new member introduction

Posted June 1, 2008 · June 1, 2008

--

Hi Sharon my name is Esther welcome to the group and sorry you have

to be here but this group will help you with anything you want to

know. I was dx. 18 months ago and i did think it was a death sentence

till i got to this group everyone is so noligable.

as far as the meds go i was nauseous for about 3 months and then it

slowly went away now it happens every once in a while but i took

Zofram for the nausea. I live a normal life i do get tired but not as

much as before dx.the only thing i really hate is the swelling around

my eyes but i'm happy to be alive so that is a small price to pay.You

will be just fine i really don't think about it as much as i used to

but again thank g-d for this group.

Lots of hugs to you

Esther

- In , " serenitywon " <serenitywon@...> wrote:

>

> G'Morning everyone,

> My name is Sharon.I am a 40 year old female.I was diagnosed

> yesterday with Chronic Luekemia(CML). I have many additional health

> issues.I have Diabetis,low cholesterol,chronic

> Gastritis,IBS,Diverticulosis and Leaky heart matrial valves. I have

> had Gastric Bypass surgery and Lapband surgery.I have malabsorption

> issues due to this.I am Vit D deficient and have episodes of anemia

> when iron infusions are needed.I am often dehydrated as well.I

take

> medications for all of these issues as well as MANY vitamins and

> minerals due to the Gastric Bypass surgery and my absorption

> issues.So there is a little history about me.If there are any

> questions please feel free to ask.

> My DR has perscribed Gleevec(400mg) daily and Zyloprim (100mg)

> daily.My Dr. is concerned that I will absorb enough of the

medication

> to help.I know virtually nothing about this condition and am now

> researching to see what I can learn.I thought this support group

> would be a great place to start. I have a terrible time taking

> medications.I can't physically swallow a pill larger tahn a tylenol

> due to my Lapband and the stoma opening being very tiny to help

> restrict intake.I haven't filled the perscription yet and am

worried

> about the pill size.Are these meds big? What are the side effects

> others here suffer from due to the meds and/or condition?

> I have tons of questions but I will just start here for now.Any

> info or literature etc to help me find my way would be wonderful.

> My Dr. said the word Luekemia often scares people and they feel

it

> is a life sentence but it is not the case.Is this true?Can I plan

on

> a long life? I was told not to worry..Is he placading me?

> Hope everyone has a great weekend..

> Thanks

> SharonS

>

Posted June 1, 2008 · June 1, 2008

Rhonda,

Thanks for the warm welcome.That is a really great idea to keep a

journal for everything.Thanks again.

SharonS

- In , Sionito@... wrote:

>

> Hey Sharon!

>

> Welcome, but sorry you have to join this club.Â I am only 7 months

ahead of you on the diagnosis and sometimes it still doesn't seem

real.Â It is, and things do find their way to a 'new normal.'

>

> Â

>

> I can't say much about Gleevec since I take Sprycel, but keep a

journal of what's going on and how you feel, what you are eating,

when you are taking meds etc.Â It may help you determine what works

for you!

>

> Â

>

> We are here to support you on this adventure.Â Feel free to ask

anything, someone usually has a way of finding the info!

>

> Â

>

> Best wishes for a LONG and happy life!!!

>

> Rhonda

>

> [ ] New member

Introduction G'Morning everyone,My name is Sharon.I am a 40

year old female.I was diagnosed yesterday with Chronic Luekemia

(CML). I have many additional health issues.I have Diabetis,low

cholesterol,chronic Gastritis,IBS,Diverticulosis and Leaky heart

matrial valves. I have had Gastric Bypass surgery and Lapband

surgery.I have malabsorption issues due to this.I am Vit D

deficient and have episodes of anemia when iron infusions are

needed.I am often dehydrated as well.I take medications for all of

these issues as well as MANY vitamins and minerals due to the

Gastric Bypass surgery and my absorption issues.So there is a little

history about me.If there are any questions please feel free to

ask.My DR has perscribed Gleevec(400mg) daily and Zyloprim (100mg)

daily.My Dr. is concerned that I will absorb enough of the

medication to help.I know virtually nothing about this condition

and am now researching to see what I can learn.I thought this

support group would be a great place to start. I have a terrible

time taking medications.I can't physically swallow a pill larger

tahn a tylenol due to my Lapband and the stoma opening being very

tiny to help restrict intake.I haven't filled the perscription yet

and am worried about the pill size.Are these meds big? What are the

side effects others here suffer from due to the meds and/or

condition?I have tons of questions but I will just start here for

now.Any info or literature etc to help me find my way would be

wonderful.My Dr. said the word Luekemia often scares people and

they feel it is a life sentence but it is not the case.Is this true?

Can I plan on a long life? I was told not to worry..Is he placading

me?Hope everyone has a great weekend..ThanksSharonS

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Posted June 1, 2008 · June 1, 2008

How nice to hear from someone from the Bay Area. I thought I was the only

one. I live out in Discovery Bay..do you know where that is?

Sharon T

[ ] New member Introduction> > >

> > G'Morning everyone,My name is Sharon.I am a 40 year old female.I was

diagnosed yesterday with Chronic Luekemia(CML). I have many additional

health issues.I have Diabetis,low cholesterol,chronic

Gastritis,IBS,Diverticulosis and Leaky heart matrial valves. I have had

Gastric Bypass surgery and Lapband surgery.I have malabsorption issues due

to this.I am Vit D deficient and have episodes of anemia when iron infusions

are needed.I am often dehydrated as well.I take medications for all of these

issues as well as MANY vitamins and minerals due to the Gastric Bypass

surgery and my absorption issues.So there is a little history about me.If

there are any questions please feel free to ask.My DR has perscribed

Gleevec(400mg) daily and Zyloprim (100mg) daily.My Dr. is concerned that I

will absorb enough of the medication to help.I know virtually nothing about

this condition and am now researching to see what I can learn.I thought this

support group would be a great place to start. I have a terrible time taking

medications.I can't physically swallow a pill larger tahn a tylenol due to

my Lapband and the stoma opening being very tiny to help restrict intake.I

haven't filled the perscription yet and am worried about the pill size.Are

these meds big? What are the side effects others here suffer from due to the

meds and/or condition?I have tons of questions but I will just start here

for now.Any info or literature etc to help me find my way would be

wonderful.My Dr. said the word Luekemia often scares people and they feel it

is a life sentence but it is not the case.Is this true?Can I plan on a long

life? I was told not to worry..Is he placading me?Hope everyone has a great

weekend..ThanksSharonS > > > > > > >

__________________________________________________________> Make every

e-mail and IM count. Join the i'm Initiative from Microsoft.>

http://im.live.com/Messenger/IM/Join/Default.aspx?source=EML_WL_ MakeCount>

>

Posted June 1, 2008 · June 1, 2008

Hi Sharon,

Welcome to the group.

You will find in us a warm and very knowledgeable group. Ask questions and

we will answer them. Even if the questions seem silly, ask and we will

respond.

Your doctor is correct. Newly diagnosed CML patients can expect to live a

full life. 85% of all newly diagnosed patients can expect to achieve a

Complete Cytogenic Response within 18 months of starting Gleevec. Nobody

dies. For the remaining 15% who don't do well on Gleevec, there are several

new drugs that work where Gleevec doesn't. The future is great. I was

diagnosed in 1999 and I'm here today to talk about it.

I know two CML patients who have had gastric bypass and they continue to do

well on Gleevec. The 400 mg pill is scored so you can cut them in half

easily. Your best solution would be to get a prescription for the 100 mg

pills. They are very easy to take.

Good luck.

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.5 log reduction Jan/08

3.6 log reduction Apr/08

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of

serenitywon

Sent: May 31, 2008 1:38 PM

Subject: [ ] New member Introduction

G'Morning everyone,

My name is Sharon.I am a 40 year old female.I was diagnosed

yesterday with Chronic Luekemia(CML). I have many additional health

issues.I have Diabetis,low cholesterol,chronic

Gastritis,IBS,Diverticulosis and Leaky heart matrial valves. I have

had Gastric Bypass surgery and Lapband surgery.I have malabsorption

issues due to this.I am Vit D deficient and have episodes of anemia

when iron infusions are needed.I am often dehydrated as well.I take

medications for all of these issues as well as MANY vitamins and

minerals due to the Gastric Bypass surgery and my absorption

issues.So there is a little history about me.If there are any

questions please feel free to ask.

My DR has perscribed Gleevec(400mg) daily and Zyloprim (100mg)

daily.My Dr. is concerned that I will absorb enough of the medication

to help.I know virtually nothing about this condition and am now

researching to see what I can learn.I thought this support group

would be a great place to start. I have a terrible time taking

medications.I can't physically swallow a pill larger tahn a tylenol

due to my Lapband and the stoma opening being very tiny to help

restrict intake.I haven't filled the perscription yet and am worried

about the pill size.Are these meds big? What are the side effects

others here suffer from due to the meds and/or condition?

I have tons of questions but I will just start here for now.Any

info or literature etc to help me find my way would be wonderful.

My Dr. said the word Luekemia often scares people and they feel it

is a life sentence but it is not the case.Is this true?Can I plan on

a long life? I was told not to worry..Is he placading me?

Hope everyone has a great weekend..

Thanks

SharonS

Posted June 1, 2008 · June 1, 2008

Hi Sharon,

Welcome home and to our family. I just passed my 1

year mark. I am confused that they gave you the

diagnosis but didn't start you immediately on gleevec,

the same day. The 100 mg are tiny and sound like a

good idea for you. For some reason the 400 mg is

easier on my stomach than when I took 4 of the 100mg.

Most doctors are not cml specialists and even if your

doc is...you have to be your own advocate- this group

will be a big help in answering questions and

eductaing you.

Hang in there girl..everyday above the ground is a

great day!!! Take good care.

Chi

--- Tammy Ferns <tammy@...> wrote:

> Hi Sharon,

> I've been here about 7 months now. This group has

> been a great source of

> information and friendship.

> Tammy

>

> _____

>

> From:

> [mailto: ] On Behalf Of

> serenitywon

> Sent: Saturday, May 31, 2008 1:38 PM

>

> Subject: [ ] New member Introduction

>

> G'Morning everyone,

> My name is Sharon.I am a 40 year old female.I was

> diagnosed

> yesterday with Chronic Luekemia(CML). I have many

> additional health

> issues.I have Diabetis,low cholesterol,chronic

> Gastritis,IBS,Diverticulosis and Leaky heart matrial

> valves. I have

> had Gastric Bypass surgery and Lapband surgery.I

> have malabsorption

> issues due to this.I am Vit D deficient and have

> episodes of anemia

> when iron infusions are needed.I am often dehydrated

> as well.I take

> medications for all of these issues as well as MANY

> vitamins and

> minerals due to the Gastric Bypass surgery and my

> absorption

> issues.So there is a little history about me.If

> there are any

> questions please feel free to ask.

> My DR has perscribed Gleevec(400mg) daily and

> Zyloprim (100mg)

> daily.My Dr. is concerned that I will absorb enough

> of the medication

> to help.I know virtually nothing about this

> condition and am now

> researching to see what I can learn.I thought this

> support group

> would be a great place to start. I have a terrible

> time taking

> medications.I can't physically swallow a pill larger

> tahn a tylenol

> due to my Lapband and the stoma opening being very

> tiny to help

> restrict intake.I haven't filled the perscription

> yet and am worried

> about the pill size.Are these meds big? What are the

> side effects

> others here suffer from due to the meds and/or

> condition?

> I have tons of questions but I will just start here

> for now.Any

> info or literature etc to help me find my way would

> be wonderful.

> My Dr. said the word Luekemia often scares people

> and they feel it

> is a life sentence but it is not the case.Is this

> true?Can I plan on

> a long life? I was told not to worry..Is he

> placading me?

> Hope everyone has a great weekend..

> Thanks

> SharonS

>

> [Non-text portions of this message have been

> removed]

>

Posted June 1, 2008 · June 1, 2008

I sure do! I write for the Contra Costa Times!

From: onthewtr@...

Date: Sat, 31 May 2008 20:46:52 -0700

Subject: RE: [ ] New member Introduction