Frustrated

[Guest guest]

Yes Nicky I totally understand -

Sometimes I am completely OVERWHELMED !!!!!!!

I do not have any children younger than my speech delayed son -

So I do not have that added stress - so my heart goes out to you.

I notice my son has become quite impatient and now has a complete disregard

for safety issues - He has began running away from me when we get out of the

car to walk to the house.

Granted he won't let me out of his sight but I also fear he will dart into

traffic and so I am usually right on his tail and he just laughs.

Lately he has began stomping his feet or kicking things when he is frustrated

-

My son is 31 months old - I know alot of this is misdirected.

I sometimes feel he is controling me rather than me controling him-

Lately it is just getting worse - I am hoping once I get some answers about

his DX that I can start helping him by understand what is wrong with him -

So Cal Mom Married to Louis and - Mom to Alec -7-26-98 born at 29

weeks due to Pregnancy induced hypertension - He has Sensory integration

dysfunction - Speech delayed undiagnosed at this point -speech level is at a

12-14 month level - Appt with Nuero for further evaluation on April 20 - He

is in a preschool therapy program 4 days a week for 3 hours.

And who will be 7 April 15 has minor speech issue that she receives

therapy for 1 day per week at her school.

[Guest guest]

yes I get frustrated with my 3year old son. When he can

not understand why he has to wait or why he can not have

or do what he wants. Sometimes it is just a matter of he

thinks I do not know what he is saying that is why I say

no. I always try to say " no you can not go outside "

or " you can watch tv after dinner " instead of just no.

that way he knows I know what he is saying and sometimes

I'm wrong I have misunderstood him and this gives him a

chance to try to tell me again. Also always try to get

on eye level with him. It seems to help him understand

I'm really trying to know what he is saying. Some times

it takes a while to figure it all out. I also have a

about to be 1 yearold daughter. So when he was two she

was a newborn that needed to be held a lot. I used a

sling to carry her with that way she was always with me

and my hands were free. We would have never made it to

the grocery store with out it. My son liked to dash away

from me and I could not of chased after him had my

daughter not been in the sling.

You are not alone all children go through phases it's

just a little harder when they can not verbalize what is

going on the way they want to.

Robyn

[Guest guest]

Hi Nicky,

I had to respond to your posting cause I can relate to your frustration big time. My son 2.6 has verbal dyspraxia. Discipline is a tough one at this age to begin with. I think with them not being able to talk and being in the terrible two's is probably one of the toughest issues we will face. I too have a 6 month old and it definitly makes it harder because you cannot give the older one hands one attention all day. It is quite a balancing act. I cannot offer you much advice, my hands are full and I am very frustrated myself. Sometimes to know you are not the only one is comforting a bit. Good luck and hang in there

[Guest guest]

Hi Nicky, I don't think you are babbling, and I think everything you said makes sense. I have a 2.5 year old daughter with suspected apraxia and a 9 month old who decided to walk...I too do not spank and find timeouts not effective with my daughter. What I have found very effective is this: when Mikaela does something dangerous ie bites her sis, I pick her up, without saying a word to her and take her to another part of the house, usually the hallway as it is quite boring there for a 2 year old. At which point I explain why we are in the hallway and tell her she must stay there until she decides not to repeat the offence ie you hurt your sis, no play...very simple explaination...she usually begins to cry/pout then comes back around 2 minutes latter an hugs her victim and me...go figure...I think this means she gets it...hope this helps...GRACEGet Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

[Guest guest]

DON"T feel you're the only one...

I have a 7 year old who laughs at us whenever we try to talk seriously to him, we feel it is anxiety related, some kids cry when they are talked to seriously, mine laughs.

lyn

[Guest guest]

Hi Nicky!

I wanted to repond to your ? on frustration. Yes, I have been there. Our

son is 5 years old now. We have been taking him to speech therapists

since he was 2. The frustration and crying spells you describe sounds so

familiar. The temper tantrums he used to have were just awful and and very

frequent when he was 2 and 3 and even 4. But, I can finally say that now

they don't happen nearly as much as they use to. So hang in there, and

these crying screaming spells will diminish. I could share numerous stories

of his awful behavior in the past. Last year was his 1st year in preprimary

impaired pre-school program. The teacher told me that she thought she might

have to retire after her first 2 weeks with . She said it jokingly, but

she was a 1st year teacher last year. He is doing absolutely wonderful now

in her class this year. He is the leader in most of what they do. Last

year he would just throw himself on the floor crying when he didn't want to

do whatever it was they were doing. We still use timeouts, as we always

have. If they don't seem like they are working for him, then at least I

know they are helping me cause, at those times, I need the break from him.

He really is a sweet little guy, but we all know how frustrating it is for

them when they have a whole paragraph inside and can only get out 1 or 2

words. to describe what they are feeling and thinking. I just wanted to let

you know that I understand where you are coming from and it will get better.

Sincerely,

Tammy

verbal apraxia, age 5

----- Original Message -----

From: " muller nicky " <peppermintpiggy@...>

[Guest guest]

mine laughs too

--- luludee@... wrote:

> DON " T feel you're the only one...

>

> I have a 7 year old who laughs at us whenever we try to talk seriously to

> him, we feel it is anxiety related, some kids cry when they are talked to

> seriously, mine laughs.

>

> lyn

>

>

[Guest guest]

Gretchen,

It's only natural to get frustrated and react to

situations especially when you have a child with some

special needs. What is important is that you realized

that the situation got a bit " tizzy " and you guys made

up. I know there are times when I lose my cool, but we

are all only human and yes occasionally it does happen.

I usually let my son know that my behavior was not right

and I acted inappropriately too. Hang in there, don't

feel too guilty ! He's lucky to have a mom who's so

in touch with the situation....there are many mom's who

lose their cool and don't feel any sort of remorse.

Amy

mom t 4.10 and 1.10

[Guest guest]

Tris, totally unacceptable!!! I agree with and . My

only other suggestion is this. Voice your concern to the Cranio dr.

tomorrow. Ask for his opinion. Ask for a script for another brand

of Molding device if it is out of your area. Contact Angel Flight,

they will transport you and Colin to and from your appointments,

free of charge. B., 's mom in FL did this when rec'd

an ill fitting band that couldn't be adjusted properly. I was

fortuntate with my switch, I had other options in my area. Total

Crap if you ask me. Makes me so mad that orthotists like this are

able to treat our children.

Red spots shouldn't take 12 hours to go away. I wouldn't put the

band back on him because the last thing you want is for him to have

a skin breakdown. I'm sorry your having to deal with this. Dejavue

all over again.

Dustie

--- In Plagiocephaly , " trijess3 " <trijess3@a...>

wrote:

> Hi All,

>

> Just thought I would update you on how things are. Colin's helmet

> still doesn't fit right. He has a red spot that stays there pretty

> much all the time. He still hasn't worn his helmet for more than 5

> hours straight because when we take it off the red spot stays for

12

> hours or more. It doesn't stay red, it fades to light pink but is

> still there. Of course my ortho is gone out of town again; won't

be

> back till March 9th. So we are going to see the other guy in the

> office who doesn't normally work on helmets. I am so frustrated I

> really don't know where else to turn. So here we are 5 weeks after

> casting, 3 weeks after getting the helmet and it still doesn't fit

> right. Colin will be 6 mos old on Friday and I feel that time is

> just going by and I am stuck waiting and waiting. This is time I

can

> never get back. Is it normal to have a pink spot last for that

long?

> The ortho tells me to do whatever I am comfortable with. Let him

wear

> it an hour here and there till we get it adjusted tomorrow.

>

> I guess the good news is that Colin doesn't seem to mind the

helmet

> that much. We go see the craniofacial specialist tomorrow so I

guess

> I will let him know my concerns about this whole thing.

>

> Thanks for listening

>

> Tris in FL

> Mom to Colin

> Ill fitting starband 2/17/04

[Guest guest]

Tris,

I really feel for you and this frustrating situation. Working up to

getting a helmet is such a difficult process to begin with. Then to

finally get on and have all these fitting problems is almost soul

destroying.

I've been there. My daughter was treated for plagio last year.

The first helmet we got for her never really fit. First the cast

seemed sloppy. Next, once we got the helmet, we were in and out for

adjustments every other day for two weeks - it was too tight, then too

loose, then holding the wrong points. We lost all faith that the

orthotist really knew what he was doing. We made a snap decision to

junk that helmet and move immediately to another clinic that had a

much more experienced orthotist (this was a cranial tech clinic). From

the minute that we switched everything went well - a good cast, the

helmet delivered 10 days later, a good fit with no problems. I had to

travel 2.5 hours each was but would have gladly driven or flown much

further after the bad helmet experience. Sometimes I felt lucky that

it had been so bad to drive me on to find the optimal care even in the

face of the travel requirement.

So, my experience was - when the orthotist knows what they are doing

(starting with a good cast) the fit is good. And, when it fits well,

it works well. Also, having confidence that the orthotist is really

there for you and is very responsive to your concerns is important

too. I have to say that when I read 's last comment - that to be

honest, at this point she would seek out a different helmet provider,

I said - Me too.

Best wishes for a good, fast, solution to this fit problem,

-

> > Hi All,

> >

> > Just thought I would update you on how things are. Colin's helmet

> > still doesn't fit right. He has a red spot that stays there pretty

> > much all the time. He still hasn't worn his helmet for more than 5

> > hours straight because when we take it off the red spot stays for

> 12

> > hours or more. It doesn't stay red, it fades to light pink but is

> > still there. Of course my ortho is gone out of town again; won't be

> > back till March 9th. So we are going to see the other guy in the

> > office who doesn't normally work on helmets. I am so frustrated I

> > really don't know where else to turn. So here we are 5 weeks after

> > casting, 3 weeks after getting the helmet and it still doesn't fit

> > right. Colin will be 6 mos old on Friday and I feel that time is

> > just going by and I am stuck waiting and waiting. This is time I

> can

> > never get back. Is it normal to have a pink spot last for that

> long?

> > The ortho tells me to do whatever I am comfortable with. Let him

> wear

> > it an hour here and there till we get it adjusted tomorrow.

> >

> > I guess the good news is that Colin doesn't seem to mind the helmet

> > that much. We go see the craniofacial specialist tomorrow so I

> guess

> > I will let him know my concerns about this whole thing.

> >

> > Thanks for listening

> >

> > Tris in FL

> > Mom to Colin

> > Ill fitting starband 2/17/04

[Guest guest]

Hello Tris

I'm sorry to hear about your helmet tx going bad. I agree with all

the others as far as going somewhere else. Was the STAR band

already covered?? If not I would make sure this tx does not get

paid. I hope you will find a better provider. We also had a drive

of 2hrs one way to see Dr. Blecher, but it's worth it.

Good luck

Sandy Willow's Mom Cranio Helmet Germany Grad

--- In Plagiocephaly , " trijess3 " <trijess3@a...>

wrote:

> Hi All,

>

> Just thought I would update you on how things are. Colin's helmet

> still doesn't fit right. He has a red spot that stays there pretty

> much all the time. He still hasn't worn his helmet for more than 5

> hours straight because when we take it off the red spot stays for

12

> hours or more. It doesn't stay red, it fades to light pink but is

> still there. Of course my ortho is gone out of town again; won't

be

> back till March 9th. So we are going to see the other guy in the

> office who doesn't normally work on helmets. I am so frustrated I

> really don't know where else to turn. So here we are 5 weeks after

> casting, 3 weeks after getting the helmet and it still doesn't fit

> right. Colin will be 6 mos old on Friday and I feel that time is

> just going by and I am stuck waiting and waiting. This is time I

can

> never get back. Is it normal to have a pink spot last for that

long?

> The ortho tells me to do whatever I am comfortable with. Let him

wear

> it an hour here and there till we get it adjusted tomorrow.

>

> I guess the good news is that Colin doesn't seem to mind the

helmet

> that much. We go see the craniofacial specialist tomorrow so I

guess

> I will let him know my concerns about this whole thing.

>

> Thanks for listening

>

> Tris in FL

> Mom to Colin

> Ill fitting starband 2/17/04

[Guest guest]

-Tris i am so sorry your are going through this. I would

definitely contact orthomerica asap. You need an ortho that is

availabe to you. It isn't fair to you or Collin to have to wait

weeks when an adjustment is needed. A red spot should not last more

than an hour. please let us know what you find out.

Angie and Jenna(STAR grad)-- In

Plagiocephaly , " trijess3 " <trijess3@a...> wrote:

> Hi All,

>

> Just thought I would update you on how things are. Colin's helmet

> still doesn't fit right. He has a red spot that stays there pretty

> much all the time. He still hasn't worn his helmet for more than 5

> hours straight because when we take it off the red spot stays for

12

> hours or more. It doesn't stay red, it fades to light pink but is

> still there. Of course my ortho is gone out of town again; won't

be

> back till March 9th. So we are going to see the other guy in the

> office who doesn't normally work on helmets. I am so frustrated I

> really don't know where else to turn. So here we are 5 weeks after

> casting, 3 weeks after getting the helmet and it still doesn't fit

> right. Colin will be 6 mos old on Friday and I feel that time is

> just going by and I am stuck waiting and waiting. This is time I

can

> never get back. Is it normal to have a pink spot last for that

long?

> The ortho tells me to do whatever I am comfortable with. Let him

wear

> it an hour here and there till we get it adjusted tomorrow.

>

> I guess the good news is that Colin doesn't seem to mind the

helmet

> that much. We go see the craniofacial specialist tomorrow so I

guess

> I will let him know my concerns about this whole thing.

>

> Thanks for listening

>

> Tris in FL

> Mom to Colin

> Ill fitting starband 2/17/04

[Guest guest]

Nice one Stacey, you sound more menacing than Arnie Swartz, you would get my

vote anyday.

Thats what I wanted to say, but held back.

Complain to STARband direct and tell them that people on this list are not

impressed, we wouldn,t want STARbands good name been ripped to pieces by one

of their agents poor after care.

Tell them to sort it, or we will send !!!!! (make my day).

Ian.

Re: frustrated

> Tris,

> This is totally unacceptable! If I were you I'd contact Orthomerica

> and see if there is anything they can do to help you.

> You're right, this time is lost and that is so unfair, I'd rasie hell.

> Please contact Orthomerica,

> dulceylima@...

> To be honest with you, I don't know if I myself would go that route.

> I really think you need to demand a refund and go some place else. It

> might be a hassle to travel but in the long run it would be so worth

> it. Please keep us posted.

>

> -- In Plagiocephaly , " trijess3 " <trijess3@a...> wrote:

> > Hi All,

> >

> > Just thought I would update you on how things are. Colin's helmet

> > still doesn't fit right. He has a red spot that stays there pretty

> > much all the time. He still hasn't worn his helmet for more than 5

> > hours straight because when we take it off the red spot stays for

> 12

> > hours or more. It doesn't stay red, it fades to light pink but is

> > still there. Of course my ortho is gone out of town again; won't be

> > back till March 9th. So we are going to see the other guy in the

> > office who doesn't normally work on helmets. I am so frustrated I

> > really don't know where else to turn. So here we are 5 weeks after

> > casting, 3 weeks after getting the helmet and it still doesn't fit

> > right. Colin will be 6 mos old on Friday and I feel that time is

> > just going by and I am stuck waiting and waiting. This is time I

> can

> > never get back. Is it normal to have a pink spot last for that

> long?

> > The ortho tells me to do whatever I am comfortable with. Let him

> wear

> > it an hour here and there till we get it adjusted tomorrow.

> >

> > I guess the good news is that Colin doesn't seem to mind the helmet

> > that much. We go see the craniofacial specialist tomorrow so I

> guess

> > I will let him know my concerns about this whole thing.

> >

> > Thanks for listening

> >

> > Tris in FL

> > Mom to Colin

> > Ill fitting starband 2/17/04

>

>

>

>

> For more plagio info

[Guest guest]

Hi Tris,

I am so sorry that this is not going easy for you. You have every right to be frustrated. I was told that the red marks need to completely disappear within an hour to be able to wear the helmet full time (ie. 23 hours). While we were testing out our band they said to leave it on for 2 to 3 hours at a time the first day, then check for red marks. Leave the band off until the red marks completely disappear. If they were completely disappearing within an hour every time we checked that first day, then they said that Matt could start wearing it full time the next day.

Since it has been so long since his initial casting I think that I would either:

1) Demand a new casting and a new band at no cost to you or your insurance. (That is an awful long time from the casting to full time wear, especially at Colin's age).

-OR-

2) Or consider seeing if you can get your money back from this guy and go somewhere else. It might end up being worth it in the long run to have an ortho who is more accessible to you when you need them.

and (DOCgrad 2-13-04/10-14mos./PA)trijess3 <trijess3@...> wrote:

Hi All,Just thought I would update you on how things are. Colin's helmet still doesn't fit right. He has a red spot that stays there pretty much all the time. He still hasn't worn his helmet for more than 5 hours straight because when we take it off the red spot stays for 12 hours or more. It doesn't stay red, it fades to light pink but is still there. Of course my ortho is gone out of town again; won't be back till March 9th. So we are going to see the other guy in the office who doesn't normally work on helmets. I am so frustrated I really don't know where else to turn. So here we are 5 weeks after casting, 3 weeks after getting the helmet and it still doesn't fit right. Colin will be 6 mos old on Friday and I feel that time is just going by and I am stuck waiting and waiting. This is time I can never get back. Is it

normal to have a pink spot last for that long? The ortho tells me to do whatever I am comfortable with. Let him wear it an hour here and there till we get it adjusted tomorrow. I guess the good news is that Colin doesn't seem to mind the helmet that much. We go see the craniofacial specialist tomorrow so I guess I will let him know my concerns about this whole thing.Thanks for listeningTris in FLMom to Colin Ill fitting starband 2/17/04For more plagio info

[Guest guest]

I know where you are at, . I was International Service Manager for the

mining division in 1990 and finally making that kind of money, so started

saving for our retirement and enjoying life. Then the RA showed it's ugly

head. I got a demotion and was 'laid off' a year later. My counterpart in

the Forestry division got a Disability Retirement because of his hearing at

the same time. The only thing tht has saved us so far was that we built our

own home, a board at a time, so we never had a mortgage or other debts. I

went through all our savings and sold some heirlooms and a few classic cars

I'd had for many years, and am still selling parts and things because we're

living under the poverty level, and getting further under all the time. If

it weren't for Medicare Part D and Betty babysitting once in a while, we'd

be eating Poke Salad. It wasn't easy and still isn't, but we need to play

the hand we're dealt. Remember, there's someone out there that's worse off

than we are.

As for benefits, we can go into most Federal and State Parks will let you in

for half-price or less.

My doctor says that Alprazolam isn't good for me. It comes on with a big hit

and tapers off pretty quickly, so he gave me Lorazepam, more stable and long

lasting. Well, that's what the advertisement says The jury is still out on

that one. I can't tell the difference, either one barely helps.

Dennis in Eastexas

" It's not Rocket Surgery "

[ ] frustrated

>I have been reading the shares and have been a member of this group for a

>while, don't share much just mostly read. However this morning I am very

>frustrated. How does a person deal with the frustration of knowing what

>you want, seeing it, feeling it and then finally achieving it. All to one

>day be taken away because someone chose you to have this disease of

>fibromyalgia, and other diseases. I was making $30,000 a yr for 5 years, I

>worked my a.. off to get there only to have it yanked away from me. I know

>that I am sitting on a pity pot this morning, but sometimes it is hard not

>to. Especially right now, I am living off of my son's social security that

>he receives from his dad. I was denied at my hearing due to a sh....

>clinic that I was going to, I shouldn't have said anything to them but

>being cut off my meds and being called a drug addict because they don't

>know how to code a ua request is unacceptable to me. And yes, i do have a

>tendency to go off on authority

> figures. I've been there, I know exactly how it all works, you see I

> worked for the state of Oregon. The people that work in our government

> here have got to be as crooked as a dog's hind legs. I lived ok for two

> years of being off work, had insight for some reason to sign up for

> short/long term disability. That saved my a.. for two years, I had hoped

> that I would have been approved by now. Now, due to no medical coverage,

> no $, I have developed a few new things. (went to hospital, they referred

> me to a neurologist. Right wrist drop, however I have been told by two

> people one that used to be a nurse that he should have put some kind a

> machine on me to see if I have nerve damage. I noticed when I take my

> alprazolam that I am able to use more, I work it every day but by the end

> of the day I am hurting so bad that I cry. Sorry, just needed to vent.

>

> Thanks,

>

> happybluerainbow@...

[Guest guest]

Hi :

I can't really say anything that will help you, other

than to say that I understand the frustration of what

you are going through, and feel your pain as well. It

has happened to many of us, and my family is

personally feeling the pinch of being a one-income

family with lots of medical bills, and I am sure I am

not alone with this either. Feel free to pity party

anytime you want, we all need that from time to time,

and that is what we are here for. We do not judge

each other's pain or lives - RA has done a number on

all of us. Take care -

Kathe in CA

--- Santana <happybluerainbow@...> wrote:

> I have been reading the shares and have been a

> member of this group for a while, don't share much

> just mostly read. However this morning I am very

> frustrated. How does a person deal with the

> frustration of knowing what you want, seeing it,

> feeling it and then finally achieving it. All to

> one day be taken away because someone chose you to

> have this disease of fibromyalgia, and other

> diseases. I was making $30,000 a yr for 5 years, I

> worked my a.. off to get there only to have it

> yanked away from me. I know that I am sitting on a

> pity pot this morning, but sometimes it is hard not

> to. Especially right now, I am living off of my

> son's social security that he receives from his dad.

> I was denied at my hearing due to a sh.... clinic

> that I was going to, I shouldn't have said anything

> to them but being cut off my meds and being called a

> drug addict because they don't know how to code a ua

> request is unacceptable to me. And yes, i do have a

> tendency to go off on authority

> figures. I've been there, I know exactly how it

> all works, you see I worked for the state of Oregon.

> The people that work in our government here have

> got to be as crooked as a dog's hind legs. I lived

> ok for two years of being off work, had insight for

> some reason to sign up for short/long term

> disability. That saved my a.. for two years, I had

> hoped that I would have been approved by now. Now,

> due to no medical coverage, no $, I have developed a

> few new things. (went to hospital, they referred me

> to a neurologist. Right wrist drop, however I have

> been told by two people one that used to be a nurse

> that he should have put some kind a machine on me to

> see if I have nerve damage. I noticed when I take

> my alprazolam that I am able to use more, I work it

> every day but by the end of the day I am hurting so

> bad that I cry. Sorry, just needed to vent.

>

> Thanks,

>

> happybluerainbow@...

>

>

> ---------------------------------

> Get your email and more, right on the new .com

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

__________________________________________________

[Guest guest]

Thank you so much for your words, I really needed them yesterday. I will, but

forgive me if for a while it is a little at a time. Trust issues. But I am

willing to give this group and its members a chance and so far everyone has been

kind. Again thanks for the reponse, the permission to go ahead and vent when I

am sitting on my pity pot.

happybluerainbow@...

Kathe Sabetzadeh <lv2ryd@...> wrote:

Hi :

I can't really say anything that will help you, other

than to say that I understand the frustration of what

you are going through, and feel your pain as well. It

has happened to many of us, and my family is

personally feeling the pinch of being a one-income

family with lots of medical bills, and I am sure I am

not alone with this either. Feel free to pity party

anytime you want, we all need that from time to time,

and that is what we are here for. We do not judge

each other's pain or lives - RA has done a number on

all of us. Take care -

Kathe in CA

--- Santana <happybluerainbow@...> wrote:

> I have been reading the shares and have been a

> member of this group for a while, don't share much

> just mostly read. However this morning I am very

> frustrated. How does a person deal with the

> frustration of knowing what you want, seeing it,

> feeling it and then finally achieving it. All to

> one day be taken away because someone chose you to

> have this disease of fibromyalgia, and other

> diseases. I was making $30,000 a yr for 5 years, I

> worked my a.. off to get there only to have it

> yanked away from me. I know that I am sitting on a

> pity pot this morning, but sometimes it is hard not

> to. Especially right now, I am living off of my

> son's social security that he receives from his dad.

> I was denied at my hearing due to a sh.... clinic

> that I was going to, I shouldn't have said anything

> to them but being cut off my meds and being called a

> drug addict because they don't know how to code a ua

> request is unacceptable to me. And yes, i do have a

> tendency to go off on authority

> figures. I've been there, I know exactly how it

> all works, you see I worked for the state of Oregon.

> The people that work in our government here have

> got to be as crooked as a dog's hind legs. I lived

> ok for two years of being off work, had insight for

> some reason to sign up for short/long term

> disability. That saved my a.. for two years, I had

> hoped that I would have been approved by now. Now,

> due to no medical coverage, no $, I have developed a

> few new things. (went to hospital, they referred me

> to a neurologist. Right wrist drop, however I have

> been told by two people one that used to be a nurse

> that he should have put some kind a machine on me to

> see if I have nerve damage. I noticed when I take

> my alprazolam that I am able to use more, I work it

> every day but by the end of the day I am hurting so

> bad that I cry. Sorry, just needed to vent.

>

> Thanks,

>

> happybluerainbow@...

>

>

> ---------------------------------

> Get your email and more, right on the new .com

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

__________________________________________________

[Guest guest]

Lorazepam is an anxiety drug in the class with Xanax, but is better,

according to my doctor. He says Xanax-Alprazolam hits quickly and tapers off

soon after. Lorazepam is a more stable drug, so taking it regularly would be

best, from what I'm being told. You need to treat your depression. I didn't

know that and nobody told me, so I sat here hurting more and more and

nothing would help until I heard about depression and it's treatment. I knew

that as soon as I started hurting, it would make me tense, and being tense

would make me hurt, etc. It was a vicious cycle spiraling downwards. I would

sit here watching my orchard and other crops rotting on the ground after we

put most of our savings into it, and tons of work just going to waste. On

top of that, the dealing with 20 years of dedication just to be dumped

without even a thank you. All these emotions eat on you even if you're not

thinking about it, and you won't get better even with the proper medications

for the RA or Fibro or... but the soul doesnt ge treatment. That's a big

failure area, IMHO.

Another medication I use to address depression is Amitriptyline. I don't

sleep well at night and this antidepressant helps with that. I sleep a

little better, my blood pressure goes down a little, and I feel better the

next morning. I'm sure some of the others will offer their

knowledge/experience. Then you'll have more ammo to use with your doctors. I

hope this helps you, and that you get some help from your family and

friends. Just so you don't expect too much, I lost all my 'friends' and most

of my family because I wasn't there to help them. It seems to be a natural

part of these diseases, and is part of the " But you don't look sick "

syndrome. It takes time, but hang on and remember, we're here to help even

if it's from afar. It still helps. Remembe your address: happybluerainbow ,

so stay happy.

Dennis in Eastexas

" It's not Rocket Surgery "

[ ] frustrated

>I have been reading the shares and have been a member of this group for a

>while, don't share much just mostly read. However this morning I am very

>frustrated. How does a person deal with the frustration of knowing what

>you want, seeing it, feeling it and then finally achieving it. All to one

>day be taken away because someone chose you to have this disease of

>fibromyalgia, and other diseases. I was making $30,000 a yr for 5 years, I

>worked my a.. off to get there only to have it yanked away from me. I know

>that I am sitting on a pity pot this morning, but sometimes it is hard not

>to. Especially right now, I am living off of my son's social security that

>he receives from his dad. I was denied at my hearing due to a sh....

>clinic that I was going to, I shouldn't have said anything to them but

>being cut off my meds and being called a drug addict because they don't

>know how to code a ua request is unacceptable to me. And yes, i do have a

>tendency to go off on authority

> figures. I've been there, I know exactly how it all works, you see I

> worked for the state of Oregon. The people that work in our government

> here have got to be as crooked as a dog's hind legs. I lived ok for two

> years of being off work, had insight for some reason to sign up for

> short/long term disability. That saved my a.. for two years, I had hoped

> that I would have been approved by now. Now, due to no medical coverage,

> no $, I have developed a few new things. (went to hospital, they referred

> me to a neurologist. Right wrist drop, however I have been told by two

> people one that used to be a nurse that he should have put some kind a

> machine on me to see if I have nerve damage. I noticed when I take my

> alprazolam that I am able to use more, I work it every day but by the end

> of the day I am hurting so bad that I cry. Sorry, just needed to vent.

>

> Thanks,

>

> happybluerainbow@...

[Guest guest]

My only thought is a homeopathic remedy i've used for swelling and

inflammation - Lymphomosot (by Heel - my favourite). The Traumeel

that i've been talking about might help too, full of like 15

different remedies working together?

The therapist at my office reccommended cold, cold and cold.

Alternating cold compresses? Or someone who does MLD - Manual Lymph

Drainage. The massage therapist here says that it's SUPER gentle and

could possibly be very helpful. But she says find someone that does

only that. Try Dr. Vodder's School for a referral (I think it's US

and Canada site)

I hope someone has some thoughts for you! So sorry that you're going

through this, thinking of you...

>

> OK, I'm getting frustrated... swallowing is not really improving...

any ideas to help reduce the swelling in the throat so that

swallowing becomes easy again... They told me it would take about a

month... been over 2 wks... going on 3... some days it seems worse

than other days.... everything I have thought of hasn't worked

yet.... so lets get some suggestions out there.... thanks crew!

>

> Suzi

> What is a weed? A plant whose virtues have not yet been

discovered.

>

>

> health/

> http://suziesgoats.wholefoodfarmacy.com/

> http://360./suziesgoats

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> ---------------------------------

> Don't get soaked. Take a quick peak at the forecast

> with the Search weather shortcut.

>

[Guest guest]

Isn’t ginger an anti-inflammatory?

How about ginger tea? Celery juice?

I’m sorry, Suzi…

Sharyn

From: health [mailto:health ] On Behalf Of Suzanne

OK, I'm getting

frustrated... swallowing is not really improving... any ideas to help reduce

the swelling in the throat so that swallowing becomes easy again... They told

me it would take about a month... been over 2 wks... going on 3... some

days it seems worse than other days.... everything I have thought

of hasn't worked yet.... so lets get some suggestions out there....

thanks crew!

[Guest guest]

Don't be sorry!! I've been taking some ginger.. will have to make some tea.... had not thought about celery. In fact taking everything I can think of that is anti inflamatory... tumeric, even MSM. I've got a salve that is an analgesic balm... been trying that that last two days.. Today I had some massage oil that I've added some eo's to... that I got from who used to be on this list.. (She has an E O company).. one for inflamation, one for pain and one for cleansing.. I've added some of each to the oil which has lavendar and peppermint in it.. I've started using that on the shoulders and back of neck ... I can't put anything on the incision yet... it still has steri strips and they don't want me to put anything on it yet... guess they want to make sure the incision stays closed. Suzi "Sharyn E. Cerniglia" <sharyncern@...> wrote: Isn’t ginger an anti-inflammatory? How about ginger tea? Celery juice? I’m

sorry, Suzi… Sharyn

Check out the all-new beta - Fire up a more powerful email and get things done faster.

[Guest guest]

Thanks .. .going to order some traumeel and something called Rainbow Lite Pain eze I'm for trying anything (maybe I'm just too impatient). Anne <sarahlovell@...> wrote: My only thought is a homeopathic remedy i've used for swelling and inflammation - Lymphomosot (by Heel - my favourite). The Traumeel that i've been talking about might help too, full of like 15 different remedies working together? The therapist at my office reccommended cold, cold and cold. Alternating cold compresses? Or someone who does MLD - Manual Lymph Drainage. The massage therapist here says that it's SUPER gentle and could possibly be very helpful. But she says find someone that does only that. Try Dr. Vodder's School for a referral (I think it's US and Canada site)I

Don't be flakey. Get for Mobile and always stay connected to friends.

[Guest guest]

When i asked about using cold they told me no, I could use heat for short periods.. but no cold.. it would tighten it and they said I need to relax it...(the shoulders and neck) Thanks Angel.shoogabritches <ShoogaBritches@...> wrote: >> OK, I'm getting frustrated... swallowing is not really improving... any ideas to help reduce the swelling in the throat so that swallowing So sorry you are having trouble, I can not imagine as I have never had this problem. But, I have had trouble breathing and I stick my head in the freezer...that helps me breathing the cold air.Wonder if real cold would help with your inflamed neck. I know this doesn't help, but it seems to me that swelling comes from

it trying to protect them bones...and, until your body is satisfied that those bones are going to be okay...trying to make the swelling go down might be like trying to stop a delivery after the mother has crowned.That may not be the exact reason for the swelling, but I do think it's the bodies answer to protection...you know what I'm trying to stumble over here...That's why I was wondering about applying cold to it or something that will fool that part into thinking everything is okay...you know, put it out of it's misery for a while. I guess you probably do WANT all the circulation you can get so it will heal...so, I guess you can't just keep it 'out' or it might take longer to heal...Listen, I'm just ramblin' through my thoughts here...I just hate that you are feeling bad!I hope you find something to give you some peace here soon.

Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit.

[Guest guest]

Nah, not impatient, just not used to not being well!!

We all want you healthy too! And at the very least, the

homeopathics won't hurt you, even if they don't help. Just don't be

afraid to take it often, and directly under the tongue.

Much well wishes to you,

> My only thought is a homeopathic remedy i've used for swelling

and

> inflammation - Lymphomosot (by Heel - my favourite). The Traumeel

> that i've been talking about might help too, full of like 15

> different remedies working together?

>

> The therapist at my office reccommended cold, cold and cold.

> Alternating cold compresses? Or someone who does MLD - Manual

Lymph

> Drainage. The massage therapist here says that it's SUPER gentle

and

> could possibly be very helpful. But she says find someone that

does

> only that. Try Dr. Vodder's School for a referral (I think it's US

> and Canada site)

>

> I

>

> ---------------------------------

> Don't be flakey. Get for Mobile and

> always stay connected to friends.

>

[Guest guest]

ahh, that makes sense as well.

I would ask them about alternating - just because you are SOOoo

swollen. The heat could be making the pain worse as well...just a

thought?

Clarify for me what your surgery was? Even off list is fine (or you

can say no ) a fusion or discectomy?

> >

> > OK, I'm getting frustrated... swallowing is not really

improving...

> any ideas to help reduce the swelling in the throat so that

> swallowing

>

> So sorry you are having trouble, I can not imagine as I have never

> had this problem.

> But, I have had trouble breathing and I stick my head in the

> freezer...that helps me breathing the cold air.

> Wonder if real cold would help with your inflamed neck.

> I know this doesn't help, but it seems to me that swelling comes

from

> it trying to protect them bones...and, until your body is

satisfied

> that those bones are going to be okay...trying to make the

swelling

> go down might be like trying to stop a delivery after the mother

has

> crowned.

> That may not be the exact reason for the swelling, but I do think

> it's the bodies answer to protection...you know what I'm trying to

> stumble over here...

> That's why I was wondering about applying cold to it or something

> that will fool that part into thinking everything is okay...you

know,

> put it out of it's misery for a while.

> I guess you probably do WANT all the circulation you can get so it

> will heal...so, I guess you can't just keep it 'out' or it might

take

> longer to heal...

> Listen, I'm just ramblin' through my thoughts here...I just hate

that

> you are feeling bad!

> I hope you find something to give you some peace here soon.

>

>

> ---------------------------------

> Now that's room service! Choose from over 150,000 hotels

> in 45,000 destinations on Travel to find your fit.

>