RE: Re:Celiac and elderly care

[Guest guest]

This does raise a question I have been

having anxiety over. Hopefully we will be healthy and wealthy enough to always care

for our own needs. But, what if…??

What will we all do if we have the need to

be in an Assisted Living community, a Residential Care Home, Nursing Home etc…

Are we planning/budgeting to have live in

help if we need it…or what facilities can really accommodate our dietary

needs? I think that the need for pre-made, hypo allergenic, sealed from the

factory foods would be a necessity. In old age it may get harder for us to decipher

our food reactions and intolerances from other aging symptoms and it may be

harder for us to control our foods in these environments.

Anyone else a concerned or planning for

this issue. Your thoughts?

From: [mailto: ] On Behalf Of Maia Alpern

Sent: Sunday, March 30, 2008 9:01

AM

Subject: [ ]

Re:Celiac-induced Fantasy

Funny -

just last week I came up with that idea too. There are

personal chefs and personal shoppers already - maybe they could be

trained. Though it doesn't always work - just look at the astounding

number of nutritionists giving out wrong information on eating with

celiac.

What would you pay for that kind of personalized service? Especially

since it wouldn't be covered by insurance. I am curious so let's all

chime in with our opinions. I know when I got so sick I also had no

money since I couldn't work and was in bed for over a year. I would

have really appreciated that kind of service but wouldn't have been

able to afford it. Many others aren't so sick or have spouses that

are working so they could afford that kind of help.

Anyone involved with hospitals or nursing homes out there? Would they

be able to buy shelf stable meals that could be available to their

patients given the cost of gluten free products? And then would you

trust the staff to keep them gluten free unless they came to you

sealed from the factory? Just more fantasizing...

Curious, Maia

[Guest guest]

These are definitely issues. I know of one elderly

celiac in a nursing home. Even though the home was cooperative about the

diet, they still had to buy her food and make sure the staff knew about

it. Even then, whenever someone new came in (which was frequently), they

had problems until they were trained. They had endless meetings with

staff to try to improve things, mostly to no avail. I think most places

try to accommodate but don’t put much real effort in to it. I think

you would fare better at an assisted living facility, but only because

residents are more likely to be aware of what’s going on and have more

ability to change things.

Pam

From:

[mailto: ] On Behalf Of Groff

Sent: Sunday, March 30, 2008 10:37 AM

Subject: RE: [ ] Re:Celiac and elderly care

This does

raise a question I have been having anxiety over. Hopefully we will be healthy

and wealthy enough to always care for our own needs. But, what if…??

What will

we all do if we have the need to be in an Assisted Living community, a

Residential Care Home, Nursing Home etc…

Are we

planning/budgeting to have live in help if we need it…or what facilities

can really accommodate our dietary needs? I think that the need for pre-made,

hypo allergenic, sealed from the factory foods would be a necessity. In old age

it may get harder for us to decipher our food reactions and intolerances from

other aging symptoms and it may be harder for us to control our foods in these

environments.

Anyone

else a concerned or planning for this issue. Your thoughts?

From:

[mailto: ] On Behalf Of Maia Alpern

Sent: Sunday, March 30, 2008 9:01 AM

Subject: [ ] Re:Celiac-induced Fantasy

Funny - just last week I came up with that idea too. There are

personal chefs and personal shoppers already - maybe they could be

trained. Though it doesn't always work - just look at the astounding

number of nutritionists giving out wrong information on eating with

celiac.

What would you pay for that kind of personalized service? Especially

since it wouldn't be covered by insurance. I am curious so let's all

chime in with our opinions. I know when I got so sick I also had no

money since I couldn't work and was in bed for over a year. I would

have really appreciated that kind of service but wouldn't have been

able to afford it. Many others aren't so sick or have spouses that

are working so they could afford that kind of help.

Anyone involved with hospitals or nursing homes out there? Would they

be able to buy shelf stable meals that could be available to their

patients given the cost of gluten free products? And then would you

trust the staff to keep them gluten free unless they came to you

sealed from the factory? Just more fantasizing...

Curious, Maia

[Guest guest]

Gads, I knew there was an extra reason I keep dreaming of moving to Europe! Realistically however in time things will change, as they already are starting to. We of course are part of that change. My belief is that by making our voices heard this will become less and less a problem as time goes on, especially given what a common problem celiac is despite this culture's current lack of awareness of it.Pam Newbury <pknewbury@...> wrote: These are definitely issues. I know of one elderly celiac in a nursing home. Even though the home was cooperative about the diet, they still had to buy her food and make sure the staff knew about it. Even then, whenever someone new came in (which was frequently), they had problems until they were trained. They had endless meetings with staff to try to improve things, mostly to no avail. I think most places try to accommodate but don’t put much real effort in to it. I think you would fare better at an assisted living facility, but only because residents are more likely to be aware of what’s going on and have more ability to change things. Pam From: [mailto: ] On Behalf Of Groff Sent: Sunday, March 30, 2008 10:37 AM Subject: RE: [ ] Re:Celiac and elderly care This does raise a question I have been having anxiety over. Hopefully we will be healthy and wealthy enough to always care for our own needs. But, what if…?? What will we all do if we have the need to be in an Assisted Living community, a Residential Care Home, Nursing Home etc… Are we planning/budgeting to have live in help if we need it…or what facilities can really accommodate our dietary needs? I think that the need for pre-made, hypo allergenic, sealed from the factory foods would be a necessity. In old age it may get harder for us to decipher our food reactions and intolerances from other aging symptoms and it may be harder for us to control our foods in these environments. Anyone else a concerned or planning for this issue. Your

thoughts? From: [mailto: ] On Behalf Of Maia Alpern Sent: Sunday, March 30, 2008 9:01 AM Subject: [ ] Re:Celiac-induced Fantasy Funny - just last week I came up with that idea too. There are personal chefs and personal shoppers already - maybe they could be trained. Though it doesn't always work - just look at the

astounding number of nutritionists giving out wrong information on eating with celiac. What would you pay for that kind of personalized service? Especially since it wouldn't be covered by insurance. I am curious so let's all chime in with our opinions. I know when I got so sick I also had no money since I couldn't work and was in bed for over a year. I would have really appreciated that kind of service but wouldn't have been able to afford it. Many others aren't so sick or have spouses that are working so they could afford that kind of help. Anyone involved with hospitals or nursing homes out there? Would they be able to buy shelf stable meals that could be available to their patients given the cost of gluten free products? And then would you trust the staff to keep them gluten free unless they came to you sealed from the factory? Just more fantasizing... Curious, Maia