Dr. Gray question

[Guest guest]

I have known some celiacs who have had very good experiences

with Dr. Gray, others not so good. I guess it depends on your needs and

perspective. At Stanford they like things neat and tidy with regard to

diagnosis, so if you have been off gluten for a while, they want to put you on

it to be sure of the diagnosis, since biopsy and blood tests would show false

negatives on a GF diet. Sadly, there doesn’t seem to be

acknowledgement of the fact that for some people it simply isn’t worth

suffering, not to mention the risk of triggering an associated autoimmune

disease, to get a diagnosis. Unfortunately, at Stanford, diagnosis is

their game, and currently there is no diagnosis without gluten.

If I could wish for one thing for celiacs, even more than a “cure”,

it would be a way to diagnose the disease without needing to eat gluten.

Tom, in the interests of a kinder, gentler celiac list, next

time you can’t restrain yourself, try using webdings for your expletives,

please! I totally

understand the impulse, but some may be offended. Anyone

can translate if they want by going into reply mode and changing the font.

Pam

From:

[mailto: ] On

Behalf Of

Sent: Friday, March 28, 2008 3:23 PM

Subject: [ ] Re:Dr. Gray question

My husband saw Dr. Gray over 4 years ago and I agree with Tom's

assessment.

We were kept waiting over 2 hours, finally interviewed by a doctor in

training, and then only spoke with Dr. Gray for a few minutes. He did NOT

want to listen or answer my husband's questions. (We did not go back and

found a GI doctor close to home.)

In my opinion, Dr. Gray he should not be seeing patients. He should

stick to his research work.

--- In , HiDee HoMan <hideehoman@...>

wrote:

>

> I do NOT generally like to badmouth ppl, but my appt

> w/ Dr. <jackass>Gray (sorry! I can't say his name

> w/out the addition) STILL makes my blood boil, and it

> was back in '04.

>

> Having originally been dx'd as a child, in the 60s,

> AND having unBELIEVably great response to the GF diet

> I'd been on for 10+ months (prior to gf I was maybe

> months from needing institutional care), I was sure I

> made it QUITE clear I wouldn't be eating bread every

> day for a month the FIRST time he asked.

>

> Then he'd insist on it, twice more, every 10 or 15min.

>

>

> It was as if he had ZERO clue about what celiac can do

> beyond the basic GI symptoms.

>

> I think he was in it just to recruit test subjects.

> The entire 45min was infuriating and I felt he had no

> interest in actually helping me.

> Still being quite brain-fogged, I couldn't effectively

> argue w/ him, but he barely let me go through my

> symptoms & story anyway.

>

>

> Tom

>

>

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