Re: Re: getting diagnosed?

[Guest guest]

I don't understand -- do you mean that you have a second autoimmune disease, in addition to CD? (CD is, of course, an autoimmune diseae.) Perhaps I'm forgetting things you've mentioned in an earlier message.

As I understand it, once one develops CD, or any other autoimmune disease, one has it for life. AI's are treatable, but not curable, as far as I know.

H.

In a message dated 1/8/08 2:46:12 PM, skershaw_sanjose@... writes:

His newest research is that there is a tentative hope that because CD is related to my

autoimmune disease, it could have been the trigger and maybe one day I could actually eat

wheat again. All my other food allergies have disappeared, so I'll keep my fingers crossed!

Steph

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[Guest guest]

Thanks!I'll look into both doctors!The problem is that my symptoms are essentially worthless. I had unexplained iron deficient anemia from the first time I was tested (age 13 or so). It got really low while I was pregnant, but I didn't feel any different. After birth, no different. I got blood drawn in September (

2.5-3 months GF, 9 months postpartum) and my iron was the highest I've ever seen it be. But that could also be explained by lactational amenorrhea.My daughter started reacting to foods, through my milk when she was about 4 months old. The biggest (and still the only one we know for sure) is wheat. It's possible there are many more - I've been eliminating but no challenges yet. I went gluten free (and dairy free and soy free, followed shortly by corn, eggs and almonds) about 6 months ago, and didn't notice any difference. My mom said my coloring got better, and I can kind of see that (went from pale to rosy cheeks). I tested wheat for dd about 6 weeks into the elimination diet, and didn't notice anything for myself (I was paying attention). Now, I think I got glutened for the first time at Christmas (by a crumb), but without knowing if gluten is even an issue for me, I can't know for sure.

On Jan 8, 2008 2:45 PM, skershaw_sanjose <skershaw_sanjose@...> wrote:

Hi ,

I have a couple of recommendations. Dr. Welter with Camino Medical Group in Mountain

View took my celiac questions very seriously and immediately sent me over to a GI doctor

for both an endoscopy and colonoscopy. Website is www.caminomedicalgroup.org

Also, I see you mentioned nursing, so it would be intersting to hear your symptoms. I had

a TON of issues after my daughter's birth and didn't feel like I was getting any useful

answers. On a friend's recommendation, I finally went to see Dr. Becker, the top

endocrinologist in San Francisco, and was diagnosed with all sorts of weird and wonderful

things. I've been seeing him for two years now and he has made my life worth living again.

His newest research is that there is a tentative hope that because CD is related to my

autoimmune disease, it could have been the trigger and maybe one day I could actually eat

wheat again. All my other food allergies have disappeared, so I'll keep my fingers crossed!

Steph

>

> Hello,

>

> I just introduced myself in another thread, and now I have a question. I

> suspect silent celiac for myself, and have been GF for about 6 months now

> (for nursing dd). I also suspect that just being GF isn't the cure-all for

> me. Does anyone have a suggestion for a practitioner in the area who won't

> just make me feel like a hypochondriac? I'd love to get a diagnosis as well

> as some support in searching out other things to help my digestion.

>

> Thanks!

>

> Mountain View

>