Re: new member with 3 yrs old celiac son

[Guest guest]

Hi Dorthy,

I was diagnosed at three with Celiac myself. I know it's hard, but

he will get better with time. *hugs* It can only get better after

diagnosis... that is the most important part! Don't be sad- in many

ways I think it is easier to grow up with Celiac than be suddenly

diagnosed later in life when you're used to certain products and

tastes. We have a group that meets in the Sunnyvale/Mountain View

area, if you're interested. Many mothers attend. I posted about our

meeting here:

http://www.bookofyum.com/blog/?p=1134

As you can see, we're a fairly food-centric group, but people have all

kinds of information. You will also find good info at the Sillyyaks

group. I'm a member and we share a lot of good information and

recipes, product and restaurant reviews. I know it's stressful, but

things will improve, and there are so many more resources now than

there used to be. Just ask if you have any specific questions, and we

will do our best to help. You're not alone!

-

>

> Hi, I just found out 2 days ago that my 3 year old son has Celiac.

> Does anyone know of a local support group that deals with kids? We

> live in Santa Clara. I'm learning all I can online, but would like

> advise too. His antibody test was over 100 when they stopped

> counting. He's been in so much pain. I feel so stressed and sad.

>

[Guest guest]

Welcome, Dorothy! My daughter Molly was diagnosed with celiac disease when she was 20 months old. She's now 17 and a well-adjusted celiac. We have a Bay Area ROCK (Raising Our Celiac Kids) group, but it's more of a virtual support group than a physical support group.I'm out of town now, but if you send me an email to my home address (below), I can send you the info on joining it (in case you haven't already found it). Good luck, and hang in there. I was depressed for a year at the sight of all the foods Molly couldn't have, but it's *so* much better now. And your son will feel *so* much better on the diet, too. Molly's personality changed (for the better!) in a week.

Debbiedebbie@...On 10/19/07, seamaiden399 <

seamaiden399@...> wrote:

Hi Dorthy,

I was diagnosed at three with Celiac myself. I know it's hard, but

he will get better with time. *hugs* It can only get better after

diagnosis... that is the most important part! Don't be sad- in many

ways I think it is easier to grow up with Celiac than be suddenly

diagnosed later in life when you're used to certain products and

tastes. We have a group that meets in the Sunnyvale/Mountain View

area, if you're interested. Many mothers attend. I posted about our

meeting here:

http://www.bookofyum.com/blog/?p=1134

As you can see, we're a fairly food-centric group, but people have all

kinds of information. You will also find good info at the Sillyyaks

group. I'm a member and we share a lot of good information and

recipes, product and restaurant reviews. I know it's stressful, but

things will improve, and there are so many more resources now than

there used to be. Just ask if you have any specific questions, and we

will do our best to help. You're not alone!

-

>

> Hi, I just found out 2 days ago that my 3 year old son has Celiac.

> Does anyone know of a local support group that deals with kids? We

> live in Santa Clara. I'm learning all I can online, but would like

> advise too. His antibody test was over 100 when they stopped

> counting. He's been in so much pain. I feel so stressed and sad.

>

[Guest guest]

Hi Dorothy,

My son was 2 1/2 years when he got diagnosed - he is turning 11 tomorrow. I

completely

understand what you are going through. If you would like, we could meet at my

house and

then go to Whole Foods Market together, to look at what is available there.

Please send me an e-mail :

tennissusi2005@...

There is also a Bay Area Rock group that you can join. The person to contact is

Kelley

Velez. (kelleyvelez@...).

It is hard to believe, but you are very fortunate to find out at such an early

age. The later

you find out, the harder the transition to gluten free gets.

Hope to hear from you soon.

Susi

>

> Hi, I just found out 2 days ago that my 3 year old son has Celiac.

> Does anyone know of a local support group that deals with kids? We

> live in Santa Clara. I'm learning all I can online, but would like

> advise too. His antibody test was over 100 when they stopped

> counting. He's been in so much pain. I feel so stressed and sad.

>