Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Interesting! I've been wondering if there was anyone else out there nursing baby-celiacs. Doesn't seem like very many find out before they have weaned. I never really been told that I needed to be GF for the baby, actually, but I've heard of enough moms eliminating one thing or another that their babies were allergic to over the years that it just seemed like the logical thing to do. My kids don't really have classical CD symptoms (who knows when they would have been diagnosed if we hadn't done the allergy testing), so I can't tell when we slip up, which is both frustrating and a blessing, I suppose. Also, I figure I've got quite a few years of GF cooking for my kids ahead of me, so I might as well live it for awhile so that I understand it from the inside, as much as I can anyway. How come you still eat GF, if you don't mind me asking? I really haven't noticed any difference in myself since going GF, and I sometimes fantasize about the pastries that I could sneak off to eat when my little guy eventually weans... - On Jan 5, 2008 10:55 PM, Pam Newbury <pknewbury@...> wrote: > > > > I too ate gluten-free while I nursed my boys; I found out the hard way that > gluten in my breast-milk made my son sick. I'm curious where you heard that > you should eat GF while nursing; I still hear conflicting advice about > gluten in breast-milk. I still eat GF. > > Pam > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Hello, I'm new to the list. I live in Mountain View, and am currently nursing my one-year-old daughter. I also found out the hard way that she's allergic to wheat, so now we're both gluten free. I haven't done any testing on her, but strongly suspect celiac for both her and myself. For the first 4-5 months or so, I was so sure that I didn't have any issues (no symptoms, didn't notice a difference when I went gf, didn't notice anything when I gorged on bread 6 weeks later to test the allergy in my daughter), but then read an article http://healthy-family.org/caryn/289 and suddenly little pieces came together in my head, and now I'm almost certain I'm celiac as well. On Jan 5, 2008 11:36 PM, <beznadan@...> wrote: Interesting! I've been wondering if there was anyone else out there nursing baby-celiacs. Doesn't seem like very many find out before they have weaned. I never really been told that I needed to be GF for the baby, actually, but I've heard of enough moms eliminating one thing or another that their babies were allergic to over the years that it just seemed like the logical thing to do. My kids don't really have classical CD symptoms (who knows when they would have been diagnosed if we hadn't done the allergy testing), so I can't tell when we slip up, which is both frustrating and a blessing, I suppose. Also, I figure I've got quite a few years of GF cooking for my kids ahead of me, so I might as well live it for awhile so that I understand it from the inside, as much as I can anyway. How come you still eat GF, if you don't mind me asking? I really haven't noticed any difference in myself since going GF, and I sometimes fantasize about the pastries that I could sneak off to eat when my little guy eventually weans... - On Jan 5, 2008 10:55 PM, Pam Newbury <pknewbury@...> wrote: > > > > I too ate gluten-free while I nursed my boys; I found out the hard way that > gluten in my breast-milk made my son sick. I'm curious where you heard that > you should eat GF while nursing; I still hear conflicting advice about > gluten in breast-milk. I still eat GF. > > Pam > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Hi-- I too went gluten free while nursing my second daughter, after my first daughter was diagnosed with celiac and I decided not to take chances with my second one. I had a long conversation with Dr. Gray at the Stanford Celiac Conference about whether or not it was necessary to go gf while nursing, . His view was that gluten does pass through breast milk, yet there are also antibodies in breast milk that (usually) keep an infant from getting ill. In any case, I chose to be extra careful. In fact I have now been diagnosed with celiac too, and I'm keeping both of my other daughters gluten free from birth. My first daughter got so deathly ill that I prefer not to take chances with the other two. We eat more healthily than almost anyone else I know, anyway. in SF -----Original Message----- From: on behalf of Pam Newbury Sent: Sat 1/5/2008 10:55 PM Subject: [ ] Nursing gluten-free I too ate gluten-free while I nursed my boys; I found out the hard way that gluten in my breast-milk made my son sick. I'm curious where you heard that you should eat GF while nursing; I still hear conflicting advice about gluten in breast-milk. I still eat GF. Pam From: [mailto: ] On Behalf Of Sent: Friday, January 04, 2008 8:14 PM Subject: Re: [ ] new member introduction Not sure if I ever intro'd, either! We had ELIZA food allergy panels run on my 5 year old daughter and my 1 year old son in the fall, and they both showed high reactions to wheat, gluten, gliaden, etc. I insisted on a Celiac panel for my daughter in December, and that came back positive. We see the pediatric gastroenterologist next week, not sure if he'll want to do a biospy or what. We didn't do a Celiac panel on the baby, but did do a few tests from enterolab on him and they were positive markers for Celiac, as well, so I guess its a pretty safe bet.... We've been GF for a few months now (the baby still nurses, so I'm GF for now, too), and its definitely getting easier. The first few weeks were quite a challenge, though! Its nice to hear from others who are dealing with these things. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Hi, I'm fairly new to the list too. I'm from Hillsborough.Diagnosed two years ago. I'm 43. My son also appears to be celiac.I figured it out myself after 6 miscarriages and other symptoms. Drs said definitely Crohn's and a very bad case. Now after two years and ups and downs figuring it out it seems I only have very mild crohn's - that only seems to flare with gluten. If I get gluten for mutliple days (has happened a few times even tho I'm careful) I get a horrible auto-immine flare.Bron----- Original Message -----From: < > < >Sent: Sun Jan 06 09:37:50 2008Subject: Re: [ ] Nursing gluten-freeHello, I'm new to the list. I live in Mountain View, and am currently nursing my one-year-old daughter. I also found out the hard way that she's allergic to wheat, so now we're both gluten free. I haven't done any testing on her, but strongly suspect celiac for both her and myself. For the first 4-5 months or so, I was so sure that I didn't have any issues (no symptoms, didn't notice a difference when I went gf, didn't notice anything when I gorged on bread 6 weeks later to test the allergy in my daughter), but then read an article http://healthy-family.org/caryn/289 and suddenly little pieces came together in my head, and now I'm almost certain I'm celiac as well.On Jan 5, 2008 11:36 PM, <beznadan@...> wrote: Interesting! I've been wondering if there was anyone else out there nursing baby-celiacs. Doesn't seem like very many find out before they have weaned. I never really been told that I needed to be GF for the baby, actually, but I've heard of enough moms eliminating one thing or another that their babies were allergic to over the years that it just seemed like the logical thing to do. My kids don't really have classical CD symptoms (who knows when they would have been diagnosed if we hadn't done the allergy testing), so I can't tell when we slip up, which is both frustrating and a blessing, I suppose. Also, I figure I've got quite a few years of GF cooking for my kids ahead of me, so I might as well live it for awhile so that I understand it from the inside, as much as I can anyway. How come you still eat GF, if you don't mind me asking? I really haven't noticed any difference in myself since going GF, and I sometimes fantasize about the pastries that I could sneak off to eat when my little guy eventually weans... - On Jan 5, 2008 10:55 PM, Pam Newbury <pknewbury@... <mailto:pknewbury%40earthlink.net> > wrote: > > > > I too ate gluten-free while I nursed my boys; I found out the hard way that > gluten in my breast-milk made my son sick. I'm curious where you heard that > you should eat GF while nursing; I still hear conflicting advice about > gluten in breast-milk. I still eat GF. > > Pam > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Hi Bron- My journey led to identifying my gluten intolerance after 5 miscarriages in 2 years (no live births yet). During the 5th m/c I went to see a reproductive immunologist who did a slew of tests and determined I had a whole bunch of autoimmune issues, some inherited. I took those results, plus a bunch of other tests run by other doctors previously and was driven to determine the source of my autoimmune issues - and all roads led to gluten intolerance (maybe celiac - I get biopsy results tomorrow). Only then did I realize that for 39 year's I've had GI issues - it's sad how we can think something so lousy is " normal " because we've lived with it all of our lives. When I told my parents my discovery my mom told me that when I was a baby I was very colicky, could not keep down wheat and had very soft stools for a long time. So I'm sure I've been suffering from this since birth (back in the '60's doctors told parents to start feeding their babies wheat cereal at 6 weeks - and that was when I started throwing it back up and not digesting whatever managed to stay down). Glad to hear your Crohn's can be minimized w/ a GF diet. I'm curious as to whether you had success carrying to term after your diagnosis. I know this is difficult stuff to discuss so if you'd rather not publicly please email me personally if you're up to it - if not, I understand. I am facing a difficult decision this week w/ my treatment plan (whether to go ahead with a scary and expensive treatment which may help temporarily reduce my natural killer cell (NK) flare - prescribed before I knew I was gluten intolerant, or skip it since it is likely my NK power may be reduced now that I am GF) and your experience may be a good data point for me. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 As far as Nursing with allergies and intolerances…… I was GF before I had my kids and so was nursing them GF anyway. They have both been GF since birth because our house is GF. Some MD may say that I should have introduced them to gluten at 1 or 2, but I chose to keep them GF because #1 I did not any adverse reactions to effect their development, and #2 I wanted to wait until they were old enough to vocalize their feelings and symptoms if we should introduce it…..my personal opinions and choice. Besides that…My son tested at 18 mo as positive (maybe falsely) for wheat allergy even though he had not had wheat. As for breast feeding… I breast fed my son who had prolific spitting up (not really colicky) until he was about 1 year old. In hind sight it was probably an allergy to soy and dairy….From me?...could be !!!! I could ‘tolerate’ those foods back then (could eat them, but I did have issues that I did not realize were soy & dairy – migraines, acne etc..). My son always had eczema that we know now was definitely dairy allergy, but MD’s seem to think it is ‘typical’ for kids to have eczema and just treat topically. With my daughter, I was still a dairy-aholoic ! She did have spit up spells, but not like my son, and she did not have any colic. When she was about 4 months old, I developed a severe dairy reaction/ intolerance and was covered in hives. When I would eat dairy I would get all the typical ‘intolerance’ reactions…gas, soft stool, cramping, migraine, cancer sores or blisters in my mouth…etc.. Around the same times, my daughter (still only breast fed-no formula) would also have HUGE vomiting that was green, and get some red eczema. The MD was very concerned and ran GI x-rays – found nothing. When I stopped eating all dairy – she stopped throwing up !!! My conclusion and concern - While I hear that we pass ‘good’ antibodies to our babies for immunity and infections…..who has studied or can tell me if we can also pass the ‘bad’ antibodies and intolerances, or is that simply our genetics coming out??? My husband has 0 food allergies and intolerances, yet my kids have so many…gluten, dairy, soy, nuts. Is that due to my genes, or breastfeeding, or the crappy environment weakening our babies ? Sure makes me want to read more about studies on breastfeeding. Eileen From: [mailto: ] On Behalf Of Bronwyn Syiek Sent: Sunday, January 06, 2008 8:20 PM Subject: Re: [ ] Nursing gluten-free Hi, I'm fairly new to the list too. I'm from Hillsborough. Diagnosed two years ago. I'm 43. My son also appears to be celiac. I figured it out myself after 6 miscarriages and other symptoms. Drs said definitely Crohn's and a very bad case. Now after two years and ups and downs figuring it out it seems I only have very mild crohn's - that only seems to flare with gluten. If I get gluten for mutliple days (has happened a few times even tho I'm careful) I get a horrible auto-immine flare. Bron ----- Original Message ----- From: < > < > Sent: Sun Jan 06 09:37:50 2008 Subject: Re: [ ] Nursing gluten-free Hello, I'm new to the list. I live in Mountain View, and am currently nursing my one-year-old daughter. I also found out the hard way that she's allergic to wheat, so now we're both gluten free. I haven't done any testing on her, but strongly suspect celiac for both her and myself. For the first 4-5 months or so, I was so sure that I didn't have any issues (no symptoms, didn't notice a difference when I went gf, didn't notice anything when I gorged on bread 6 weeks later to test the allergy in my daughter), but then read an article http://healthy-family.org/caryn/289 and suddenly little pieces came together in my head, and now I'm almost certain I'm celiac as well. On Jan 5, 2008 11:36 PM, <beznadangmail> wrote: Interesting! I've been wondering if there was anyone else out there nursing baby-celiacs. Doesn't seem like very many find out before they have weaned. I never really been told that I needed to be GF for the baby, actually, but I've heard of enough moms eliminating one thing or another that their babies were allergic to over the years that it just seemed like the logical thing to do. My kids don't really have classical CD symptoms (who knows when they would have been diagnosed if we hadn't done the allergy testing), so I can't tell when we slip up, which is both frustrating and a blessing, I suppose. Also, I figure I've got quite a few years of GF cooking for my kids ahead of me, so I might as well live it for awhile so that I understand it from the inside, as much as I can anyway. How come you still eat GF, if you don't mind me asking? I really haven't noticed any difference in myself since going GF, and I sometimes fantasize about the pastries that I could sneak off to eat when my little guy eventually weans... - On Jan 5, 2008 10:55 PM, Pam Newbury <pknewburyearthlink (DOT) net <mailto:pknewbury%40earthlink.net> > wrote: > > > > I too ate gluten-free while I nursed my boys; I found out the hard way that > gluten in my breast-milk made my son sick. I'm curious where you heard that > you should eat GF while nursing; I still hear conflicting advice about > gluten in breast-milk. I still eat GF. > > Pam > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 http://www.americanscientist.org/template/AssetDetail/assetid/54436?fulltext=true & print=yes#54484This link was recently posted on another list I'm on. It's not about gluten specifically, but rather how food allergies begin in a baby. Also, have you heard of leaky gut? My personal theory is that damage to my own intestines caused by gluten created a leaky gut, so I passed on tons of food particles, as well as antibodies to food particles to DD before her system was ready for them. Now she appears to be allergic to a ton of stuff, and I'm working on healing my own gut to minimize the chances of passing on more allergies - to her or to future children! Mountain ViewOn Jan 7, 2008 9:15 AM, Groff <megroff01@...> wrote: As far as Nursing with allergies and intolerances…… I was GF before I had my kids and so was nursing them GF anyway. They have both been GF since birth because our house is GF. Some MD may say that I should have introduced them to gluten at 1 or 2, but I chose to keep them GF because #1 I did not any adverse reactions to effect their development, and #2 I wanted to wait until they were old enough to vocalize their feelings and symptoms if we should introduce it…..my personal opinions and choice. Besides that…My son tested at 18 mo as positive (maybe falsely) for wheat allergy even though he had not had wheat. As for breast feeding… I breast fed my son who had prolific spitting up (not really colicky) until he was about 1 year old. In hind sight it was probably an allergy to soy and dairy….From me?...could be !!!! I could 'tolerate' those foods back then (could eat them, but I did have issues that I did not realize were soy & dairy – migraines, acne etc..). My son always had eczema that we know now was definitely dairy allergy, but MD's seem to think it is 'typical' for kids to have eczema and just treat topically. With my daughter, I was still a dairy-aholoic ! She did have spit up spells, but not like my son, and she did not have any colic. When she was about 4 months old, I developed a severe dairy reaction/ intolerance and was covered in hives. When I would eat dairy I would get all the typical 'intolerance' reactions…gas, soft stool, cramping, migraine, cancer sores or blisters in my mouth…etc.. Around the same times, my daughter (still only breast fed-no formula) would also have HUGE vomiting that was green, and get some red eczema. The MD was very concerned and ran GI x-rays – found nothing. When I stopped eating all dairy – she stopped throwing up !!! My conclusion and concern - While I hear that we pass 'good' antibodies to our babies for immunity and infections…..who has studied or can tell me if we can also pass the 'bad' antibodies and intolerances, or is that simply our genetics coming out??? My husband has 0 food allergies and intolerances, yet my kids have so many…gluten, dairy, soy, nuts. Is that due to my genes, or breastfeeding, or the crappy environment weakening our babies ? Sure makes me want to read more about studies on breastfeeding. Eileen From: [mailto: ] On Behalf Of Bronwyn Syiek Sent: Sunday, January 06, 2008 8:20 PM Subject: Re: [ ] Nursing gluten-free Hi, I'm fairly new to the list too. I'm from Hillsborough. Diagnosed two years ago. I'm 43. My son also appears to be celiac. I figured it out myself after 6 miscarriages and other symptoms. Drs said definitely Crohn's and a very bad case. Now after two years and ups and downs figuring it out it seems I only have very mild crohn's - that only seems to flare with gluten. If I get gluten for mutliple days (has happened a few times even tho I'm careful) I get a horrible auto-immine flare. Bron ----- Original Message ----- From: < > < > Sent: Sun Jan 06 09:37:50 2008 Subject: Re: [ ] Nursing gluten-free Hello, I'm new to the list. I live in Mountain View, and am currently nursing my one-year-old daughter. I also found out the hard way that she's allergic to wheat, so now we're both gluten free. I haven't done any testing on her, but strongly suspect celiac for both her and myself. For the first 4-5 months or so, I was so sure that I didn't have any issues (no symptoms, didn't notice a difference when I went gf, didn't notice anything when I gorged on bread 6 weeks later to test the allergy in my daughter), but then read an article http://healthy-family.org/caryn/289 and suddenly little pieces came together in my head, and now I'm almost certain I'm celiac as well. On Jan 5, 2008 11:36 PM, <beznadan@...> wrote: Interesting! I've been wondering if there was anyone else out there nursing baby-celiacs. Doesn't seem like very many find out before they have weaned. I never really been told that I needed to be GF for the baby, actually, but I've heard of enough moms eliminating one thing or another that their babies were allergic to over the years that it just seemed like the logical thing to do. My kids don't really have classical CD symptoms (who knows when they would have been diagnosed if we hadn't done the allergy testing), so I can't tell when we slip up, which is both frustrating and a blessing, I suppose. Also, I figure I've got quite a few years of GF cooking for my kids ahead of me, so I might as well live it for awhile so that I understand it from the inside, as much as I can anyway. How come you still eat GF, if you don't mind me asking? I really haven't noticed any difference in myself since going GF, and I sometimes fantasize about the pastries that I could sneak off to eat when my little guy eventually weans... - On Jan 5, 2008 10:55 PM, Pam Newbury <pknewbury@... <mailto:pknewbury%40earthlink.net> > wrote: > > > > I too ate gluten-free while I nursed my boys; I found out the hard way that > gluten in my breast-milk made my son sick. I'm curious where you heard that > you should eat GF while nursing; I still hear conflicting advice about > gluten in breast-milk. I still eat GF. > > Pam > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Thanks ! Very interesting reading. E From: [mailto: ] On Behalf Of Weiner Sent: Monday, January 07, 2008 9:57 AM Subject: Re: [ ] Nursing gluten-free http://www.americanscientist.org/template/AssetDetail/assetid/54436?fulltext=true & print=yes#54484 This link was recently posted on another list I'm on. It's not about gluten specifically, but rather how food allergies begin in a baby. Also, have you heard of leaky gut? My personal theory is that damage to my own intestines caused by gluten created a leaky gut, so I passed on tons of food particles, as well as antibodies to food particles to DD before her system was ready for them. Now she appears to be allergic to a ton of stuff, and I'm working on healing my own gut to minimize the chances of passing on more allergies - to her or to future children! Mountain View On Jan 7, 2008 9:15 AM, Groff <megroff01comcast (DOT) net> wrote: As far as Nursing with allergies and intolerances…… I was GF before I had my kids and so was nursing them GF anyway. They have both been GF since birth because our house is GF. Some MD may say that I should have introduced them to gluten at 1 or 2, but I chose to keep them GF because #1 I did not any adverse reactions to effect their development, and #2 I wanted to wait until they were old enough to vocalize their feelings and symptoms if we should introduce it…..my personal opinions and choice. Besides that…My son tested at 18 mo as positive (maybe falsely) for wheat allergy even though he had not had wheat. As for breast feeding… I breast fed my son who had prolific spitting up (not really colicky) until he was about 1 year old. In hind sight it was probably an allergy to soy and dairy….From me?...could be !!!! I could 'tolerate' those foods back then (could eat them, but I did have issues that I did not realize were soy & dairy – migraines, acne etc..). My son always had eczema that we know now was definitely dairy allergy, but MD's seem to think it is 'typical' for kids to have eczema and just treat topically. With my daughter, I was still a dairy-aholoic ! She did have spit up spells, but not like my son, and she did not have any colic. When she was about 4 months old, I developed a severe dairy reaction/ intolerance and was covered in hives. When I would eat dairy I would get all the typical 'intolerance' reactions…gas, soft stool, cramping, migraine, cancer sores or blisters in my mouth…etc.. Around the same times, my daughter (still only breast fed-no formula) would also have HUGE vomiting that was green, and get some red eczema. The MD was very concerned and ran GI x-rays – found nothing. When I stopped eating all dairy – she stopped throwing up !!! My conclusion and concern - While I hear that we pass 'good' antibodies to our babies for immunity and infections…..who has studied or can tell me if we can also pass the 'bad' antibodies and intolerances, or is that simply our genetics coming out??? My husband has 0 food allergies and intolerances, yet my kids have so many…gluten, dairy, soy, nuts. Is that due to my genes, or breastfeeding, or the crappy environment weakening our babies ? Sure makes me want to read more about studies on breastfeeding. Eileen From: [mailto: ] On Behalf Of Bronwyn Syiek Sent: Sunday, January 06, 2008 8:20 PM Subject: Re: [ ] Nursing gluten-free Hi, I'm fairly new to the list too. I'm from Hillsborough. Diagnosed two years ago. I'm 43. My son also appears to be celiac. I figured it out myself after 6 miscarriages and other symptoms. Drs said definitely Crohn's and a very bad case. Now after two years and ups and downs figuring it out it seems I only have very mild crohn's - that only seems to flare with gluten. If I get gluten for mutliple days (has happened a few times even tho I'm careful) I get a horrible auto-immine flare. Bron ----- Original Message ----- From: < > < > Sent: Sun Jan 06 09:37:50 2008 Subject: Re: [ ] Nursing gluten-free Hello, I'm new to the list. I live in Mountain View, and am currently nursing my one-year-old daughter. I also found out the hard way that she's allergic to wheat, so now we're both gluten free. I haven't done any testing on her, but strongly suspect celiac for both her and myself. For the first 4-5 months or so, I was so sure that I didn't have any issues (no symptoms, didn't notice a difference when I went gf, didn't notice anything when I gorged on bread 6 weeks later to test the allergy in my daughter), but then read an article http://healthy-family.org/caryn/289 and suddenly little pieces came together in my head, and now I'm almost certain I'm celiac as well. On Jan 5, 2008 11:36 PM, <beznadangmail> wrote: Interesting! I've been wondering if there was anyone else out there nursing baby-celiacs. Doesn't seem like very many find out before they have weaned. I never really been told that I needed to be GF for the baby, actually, but I've heard of enough moms eliminating one thing or another that their babies were allergic to over the years that it just seemed like the logical thing to do. My kids don't really have classical CD symptoms (who knows when they would have been diagnosed if we hadn't done the allergy testing), so I can't tell when we slip up, which is both frustrating and a blessing, I suppose. Also, I figure I've got quite a few years of GF cooking for my kids ahead of me, so I might as well live it for awhile so that I understand it from the inside, as much as I can anyway. How come you still eat GF, if you don't mind me asking? I really haven't noticed any difference in myself since going GF, and I sometimes fantasize about the pastries that I could sneak off to eat when my little guy eventually weans... - On Jan 5, 2008 10:55 PM, Pam Newbury <pknewburyearthlink (DOT) net <mailto:pknewbury%40earthlink.net> > wrote: > > > > I too ate gluten-free while I nursed my boys; I found out the hard way that > gluten in my breast-milk made my son sick. I'm curious where you heard that > you should eat GF while nursing; I still hear conflicting advice about > gluten in breast-milk. I still eat GF. > > Pam > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 I’m finally getting a chance to reply to this e-mail (busy month). I still eat gluten-free for several reasons. One is because my husband has CD and I don’t have to worry about him getting dosed with gluten through kissing. Another is because our house is completely gluten-free and I don’t want to bother with separate pans and labels (we have 3 celiacs). When I am eating out without my family I have occasionally eaten items containing gluten, but because I have type 2 diabetes I usually avoid the carbs (=wheat; those pastries are off limits for me because of the sugar anyway…) for that reason also. It is also a bit habit from so many years of ordering gluten-free. Although I never had any symptoms of CD myself, I always suspected it on my side of the family (lots of short Italians) as well. It also doesn’t help to know so much about how hard wheat is to digest; I always feel a bit nervous after eating it. Somehow I don’t miss gluten much now anyway. I think this sort of thing is a very individual decision; every family has a different situation and different needs. I too had a hard time figuring out symptoms. My boys would get colds (I suspect from the weakening of their immune systems when eating gluten) when they got gluten. They also would get a rash on their faces and itchy spots on their butts (in addition to the “gluten” behavior). Figuring out what is a symptom and what is not can be challenging, especially when symptoms change over the years. It can help to keep notes of foods and symptoms so you can notice trends. Pam From: [mailto: ] On Behalf Of Sent: Saturday, January 05, 2008 11:37 PM Subject: Re: [ ] Nursing gluten-free Interesting! I've been wondering if there was anyone else out there nursing baby-celiacs. Doesn't seem like very many find out before they have weaned. I never really been told that I needed to be GF for the baby, actually, but I've heard of enough moms eliminating one thing or another that their babies were allergic to over the years that it just seemed like the logical thing to do. My kids don't really have classical CD symptoms (who knows when they would have been diagnosed if we hadn't done the allergy testing), so I can't tell when we slip up, which is both frustrating and a blessing, I suppose. Also, I figure I've got quite a few years of GF cooking for my kids ahead of me, so I might as well live it for awhile so that I understand it from the inside, as much as I can anyway. How come you still eat GF, if you don't mind me asking? I really haven't noticed any difference in myself since going GF, and I sometimes fantasize about the pastries that I could sneak off to eat when my little guy eventually weans... - On Jan 5, 2008 10:55 PM, Pam Newbury <pknewbury@...> wrote: > > > > I too ate gluten-free while I nursed my boys; I found out the hard way that > gluten in my breast-milk made my son sick. I'm curious where you heard that > you should eat GF while nursing; I still hear conflicting advice about > gluten in breast-milk. I still eat GF. > > Pam > > > > Quote Link to comment Share on other sites More sharing options...
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