Re: More Snack Foods, need ideas for BC Walk food

[Guest guest]

Your plan for food to carry sounds good.

Have you been tested for CD? Celiac disease isn't an allergy, and more than half the people with CD have no obvious symptoms. If you have CD, even without any symptoms, silent damage will be going on.

H.

In a message dated 4/27/08 2:19:28 PM, ambercastro13@... writes:

I am doing the Breast Cancer Walk in SF in Sept.  That means they will be making meals for me for three days.  Yea we all know thats not going to work.  I have to admit I am more intolerant long term of gluten than immediately allergic, so I mostly have to AVOID gluten, rather than cut it out (of course thats not my long term plan.)  So the one thing that has been stressing me out about the walk, besides training for a 60 mile walk, is what I am going to eat.  They state they will be serving carb-heavy food, which is probably a lot of carbs that I cant eat. 

**************Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

I have very obvious symptoms but they happen over the course of time

with eating too much gluten, so while I avoid it, I havent totally had

to cut it out yet, but it is the plan to do it over time as I know it

is still causing damage. I have tested positive but after 4+ years of

majorly avoiding (eating 95% GF) I seem to function rather well (no

headaches, minimal stomach issues, no weightloss problems), however I

know that will change and smaller amounts will begin to affect me

(like today unfortunately).

That is my major concern for this walk, I dont want to get sick while

Im there, so I thought I could get more ideas of foods to bring with

me so I can get as little gluten as possible and not be hungry. Thanks!

Amber

>

> Your plan for food to carry sounds good.

>

> Have you been tested for CD? Celiac disease isn't an allergy, and

more than

> half the people with CD have no obvious symptoms. If you have CD,

even

> without any symptoms, silent damage will be going on.

>

> H.

>

>

> In a message dated 4/27/08 2:19:28 PM, ambercastro13@... writes:

>

>

> > I am doing the Breast Cancer Walk in SF in Sept. That means they

will be

> > making meals for me for three days. Yea we all know thats not

going to work.

> > I have to admit I am more intolerant long term of gluten than

immediately

> > allergic, so I mostly have to AVOID gluten, rather than cut it out

(of course

> > thats not my long term plan.) So the one thing that has been

stressing me out

> > about the walk, besides training for a 60 mile walk, is what I am

going to

> > eat. They state they will be serving carb-heavy food, which is

probably a lot

> > of carbs that I cant eat.

> >

> >

>

>

>

>

> **************

> Need a new ride? Check out the largest site for U.S. used car

> listings at AOL Autos.

>

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

[Guest guest]

I thank you all for the concern and as I said, Im working on being a

good celiac patient and long term, meaning over the coming year, I

plan on being GF 100%. All I meant when I said that I was more

intolerant was just that my reaction is not immediate where I am bent

over in pain (unless its Rootbeer or dark beer) so if I get a little

gluten I can still function day to day, however as we all know the

damage is long term either way.

4 years ago, when I went to the GI, he was a total jerk to me, I had

been GF for 2 years, after a self diagnosis, he told me to eat wheat

for 6 wks and come back and he would talk to me and test me then.

Obviosly after eating wheat for 2 weeks I got extremely sick I said

screw him and stopped eating wheat again and never went back. I have

since had two kids and breast fed them both for 8 months, been able

to maintain my weight for the first time in years, and am MOSTLY GF.

I am working on going totally GF but standing in stores and reading

labels dosent happen with two babies, neither does shopping in

mulitple stores on a regular basis to get all that I need to

survive. I do the best I can and avoid it at all costs, but I know

that at this time Im not perfect, and until I get some help from my

husband when he graduates next month, I dont have the time to make

and shop for the proper foods 100%. But the plan is for this to

happen completely for me and my children who arent sick yet, but seem

to get every stomach bug out there, by the end of the year, we are

making this a priority.

My grandmother died of problems from chrones (sp?) and one of my best

friends has developed Chrones from damage caused by celiac, so I

totally understand the risks that Im taking, but at the moment I dont

have much of a choice.

Thank you for any help you can give me that helps me avoid all that I

can during this walk. I am trying to plan ahead so I can find foods

that are appropriate and give me all the nutrition that I need for

such a huge undertaking so that I dont have to eat their questionable

food (as we all know its questionable even if I ask for GF). I have

already called and they said they will allow me a larger weight for

my carry ons to accomodate my food needs, so thats great.

Sorry if I was snippy above, as you all know this diagnosis is a huge

struggle and my GP is wonderful and totally supportive including

giving me just this week the results of my initial tests 4 years ago

which showed elevated levels that would have shown the GI there was

an issue if he would have gotten over himself and actually looked.

So this has been a bad week for me being mad at doctors, and my

family who always thought I was just crazy and over reacting. Im

glad I took it upon myself to follow my bodies lead and eat gluten

free instead of waiting for a doctor.

Amber

>

> I'm new to all this, but it was my understanding that if you have

celiac

> disease, you have to avoid even the smallest amount of gluten,

since even a small

> amount will damage your intestine, greatly reduce your intestine's

ability to

> heal if you ever do go on a gluten-free diet, and greatly

increase your

> chances of lymphoma and intestinal cancer. I would love to be

mistaken about this,

> but it's certainly what the nutritionist and GI doctor told me.

>

>

> In a message dated 4/27/08 3:56:25 PM, ambercastro13@... writes:

>

>

> > I havent totally had

> > to cut it out yet,

> >

>

>

>

>

> **************

> Need a new ride? Check out the largest site for U.S. used car

> listings at AOL Autos.

>

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

[Guest guest]

What I like about this idea is that you won't have to carry so much weight! Of course, it's basically carbs.

H.

In a message dated 4/28/08 9:22:17 AM, jaybirdsg@... writes:

Have you thought about bringing some THAI Kitchen rice

noodle bowls. They are gluten free and you just need

to add hot water which the support team should have.

It maybe a good thing to bring if you are in a pinch

for one of the meals. They come in multiple flavors

and can be found at whole foods and some grocery

stores. I have participated in activities like this

before and I bring pre-cooked gluten free noodles in

zip lock bags and then add their sauces.

**************Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

Have you thought about bringing some THAI Kitchen rice

noodle bowls. They are gluten free and you just need

to add hot water which the support team should have.

It maybe a good thing to bring if you are in a pinch

for one of the meals. They come in multiple flavors

and can be found at whole foods and some grocery

stores. I have participated in activities like this

before and I bring pre-cooked gluten free noodles in

zip lock bags and then add their sauces.

Have a great time on your walk. It is for a really

good cause.

Shyra

--- Amber Castro <ambercastro13@...> wrote:

> I am doing the Breast Cancer Walk in SF in Sept.

> That means they will be making meals for me for

> three days. Yea we all know thats not going to

> work. I have to admit I am more intolerant long

> term of gluten than immediately allergic, so I

> mostly have to AVOID gluten, rather than cut it out

> (of course thats not my long term plan.) So the one

> thing that has been stressing me out about the walk,

> besides training for a 60 mile walk, is what I am

> going to eat. They state they will be serving

> carb-heavy food, which is probably a lot of carbs

> that I cant eat.

>

> So my question is, has anybody done this or a

> similar walk/run/bike and how did you provide food

> for yourself, or do you have any ideas for me of

> things to bring to substitute my meals when I dont

> have a cooler or frig, and nobody to deliver food

> for me. My plan is to bring lots of vanilla

> ensures, beef jerky and luna bars, and to eat their

> fruit and food that looks safe or low gluten. I am

> working on coming up with a good trail mix for

> myself ( I dont eat nuts), what do you put in yours?

>

>

> Any ideas or past experiences will help me.

> Thanks!!

>

> -Amber Castro

> I'm Walking 60 miles in 3 days in support of those

> battling Breast Cancer

> Donate to the Cure!

> http://08.the3day.org/goto/Amber_Castro

>

>

>

>

>

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____

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> know-it-all with Mobile. Try it now.

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[Guest guest]

wow thats a great idea! Thanks!

>

> What I like about this idea is that you won't have to carry so much

weight!

> Of course, it's basically carbs.

> H.

>

> In a message dated 4/28/08 9:22:17 AM, jaybirdsg@... writes:

>

>

> >

> > Have you thought about bringing some THAI Kitchen rice

> > noodle bowls. They are gluten free and you just need

> > to add hot water which the support team should have.

> > It maybe a good thing to bring if you are in a pinch

> > for one of the meals. They come in multiple flavors

> > and can be found at whole foods and some grocery

> > stores. I have participated in activities like this

> > before and I bring pre-cooked gluten free noodles in

> > zip lock bags and then add their sauces.

> >

> >

> >

>

>

>

>

> **************

> Need a new ride? Check out the largest site for U.S. used car

> listings at AOL Autos.

>

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

[Guest guest]

Hi -

I, too, thought of the soup bowls. Depending on what you can eat, there are some other potential things you might be able to take with you....hard cheese (cheddar) should be okay for the duration of the walk if you are not Lactose Intolerant. I've taken it backpacking in earlier years and it does okay. You could bring along rice thins (from Trader Joe's, if you shop there) and then you'd have crackers and cheese......there are Lara Bars, and other similar ones, which are GF - they are energy bars made of fruits and nuts (if you can those) and I think they're quite nice - they'd be easy to transport.....if there is a microwave on the route, there are precooked rice containers available. I've seen them even at Trader Joe's. They are shelf stable and I think they only need to be microwaved......there are some soups that are available that are dehydrated and one only adds water. I've used a split pea one from some supplier (the name isn't coming to me) and I like it. I think it is basically GF ingredients although I can't recall if it says so on the package.....there are carrot sticks and celery sticks.....peanut butter, if you can eat it.....apples, either fresh or dehydrated......If you feel like carrying cereal, there are GF cereals like Peanut Butter Panda Puffs which you could eat out of hand for a snack, or you could use soy milk (they're bound to have that as an alternative.

Those are some ideas anyway. Hope you'll get this figured out. Best wishes, and thank you for walking to raise funds for breast cancer!

---- **************Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

When I'm on group hikes, I often bring apple wedges and a small plastic storage container that I fill with peanut butter. This snack weighs little, is tidy, and provides me with a great deal of energy.

Of course, this presumes you can eat peanuts.

H.**************Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

First of all, I think it's wonderful that you are participating in

the Breast Cancer Walk! I have not tried this before, but there is a

website of pre-made GF food called:

http://www.dinewise.com/gluten-free-meals.html. So, if this sounds

good to you, you would just need to order the food & get it to the

staff taking care of all the meals. That might be an option for

you. Good luck with this!!!

>

> I am doing the Breast Cancer Walk in SF in Sept. That means they

will be making meals for me for three days. Yea we all know thats

not going to work. I have to admit I am more intolerant long term of

gluten than immediately allergic, so I mostly have to AVOID gluten,

rather than cut it out (of course thats not my long term plan.) So

the one thing that has been stressing me out about the walk, besides

training for a 60 mile walk, is what I am going to eat. They state

they will be serving carb-heavy food, which is probably a lot of

carbs that I cant eat.

>

> So my question is, has anybody done this or a similar walk/run/bike

and how did you provide food for yourself, or do you have any ideas

for me of things to bring to substitute my meals when I dont have a

cooler or frig, and nobody to deliver food for me. My plan is to

bring lots of vanilla ensures, beef jerky and luna bars, and to eat

their fruit and food that looks safe or low gluten. I am working on

coming up with a good trail mix for myself ( I dont eat nuts), what

do you put in yours?

>

> Any ideas or past experiences will help me. Thanks!!

>

> -Amber Castro

> I'm Walking 60 miles in 3 days in support of those battling Breast

Cancer

> Donate to the Cure!

> http://08.the3day.org/goto/Amber_Castro

>

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

[Guest guest]

Can you talk to the caterer (or whoever) who is arranging the

event? Some caterers are flexible and will work with you to find

out what they are serving already that is GF and what can easily be made

GF. For instance, If they are having cheese and cold cuts for sandwiches,

you could bring some GF crackers to go with them instead of bread (provided you

check ahead of time to make sure the meat is GF).

Trader joe’s has GF

granola, but I don’t remember if there are nuts in it.

For trail mix, try using

coconut flakes, chocolate chips, raisins, GF cereal (Perkey’s, corn

flakes, rice chex, Cere’O’s). You could also use crumbled up

cookie bits (One of the few Ener-G products I like are their chocolate chip

snack bars http://www.ener-g.com/store/detail.aspx?section=6 & cat=6 & id=1023,

I have used these for trail mix by just breaking them up into pieces and mixing

them up with other ingredients; they are nut-free) dried edamame (see my

previous post on snacks for more about this), dried fruit, etc.

Some of the other things I

mentioned in my previous post would work here: the cheese crunchies, dried

veggies, pretzels, glad corn, etc.

Let me know what facilities

you will have access to (if any) and I can suggest other things.

Pam

From:

[mailto: ] On

Behalf Of Amber Castro

Sent: Sunday, April 27, 2008 2:19 PM

Subject: [ ] More Snack Foods, need ideas for BC Walk food

I am doing the Breast Cancer Walk in SF in Sept. That

means they will be making meals for me for three days. Yea we all know

thats not going to work. I have to admit I am more intolerant long term

of gluten than immediately allergic, so I mostly have to AVOID gluten, rather

than cut it out (of course thats not my long term plan.) So the one thing

that has been stressing me out about the walk, besides training for a 60 mile

walk, is what I am going to eat. They state they will be serving

carb-heavy food, which is probably a lot of carbs that I cant eat.

So my question is, has anybody done this or a similar walk/run/bike and how did

you provide food for yourself, or do you have any ideas for me of things to

bring to substitute my meals when I dont have a cooler or frig, and nobody to

deliver food for me. My plan is to bring lots of vanilla ensures, beef

jerky and luna bars, and to eat their fruit and food that looks safe or low gluten.

I am working on coming up with a good trail mix for myself ( I dont eat nuts),

what do you put in yours?

Any ideas or past experiences will help me. Thanks!!

-Amber Castro

I'm Walking 60 miles in 3 days

in support of those battling Breast Cancer

Donate to the Cure!

http://08.the3day.org/goto/Amber_Castro

Be a better friend, newshound, and know-it-all with

Mobile. Try

it now.