Re: think it might have hit the next generation

[Guest guest]

It sounds as if your husband should speak with the GI and/or the allergist, to get a clear idea of how CD (and allergies) work.

Don't forget that your son will need to be eating gluten for testing to work properly.

H.

In a message dated 1/6/08 10:59:58 AM, skershaw_sanjose@... writes:

My husband isn't quite getting it, though. ALthough he is usually so

supportive he has been saying that we should wait until he's older before stopping the wheat,

otherwise he will get really allergic to it.

**************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

I keep thinking about your situation. A doctor would probably explain that untreated CD can severely limit a child's development, physically and neurologically, and it can trigger other, potentially fatal autoimmune diseases. Gastrointestinal problems are only a small part of the damage done by untreated CD, especially in children.

I hope you can convince your husband of the seriousness of CD. And, of course, I hope you find that your son doesn't have CD. Blood tests are pretty reliable, endoscopies are more so. Gene tests also can be helpful. Remember that a person can develop CD any time in life -- it could come later, if the gene is there.

H.

In a message dated 1/6/08 10:59:58 AM, skershaw_sanjose@... writes:

So my son (7) has been compaining about a lot of tummy upsets recently, and I've noticed he

seems to have a lot of gas and diarrhea, too. Since these were all my symptoms, I need to get

him checked out. My husband isn't quite getting it, though. ALthough he is usually so

supportive he has been saying that we should wait until he's older before stopping the wheat,

otherwise he will get really allergic to it.

We will see what the diagnosis says, but I'm already using a lot of gf products in the house

anyway, and my kids don't know the difference between rice pasta and gf waffles and wheat

based ones. I know my husband will support a diagnosis, but I do feel really bad for my son.

Steph

**************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

False negatives in blood tests are fairly common. Perhaps other people have statistics on this. I had a false negative blood test, followed by positive biopsies.

One MUST be eating a substantial amount of gluten, for some period of time, to get a positive reading.

My daughter had a negative blood test; her doctor said that the numbers indicated clearly that there was almost no chance that she had CD.

Perhaps an endoscopy/biopsy or a gene test would be helpful in determining whether CD or something else is causing her problems.

Could she be intolerant to lactose/casein found in dairy products? Many possibilities exist, of course -- I'm just naming things I'm familiar with.

H.

In a message dated 1/6/08 2:44:52 PM, tanya_lombardi@... writes:

My daughter complains about stomach aches and is constipated and

gassy often. We had Celiac Panel blood tests done and they came back

negative. Anyone familiar with false negatives?

**************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Thanks for this information. My knowledge about CD is very unsophisticated.

H.

In a message dated 1/6/08 6:35:57 PM, connie@... writes:

It depends on which tests were done.  If it was just an IgA blood test, be aware that 1st of all, IgA belongs in the gut and to have any in the blood stream tells us that we have “leaky gut†and other things are also getting through to the blood stream.  Also, one needs to have a total IgA done, because it is possible for the immune system to “just give up†and for the total to be so low  that  one person’s low score could mean equal another person’s “off the chartâ€.  

Connie

From: @ celiacbayar @<wbr>yah @ celiOn Behalf Of tanyanlombardi

Sent: Sunday, January 06, 2008 2:45 PM

@ celiacbayar ce

Subject: [ ] Re: think it might have hit the next generation

My daughter complains about stomach aches and is constipated and

gassy often. We had Celiac Panel blood tests done and they came back

negative. Anyone familiar with false negatives?

>

> So my son (7) has been compaining about a lot of tummy upsets

recently, and I've noticed he

> seems to have a lot of gas and diarrhea, too. Since these were all

my symptoms, I need to get

> him checked out. My husband isn't quite getting it, though.

ALthough he is usually so

> supportive he has been saying that we should wait until he's older

before stopping the wheat,

> otherwise he will get really allergic to it.

> We will see what the diagnosis says, but I'm already using a lot of

gf products in the house

> anyway, and my kids don't know the difference between rice pasta

and gf waffles and wheat

> based ones. I know my husband will support a diagnosis, but I do

feel really bad for my son.

>

> Steph

>

**************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

The information you give, below, is the reason I'm always reluctant to send a list of tests for CD -- or for anything else. I don't have medical training, and I'm not sure that any list I'd dig up would be correct, up-to-date, inclusive.

H.

In a message dated 1/6/08 6:35:57 PM, connie@... writes:

It depends on which tests were done.  If it was just an IgA blood test, be aware that 1st of all, IgA belongs in the gut and to have any in the blood stream tells us that we have “leaky gut†and other things are also getting through to the blood stream.  Also, one needs to have a total IgA done, because it is possible for the immune system to “just give up†and for the total to be so low  that  one person’s low score could mean equal another person’s “off the chartâ€.  

Connie

**************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

My daughter complains about stomach aches and is constipated and

gassy often. We had Celiac Panel blood tests done and they came back

negative. Anyone familiar with false negatives?

>

> So my son (7) has been compaining about a lot of tummy upsets

recently, and I've noticed he

> seems to have a lot of gas and diarrhea, too. Since these were all

my symptoms, I need to get

> him checked out. My husband isn't quite getting it, though.

ALthough he is usually so

> supportive he has been saying that we should wait until he's older

before stopping the wheat,

> otherwise he will get really allergic to it.

> We will see what the diagnosis says, but I'm already using a lot of

gf products in the house

> anyway, and my kids don't know the difference between rice pasta

and gf waffles and wheat

> based ones. I know my husband will support a diagnosis, but I do

feel really bad for my son.

>

> Steph

>

[Guest guest]

It depends on which tests were done.  If

it was just an IgA blood test, be aware that 1st of all, IgA belongs

in the gut and to have any in the blood stream tells us that we have “leaky

gut” and other things are also getting through to the blood stream. 

Also, one needs to have a total IgA done, because it is possible for the immune

system to “just give up” and for the total to be so low  that  one

person’s low score could mean equal another person’s “off the

chart”.  

Connie

From:

[mailto: ] On Behalf Of tanyanlombardi

Sent: Sunday, January 06, 2008

2:45 PM

Subject: [ ] Re: think

it might have hit the next generation

My daughter complains about stomach aches and is

constipated and

gassy often. We had Celiac Panel blood tests done and they came back

negative. Anyone familiar with false negatives?

>

> So my son (7) has been compaining about a lot of tummy upsets

recently, and I've noticed he

> seems to have a lot of gas and diarrhea, too. Since these were all

my symptoms, I need to get

> him checked out. My husband isn't quite getting it, though.

ALthough he is usually so

> supportive he has been saying that we should wait until he's older

before stopping the wheat,

> otherwise he will get really allergic to it.

> We will see what the diagnosis says, but I'm already using a lot of

gf products in the house

> anyway, and my kids don't know the difference between rice pasta

and gf waffles and wheat

> based ones. I know my husband will support a diagnosis, but I do

feel really bad for my son.

>

> Steph

>

[Guest guest]

It's hard to know, because gas and constipation are

common and could be due to any number of things, but

the last GI doc I saw said that the blood tests are

false negative 50 percent of the time. Meaning, a

positive blood test is always correct, he said, but a

negative test is not necessarily so.

If your child continues to have problems, and he/or

she is an immediate relative of a Celiac, perhaps you

can convince your doctor to do an endoscopy. That's

the way to get an official diagnosis. Meantime, you

could try putting your child on a gf diet for a few

days, and see if the tummy problems subside, then

bring back the wheat -- cereral, toast, etc. -- and

see how your child reacts. But if you take away the

gluten completely for an ongoing basis your child

won't be able to take a reliable blood test -- the

person tested has to be eating wheat/gluten for a

period in advance of test.

L²

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Did you mean to write "six false positives" or "six false negatives"? How do you know they were false? I'm curious -- I'd heard that false positives were extremely unlikely.

H.

In a message dated 1/7/08 7:19:18 PM, kimberlymp1@... writes:

I had six false positives for celiac in eight years. I am sure my son has celiac, but I've been procrastinating about taking him in because I think it will be the same situation. I have an appointment set up though, and I'm ready for the fight.

**************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Keep in mind that he must keep eating gluten until he's tested -- you probably know all about that, but others might like the reminder.

H.

In a message dated 1/7/08 7:27:54 PM, kimberlymp1@... writes:

I had six false positives for celiac in eight years. I am sure my son has celiac, but I've been procrastinating about taking him in because I think it will be the same situation. I have an appointment set up though, and I'm ready for the fight.

**************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

I had six false positives for celiac in eight years. I am sure my son has celiac, but I've been procrastinating about taking him in because I think it will be the same situation. I have an appointment set up though, and I'm ready for the fight.

My daughter complains about stomach aches and is constipated and

gassy often. We had Celiac Panel blood tests done and they came back

negative. Anyone familiar with false negatives?

-

[Guest guest]

Duh. I'm so tired!! I had 6 false NEGATIVES. Geez.On 1/7/08,

flatcat9@... <flatcat9@...> wrote:

Did you mean to write " six false positives " or " six false negatives " ? How do you know they were false? I'm curious -- I'd heard that false positives were extremely unlikely.

H.

In a message dated 1/7/08 7:19:18 PM, kimberlymp1@... writes:

I had six false positives for celiac in eight years. I am sure my son has celiac, but I've been procrastinating about taking him in because I think it will be the same situation. I have an appointment set up though, and I'm ready for the fight.

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

I just saw this article and thought it might be useful for those

considering a CD diagnosis for their kids. I think he makes a good

argument for just putting them on the diet if there is suspicion of CD but

unclear test results. Keep in mind that if he has CD and is eating wheat

he is not getting optimal nutrition at a time when he most needs it for proper

growth and development. There’s a reason short stature is a result

of CD.

Pam

http://www.celiac.com/articles/21521/1/How-Early-Can-Celiac-Disease-Be-Diagnosed/Page1.html

From:

[mailto: ] On

Behalf Of skershaw_sanjose

Sent: Sunday, January 06, 2008 10:59 AM

Subject: [ ] think it might have hit the next generation

So my son (7) has been compaining about a lot

of tummy upsets recently, and I've noticed he

seems to have a lot of gas and diarrhea, too. Since these were all my symptoms,

I need to get

him checked out. My husband isn't quite getting it, though. ALthough he is

usually so

supportive he has been saying that we should wait until he's older before

stopping the wheat,

otherwise he will get really allergic to it.

We will see what the diagnosis says, but I'm already using a lot of gf products

in the house

anyway, and my kids don't know the difference between rice pasta and gf waffles

and wheat

based ones. I know my husband will support a diagnosis, but I do feel really

bad for my son.

Steph