2 years, mostly because I didn't want to take time off work to go get my infusion every 8 weeks and like the idea of the self injectables. If only they made a pill!

sunshine <sunshine46977@...> wrote:

Hi Marie - welcome to the group!

I was diagnosed about 2 years ago - and I'm now 45. I have had some of the same worries, as I read that within 10 years of onset, 50% are on disability. I know I can't live on disability and keep my house so that really worried me. I told my doc that and she said, that is old news.

So as my mother has so kindly suggested, "don't worry about what you can't control in your future, it will only makes things worse." As stress I believe definitely impacts this disease. I got divorced, then got diagnosed 4 months later with R.A., diabetes and liver disease. Fortunately, the liver disease is now okay with meds I have taken.

My motto now is to "live each and every day the best you can as you never know what tomorrow will bring."

I'm a planner, so I wish I knew how I'll be feeling in ten years. As maybe I'd do some things now I won't be able to do later. But that isn't possible. So again, I live my the above motto.

And I try to be optimistic and happy as I can be. I rest a lot as I work FT, 5 days a week. So I get tired easy and I can't lift over 5-10 lbs. Sometimes I can barely start my car, and it takes 2 hands or a friend. But it could always be worse, thats my thought anyway. At least I'm able to work, walk, talk, most of the time! So my house is a disaster - that's life with R.A.!!!

My mother who is almost 70 is in better health than me and physically stronger. So she came up on Sat. and helped clean, and ironed half my closet. That was so much help! She is so loving and helpful, I don't know what I will do without her, although sometimes I think I'll be gone before she is. But she has said, she wishes she could switch bodies, as she hates seeing me in this much pain every day. She didn't realize it is a daily battle and that I'm always in some degree of pain. I just have my good days and bad. It basically efffects my wrists and feet the most. I got misdiagnosed for over a year but finally found a good rheumy - that is very important!

Good luck - keep your chin up - you'll be just fine - I've also heard there are new drugs not approved yet by the FDA, one by Bristol Meyers - no I'm not promoting it - my doc just told me as I had asked her if anything new was on the horizon. She said it looks promising but is an infusion.

SportsRekindle the Rivalries. Sign up for Fantasy Football __________________________________________________

Posted June 17, 2005 · June 17, 2005

Hi and welcome to the board. If you don't want to get misshapen like your mother then get to a good rheumatologist who will treat you aggressively. Sometimes it takes a few trials before finding a doctor you feel comfortable with but it is important to have a comfortable relationship. Aggressive treatment can usually give people near normal lives with little or no permanent damage. By ignoring your symptoms for years you have given the disease a good head start but you can still control it with good treatment. God bless.

----- Original Message -----

From: Marie

Rheumatoid Arthritis

Sent: Wednesday, June 15, 2005 11:44 AM

Subject: new member introduction

I was just diagnosed, though this was not a shock. My mother has RA and was diagnosed in her 40s. I am 40 married for 20+ yrs and have 6 children. I have had hand feet and hip pain for several years. but did not want to admit it. hips are worst. it go to the point where I could not go up and down stairs in the morning without much pain. Although the diagnosis was not a shock I am still very down. It's not the pain I am most upset about, my mothers hands and feet are so mis-shapen that It hurts to look at them. I really don't want to get like that.Marie

Posted December 20, 2006 · December 20, 2006

Hi ,

All the remedies that you will read about in the archives would be safe

while breastfeeding. Not so if pregnant but with breastfeeding yes. -Dave

----- Original Message -----

From: Mom2SavNSyd@...<mailto:Mom2SavNSyd@...>

gallstones <mailto:gallstones >

Sent: Wednesday, December 20, 2006 12:47 PM

Subject: New Member Introduction

Hello Everyone,

My name is and last Thursday and this past Sunday I had a

Gallbladder attack. I am 22 and Just had a baby in November. I am wondering

what can I

do to naturally get rid of the gallstones causing the problems? I am

breastfeeding, Is there anything safe to take to get rid of them without

surgery? I

have an appt with a dr tomorrow and I am sure they will say to have surgery

which I do not want to do. Any help would be great. Thanks

Posted December 21, 2006 · December 21, 2006

Had my first gb attacks after the birth of my 4h baby. I did see a DR, but

they did not recommend surgery. Not all DR's will recommend surgery right

away. They drew some blood, and checked my pancreas function - since

everything was fine they didn't do anything further.

I was very fortunate to control my attacks with diet - I ate really healthy,

and I ate all the foods that are good for the gb. I ate fats, but healthy

ones - in fact I ate a whole avocado every day...the DR would not have

recommended that, but they never gave me an attack. Greasy or extremely

spicy foods gave me attacks - spicy soup, green beans cooked spicy, pizza,

etc. I controlled these attacks for about 20 months and lost 60 lbs that I

needed to lose after all those babies. I nursed (and still am nursing that

baby)...so I really didn't want to flush. I ended up doing one at 8 months

postpartum. I did it because my gb started aching, but I was eating

somewhat bad again. I did the Hulda e cleanse minus the stuff for

parasites, I only did the lemon juice, olive oil, and Epsom salts. I saw

what I Thought were a lot of stones, but a later ultrasound showed no

difference, I don't know - maybe I created more??

Then upon getting pregnant with my 5th a few months ago, the attacks started

back - this time there was no reason for it. I wouldn't even need to eat

anything or anything bad and they were relentless - I had 12 in 4 days. I

had to be hospitalized because I got completely jaundiced. My liver was

failing, there was a blockage and my gb was inflamed - I still think I may

have had a touch of pancreatitis, but I don't know. When it gets to that

point, I'm all for taking it out to save the other organs. HOWEVER, in your

case - you've just had 2 attacks....I know they are SO painful. They are

also painful enough to help you eat a healthy diet. I would try that...I

would eat extremely healthy, and eat all the foods that are good for your

gallbladder and liver. I took lecithin with every meal also. I had lemon

juice and apple juice every day - also eat beets. Just do all you can food

wise, and see how that works for you. The DR will tell you no fats, but

honestly you need those fats! Just eat good ones! You never know you may

never have another attack again.

If you want to email me, feel free to write!

Traci

-----Original Message-----

From: gallstones [mailto:gallstones ] On

Behalf Of Mom2SavNSyd@...

Sent: Wednesday, December 20, 2006 3:48 PM

gallstones

Subject: New Member Introduction

Hello Everyone,

My name is and last Thursday and this past Sunday I had a

Gallbladder attack. I am 22 and Just had a baby in November. I am wondering

what can I

do to naturally get rid of the gallstones causing the problems? I am

breastfeeding, Is there anything safe to take to get rid of them without

surgery? I

have an appt with a dr tomorrow and I am sure they will say to have surgery

which I do not want to do. Any help would be great. Thanks

Posted January 4, 2008 · January 4, 2008

Hi All,

Since you asked, I'll introduce myself, too.

I'm a 24-year-old student living in San Francisco, and

was diagnosed with gluten intolerance when I was 18. I

have lived here for the last five and a half years,

and I've found that it's much easier to find food I

can eat here than it was where I lived before

(Northeastern US). I'm really spoiled here, and it can

be difficult to find food when I travel.

I wasn't much of a cook before, but now I cook most of

my own meals. The variety of corn, rice and potato

products from Latin America and Asia available here

makes it pretty easy. I've also started baking in the

last year, using standard recipes but substituting

wheat flour for rice flour. (It usually turns out

pretty well. When I made cookies for a holiday party

lats week, people couldn't tell the difference.)

My little sister (16) was just diagnosed with gluten

intolerance. My father's family all has irritable

bowel that they attribute to lactose intolerance

(which I thought was the problem too, until I

eliminated gluten and could eat lactose again). My

mother is currently recovering from colon cancer

surgery; she and I both suspect that gluten may be a

problem with her. (Can untreated celiac disease lead

to colon cancer?)

I'm also allergic to chicken, and I wonder if it has

anything to do with the fact that they feed chicken

wheat. (Anyone know anything about this?) Also, I'm

wondering if there are degrees of celiac disease,

because a little bit of cross-contamination doesn't

make me sick for days the way it does for some people.

I'm glad to find this group and the useful

information...and also perhaps a chance to share the

frustrations I'm sure we all go through:

" Would you like a cookie? "

" No thanks. "

" Come on, you're too skinny to be on a diet. "

" I'm allergic to wheat. "

" But these cookies aren't whole wheat, they're made

with white flour. "

" White flour is made from wheat. I can't have it. "

" Really! I had no idea. But surely just a little bit

wouldn't hurt... "

And so it goes...

Cheers,

Aidan

Posted January 5, 2008 · January 5, 2008

My quick intro:

Hello! I'm not gluten-intolerant or celiac myself, but my boyfriend

recently realized that he is, and I do most of our cooking and

restaurant-hunting, so it's nice to have some resources!

Y'all have been so helpful -- thanks to all! (Especially to whoever

recommended Zadin. I think it was one of the first emails I got when

I joined the list, and my boyfriend and I were SO EXCITED to go to a

" real " restaurant and not have to interrogate the staff about

ingredients. Not to mention how wonderful the food was!)

--

On Jan 4, 2008 10:20 AM, Aidan Dunn <aidan.dunn@...> wrote:

>

> Hi All,

>

> Since you asked, I'll introduce myself, too.

>

> I'm a 24-year-old student living in San Francisco, and

> was diagnosed with gluten intolerance when I was 18. I

> have lived here for the last five and a half years,

> and I've found that it's much easier to find food I

> can eat here than it was where I lived before

> (Northeastern US). I'm really spoiled here, and it can

> be difficult to find food when I travel.

>

> I wasn't much of a cook before, but now I cook most of

> my own meals. The variety of corn, rice and potato

> products from Latin America and Asia available here

> makes it pretty easy. I've also started baking in the

> last year, using standard recipes but substituting

> wheat flour for rice flour. (It usually turns out

> pretty well. When I made cookies for a holiday party

> lats week, people couldn't tell the difference.)

>

> My little sister (16) was just diagnosed with gluten

> intolerance. My father's family all has irritable

> bowel that they attribute to lactose intolerance

> (which I thought was the problem too, until I

> eliminated gluten and could eat lactose again). My

> mother is currently recovering from colon cancer

> surgery; she and I both suspect that gluten may be a

> problem with her. (Can untreated celiac disease lead

> to colon cancer?)

>

> I'm also allergic to chicken, and I wonder if it has

> anything to do with the fact that they feed chicken

> wheat. (Anyone know anything about this?) Also, I'm

> wondering if there are degrees of celiac disease,

> because a little bit of cross-contamination doesn't

> make me sick for days the way it does for some people.

>

> I'm glad to find this group and the useful

> information...and also perhaps a chance to share the

> frustrations I'm sure we all go through:

> " Would you like a cookie? "

> " No thanks. "

> " Come on, you're too skinny to be on a diet. "

> " I'm allergic to wheat. "

> " But these cookies aren't whole wheat, they're made

> with white flour. "

> " White flour is made from wheat. I can't have it. "

> " Really! I had no idea. But surely just a little bit

> wouldn't hurt... "

>

> And so it goes...

>

> Cheers,

>

> Aidan

>

Posted January 5, 2008 · January 5, 2008

Not sure if I ever intro'd, either!

We had ELIZA food allergy panels run on my 5 year old daughter and my

1 year old son in the fall, and they both showed high reactions to

wheat, gluten, gliaden, etc. I insisted on a Celiac panel for my

daughter in December, and that came back positive. We see the

pediatric gastroenterologist next week, not sure if he'll want to do a

biospy or what. We didn't do a Celiac panel on the baby, but did do a

few tests from enterolab on him and they were positive markers for

Celiac, as well, so I guess its a pretty safe bet....

We've been GF for a few months now (the baby still nurses, so I'm GF

for now, too), and its definitely getting easier. The first few weeks

were quite a challenge, though! Its nice to hear from others who are

dealing with these things.

-

Posted January 5, 2008 · January 5, 2008

Hi I wan't to introduce myself as well.

My name is Shyra and I am 32. I was

diagnosed with Celiacs 3 years ago and being

gluten free has changed my life. I can't believe

how good I feel now.

I moved here from Denver a year ago and

have been using this site to help me find

gluten free restaraunts and bakeries. I appreciate

all of the advise and thanks for checking up

with us newbees.

Shyra

Posted January 5, 2008 · January 5, 2008

From what I've read, eating meat from a wheat-fed animal isn't relevant, doesn't cause a CD reaction.

You say that a little bit of gluten doesn't cause symptoms for you. Some people with CD never have any symptoms. I had no gastrointestinal problems when I was diagnosed. However, silent damage can occur without symptoms.

H.

In a message dated 1/4/08 1:44:15 PM, aidan.dunn@... writes:

I'm also allergic to chicken, and I wonder if it has

anything to do with the fact that they feed chicken

wheat. (Anyone know anything about this?) Also, I'm

wondering if there are degrees of celiac disease,

because a little bit of cross-contamination doesn't

make me sick for days the way it does for some people.

**************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

Posted January 5, 2008 · January 5, 2008

At 57, I had no significant gastro-intestinal issues. I was diagnosed with an autoimmune disease that attacks the liver. Because of this, I had blood panels done as often as three times a week. In the course of those tests, my GI noticed I had nutritional deficiencies. He suggested CD testing (negative) followed by biopsies (positive.) Later, I discovered I was lactose/casein intolerant. (After a year without dairy products, I now can use them.)

CD is, of course, an autoimmune disorder. Those of us with one autoimmune problem need to watch for others.

I live in San Francisco and The Sea Ranch. I wish there were more CD activities in SF -- Berkeley and Palo Alto are just too far away for me.

H.**************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

Posted January 5, 2008 · January 5, 2008

I also have not intro'd yet -

I am 50 and live in Glenview, an area nearby the Oakland Hills -

I was diagnosed 3 years ago now and am also casein/dairy protein

sensitive. Due to the similar molecular structure to gluten and the

fact that I was sick for 20 years pre-diagnosis, my body decided that

casein had to go too -

After going gluten-free, my fibromyalgia, excessive bruising, reflux,

and most tummy issues went away...after going dairy-free a year later,

my adult acne and remaining tummy issues 'miraculously disappeared.'

I am looking forward to meeting more people like me - and learning of

more sources of products/ finding more safe places to eat, too -

Need to read past posts, to try to catch up -

Posted January 6, 2008 · January 6, 2008

I too have been mostly lurking for a few months. (Hi - I used to

live in Glenview too.) I live in the Richmond hills, am 53 and have

been gluten free for about 2 1/2 years. I probably had Celiac since I

was a little girl so by the time it was diagnosed I needed a

wheelchair, couldn't bend my fingers, and was in horrible pain 24/7.

I feel so much better now but still have a ways to go in my recovery.

I also avoid dairy and eggs, though sometimes I let it slide on the

dairy because it is so easy to get protein that way. I also limit soy

due to thyroid issues. I would love to meet other people with Celiac

in the area. So far my usual favorite places to eat out are Cafe

Gratitude & PF Changs. Haven't tried many others.

Maia

Posted June 1, 2008 · June 1, 2008

A warm welcome, Sharon. You betcha you can plan on a long life, as much as

anyone on the planet can. Beware of what you read online, some of the

information you come by is outdated already. When I got diagnosed in '05 I went

to the Merck site and read that I could expect to live about 18 months. What a

shocker that was! And of course it was just very outdated information. My best

source of information has been THIS GROUP. It's a wealth of very current

information, friendly encouragement, empathy and support!

About swallowing the pills. They do come in a tiny, 100-mg. size. You might do

better to take four of those rather than the one horse pill.

in San Francisco

@...: serenitywon@...: Sat, 31 May 2008

17:37:47 +0000Subject: [ ] New member Introduction

G'Morning everyone,My name is Sharon.I am a 40 year old female.I was diagnosed

yesterday with Chronic Luekemia(CML). I have many additional health issues.I

have Diabetis,low cholesterol,chronic Gastritis,IBS,Diverticulosis and Leaky

heart matrial valves. I have had Gastric Bypass surgery and Lapband surgery.I

have malabsorption issues due to this.I am Vit D deficient and have episodes of

anemia when iron infusions are needed.I am often dehydrated as well.I take

medications for all of these issues as well as MANY vitamins and minerals due to

the Gastric Bypass surgery and my absorption issues.So there is a little history

about me.If there are any questions please feel free to ask.My DR has perscribed

Gleevec(400mg) daily and Zyloprim (100mg) daily.My Dr. is concerned that I will

absorb enough of the medication to help.I know virtually nothing about this

condition and am now researching to see what I can learn.I thought this support

group would be a great place to start. I have a terrible time taking

medications.I can't physically swallow a pill larger tahn a tylenol due to my

Lapband and the stoma opening being very tiny to help restrict intake.I haven't

filled the perscription yet and am worried about the pill size.Are these meds

big? What are the side effects others here suffer from due to the meds and/or

condition?I have tons of questions but I will just start here for now.Any info

or literature etc to help me find my way would be wonderful.My Dr. said the word

Luekemia often scares people and they feel it is a life sentence but it is not

the case.Is this true?Can I plan on a long life? I was told not to worry..Is he

placading me?Hope everyone has a great weekend..ThanksSharonS

_________________________________________________________________

Make every e-mail and IM count. Join the i’m Initiative from Microsoft.

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Posted June 1, 2008 · June 1, 2008

Hey Sharon!

Welcome, but sorry you have to join this club.Â I am only 7 months ahead of you

on the diagnosis and sometimes it still doesn't seem real.Â It is, and things

do find their way to a 'new normal.'

Â

I can't say much about Gleevec since I take Sprycel, but keep a journal of

what's going on and how you feel, what you are eating, when you are taking meds

etc.Â It may help you determine what works for you!

Â

We are here to support you on this adventure.Â Feel free to ask anything,

someone usually has a way of finding the info!

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Best wishes for a LONG and happy life!!!

Rhonda

[ ] New member Introduction G'Morning

everyone,My name is Sharon.I am a 40 year old female.I was diagnosed yesterday

with Chronic Luekemia(CML). I have many additional health issues.I have

Diabetis,low cholesterol,chronic Gastritis,IBS,Diverticulosis and Leaky heart

matrial valves. I have had Gastric Bypass surgery and Lapband surgery.I have

malabsorption issues due to this.I am Vit D deficient and have episodes of