Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Hi, I couldn't help but dip my oar into the conversation about doctors, diagnosis, bedside manners, and where to go for a celiac-friendly GI doctor. Having seen 4 GI docs (including at Stanford) and 2 dietitians, I think there is a limit to what traditional healthcare can do when it comes to celiac sprue. For example, I would be in better shape if I had an advance crew to go to grocery stores, restaurants, and potluck dinners to check ingredients and cross-contamination for me. Maybe it would be a someone like a dietician-trained personal shopper who would inventory my taste in foods and come up with food lists/sources or safe restaurants to frequent. And when I had a reaction, this person would be able to sleuth the culprit, being intimate with my diet. S/he would suggest foods to eliminate, syndromes to research, or specialists to go to who could help with my unique symptoms. Fantasy aside, the doctors and dietitians need the support groups and lists such as this one, to help with the details of implementing a truly gluten free diet. Or to help figure out multiple issues. I know so much more about how to take care of myself from the range of advice, opinions and resources reported and espoused here. Keep it coming! Maybe some day, we won't need to be so careful because food will be " safer, " diagnoses will be more finely tuned, and healthcare will cover my dietian/personal shopper. :-) Carol Quote Link to comment Share on other sites More sharing options...
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