Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 Barb, We are gluten free as well, and yes, I can (sometimes) see a reaction from small amts of wheat. On Easter a lovely in-law gave a nice huge piece of cornbread, because " well, isn't it just corn? " His stools were off the entire week as well as less focused and more spacey. When his system is doing well overall he can sometimes have a bit of wheat with no reaction--but now, with pollen up and all I think it's too much for him to handle. Plus he tests high to just about every food on Meridian's panel, anyway. Becky Very subtle, tho enterolab > > Have any of you had your kids tested thru enterolab > (website: www.enterolab.com) to see if your children > have the gene (s) which predispose to celiac and other > autoimmune complications? I am really starting to > wonder if perhaps at least one of the missing pieces > to my son's difficulty with learning and a.d.d. > tendencies, might be due to the fact that he is > getting some wheat in his diet, in processed form. > According to articles on their website, wheat can > cause neurological symptoms, even if it is not > causing G.I. disturbances. Do any of you strictly > adhere to a gluten free as well as a milk free diet, > even tho gluten is allowed in modified form on the > nids diet? Do you see problems in your child when it > is reintroduced? My son has been on wheat free diets > at different times in his life, but I did not see > improvements on it. Neither did I see declines when > he resumed eating it on the nids diet. This makes me > worried that there is cerebellum damage. I also hate > to take it away if it is unnecessary, as he is quite > thin for his age(14). We just got him up to 80 lbs. > and he is about 4'10 " . > > Anyway, I would appreciate anyone's experience with > this. I am contemplating doing the swab test to > analyze dna from this lab. Thanks. Barb > > Barb Katsaros > barbkatsaros@... > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 I was happy for Karie from Santa (we are almost neighbors). I was one of the original research subjects 6 or 7 years ago, travelled to Dallas, where i was in the hospital for about one week. I went back last year for a conference that Dr. Fine put together for patients and professionals alike. I heard nothing but positive feedback. I will forever be thankful that I made that trip to Dallas. Like you, Karie, I had misdiagnosis one after another here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 That is great news, Doris. Where are you writing from? I’m so glad to hear the positive information about Enterolab. I will have a great appreciation for my new MD forever because she gave me this test on my first visit. The second visit, nailed it. Anyone in the Mill Valley, CA area may be interested in Clear Center of Health, operated by Beth McDougall, MD. She is not accepting new patients at this time, but there are two other physicians who share the same philosophy, who are. See http://www.clearcenterofhealth.com/. I will be equally grateful for Enterolab testing. How can one have such affection for an organization?!!! I love you, guys! This gluten lab test is “Fine”! The genetic factors revealed such detail as receiving a celiac gene from one of my parents and a non-celiac gluten sensitivity gene from both of my parents. It also gives genetic risk factors for family planning. When I was trying to have children, I had a hard time getting pregnant. When I did conceive, I lost each pregnancy, the longest gestation period being 4.5 months. The baby had Trisomy 18 and we terminated. The first baby was 3 months along and I miscarried. So, in light of present diagnostics, it makes sense. I have experienced much sadness over this loss of being a mom, as it was something I really wanted to be. Over the past 5 years, I’ve said goodbye to the aspiration, but am using the nurturing energy to enter a caring profession. Just started a PhD in clinical psychology in September and am very pleased and fulfilled. My parents are in their mid-60s and are in a state of denial. Dad, who has been very ill since he was in his late 30s and disabled by age 45, with crippling spinal joint degeneration, muscle fatigue, muscle wasting in his legs, will not stop to get tested or change his eating habits. I feel very sad that he has had to wait his whole life, be able to find out, and then skip it. He is wasted and stupified after every meal. Mom thinks that I must have gotten the gluten sensitivity from an ancestor up the family tree and is content with her wellness. Well, just interesting how different people respond to information and answers. It’s not for everyone. I spoke with a woman who answers the phone at Enterolab and she said that many older people have a hard time integrating this type of information into a new lifestyle at their age. They figure that they don’t have many years left and kind of throw in the towel, minimizing the gluten products, but not completely eliminating them for ideal health outcomes. I’m looking forward to getting to know you all and how you live your lives and feel it is “normal”. Right now, I’m a bit overwhelmed. I had suspected I had gluten sensitivity and for the past 5 years cut out obvious glutens, such as bread. Now, to find other culprit contaminations. I don’t trust eating out, yet. Take care, Karie From: [mailto: ] On Behalf Of Doris Sent: Tuesday, October 16, 2007 6:29 PM Subject: [ ] enterolab I was happy for Karie from Santa (we are almost neighbors). I was one of the original research subjects 6 or 7 years ago, travelled to Dallas, where i was in the hospital for about one week. I went back last year for a conference that Dr. Fine put together for patients and professionals alike. I heard nothing but positive feedback. I will forever be thankful that I made that trip to Dallas. Like you, Karie, I had misdiagnosis one after another here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 Fantastic info Karie! Thank you for providing that! Tom (btw, I'm finally in SJ for good, tho my 'moving POD' is still a couple days out. I hope to meet many of you in time. I've always greatly enjoyed time spent w/ other celiacs. ) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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