Re: Recently diagnosed 18 month old girl

[Guest guest]

Welcome, Ahroon.

There is much to learn and things will

definitely get better.

Have you all gone gluten free? It is

so much easier to have a gluten free zone at home – no cross

contamination issues, no foods to be begged for and lots of modeling on how GF

foods taste good.

Cross contamination can be a really big

issue – the wheat in soy sauce will cause reactions, a crumb of bread is

a major assault on the gut, flour in the sugar canister will get her.

Wooden spoons formerly used in the spaghetti pot, now used in the rice pasta

pot will cause a reaction. Cutting boards, Teflon pans, flour dust in the

cabinet.

What did you and she eat before?

What were her favorites? We can help you replace them with GF

goodies. If she really likes some nutrient rich foods like meat and fruits

and veggies then you are way ahead. If she has been acting like an addict

to carbs then there are GF replacements, but you will need to help her move to a

more nutritious diet overall.

It can take awhile for the gluten to get

out of her system – I found that in the beginning it took up to a week

for accidental gluten to show up in symptoms so she may still be reacting to

what she ate a week or more ago. PeptoBismol or Kaopectate can help

somewhat. As can probiotics.

How is she reacting to milk and milk

products? Some of us lose the ability to digest milk sugars when the gut

is harmed by gluten. Some of us react to the milk proteins in the same

way that we react to gluten. Are you still nursing her or is she on

formula? Nursing should continue if you are, but you need to stop eating

gluten. If she is on formula, you might want to check on that, although

soy formula can be just as much of an allergen as dairy or wheat.

There are a number of that

will help. You might want to try the one called GFCFNN – lots of

moms there with the same issues and lots of help.

Please feel our support

Connie

From: [mailto: ] On Behalf Of Ahroon Yoch

Sent: Thursday, March 13, 2008

8:26 PM

Subject: [ ] Recently

diagnosed 18 month old girl

Hi,

I am so happy to see that this group exists. We just got the Celiac

Diagnosis last week for our 18 month old girl. This has been a rough period,

both leading up to the diagnosis as well as this week. She has been

gluten free for almost a week and it seems like she is getting worse not

better. She has less of an appetite then she did before. She still throws

up almost once a day. She is very irritable and wants to be carried all of the

time. And she just seems to be getting so thin. How quickly did other

folks see an improvement? Any tricks to get her to eat more? She was always a

very picky eater and really won't try new foods.

Any advise/thoughts for an anxious mom of a newly diagnosed

toddler.

Thanks for your help.

Ahroon

Looking for last minute shopping deals? Find

them fast with Search.

[Guest guest]

Hi,

that sounds so frustrating!

I believe my 15mo has Celiac, but we don't have a diagnosis yet. My 5

year old got her biopsy confirmed diagnosis two weeks ago. I took

both kids (and myself, since the baby is nursing) off gluten at the

same time. Neither had typical symptoms, though, so I can't really

answer about time to improvement. Have you read _Kids with Celiac

Disease_ yet? http://tinyurl.com/2d8x9f I found it fairly

informative. I'm continually amazed by the things that have gluten in

them that completely slip through my initial pantry cleanout - fruit

snacks, chipotles in adobo sauce, asefetida.... it is everywhere! I

just got rid of our gluten-y toaster, wooden spoons, and plastic

mixing bowls... So many changes! (As an aside, does anyone know if

silicone bakeware is on the needs to be replaced list? I love my

little Le Creuset silicone muffin pans...)

I'd be happy to talk kid snacks and things with you. What kinds of

food does she like?

There's a local group for celiac kids, too: bayareaceliacROCK,

though it is pretty low traffic so far.

Good luck and I hope she starts to feel better soon

-

On Thu, Mar 13, 2008 at 8:25 PM, Ahroon Yoch <ahroonyoch@...> wrote:

>

>

>

>

>

>

>

> Hi,

>

> I am so happy to see that this group exists. We just got the Celiac

> Diagnosis last week for our 18 month old girl. This has been a rough period,

> both leading up to the diagnosis as well as this week. She has been gluten

> free for almost a week and it seems like she is getting worse not better.

> She has less of an appetite then she did before. She still throws up almost

> once a day. She is very irritable and wants to be carried all of the time.

> And she just seems to be getting so thin. How quickly did other folks see

> an improvement? Any tricks to get her to eat more? She was always a very

> picky eater and really won't try new foods.

>

> Any advise/thoughts for an anxious mom of a newly diagnosed toddler.

>

> Thanks for your help.

>

> Ahroon

> ________________________________

> Looking for last minute shopping deals? Find them fast with Search.

>

[Guest guest]

I'd like to also recommend the forums @ celiac.com

(The forum itself is at www.glutenfreeforum.com )

There seems to be a large group of moms there, and

besides all the other useful sub-forums, one is TITLED

" Parents of celiac children " .

I sure you'd find loads of useful info, not to mention

get many replies to any specific questions when you

start a thread.

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ