Guest guest Posted September 11, 2001 Report Share Posted September 11, 2001 <I cry sitting in front of the TV - the world will never be the same after today - I pray for all these suffering people and America. Hugs from Switzerland > Hi, Everyone..... (and all other non-Americans) Thank you for your prayers and thoughts. I told my DH tonight that I can't imagine hating something or someone to the point of doing such a horrendous act. Heaven recieved a lot of new angels today. Take care, Everyone. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 there you go again RL..just tryin to make me blush!!!!((hugs to all))) Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 Is a side effect from the peg combo elevated blood pressure? I'm at week 7. My reg. Doc is monitoring my BP for 3 weeks and said she will treat it. My GI Doc's nurse that monitors the treatment didn't say much about it. It's 130 over 94. Maybe that's part of the reason I feel so crummy? Thanks for input. Pat --- Hepatitis C wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 Is a side effect from the peg combo elevated blood pressure? I'm at week 7. My reg. Doc is monitoring my BP for 3 weeks and said she will treat it. My GI Doc's nurse that monitors the treatment didn't say much about it. It's 130 over 94. Maybe that's part of the reason I feel so crummy? Thanks for input. Pat --- Hepatitis C wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 Is a side effect from the peg combo elevated blood pressure? I'm at week 7. My reg. Doc is monitoring my BP for 3 weeks and said she will treat it. My GI Doc's nurse that monitors the treatment didn't say much about it. It's 130 over 94. Maybe that's part of the reason I feel so crummy? Thanks for input. Pat --- Hepatitis C wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 Is a side effect from the peg combo elevated blood pressure? I'm at week 7. My reg. Doc is monitoring my BP for 3 weeks and said she will treat it. My GI Doc's nurse that monitors the treatment didn't say much about it. It's 130 over 94. Maybe that's part of the reason I feel so crummy? Thanks for input. Pat --- Hepatitis C wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 PAT! Hi, I have been looking for you online. I thought it may take a while because you just began treatment. There is such a thing as white coat Blood pressure. Where you are nervous at the Dr. office and it effects your BP. To get a real clear BP reading you can take it at home with a BP kit from the local drug store. I would suggest this first. You will begin to feel better soon. I am at week 30 and feel so much better than the first 12 weeks. Hang in there. How are the kids? It is so good to hear from you again. Love, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 PAT! Hi, I have been looking for you online. I thought it may take a while because you just began treatment. There is such a thing as white coat Blood pressure. Where you are nervous at the Dr. office and it effects your BP. To get a real clear BP reading you can take it at home with a BP kit from the local drug store. I would suggest this first. You will begin to feel better soon. I am at week 30 and feel so much better than the first 12 weeks. Hang in there. How are the kids? It is so good to hear from you again. Love, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 HI.That.s funny.When I was in the hospital for a check-up after my attack the Doc told me my bloodpressure was too high,130-90.He send me to the cardiology dep.Had a echo etc.They gave me bloodthinners.The nxt day I went to my GP and he said yr blood-pressure is perfect,120-80.He laughed and said they measured :white-coat-pressure:He used excactly the same words.He told me to come in once a week.It remains the same.So don.t worry about it too much,buy a bloodpressure-measering thing yourself,they.re cheap and you can check it yourself when you.re relaxed.Willem. Re: Digest Number 1106 PAT! Hi, I have been looking for you online. I thought it may take a while because you just began treatment. There is such a thing as white coat Blood pressure. Where you are nervous at the Dr. office and it effects your BP. To get a real clear BP reading you can take it at home with a BP kit from the local drug store. I would suggest this first. You will begin to feel better soon. I am at week 30 and feel so much better than the first 12 weeks. Hang in there. How are the kids? It is so good to hear from you again. Love, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 HI.That.s funny.When I was in the hospital for a check-up after my attack the Doc told me my bloodpressure was too high,130-90.He send me to the cardiology dep.Had a echo etc.They gave me bloodthinners.The nxt day I went to my GP and he said yr blood-pressure is perfect,120-80.He laughed and said they measured :white-coat-pressure:He used excactly the same words.He told me to come in once a week.It remains the same.So don.t worry about it too much,buy a bloodpressure-measering thing yourself,they.re cheap and you can check it yourself when you.re relaxed.Willem. Re: Digest Number 1106 PAT! Hi, I have been looking for you online. I thought it may take a while because you just began treatment. There is such a thing as white coat Blood pressure. Where you are nervous at the Dr. office and it effects your BP. To get a real clear BP reading you can take it at home with a BP kit from the local drug store. I would suggest this first. You will begin to feel better soon. I am at week 30 and feel so much better than the first 12 weeks. Hang in there. How are the kids? It is so good to hear from you again. Love, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 Yes my blood pressure went up about 20 pts on treatment which triggered my migraines as well. Alley " If you want to be a hero knight, never look directly into the mirror, lest you see that tin pot on your head instead of a glorious plumed helmet! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 Yes my blood pressure went up about 20 pts on treatment which triggered my migraines as well. Alley " If you want to be a hero knight, never look directly into the mirror, lest you see that tin pot on your head instead of a glorious plumed helmet! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 And some people's bp norms are quite different. If my bp gets to 120 or higher, I've got a migraine for sure or the beginnings of one. My normal bp is 100 - 110 over 60-70, but it's darned difficult to tell a nurse or doctor that when I go in with a migraine and they say my bp is OK at 120. Interferon was a booger on my blood pressure. It gave me constant headaches. The longer I was on it, the worse the headaches and bp. Effexor also raises bp and I had to stop it because of that. Find out what your " norm " is and keep an eye on it. This higher bp on interferon could be related to the heart problems interferon " can " cause (but usually doesn't just be aware). Alley " If you want to be a hero knight, never look directly into the mirror, lest you see that tin pot on your head instead of a glorious plumed helmet! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 And some people's bp norms are quite different. If my bp gets to 120 or higher, I've got a migraine for sure or the beginnings of one. My normal bp is 100 - 110 over 60-70, but it's darned difficult to tell a nurse or doctor that when I go in with a migraine and they say my bp is OK at 120. Interferon was a booger on my blood pressure. It gave me constant headaches. The longer I was on it, the worse the headaches and bp. Effexor also raises bp and I had to stop it because of that. Find out what your " norm " is and keep an eye on it. This higher bp on interferon could be related to the heart problems interferon " can " cause (but usually doesn't just be aware). Alley " If you want to be a hero knight, never look directly into the mirror, lest you see that tin pot on your head instead of a glorious plumed helmet! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 " In these situations, I have not told either teacher of her autism. I wanted to see whether they will notice the difference, and if they will accomodate her, without calling attention to her dx. " This is what I have done for the past 8 years since Grace's diagnosis (except for her school, which already knew ahead of time). But most sports, Girl Scouts, etc., we have entered without their knowledge and dealt with issues as they arose. For the most part, there were no issues because Grace conformed to the rest of the group, as she waited and observed what the others did. That's how she copes with her disability. She loves to try new things as long as she has a buddy to do it with and feels secure. It took from age 3 to 5 for her to figure this out and has been achieving her milestones ever since. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 Welcome to the other side Janice!! Glad to hear you are doing better ... it will hopefully all be downhill from here on out !! Peace...Happy 4th to all ! JJ Suzanne W......How are you sweetie ? Good to see you post...I rarely read here ....but I owe you an email I think...hope all is well !!!! Hugs...JJGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2003 Report Share Posted September 10, 2003 Hello everyone, My name is Muller 45 years old and I've been living with "A" for 15 years. I had a Heller and Fundo back in 1990. I can eat almost anything for the exception of rice. Pasta gives me big problems if eaten at night. I always have a few bottles of water on hand in my car and at work. I don't know what I would do without water...starve I guess! The biggest problem I have are these unbearable excruciating Esophageal spasms. I get these spasm episodes two to three times a week and they normally last eight to sixteen hours. I am a Correctional Officer and have missed so much work that I am on the brink of loosing my job (of fifteen years). My Gastro tells me the spasms are most probably due to stress. At first it was very difficult for me to get my Gastro Dr. to believe me regarding the spasms as a matter of fact he damn near called me a Liar during one visit. I've seen so many specialists who all tell me that all I can do for the spasms is just ride them out, Ha! Easy for them to say! It's absolutely mind boggling to me, how little is known about Achalasia by Doctors and medical specialists. As far as I'm concerned not enough research is being done. So the struggle goes on for all of us living with "A". Hang in there everyone! Your not alone! from Montgomery, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2003 Report Share Posted September 11, 2003 Hi , and welcome to the group. In my opinion, you need to find a new doctor! Could you go to a large teaching hospital in NY to see a specialist who deals with achalasia? There are many things to try to help with spasms. Look in our database list in this group, look in the files. Do a search of past posts regarding spasms. Some people are helped by simply gulping cold or warm water at the first sign, others like cold milk, some like eating something and pushing it down with water to break the spasm. Others use medication successfully. I get lots of help from L'Arginine if I am having a bad day. I buy it in the health food store. Sometimes I take it for a week at a time, sometimes only for a day or two. In other words, I take it as needed. It stops my spasms if I'm having a particularly spasmy day. You need to find a doctor who really understands Achalasia, don't settle for less! There is a database list of doctors we recommend in the database, along with people's email addresses to contact if you have questions. One other thing...I have found relief from my spasms during the last 4 weeks since I went on Adkins diet. I can't believe how good I feel! I had been having spasms 2-3 times a day sometimes, at least 3 days a week. Now...none. Go figure! The only thing that changed was my diet! Best of luck to you. in Houston > Hello everyone, > My name is Muller 45 years old and I've been living with " A " for 15 > years. > I had a Heller and Fundo back in 1990. I can eat almost anything for the > exception of > rice. Pasta gives me big problems if eaten at night. I always have a few > bottles of water on hand in my car and at work. I don't know what I would do > without water...starve I guess! > The biggest problem I have are these unbearable excruciating Esophageal > spasms. > I get these spasm episodes two to three times a week and they normally last > eight to sixteen hours. I am a Correctional Officer and have missed so much > work that I am on the brink of loosing my job (of fifteen years). My Gastro > tells me the spasms are most probably due to stress. At first it was very > difficult for me to get my Gastro Dr. to believe me regarding the spasms as a matter > of fact he damn near called me a Liar during one visit. I've seen so many > specialists who all tell me that all I can do for the spasms is just ride them > out, Ha! Easy for them to say! It's absolutely mind boggling to me, how little > is known about Achalasia by Doctors and medical specialists. As far as I'm > concerned not enough research is being done. So the struggle goes on for all > of us living with " A " . > Hang in there everyone! Your not alone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2003 Report Share Posted September 11, 2003 Hi , and welcome to the group. In my opinion, you need to find a new doctor! Could you go to a large teaching hospital in NY to see a specialist who deals with achalasia? There are many things to try to help with spasms. Look in our database list in this group, look in the files. Do a search of past posts regarding spasms. Some people are helped by simply gulping cold or warm water at the first sign, others like cold milk, some like eating something and pushing it down with water to break the spasm. Others use medication successfully. I get lots of help from L'Arginine if I am having a bad day. I buy it in the health food store. Sometimes I take it for a week at a time, sometimes only for a day or two. In other words, I take it as needed. It stops my spasms if I'm having a particularly spasmy day. You need to find a doctor who really understands Achalasia, don't settle for less! There is a database list of doctors we recommend in the database, along with people's email addresses to contact if you have questions. One other thing...I have found relief from my spasms during the last 4 weeks since I went on Adkins diet. I can't believe how good I feel! I had been having spasms 2-3 times a day sometimes, at least 3 days a week. Now...none. Go figure! The only thing that changed was my diet! Best of luck to you. in Houston > Hello everyone, > My name is Muller 45 years old and I've been living with " A " for 15 > years. > I had a Heller and Fundo back in 1990. I can eat almost anything for the > exception of > rice. Pasta gives me big problems if eaten at night. I always have a few > bottles of water on hand in my car and at work. I don't know what I would do > without water...starve I guess! > The biggest problem I have are these unbearable excruciating Esophageal > spasms. > I get these spasm episodes two to three times a week and they normally last > eight to sixteen hours. I am a Correctional Officer and have missed so much > work that I am on the brink of loosing my job (of fifteen years). My Gastro > tells me the spasms are most probably due to stress. At first it was very > difficult for me to get my Gastro Dr. to believe me regarding the spasms as a matter > of fact he damn near called me a Liar during one visit. I've seen so many > specialists who all tell me that all I can do for the spasms is just ride them > out, Ha! Easy for them to say! It's absolutely mind boggling to me, how little > is known about Achalasia by Doctors and medical specialists. As far as I'm > concerned not enough research is being done. So the struggle goes on for all > of us living with " A " . > Hang in there everyone! Your not alone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 Hi, You might try to find silver in ribbon form, I forget the actual word used for for this, maybe bezel or bevel. I use this for colloidal silver, it gives more surface area for that purpose and would for your purpose also. Message: 1 Date: Thu, 06 Jan 2005 19:01:39 -0000 From: " patriotmike2001 " <mikekirk@...> >Subject: Electrode material issues > >One thing that I am considering are the electrodes themselves. I >have not been using V's cord, as it is not long enough for me to >use on both wrists (I have to conceal the cord under my clothes so as >to not alarm any non-believers I may run into). My homemade >electrodes are stainless steel cotter pins, wrapped in cotton, which >are shrink tube covered at the wire end. No metal is exposed. I use >pure lead-free silver solder only. In the Beck-n-stuff group, message >21686, 1/5/05, " Steve " makes mention of the > " undesirability of >stainless steel electrodes " stating that toxic nickel molecules >can >migrate from the stainless steel when passing electrical current. He >also states that gold plating is not a lot better. Now, I do not know >if that is true, but I am starting to think of a surefire safer >alternative. I have never liked the idea of the aluminum foil >covered electrodes for fear of the same potential problem. Having >read Becker's book " Body Electric " , and countless >articles on the medicinal value of silver and colloidal silver, I am >considering making electrodes out of pure silver wire (.9999 pure, 12 >gauge) and/or pure silver rods (.9995 pure, 8-12 gauge). Both are >harder to get and the rods are expensive ($50-$65 per foot) but what >is good health worth. My research indicates that silver is the best >electrical conductor of all metals and does not corrode. Further, >silver's tendency to tarnish does not affect its electrical >performance while films on other metals, like copper, even when the >corrosion is barely visible, cannot be tolerated. It just seems that >cloth covered pure silver electrodes would be best. I know that the >aim of this group is to make zillin available to the greatest number >of people at the least cost but we should also strive to " do no >harm " and not substitute one set of ailments for another. I >think >this group is doing a terrific job and I have learned so much. > > >Mike > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2005 Report Share Posted January 9, 2005 Hi try to use carbon fiber for electrodes - that is what I have been doing the last couple of weeks because m,y skin got irritated due to aluminium and copper wires ( I never tried stainless but I made a test in water and could see these will eventually corrode as well). > > Hi, > > You might try to find silver in ribbon form, I forget the actual word > used for for this, maybe bezel or bevel. I use this for colloidal > silver, it gives more surface area for that purpose and would for your > purpose also. > > > > Message: 1 Date: Thu, 06 Jan 2005 19:01:39 -0000 From: " patriotmike2001 " > <mikekirk@c...> > > >Subject: Electrode material issues > > > >One thing that I am considering are the electrodes themselves. I > >have not been using V's cord, as it is not long enough for me to > >use on both wrists (I have to conceal the cord under my clothes so as > >to not alarm any non-believers I may run into). My homemade > >electrodes are stainless steel cotter pins, wrapped in cotton, which > >are shrink tube covered at the wire end. No metal is exposed. I use > >pure lead-free silver solder only. In the Beck-n-stuff group, message > >21686, 1/5/05, " Steve " makes mention of the > > " undesirability of > >stainless steel electrodes " stating that toxic nickel molecules > >can > >migrate from the stainless steel when passing electrical current. He > >also states that gold plating is not a lot better. Now, I do not know > >if that is true, but I am starting to think of a surefire safer > >alternative. I have never liked the idea of the aluminum foil > >covered electrodes for fear of the same potential problem. Having > >read Becker's book " Body Electric " , and countless > >articles on the medicinal value of silver and colloidal silver, I am > >considering making electrodes out of pure silver wire (.9999 pure, 12 > >gauge) and/or pure silver rods (.9995 pure, 8-12 gauge). Both are > >harder to get and the rods are expensive ($50-$65 per foot) but what > >is good health worth. My research indicates that silver is the best > >electrical conductor of all metals and does not corrode. Further, > >silver's tendency to tarnish does not affect its electrical > >performance while films on other metals, like copper, even when the > >corrosion is barely visible, cannot be tolerated. It just seems that > >cloth covered pure silver electrodes would be best. I know that the > >aim of this group is to make zillin available to the greatest number > >of people at the least cost but we should also strive to " do no > >harm " and not substitute one set of ailments for another. I > >think > >this group is doing a terrific job and I have learned so much. > > > > > >Mike > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 , Congrats on the 7lbs! Thats kick butt! I'm on day 4 no drinking now and day three was such a challenge since it was my Dad's 60th b-day get together at the lake and my family drives me to drink and they all drink like fishes at these get togethers. I survived. I reviewed the diet again and it doesn't seem feasible for my work schedule. I keep tweaking what I already do so I might try and incorporate some of the meals in here and there but sadly can't do the whole thing. Keep us posted! a, Who IS starving post workout My 360 page http://360./sabrina_78704 <!-- Copied from MySpace.com --> <a href= " http://www.myspace.com/paulafrey " >Find me on MySpace and be my friend!</a> -- _______________________________________________ Search for businesses by name, location, or phone number. -Lycos Yellow Pages http://r.lycos.com/r/yp_emailfooter/http://yellowpages.lycos.com/default.asp?SRC\ =lycos10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Hi All, I live in Austin, but will be staying in Sunnyvale for about 3 months this summer. I'm used to having a few small local cafes that offer a large selection of gluten-free eats (or are entirely gluten-free). Are there any in the San area? Every time I search for gluten-free restaurants in the area, I get back things like " Outback Steakhouse. " I'm not looking for chains that have gluten-free options on the menu but rather places with freshly-prepared (take out or eat-in) gluten-free entrees (lasagna? mac-n-cheese? etc), baked goods and treats. Thanks!jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Hi Janette, Welcome! I used to live in Austin, pre-celiac diagnosis, but I know what you're expecting and I don't think Sunnyvale will live up to your expectations. Lots of nice restuarants on S. street, however and many that can cater to the allergy. I eat at Dishdash often and have never had a problem. To get a little bit of that fun Austin cafe scene, I would head to Berkeley and go to Mariposa for baked goods. Lots of good gluten free stuff at Molly Stone's and Whole Food Groceries, too. Best of luck! ----- Original Message ----From: "JANETTE.FOSTER@..." <JANETTE.FOSTER@...> Sent: Sunday, June 1, 2008 9:25:23 AMSubject: Re: [ ] Digest Number 1106 Hi All, I live in Austin, but will be staying in Sunnyvale for about 3 months this summer. I'm used to having a few small local cafes that offer a large selection of gluten-free eats (or are entirely gluten-free). Are there any in the San area? Every time I search for gluten-free restaurants in the area, I get back things like "Outback Steakhouse." I'm not looking for chains that have gluten-free options on the menu but rather places with freshly-prepared (take out or eat-in) gluten-free entrees (lasagna? mac-n-cheese? etc), baked goods and treats. Thanks!jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 Hi,Charlie's Cheesecake Works at 1179 Redmond Avenue, San , CA 95120, 408-268-4555 carriesa line of gluten-free items made by "iamori". Among the items are focaccia bread, pizza crust, biscotti, cookie dough, buckwheat crepe, and cheesecake. Check it out or go to www.iamori.comIrene----- Original Message ----From: "JANETTE.FOSTER@..." <JANETTE.FOSTER@...> Sent: Sunday, June 1, 2008 9:25:23 AMSubject: Re: [ ] Digest Number 1106Hi All, I live in Austin, but will be staying in Sunnyvale for about 3 months this summer. I'm used to having a few small local cafes that offer a large selection of gluten-free eats(or are entirely gluten-free) . Are there any in the San area? Every time I search for gluten-free restaurants in the area, I get back things like "Outback Steakhouse." I'm not looking for chains that have gluten-free options on the menu but rather places with freshly-prepared (take outor eat-in) gluten-free entrees (lasagna? mac-n-cheese? etc), baked goods and treats.Thanks!jan Quote Link to comment Share on other sites More sharing options...
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