Re: Re: More Snack Foods, need ideas for BC Walk food

[Guest guest]

Have you and your doctor discussed osteoporosis, strokes, memory loss, etc.?

Symptoms are just the tip of the icebg.

H.

In a message dated 4/27/08 3:56:27 PM, ambercastro13@... writes:

I have tested positive but after 4+ years of

majorly avoiding (eating 95% GF) I seem to function rather well (no

headaches, minimal stomach issues, no weightloss problems), however I

know that will change and smaller amounts will begin to affect me

(like today unfortunately) (l

**************Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

I'm new to all this, but it was my understanding that if you have celiac disease, you have to avoid even the smallest amount of gluten, since even a small amount will damage your intestine, greatly reduce your intestine's ability to heal if you ever do go on a gluten-free diet, and greatly increase your chances of lymphoma and intestinal cancer. I would love to be mistaken about this, but it's certainly what the nutritionist and GI doctor told me.

In a message dated 4/27/08 3:56:25 PM, ambercastro13@... writes:

I havent totally had

to cut it out yet,

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[Guest guest]

Amber, it sounds as if you're arranging things well for your walk.

You mention that you have children. At some point, you might want to consider a gene test, which would give you a better idea of whether your children could develop CD.

Best wishes.

H.**************Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

They are, of course, correct. There is no safe amount of gluten. You'll continue to ingest it as your own risk. Why hurt yourself?

-------------- Original message -------------- From: TrVerb@...

I'm new to all this, but it was my understanding that if you have celiac disease, you have to avoid even the smallest amount of gluten, since even a small amount will damage your intestine, greatly reduce your intestine's ability to heal if you ever do go on a gluten-free diet, and greatly increase your chances of lymphoma and intestinal cancer. I would love to be mistaken about this, but it's certainly what the nutritionist and GI doctor told me.In a message dated 4/27/08 3:56:25 PM, ambercastro13 writes:

I havent totally hadto cut it out yet,**************Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.(http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

Amber, don't get discouraged. Going gf is a huge life change, and being a mom to young kids takes so much out of you. As moms we have so many plates spinning, and our concerns, even health concerns, tend to take a back seat. It sounds like you know exactly what you need to do. Get there as soon as you can. You're doing your best. I hope things like this board help take the stress off a little. I love knowing that there are people out there who " get " me, and that I can even talk about things like not being diligent or slipping up or whatever.

One idea to save time shopping at specialty stores (which I hate too) is going to Amazon or glutenfree.com. They both have lots of good stuff and the shipping is pretty quick.

Good luck on your breast cancer walk!On Sun, Apr 27, 2008 at 9:40 PM, Amber C <ambercastro13@...> wrote:

I thank you all for the concern and as I said, Im working on being a

good celiac patient and long term, meaning over the coming year, I

plan on being GF 100%. All I meant when I said that I was more

intolerant was just that my reaction is not immediate where I am bent

over in pain (unless its Rootbeer or dark beer) so if I get a little

gluten I can still function day to day, however as we all know the

damage is long term either way.

4 years ago, when I went to the GI, he was a total jerk to me, I had

been GF for 2 years, after a self diagnosis, he told me to eat wheat

for 6 wks and come back and he would talk to me and test me then.

Obviosly after eating wheat for 2 weeks I got extremely sick I said

screw him and stopped eating wheat again and never went back. I have

since had two kids and breast fed them both for 8 months, been able

to maintain my weight for the first time in years, and am MOSTLY GF.

I am working on going totally GF but standing in stores and reading

labels dosent happen with two babies, neither does shopping in

mulitple stores on a regular basis to get all that I need to

survive. I do the best I can and avoid it at all costs, but I know

that at this time Im not perfect, and until I get some help from my

husband when he graduates next month, I dont have the time to make

and shop for the proper foods 100%. But the plan is for this to

happen completely for me and my children who arent sick yet, but seem

to get every stomach bug out there, by the end of the year, we are

making this a priority.

My grandmother died of problems from chrones (sp?) and one of my best

friends has developed Chrones from damage caused by celiac, so I

totally understand the risks that Im taking, but at the moment I dont

have much of a choice.

Thank you for any help you can give me that helps me avoid all that I

can during this walk. I am trying to plan ahead so I can find foods

that are appropriate and give me all the nutrition that I need for

such a huge undertaking so that I dont have to eat their questionable

food (as we all know its questionable even if I ask for GF). I have

already called and they said they will allow me a larger weight for

my carry ons to accomodate my food needs, so thats great.

Sorry if I was snippy above, as you all know this diagnosis is a huge

struggle and my GP is wonderful and totally supportive including

giving me just this week the results of my initial tests 4 years ago

which showed elevated levels that would have shown the GI there was

an issue if he would have gotten over himself and actually looked.

So this has been a bad week for me being mad at doctors, and my

family who always thought I was just crazy and over reacting. Im

glad I took it upon myself to follow my bodies lead and eat gluten

free instead of waiting for a doctor.

Amber

>

> I'm new to all this, but it was my understanding that if you have

celiac

> disease, you have to avoid even the smallest amount of gluten,

since even a small

> amount will damage your intestine, greatly reduce your intestine's

ability to

> heal if you ever do go on a gluten-free diet, and greatly

increase your

> chances of lymphoma and intestinal cancer. I would love to be

mistaken about this,

> but it's certainly what the nutritionist and GI doctor told me.

>

>

> In a message dated 4/27/08 3:56:25 PM, ambercastro13@... writes:

>

>

> > I havent totally had

> > to cut it out yet,

> >

>

>

>

>

> **************

> Need a new ride? Check out the largest site for U.S. used car

> listings at AOL Autos.

>

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>