Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Well, not like now, but I think that hominids commonly pulled the seeds off of grasses and chewed them as they were walking through the fields looking for eggs in birds’ nests, but it was seasonal and regional and just a very small part of the plant foods that could be eaten without cooking. Even when we got fire, it was still more like gum – something to chew on for quite a while, until some desperate mother decided to try to grind it up for her hungry toothless kid or granny and kept the ground seeds in a basket or pot and it rained and she could not afford to waste it so she tried putting it on a hot rock near the fire – and there was a flat bread. Or it fermented and there was beer. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 5:09 PM Subject: RE: [ ] Regarding chance glutening remedies Sorry, I made an omission: Before 15,000 years ago no humans on earth ate much in the way of grains. Bea Beatrice Garth <beagarth > wrote: My understanding is that not many non-Europeans have this condition although like I said the Vikings got around and spread it through their genes and then of course that got replicated by others. Who knows where all they went " a-Viking " though they often went by river as well as ocean. It seems that in Scandinavia and British Isles etc. wheat etc. was not introduced as early as in the rest of Europe--by 1500 years, and even then they ate mostly barley. Honestly there was no conspiracy of any kind in the development of celiac. Its just a genetic fluke. Before 15,000 years ago humans on earth ate much in the way of grains. There was a trade-off for everyone to go from nomadic Hunter Gatherer to Settled Grain Eater. Children did not grow as much when they ate less meat. By eating a higher grain diet people started not living as long as well due to the appearance of more degenerative diseases. As far as gluten goes, its interesting that the northern wheat has more gluten in it due to to shorter growing season.Interestingly celiac also often causes short stature if contracted early enough--though it seems eating a high grain diet causes everyone some short stature issues if not enough protein is eaten. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Is that true? What about Africans? At the Celiac Conference a few years ago, they said that the heist population with Celiac were African refugees. Also, I read recently that wheat read was not regularly used until the Egyptians began to make beer for the Jewish slaves. I also have some Jewish & Russian ancestry (like someone else mentioned). Perhaps there is some root in enslaving the Jewish population with gut-destroying brew? From: [mailto: ] On Behalf Of TrVerb@... Sent: Friday, May 02, 2008 11:51 AM Subject: Re: [ ] Regarding chance glutening remedies I think in general it would be interesting for someone to investigate the old dietary practices and remedies of Scandinavians since they seem to be the source (as far as I can figure) for this celiac condition--and the old Vikings then spread their genes around so to speak. Plus a significant number of the Scandinavian and British warriors were taken in by the old Roman Army during Caeser's time--which is why I think so many Italians also have this condition. Bea Connie Hampton <connie@hampton-connie@hacon> wrote: Probiotics don’t last long in the body and need to be eaten daily for the best effects – sauerkraut, kefir, kefired apple juice, traditional lactofermented pickles, etc. really help on a daily basis and are quite traditional. Stanford researchers are working on an enzyme therapeutic to use against cross contamination but they are not there yet. Clays like pascalite (www.pascalite.www – I don’t get anything for mentioning them) also can help by sticking to the sticky gliadin peptides. Red wine has been mentioned as well. I am so glad that you described all that you did, Bea. I will print this out and see if any of these herbs and vitamins help me. I usually just take my migraine to bed and lose 6 hours. Connie From: @ celiacbayar @<wbr>yah @ celiOn Behalf Of j. hogle Sent: Friday, May 02, 2008 12:21 AM @ celiacbayar ce Subject: Re: [ ] Regarding chance glutening remedies Hi Bea: I don't mean to imply that " ...just the probiotics are all that is needed as a remedy. " I am only pointing out research whose results, thus far, are proving " interesting. I don't mean to imply that " ...just the probiotics are all that is needed as a remedy. " I am only pointing out research whose results, thus far, are proving " interesting.<wbr> " I will follow it, other quality research, On the other hand, as you note, it may often be worthwhile to err " ...on the side of kitchen sink methodology. On the other hand, as you note, it may often be worthwhile to err " ...on the side of kitchen sink methodology.<wbr>.. " because, as long as the kitchen sinks don't have any inherent problems themselves, we might as well try those potentially salutary tools (medicines, herbs, probiotics, whatever) that are showing at least a reasonable amount of anecdotal success. A good analogy might be the many people who were taking glucosamine and condroitin years before scienti The one thing we need to be sure is that we and our loved ones don't fall victims to often-expensive scams by or products from vendors who know how to prey on people with illnesses, needs, and fears. Fortunately, there are numerous high-quality Web sites (such as Consumer Reports Health subscription site, the government's MedLinePlus, the Mayo Clinic, the not-for-profit Celiac organizations, and many, many more that can provide us with objective information on the " cures, " " medicines, " herbs, etc., that are of questionable value or are complete frauds. Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) jj Web: www.blueroom.www Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroomhttp://www.bluerhttp] ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) bea> @ celiacb To Sent: Thursday, May 1, 2008 6:52:00 PM Subject: Re: [ ] Regarding chance glutening remedies Hi , And here I thought it was the " glutenase " powder and the " glucoamylase " that made the difference with the Gluten-zyme etc.---not the probiotics. Due to your sharp eye I now see the 5 ingredient probiotic blend. Its great news however if the probiotics do help to such a great degree. The Gluten-zyme by the way also has varying different kinds of peptidase activity as well as " strong acid protease " and amylase. We do need double blind studies I agree wholeheartedly, both for regular supplements and herbs since they too really do seem to help in my experience and for other people with celiac that I know. However for now without the studies for the most part (except for the study you cite), its nice to know that its possible these new gluten enzyme like products actually help--as well as the probiotics. I also think the enzymes in the pineapple and papaya helped me too--which makes sense since they counteract swelling and scar tissue formation. Question is of course, next time do I use the whole kitchen sink remedy or not? This is where studies are important, though probably for now for myself I can use trial and error--as a kind of personal science. For now I erred on the side of kitchen sink methodology since I did not want to get sick once again and just threw everything that I had available to me at it. I think it would be great however if various people here on the celiac group did try some of these products and remedies and let us all know if it helped them or not when inadvertently glutened. At least it would be a start -- from " nothing one can do " (sigh!) to definitely " doing something! " Since I was affected quite dramatically about 4 times this winter after I went " pure " with not only my diet but also my sundries etc. I am very happy I did not seriously get sick again. If as you imply just the probiotics are all that is needed as a remedy, I would be highly surprised. However I am open to that being true nevertheless. It would be great in fact since it would be so very simple...and fit in with some of the Northern European people's diet -- since in ancient times they practically lived on fermented reindeer milk for a good part of the year. Bea " j. hogle " <jjhogle (DOT) com> wrote: I'm glad that the Glutenzyme product worked for you, but I would like to see how well the Lactobacillus brevis, Lactobacillus acidophilus, Gluten protease, and Amylase in " Glutenzyme " works in a double-blind, well-controlled research study. On the other hand, in a recent peer-reviewed scientific paper available (abstract, at least) from PubMed.gov, Finnish researchers found that ... " Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions " and that it " ...would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. " Early stage research, but very interesting. Below I've included the PubMed citation in Medline format for the paper that was published in the April 16, 2008 e-edition of the Journal of Clinical and Experimental Immunology. Cheers, Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) com Web: www.blueroom. com Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroom ..com/realityaint .htm] ============ CITATION ============ === Lindfors K et al. Live probiotic Bifidobacteriu. ..[PMID: 18422736] Related Articles, Links PMID - 18422736 OWN - NLM STAT - Publisher DA - 20080421 PUBM - Print-Electronic IS - 1365-2249 (Electronic) DP - 2008 Apr 16 TI - Li ve probiotic Bifidobacterium lactis bacteria inhibit the toxic effects induced by wheat gliadin in epithelial cell culture. AB - Wheat gliadin induces severe intestinal symptoms and small-bowel mucosal damage in coeliac disease patients. At present, the only effective treatment for the disease is a strict life-long gluten-free diet. In this study we investigated whether probiotics Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions. The ability of live probiotics to inhibit peptic-tryptic digested gliadin-induced damage to human colon cells Caco-2 was evaluated by measuring epithelial permeability by transepithelial resistance, actin cytoskeleton arrangements by the extent of membrane ruffling and expression of tight junctional protein ZO-1. B. lactis inhibited the gliadin-induced increase dose-dependently in epithelial permeability, higher concentrations completely abolishing the gliadin-induced decrease in transepithelial resistance. The same bacterial strain also inhibited the formation of membrane ruffles in Caco-2 cells induced by gliadin administration. Furthermore, it also protected the tight junctions of Caco-2 cells against the effects of gliadin, as evinced by the pattern of ZO-1 expression. We conclude thus that live B. lactis bacteria can counteract directly the harmful effects exerted by coeliac-toxic gliadin and would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. AD - Paediatric Research Centre, Medical School, University of Tampere, Finland, Department of Peadiatrics, Tampere University Hospital, Tampere, Finland. AU - Lindfors K AU - Blomqvist T AU - Juuti-Uusitalo K AU - Stenman S AU - Venalainen J AU - Maki M AU - Kaukinen K LA - ENG PT - JOURNAL ARTICLE DEP - 20080416 TA - Clin Exp Immunol JT - Clinical and experimental immunology JID - 0057202 EDAT - 2008/04/22 09:00 MHDA - 2008/04/22 09:00 AID - CEI3635 [pii] AID - 10.1111/j.1365- 2249.2008. 03635.x [doi] PST - aheadofprint SO - Clin Exp Immunol. 2008 Apr 16;. ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) com> Sent: Wednesday, April 30, 2008 5:16:43 PM Subject: [ ] Regarding chance glutening remedies Last week I had both the confronting experience of being glutened by chance at a supposedly celiac aware restaurant-- the bane of most celiacs--and discovered some remedies that actually worked for me. This after having gotten shooting D just from a food handler who prepared my tea after making someone else a sandwich in February as well as other equivalent experiences since I have gone off all trace hidden glutens! What happened is that I asked for and got some pineapple and fresh papaya at the establishment I was eating at after I discovered they had put soy sauce in my dish (after I had been assured they wouldn't). I had already eaten about 1/2 my portion--and wasn't paying as much attention as I might since it was supposed to be a " safe " and experienced restaurant concerning the gluten matter. If I had brought along my papain/bromelain caps that would have been the easy equivalent to the pineapple and papaya. As it was the owner ran across the street and bought me some fresh papaya. I also immediately took some pancreatin enzymes I had brought along--a double dose. Right after dinner my date and I went over to a natural foods store and I bought this new product called Gluten-zyme by Country Life. There was another bottle of a different brand that cost a little more that also looked pretty equivalent. Again I immediately took a double dose. That night I took another dose and two more the next day just to make sure. Instead of shooting D I had inflammation in my feet and calves which went down after I took my co-enzyme B vitamins. I wasn't home where I usually have my herbs and most of my stuff so I didn't take dandelion (to clean out the liver), cleavers (to clean out the lymphs), marshmallow root (to soothe and heal the lining of the intestines), and nattokinase or serrapeptidase (to counteract scar tissue in the intestines as well as inflammation) etc. until the next day--I probably should have got some at the store but wasn't feeling quite that rich. The following day my only other symptom was a small pimple on my face, often a sign of glutening in the old pre pure days before I went off all hidden gluten. I did feel a little depressed (another symptom) but then recovered after going for a long walk and working on clay (clay pulls out toxins through the skin of the hands and feet etc.). I bet going for a sauna would have worked too. Taking the dandelion etc. also helped a great deal. It was a big discovery for me. I keep hearing there is nothing you can do except grin and bear it, but I discovered that at least for me there are remedies. I feel like I no longer have to be terrified of going out to eat, especially with these new gluten-eating enzymes out there. I wonder if this would help others? Methinks it would. Please try it in an emergency and let me (and us all) know if it does. I still think its not wise to court experiences like this, but hey they happen. Especially for someone like me that is actually trying to have a life outside of my safe cocoon sometimes. Another note--in case of shooting D right away (before you can take action or know you needed to), pepto bismol tablets or their equivalent work great. They are easy to carry in the purse or pocket or whatever. Another remedy is to make a tea with either blackberry or guava leaves. Meadowsweet I hear also works. Bea Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Messages in this topic (23) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Database | Polls | Members | Calendar Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe Recent Activity • 5 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Ads on Learn more now. Reach customers searching for you. .. ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Well these are interesting theories. It could just be true although honestly I have heard nothing about it. I want to look into it and see if what you suggest could be correct or not. The fact most Native Americans don't have this condition makes me wonder about it however.BeaConnie Hampton <connie@...> wrote: Bea, I’m not at all sure that non-Europeans don’t have celiac – it could just be a reporting/identification issue. And many non-Europeans do not use wheat the way Europeans do – at every meal in every dish – Asian and Pre-Columbian foods generally do not have gluten (well – there are Chinese noodles and Korean soy sauce, but still, rice!) So it is not so much that celiac genes mutated and got spread as much as it is that the celiac genes are the old ones and that the non-celiac genes are the mutated ones that got spread. The Vikings (my people!) certainly did spread their genes around – both after they settled in Scandinavia (the Rus in Russia) and before they got there in most of the rest of Europe (and never mind the Celts who started very close to the wheat bearing lands and certainly have a long tradition of both beer and whiskey from barley – one wonders if distillation was a way to keep the alcohol and ditch the gluten). And then the Europeans apparently spent a great deal of time in Central Asia before entering Europe. National Geographic has found that homeland by tracing the male genetic line. My sources are bits and pieces from things like “Guns, Germs and Steel”, the National Geographic specials on tracing our genetic heritage (broadly), comments by people about their Eastern European grandparents eating mostly oat porridge and goat meat and opening a bake shop (wheat!!) after the war when they could, teaching my kids at home about “the long, long story of where we came from”, some genetics work in my own schooling, some conversations on the group GFCFNN, perhaps the book “Against the Grain”. Etc, etc.etc. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 4:52 PM Subject: RE: [ ] Regarding chance glutening remedies My understanding is that not many non-Europeans have this condition although like I said the Vikings got around and spread it through their genes and then of course that got replicated by others. Who knows where all they went "a-Viking" though they often went by river as well as ocean. It seems that in Scandinavia and British Isles etc. wheat etc. was not introduced as early as in the rest of Europe--by 1500 years, and even then they ate mostly barley. Honestly there was no conspiracy of any kind in the development of celiac. Its just a genetic fluke. Before 15,000 years ago humans on earth ate much in the way of grains. There was a trade-off for everyone to go from nomadic Hunter Gatherer to Settled Grain Eater. Children did not grow as much when they ate less meat. By eating a higher grain diet people started not living as long as well due to the appearance of more degenerative diseases. As far as gluten goes, its interesting that the northern wheat has more gluten in it due to to shorter growing season.Interestingly celiac also often causes short stature if contracted early enough--though it seems eating a high grain diet causes everyone some short stature issues if not enough protein is eaten. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Is that true? What about Africans? At the Celiac Conference a few years ago, they said that the heist population with Celiac were African refugees. Also, I read recently that wheat read was not regularly used until the Egyptians began to make beer for the Jewish slaves. I also have some Jewish & Russian ancestry (like someone else mentioned). Perhaps there is some root in enslaving the Jewish population with gut-destroying brew? From: [mailto: ] On Behalf Of TrVerb@... Sent: Friday, May 02, 2008 11:51 AM Subject: Re: [ ] Regarding chance glutening remedies I think in general it would be interesting for someone to investigate the old dietary practices and remedies of Scandinavians since they seem to be the source (as far as I can figure) for this celiac condition--and the old Vikings then spread their genes around so to speak. Plus a significant number of the Scandinavian and British warriors were taken in by the old Roman Army during Caeser's time--which is why I think so many Italians also have this condition. Bea Connie Hampton <connie@hampton-connie@hacon> wrote: Probiotics don’t last long in the body and need to be eaten daily for the best effects – sauerkraut, kefir, kefired apple juice, traditional lactofermented pickles, etc. really help on a daily basis and are quite traditional. Stanford researchers are working on an enzyme therapeutic to use against cross contamination but they are not there yet. Clays like pascalite (www.pascalite.www – I don’t get anything for mentioning them) also can help by sticking to the sticky gliadin peptides. Red wine has been mentioned as well. I am so glad that you described all that you did, Bea. I will print this out and see if any of these herbs and vitamins help me. I usually just take my migraine to bed and lose 6 hours. Connie From: @ celiacbayar @<wbr>yah @ celiOn Behalf Of j. hogle Sent: Friday, May 02, 2008 12:21 AM @ celiacbayar ce Subject: Re: [ ] Regarding chance glutening remedies Hi Bea: I don't mean to imply that "...just the probiotics are all that is needed as a remedy." I am only pointing out research whose results, thus far, are proving "interesting. I don't mean to imply that "...just the probiotics are all that is needed as a remedy." I am only pointing out research whose results, thus far, are proving "interesting.<wbr>" I will follow it, other quality research, On the other hand, as you note, it may often be worthwhile to err "...on the side of kitchen sink methodology. On the other hand, as you note, it may often be worthwhile to err "...on the side of kitchen sink methodology.<wbr>.." because, as long as the kitchen sinks don't have any inherent problems themselves, we might as well try those potentially salutary tools (medicines, herbs, probiotics, whatever) that are showing at least a reasonable amount of anecdotal success. A good analogy might be the many people who were taking glucosamine and condroitin years before scienti The one thing we need to be sure is that we and our loved ones don't fall victims to often-expensive scams by or products from vendors who know how to prey on people with illnesses, needs, and fears. Fortunately, there are numerous high-quality Web sites (such as Consumer Reports Health subscription site, the government's MedLinePlus, the Mayo Clinic, the not-for-profit Celiac organizations, and many, many more that can provide us with objective information on the "cures," "medicines," herbs, etc., that are of questionable value or are complete frauds. Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) jj Web: www.blueroom.www Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroomhttp://www.bluerhttp] ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) bea> @ celiacb To Sent: Thursday, May 1, 2008 6:52:00 PM Subject: Re: [ ] Regarding chance glutening remedies Hi , And here I thought it was the "glutenase" powder and the "glucoamylase" that made the difference with the Gluten-zyme etc.---not the probiotics. Due to your sharp eye I now see the 5 ingredient probiotic blend. Its great news however if the probiotics do help to such a great degree. The Gluten-zyme by the way also has varying different kinds of peptidase activity as well as "strong acid protease" and amylase. We do need double blind studies I agree wholeheartedly, both for regular supplements and herbs since they too really do seem to help in my experience and for other people with celiac that I know. However for now without the studies for the most part (except for the study you cite), its nice to know that its possible these new gluten enzyme like products actually help--as well as the probiotics. I also think the enzymes in the pineapple and papaya helped me too--which makes sense since they counteract swelling and scar tissue formation. Question is of course, next time do I use the whole kitchen sink remedy or not? This is where studies are important, though probably for now for myself I can use trial and error--as a kind of personal science. For now I erred on the side of kitchen sink methodology since I did not want to get sick once again and just threw everything that I had available to me at it. I think it would be great however if various people here on the celiac group did try some of these products and remedies and let us all know if it helped them or not when inadvertently glutened. At least it would be a start -- from "nothing one can do" (sigh!) to definitely "doing something!" Since I was affected quite dramatically about 4 times this winter after I went "pure" with not only my diet but also my sundries etc. I am very happy I did not seriously get sick again. If as you imply just the probiotics are all that is needed as a remedy, I would be highly surprised. However I am open to that being true nevertheless. It would be great in fact since it would be so very simple...and fit in with some of the Northern European people's diet -- since in ancient times they practically lived on fermented reindeer milk for a good part of the year. Bea "j. hogle" <jjhogle (DOT) com> wrote: I'm glad that the Glutenzyme product worked for you, but I would like to see how well the Lactobacillus brevis, Lactobacillus acidophilus, Gluten protease, and Amylase in "Glutenzyme" works in a double-blind, well-controlled research study. On the other hand, in a recent peer-reviewed scientific paper available (abstract, at least) from PubMed.gov, Finnish researchers found that ..."Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions" and that it "...would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease." Early stage research, but very interesting. Below I've included the PubMed citation in Medline format for the paper that was published in the April 16, 2008 e-edition of the Journal of Clinical and Experimental Immunology. Cheers, Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) com Web: www.blueroom. com Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroom .com/realityaint .htm] ============ CITATION ============ === Lindfors K et al. Live probiotic Bifidobacteriu. ..[PMID: 18422736] Related Articles, Links PMID - 18422736 OWN - NLM STAT - Publisher DA - 20080421 PUBM - Print-Electronic IS - 1365-2249 (Electronic) DP - 2008 Apr 16 TI - Li ve probiotic Bifidobacterium lactis bacteria inhibit the toxic effects induced by wheat gliadin in epithelial cell culture. AB - Wheat gliadin induces severe intestinal symptoms and small-bowel mucosal damage in coeliac disease patients. At present, the only effective treatment for the disease is a strict life-long gluten-free diet. In this study we investigated whether probiotics Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions. The ability of live probiotics to inhibit peptic-tryptic digested gliadin-induced damage to human colon cells Caco-2 was evaluated by measuring epithelial permeability by transepithelial resistance, actin cytoskeleton arrangements by the extent of membrane ruffling and expression of tight junctional protein ZO-1. B. lactis inhibited the gliadin-induced increase dose-dependently in epithelial permeability, higher concentrations completely abolishing the gliadin-induced decrease in transepithelial resistance. The same bacterial strain also inhibited the formation of membrane ruffles in Caco-2 cells induced by gliadin administration. Furthermore, it also protected the tight junctions of Caco-2 cells against the effects of gliadin, as evinced by the pattern of ZO-1 expression. We conclude thus that live B. lactis bacteria can counteract directly the harmful effects exerted by coeliac-toxic gliadin and would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. AD - Paediatric Research Centre, Medical School, University of Tampere, Finland, Department of Peadiatrics, Tampere University Hospital, Tampere, Finland. AU - Lindfors K AU - Blomqvist T AU - Juuti-Uusitalo K AU - Stenman S AU - Venalainen J AU - Maki M AU - Kaukinen K LA - ENG PT - JOURNAL ARTICLE DEP - 20080416 TA - Clin Exp Immunol JT - Clinical and experimental immunology JID - 0057202 EDAT - 2008/04/22 09:00 MHDA - 2008/04/22 09:00 AID - CEI3635 [pii] AID - 10.1111/j.1365- 2249.2008. 03635.x [doi] PST - aheadofprint SO - Clin Exp Immunol. 2008 Apr 16;. ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) com> Sent: Wednesday, April 30, 2008 5:16:43 PM Subject: [ ] Regarding chance glutening remedies Last week I had both the confronting experience of being glutened by chance at a supposedly celiac aware restaurant-- the bane of most celiacs--and discovered some remedies that actually worked for me. This after having gotten shooting D just from a food handler who prepared my tea after making someone else a sandwich in February as well as other equivalent experiences since I have gone off all trace hidden glutens! What happened is that I asked for and got some pineapple and fresh papaya at the establishment I was eating at after I discovered they had put soy sauce in my dish (after I had been assured they wouldn't). I had already eaten about 1/2 my portion--and wasn't paying as much attention as I might since it was supposed to be a "safe" and experienced restaurant concerning the gluten matter. If I had brought along my papain/bromelain caps that would have been the easy equivalent to the pineapple and papaya. As it was the owner ran across the street and bought me some fresh papaya. I also immediately took some pancreatin enzymes I had brought along--a double dose. Right after dinner my date and I went over to a natural foods store and I bought this new product called Gluten-zyme by Country Life. There was another bottle of a different brand that cost a little more that also looked pretty equivalent. Again I immediately took a double dose. That night I took another dose and two more the next day just to make sure. Instead of shooting D I had inflammation in my feet and calves which went down after I took my co-enzyme B vitamins. I wasn't home where I usually have my herbs and most of my stuff so I didn't take dandelion (to clean out the liver), cleavers (to clean out the lymphs), marshmallow root (to soothe and heal the lining of the intestines), and nattokinase or serrapeptidase (to counteract scar tissue in the intestines as well as inflammation) etc. until the next day--I probably should have got some at the store but wasn't feeling quite that rich. The following day my only other symptom was a small pimple on my face, often a sign of glutening in the old pre pure days before I went off all hidden gluten. I did feel a little depressed (another symptom) but then recovered after going for a long walk and working on clay (clay pulls out toxins through the skin of the hands and feet etc.). I bet going for a sauna would have worked too. Taking the dandelion etc. also helped a great deal. It was a big discovery for me. I keep hearing there is nothing you can do except grin and bear it, but I discovered that at least for me there are remedies. I feel like I no longer have to be terrified of going out to eat, especially with these new gluten-eating enzymes out there. I wonder if this would help others? Methinks it would. Please try it in an emergency and let me (and us all) know if it does. I still think its not wise to court experiences like this, but hey they happen. Especially for someone like me that is actually trying to have a life outside of my safe cocoon sometimes. Another note--in case of shooting D right away (before you can take action or know you needed to), pepto bismol tablets or their equivalent work great. They are easy to carry in the purse or pocket or whatever. Another remedy is to make a tea with either blackberry or guava leaves. Meadowsweet I hear also works. Bea Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Messages in this topic (23) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Database | Polls | Members | Calendar Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe Recent Activity • 5 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Ads on Learn more now. Reach customers searching for you. . ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Yes, but most Native Americans historically subsisted on corn, rather than wheat. From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 7:02 PM Subject: RE: [ ] Regarding chance glutening remedies Well these are interesting theories. It could just be true although honestly I have heard nothing about it. I want to look into it and see if what you suggest could be correct or not. The fact most Native Americans don't have this condition makes me wonder about it however. Bea Connie Hampton <conniehampton-research> wrote: Bea, I’m not at all sure that non-Europeans don’t have celiac – it could just be a reporting/identification issue. And many non-Europeans do not use wheat the way Europeans do – at every meal in every dish – Asian and Pre-Columbian foods generally do not have gluten (well – there are Chinese noodles and Korean soy sauce, but still, rice!) So it is not so much that celiac genes mutated and got spread as much as it is that the celiac genes are the old ones and that the non-celiac genes are the mutated ones that got spread. The Vikings (my people!) certainly did spread their genes around – both after they settled in Scandinavia (the Rus in Russia) and before they got there in most of the rest of Europe (and never mind the Celts who started very close to the wheat bearing lands and certainly have a long tradition of both beer and whiskey from barley – one wonders if distillation was a way to keep the alcohol and ditch the gluten). And then the Europeans apparently spent a great deal of time in Central Asia before entering Europe. National Geographic has found that homeland by tracing the male genetic line. My sources are bits and pieces from things like “Guns, Germs and Steel”, the National Geographic specials on tracing our genetic heritage (broadly), comments by people about their Eastern European grandparents eating mostly oat porridge and goat meat and opening a bake shop (wheat!!) after the war when they could, teaching my kids at home about “the long, long story of where we came from”, some genetics work in my own schooling, some conversations on the group GFCFNN, perhaps the book “Against the Grain”. Etc, etc.etc. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 4:52 PM Subject: RE: [ ] Regarding chance glutening remedies My understanding is that not many non-Europeans have this condition although like I said the Vikings got around and spread it through their genes and then of course that got replicated by others. Who knows where all they went " a-Viking " though they often went by river as well as ocean. It seems that in Scandinavia and British Isles etc. wheat etc. was not introduced as early as in the rest of Europe--by 1500 years, and even then they ate mostly barley. Honestly there was no conspiracy of any kind in the development of celiac. Its just a genetic fluke. Before 15,000 years ago humans on earth ate much in the way of grains. There was a trade-off for everyone to go from nomadic Hunter Gatherer to Settled Grain Eater. Children did not grow as much when they ate less meat. By eating a higher grain diet people started not living as long as well due to the appearance of more degenerative diseases. As far as gluten goes, its interesting that the northern wheat has more gluten in it due to to shorter growing season.Interestingly celiac also often causes short stature if contracted early enough--though it seems eating a high grain diet causes everyone some short stature issues if not enough protein is eaten. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Is that true? What about Africans? At the Celiac Conference a few years ago, they said that the heist population with Celiac were African refugees. Also, I read recently that wheat read was not regularly used until the Egyptians began to make beer for the Jewish slaves. I also have some Jewish & Russian ancestry (like someone else mentioned). Perhaps there is some root in enslaving the Jewish population with gut-destroying brew? From: [mailto: ] On Behalf Of TrVerb@... Sent: Friday, May 02, 2008 11:51 AM Subject: Re: [ ] Regarding chance glutening remedies I think in general it would be interesting for someone to investigate the old dietary practices and remedies of Scandinavians since they seem to be the source (as far as I can figure) for this celiac condition--and the old Vikings then spread their genes around so to speak. Plus a significant number of the Scandinavian and British warriors were taken in by the old Roman Army during Caeser's time--which is why I think so many Italians also have this condition. Bea Connie Hampton <connie@hampton-connie@hacon> wrote: Probiotics don’t last long in the body and need to be eaten daily for the best effects – sauerkraut, kefir, kefired apple juice, traditional lactofermented pickles, etc. really help on a daily basis and are quite traditional. Stanford researchers are working on an enzyme therapeutic to use against cross contamination but they are not there yet. Clays like pascalite (www.pascalite.www – I don’t get anything for mentioning them) also can help by sticking to the sticky gliadin peptides. Red wine has been mentioned as well. I am so glad that you described all that you did, Bea. I will print this out and see if any of these herbs and vitamins help me. I usually just take my migraine to bed and lose 6 hours. Connie From: @ celiacbayar @<wbr>yah @ celiOn Behalf Of j. hogle Sent: Friday, May 02, 2008 12:21 AM @ celiacbayar ce Subject: Re: [ ] Regarding chance glutening remedies Hi Bea: I don't mean to imply that " ...just the probiotics are all that is needed as a remedy. " I am only pointing out research whose results, thus far, are proving " interesting. I don't mean to imply that " ...just the probiotics are all that is needed as a remedy. " I am only pointing out research whose results, thus far, are proving " interesting.<wbr> " I will follow it, other quality research, On the other hand, as you note, it may often be worthwhile to err " ...on the side of kitchen sink methodology. On the other hand, as you note, it may often be worthwhile to err " ...on the side of kitchen sink methodology.<wbr>.. " because, as long as the kitchen sinks don't have any inherent problems themselves, we might as well try those potentially salutary tools (medicines, herbs, probiotics, whatever) that are showing at least a reasonable amount of anecdotal success. A good analogy might be the many people who were taking glucosamine and condroitin years before scienti The one thing we need to be sure is that we and our loved ones don't fall victims to often-expensive scams by or products from vendors who know how to prey on people with illnesses, needs, and fears. Fortunately, there are numerous high-quality Web sites (such as Consumer Reports Health subscription site, the government's MedLinePlus, the Mayo Clinic, the not-for-profit Celiac organizations, and many, many more that can provide us with objective information on the " cures, " " medicines, " herbs, etc., that are of questionable value or are complete frauds. Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) jj Web: www.blueroom.www Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroomhttp://www.bluerhttp] ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) bea> @ celiacb To Sent: Thursday, May 1, 2008 6:52:00 PM Subject: Re: [ ] Regarding chance glutening remedies Hi , And here I thought it was the " glutenase " powder and the " glucoamylase " that made the difference with the Gluten-zyme etc.---not the probiotics. Due to your sharp eye I now see the 5 ingredient probiotic blend. Its great news however if the probiotics do help to such a great degree. The Gluten-zyme by the way also has varying different kinds of peptidase activity as well as " strong acid protease " and amylase. We do need double blind studies I agree wholeheartedly, both for regular supplements and herbs since they too really do seem to help in my experience and for other people with celiac that I know. However for now without the studies for the most part (except for the study you cite), its nice to know that its possible these new gluten enzyme like products actually help--as well as the probiotics. I also think the enzymes in the pineapple and papaya helped me too--which makes sense since they counteract swelling and scar tissue formation. Question is of course, next time do I use the whole kitchen sink remedy or not? This is where studies are important, though probably for now for myself I can use trial and error--as a kind of personal science. For now I erred on the side of kitchen sink methodology since I did not want to get sick once again and just threw everything that I had available to me at it. I think it would be great however if various people here on the celiac group did try some of these products and remedies and let us all know if it helped them or not when inadvertently glutened. At least it would be a start -- from " nothing one can do " (sigh!) to definitely " doing something! " Since I was affected quite dramatically about 4 times this winter after I went " pure " with not only my diet but also my sundries etc. I am very happy I did not seriously get sick again. If as you imply just the probiotics are all that is needed as a remedy, I would be highly surprised. However I am open to that being true nevertheless. It would be great in fact since it would be so very simple...and fit in with some of the Northern European people's diet -- since in ancient times they practically lived on fermented reindeer milk for a good part of the year. Bea " j. hogle " <jjhogle (DOT) com> wrote: I'm glad that the Glutenzyme product worked for you, but I would like to see how well the Lactobacillus brevis, Lactobacillus acidophilus, Gluten protease, and Amylase in " Glutenzyme " works in a double-blind, well-controlled research study. On the other hand, in a recent peer-reviewed scientific paper available (abstract, at least) from PubMed.gov, Finnish researchers found that ... " Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions " and that it " ...would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. " Early stage research, but very interesting. Below I've included the PubMed citation in Medline format for the paper that was published in the April 16, 2008 e-edition of the Journal of Clinical and Experimental Immunology. Cheers, Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) com Web: www.blueroom. com Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroom ..com/realityaint .htm] ============ CITATION ============ === Lindfors K et al. Live probiotic Bifidobacteriu. ..[PMID: 18422736] Related Articles, Links PMID - 18422736 OWN - NLM STAT - Publisher DA - 20080421 PUBM - Print-Electronic IS - 1365-2249 (Electronic) DP - 2008 Apr 16 TI - Li ve probiotic Bifidobacterium lactis bacteria inhibit the toxic effects induced by wheat gliadin in epithelial cell culture. AB - Wheat gliadin induces severe intestinal symptoms and small-bowel mucosal damage in coeliac disease patients. At present, the only effective treatment for the disease is a strict life-long gluten-free diet. In this study we investigated whether probiotics Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions. The ability of live probiotics to inhibit peptic-tryptic digested gliadin-induced damage to human colon cells Caco-2 was evaluated by measuring epithelial permeability by transepithelial resistance, actin cytoskeleton arrangements by the extent of membrane ruffling and expression of tight junctional protein ZO-1. B. lactis inhibited the gliadin-induced increase dose-dependently in epithelial permeability, higher concentrations completely abolishing the gliadin-induced decrease in transepithelial resistance. The same bacterial strain also inhibited the formation of membrane ruffles in Caco-2 cells induced by gliadin administration. Furthermore, it also protected the tight junctions of Caco-2 cells against the effects of gliadin, as evinced by the pattern of ZO-1 expression. We conclude thus that live B. lactis bacteria can counteract directly the harmful effects exerted by coeliac-toxic gliadin and would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. AD - Paediatric Research Centre, Medical School, University of Tampere, Finland, Department of Peadiatrics, Tampere University Hospital, Tampere, Finland. AU - Lindfors K AU - Blomqvist T AU - Juuti-Uusitalo K AU - Stenman S AU - Venalainen J AU - Maki M AU - Kaukinen K LA - ENG PT - JOURNAL ARTICLE DEP - 20080416 TA - Clin Exp Immunol JT - Clinical and experimental immunology JID - 0057202 EDAT - 2008/04/22 09:00 MHDA - 2008/04/22 09:00 AID - CEI3635 [pii] AID - 10.1111/j.1365- 2249.2008. 03635.x [doi] PST - aheadofprint SO - Clin Exp Immunol. 2008 Apr 16;. ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) com> Sent: Wednesday, April 30, 2008 5:16:43 PM Subject: [ ] Regarding chance glutening remedies Last week I had both the confronting experience of being glutened by chance at a supposedly celiac aware restaurant-- the bane of most celiacs--and discovered some remedies that actually worked for me. This after having gotten shooting D just from a food handler who prepared my tea after making someone else a sandwich in February as well as other equivalent experiences since I have gone off all trace hidden glutens! What happened is that I asked for and got some pineapple and fresh papaya at the establishment I was eating at after I discovered they had put soy sauce in my dish (after I had been assured they wouldn't). I had already eaten about 1/2 my portion--and wasn't paying as much attention as I might since it was supposed to be a " safe " and experienced restaurant concerning the gluten matter. If I had brought along my papain/bromelain caps that would have been the easy equivalent to the pineapple and papaya. As it was the owner ran across the street and bought me some fresh papaya. I also immediately took some pancreatin enzymes I had brought along--a double dose. Right after dinner my date and I went over to a natural foods store and I bought this new product called Gluten-zyme by Country Life. There was another bottle of a different brand that cost a little more that also looked pretty equivalent. Again I immediately took a double dose. That night I took another dose and two more the next day just to make sure. Instead of shooting D I had inflammation in my feet and calves which went down after I took my co-enzyme B vitamins. I wasn't home where I usually have my herbs and most of my stuff so I didn't take dandelion (to clean out the liver), cleavers (to clean out the lymphs), marshmallow root (to soothe and heal the lining of the intestines), and nattokinase or serrapeptidase (to counteract scar tissue in the intestines as well as inflammation) etc. until the next day--I probably should have got some at the store but wasn't feeling quite that rich. The following day my only other symptom was a small pimple on my face, often a sign of glutening in the old pre pure days before I went off all hidden gluten. I did feel a little depressed (another symptom) but then recovered after going for a long walk and working on clay (clay pulls out toxins through the skin of the hands and feet etc.). I bet going for a sauna would have worked too. Taking the dandelion etc. also helped a great deal. It was a big discovery for me. I keep hearing there is nothing you can do except grin and bear it, but I discovered that at least for me there are remedies. I feel like I no longer have to be terrified of going out to eat, especially with these new gluten-eating enzymes out there. I wonder if this would help others? Methinks it would. Please try it in an emergency and let me (and us all) know if it does. I still think its not wise to court experiences like this, but hey they happen. Especially for someone like me that is actually trying to have a life outside of my safe cocoon sometimes. Another note--in case of shooting D right away (before you can take action or know you needed to), pepto bismol tablets or their equivalent work great. They are easy to carry in the purse or pocket or whatever. Another remedy is to make a tea with either blackberry or guava leaves. Meadowsweet I hear also works. Bea Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Messages in this topic (23) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Database | Polls | Members | Calendar Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe Recent Activity • 5 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Ads on Learn more now. Reach customers searching for you. .. ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Hi Connie,True, however my understanding is that Native Americans don't often just rely on corn now and eat a lot of wheat these days. I have several members of my family for instance that show that to be true--as well as people I met when my parents were archaeologists in the Pacific Northwest etc. and when I have been places that have a large Native American population. Granted, the fact everyone is genetically mixed up with everyone else in this country makes discernment of some of these "facts" difficult however.Nevertheless it is said by several scientists like Dr. Green (A Hidden Epidemic), Noel Boaz (Evolving Health) and Braly (Dangerous Grains) as well as proponents of the "Paleo diet" that most everyone does better not eating a grain filled diet, even if that grain is rice, corn or whatever--not to speak of wheat. It makes sense if we believe the archaeology which indicates grains were not part of the regular diet up until 15,000 years ago (when big game became more difficult to find). Given that we humans have been here so much longer than that, it is argued that our bodies are more adapted to eating other things for carbohydrate like tubers, roots and squashes -- as well as some fruit (when in season). It is claimed in fact that many of the degenerative diseases for everybody comes from eating a high grain (especially processed) diet.However, even so, not everyone has an automatic response wherein their intestinal villi get attacked by their own immune system like we do when we eat gluten if we have celiac.BeaLillyth Denaghy Keogh-Quillan <lillythdenaghykeogh@...> wrote: Yes, but most Native Americans historically subsisted on corn, rather than wheat. From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 7:02 PM Subject: RE: [ ] Regarding chance glutening remedies Well these are interesting theories. It could just be true although honestly I have heard nothing about it. I want to look into it and see if what you suggest could be correct or not. The fact most Native Americans don't have this condition makes me wonder about it however. Bea Connie Hampton <conniehampton-research> wrote: Bea, I’m not at all sure that non-Europeans don’t have celiac – it could just be a reporting/identification issue. And many non-Europeans do not use wheat the way Europeans do – at every meal in every dish – Asian and Pre-Columbian foods generally do not have gluten (well – there are Chinese noodles and Korean soy sauce, but still, rice!) So it is not so much that celiac genes mutated and got spread as much as it is that the celiac genes are the old ones and that the non-celiac genes are the mutated ones that got spread. The Vikings (my people!) certainly did spread their genes around – both after they settled in Scandinavia (the Rus in Russia) and before they got there in most of the rest of Europe (and never mind the Celts who started very close to the wheat bearing lands and certainly have a long tradition of both beer and whiskey from barley – one wonders if distillation was a way to keep the alcohol and ditch the gluten). And then the Europeans apparently spent a great deal of time in Central Asia before entering Europe. National Geographic has found that homeland by tracing the male genetic line. My sources are bits and pieces from things like “Guns, Germs and Steel”, the National Geographic specials on tracing our genetic heritage (broadly), comments by people about their Eastern European grandparents eating mostly oat porridge and goat meat and opening a bake shop (wheat!!) after the war when they could, teaching my kids at home about “the long, long story of where we came from”, some genetics work in my own schooling, some conversations on the group GFCFNN, perhaps the book “Against the Grain”. Etc, etc.etc. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 4:52 PM Subject: RE: [ ] Regarding chance glutening remedies My understanding is that not many non-Europeans have this condition although like I said the Vikings got around and spread it through their genes and then of course that got replicated by others. Who knows where all they went "a-Viking" though they often went by river as well as ocean. It seems that in Scandinavia and British Isles etc. wheat etc. was not introduced as early as in the rest of Europe--by 1500 years, and even then they ate mostly barley. Honestly there was no conspiracy of any kind in the development of celiac. Its just a genetic fluke. Before 15,000 years ago humans on earth ate much in the way of grains. There was a trade-off for everyone to go from nomadic Hunter Gatherer to Settled Grain Eater. Children did not grow as much when they ate less meat. By eating a higher grain diet people started not living as long as well due to the appearance of more degenerative diseases. As far as gluten goes, its interesting that the northern wheat has more gluten in it due to to shorter growing season.Interestingly celiac also often causes short stature if contracted early enough--though it seems eating a high grain diet causes everyone some short stature issues if not enough protein is eaten. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Is that true? What about Africans? At the Celiac Conference a few years ago, they said that the heist population with Celiac were African refugees. Also, I read recently that wheat read was not regularly used until the Egyptians began to make beer for the Jewish slaves. I also have some Jewish & Russian ancestry (like someone else mentioned). Perhaps there is some root in enslaving the Jewish population with gut-destroying brew? From: [mailto: ] On Behalf Of TrVerb@... Sent: Friday, May 02, 2008 11:51 AM Subject: Re: [ ] Regarding chance glutening remedies I think in general it would be interesting for someone to investigate the old dietary practices and remedies of Scandinavians since they seem to be the source (as far as I can figure) for this celiac condition--and the old Vikings then spread their genes around so to speak. Plus a significant number of the Scandinavian and British warriors were taken in by the old Roman Army during Caeser's time--which is why I think so many Italians also have this condition. Bea Connie Hampton <connie@hampton-connie@hacon> wrote: Probiotics don’t last long in the body and need to be eaten daily for the best effects – sauerkraut, kefir, kefired apple juice, traditional lactofermented pickles, etc. really help on a daily basis and are quite traditional. Stanford researchers are working on an enzyme therapeutic to use against cross contamination but they are not there yet. Clays like pascalite (www.pascalite.www – I don’t get anything for mentioning them) also can help by sticking to the sticky gliadin peptides. Red wine has been mentioned as well. I am so glad that you described all that you did, Bea. I will print this out and see if any of these herbs and vitamins help me. I usually just take my migraine to bed and lose 6 hours. Connie From: @ celiacbayar @<wbr>yah @ celiOn Behalf Of j. hogle Sent: Friday, May 02, 2008 12:21 AM @ celiacbayar ce Subject: Re: [ ] Regarding chance glutening remedies Hi Bea: I don't mean to imply that "...just the probiotics are all that is needed as a remedy." I am only pointing out research whose results, thus far, are proving "interesting. I don't mean to imply that "...just the probiotics are all that is needed as a remedy." I am only pointing out research whose results, thus far, are proving "interesting.<wbr>" I will follow it, other quality research, On the other hand, as you note, it may often be worthwhile to err "...on the side of kitchen sink methodology. On the other hand, as you note, it may often be worthwhile to err "...on the side of kitchen sink methodology.<wbr>.." because, as long as the kitchen sinks don't have any inherent problems themselves, we might as well try those potentially salutary tools (medicines, herbs, probiotics, whatever) that are showing at least a reasonable amount of anecdotal success. A good analogy might be the many people who were taking glucosamine and condroitin years before scienti The one thing we need to be sure is that we and our loved ones don't fall victims to often-expensive scams by or products from vendors who know how to prey on people with illnesses, needs, and fears. Fortunately, there are numerous high-quality Web sites (such as Consumer Reports Health subscription site, the government's MedLinePlus, the Mayo Clinic, the not-for-profit Celiac organizations, and many, many more that can provide us with objective information on the "cures," "medicines," herbs, etc., that are of questionable value or are complete frauds. Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) jj Web: www.blueroom.www Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroomhttp://www.bluerhttp] ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) bea> @ celiacb To Sent: Thursday, May 1, 2008 6:52:00 PM Subject: Re: [ ] Regarding chance glutening remedies Hi , And here I thought it was the "glutenase" powder and the "glucoamylase" that made the difference with the Gluten-zyme etc.---not the probiotics. Due to your sharp eye I now see the 5 ingredient probiotic blend. Its great news however if the probiotics do help to such a great degree. The Gluten-zyme by the way also has varying different kinds of peptidase activity as well as "strong acid protease" and amylase. We do need double blind studies I agree wholeheartedly, both for regular supplements and herbs since they too really do seem to help in my experience and for other people with celiac that I know. However for now without the studies for the most part (except for the study you cite), its nice to know that its possible these new gluten enzyme like products actually help--as well as the probiotics. I also think the enzymes in the pineapple and papaya helped me too--which makes sense since they counteract swelling and scar tissue formation. Question is of course, next time do I use the whole kitchen sink remedy or not? This is where studies are important, though probably for now for myself I can use trial and error--as a kind of personal science. For now I erred on the side of kitchen sink methodology since I did not want to get sick once again and just threw everything that I had available to me at it. I think it would be great however if various people here on the celiac group did try some of these products and remedies and let us all know if it helped them or not when inadvertently glutened. At least it would be a start -- from "nothing one can do" (sigh!) to definitely "doing something!" Since I was affected quite dramatically about 4 times this winter after I went "pure" with not only my diet but also my sundries etc. I am very happy I did not seriously get sick again. If as you imply just the probiotics are all that is needed as a remedy, I would be highly surprised. However I am open to that being true nevertheless. It would be great in fact since it would be so very simple...and fit in with some of the Northern European people's diet -- since in ancient times they practically lived on fermented reindeer milk for a good part of the year. Bea "j. hogle" <jjhogle (DOT) com> wrote: I'm glad that the Glutenzyme product worked for you, but I would like to see how well the Lactobacillus brevis, Lactobacillus acidophilus, Gluten protease, and Amylase in "Glutenzyme" works in a double-blind, well-controlled research study. On the other hand, in a recent peer-reviewed scientific paper available (abstract, at least) from PubMed.gov, Finnish researchers found that ..."Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions" and that it "...would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease." Early stage research, but very interesting. Below I've included the PubMed citation in Medline format for the paper that was published in the April 16, 2008 e-edition of the Journal of Clinical and Experimental Immunology. Cheers, Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) com Web: www.blueroom. com Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroom ..com/realityaint .htm] ============ CITATION ============ === Lindfors K et al. Live probiotic Bifidobacteriu. ..[PMID: 18422736] Related Articles, Links PMID - 18422736 OWN - NLM STAT - Publisher DA - 20080421 PUBM - Print-Electronic IS - 1365-2249 (Electronic) DP - 2008 Apr 16 TI - Li ve probiotic Bifidobacterium lactis bacteria inhibit the toxic effects induced by wheat gliadin in epithelial cell culture. AB - Wheat gliadin induces severe intestinal symptoms and small-bowel mucosal damage in coeliac disease patients. At present, the only effective treatment for the disease is a strict life-long gluten-free diet. In this study we investigated whether probiotics Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions. The ability of live probiotics to inhibit peptic-tryptic digested gliadin-induced damage to human colon cells Caco-2 was evaluated by measuring epithelial permeability by transepithelial resistance, actin cytoskeleton arrangements by the extent of membrane ruffling and expression of tight junctional protein ZO-1. B. lactis inhibited the gliadin-induced increase dose-dependently in epithelial permeability, higher concentrations completely abolishing the gliadin-induced decrease in transepithelial resistance. The same bacterial strain also inhibited the formation of membrane ruffles in Caco-2 cells induced by gliadin administration. Furthermore, it also protected the tight junctions of Caco-2 cells against the effects of gliadin, as evinced by the pattern of ZO-1 expression. We conclude thus that live B. lactis bacteria can counteract directly the harmful effects exerted by coeliac-toxic gliadin and would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. AD - Paediatric Research Centre, Medical School, University of Tampere, Finland, Department of Peadiatrics, Tampere University Hospital, Tampere, Finland. AU - Lindfors K AU - Blomqvist T AU - Juuti-Uusitalo K AU - Stenman S AU - Venalainen J AU - Maki M AU - Kaukinen K LA - ENG PT - JOURNAL ARTICLE DEP - 20080416 TA - Clin Exp Immunol JT - Clinical and experimental immunology JID - 0057202 EDAT - 2008/04/22 09:00 MHDA - 2008/04/22 09:00 AID - CEI3635 [pii] AID - 10.1111/j.1365- 2249.2008. 03635.x [doi] PST - aheadofprint SO - Clin Exp Immunol. 2008 Apr 16;. ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) com> Sent: Wednesday, April 30, 2008 5:16:43 PM Subject: [ ] Regarding chance glutening remedies Last week I had both the confronting experience of being glutened by chance at a supposedly celiac aware restaurant-- the bane of most celiacs--and discovered some remedies that actually worked for me. This after having gotten shooting D just from a food handler who prepared my tea after making someone else a sandwich in February as well as other equivalent experiences since I have gone off all trace hidden glutens! What happened is that I asked for and got some pineapple and fresh papaya at the establishment I was eating at after I discovered they had put soy sauce in my dish (after I had been assured they wouldn't). I had already eaten about 1/2 my portion--and wasn't paying as much attention as I might since it was supposed to be a "safe" and experienced restaurant concerning the gluten matter. If I had brought along my papain/bromelain caps that would have been the easy equivalent to the pineapple and papaya. As it was the owner ran across the street and bought me some fresh papaya. I also immediately took some pancreatin enzymes I had brought along--a double dose. Right after dinner my date and I went over to a natural foods store and I bought this new product called Gluten-zyme by Country Life. There was another bottle of a different brand that cost a little more that also looked pretty equivalent. Again I immediately took a double dose. That night I took another dose and two more the next day just to make sure. Instead of shooting D I had inflammation in my feet and calves which went down after I took my co-enzyme B vitamins. I wasn't home where I usually have my herbs and most of my stuff so I didn't take dandelion (to clean out the liver), cleavers (to clean out the lymphs), marshmallow root (to soothe and heal the lining of the intestines), and nattokinase or serrapeptidase (to counteract scar tissue in the intestines as well as inflammation) etc. until the next day--I probably should have got some at the store but wasn't feeling quite that rich. The following day my only other symptom was a small pimple on my face, often a sign of glutening in the old pre pure days before I went off all hidden gluten. I did feel a little depressed (another symptom) but then recovered after going for a long walk and working on clay (clay pulls out toxins through the skin of the hands and feet etc.). I bet going for a sauna would have worked too. Taking the dandelion etc. also helped a great deal. It was a big discovery for me. I keep hearing there is nothing you can do except grin and bear it, but I discovered that at least for me there are remedies. I feel like I no longer have to be terrified of going out to eat, especially with these new gluten-eating enzymes out there. I wonder if this would help others? Methinks it would. Please try it in an emergency and let me (and us all) know if it does. I still think its not wise to court experiences like this, but hey they happen. Especially for someone like me that is actually trying to have a life outside of my safe cocoon sometimes. Another note--in case of shooting D right away (before you can take action or know you needed to), pepto bismol tablets or their equivalent work great. They are easy to carry in the purse or pocket or whatever. Another remedy is to make a tea with either blackberry or guava leaves. Meadowsweet I hear also works. Bea Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Messages in this topic (23) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Database | Polls | Members | Calendar Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe Recent Activity • 5 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Ads on Learn more now. Reach customers searching for you. . ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Curious, I am also Russian Jew on both sides of my family. Maia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Bea and Lily, Corn was a bit more regional than “All First Nations Peoples at corn”. But beyond that, diabetes is very high among the First Nations people who eat wheat and we don’t know what their genetic heritage includes (we being those of us in this discussion just now). It could be that the peoples that came over the Behring Straits came from stock that spent some time in the Middle East at the dawn of barley eating. Or not. Or their sacred stories are true and they came from here. I do agree that humans generally have not evolved to eat such a high grain diet. I think we did eat far more fruits and veggies in season, picked and eaten on the spot much like bonobos and chimps do now in the wild. That said, our genes have changed quite a bit in the last 15,000 years as we moved into different environments with different edible and partially edible plants which each group became adapted to (or not). We have also adapted the plants – cultivated potatoes are not as poisonous as their wild cousins, cabbage comes in an amazing variety of shapes and parts now, wheat can be grown in places it did not originally evolve for. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 8:31 PM Subject: RE: [ ] Regarding chance glutening remedies Hi Connie, True, however my understanding is that Native Americans don't often just rely on corn now and eat a lot of wheat these days. I have several members of my family for instance that show that to be true--as well as people I met when my parents were archaeologists in the Pacific Northwest etc. and when I have been places that have a large Native American population. Granted, the fact everyone is genetically mixed up with everyone else in this country makes discernment of some of these " facts " difficult however. Nevertheless it is said by several scientists like Dr. Green (A Hidden Epidemic), Noel Boaz (Evolving Health) and Braly (Dangerous Grains) as well as proponents of the " Paleo diet " that most everyone does better not eating a grain filled diet, even if that grain is rice, corn or whatever--not to speak of wheat. It makes sense if we believe the archaeology which indicates grains were not part of the regular diet up until 15,000 years ago (when big game became more difficult to find). Given that we humans have been here so much longer than that, it is argued that our bodies are more adapted to eating other things for carbohydrate like tubers, roots and squashes -- as well as some fruit (when in season). It is claimed in fact that many of the degenerative diseases for everybody comes from eating a high grain (especially processed) diet. However, even so, not everyone has an automatic response wherein their intestinal villi get attacked by their own immune system like we do when we eat gluten if we have celiac. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Yes, but most Native Americans historically subsisted on corn, rather than wheat. From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 7:02 PM Subject: RE: [ ] Regarding chance glutening remedies Well these are interesting theories. It could just be true although honestly I have heard nothing about it. I want to look into it and see if what you suggest could be correct or not. The fact most Native Americans don't have this condition makes me wonder about it however. Bea Connie Hampton <conniehampton-research> wrote: Bea, I’m not at all sure that non-Europeans don’t have celiac – it could just be a reporting/identification issue. And many non-Europeans do not use wheat the way Europeans do – at every meal in every dish – Asian and Pre-Columbian foods generally do not have gluten (well – there are Chinese noodles and Korean soy sauce, but still, rice!) So it is not so much that celiac genes mutated and got spread as much as it is that the celiac genes are the old ones and that the non-celiac genes are the mutated ones that got spread. The Vikings (my people!) certainly did spread their genes around – both after they settled in Scandinavia (the Rus in Russia) and before they got there in most of the rest of Europe (and never mind the Celts who started very close to the wheat bearing lands and certainly have a long tradition of both beer and whiskey from barley – one wonders if distillation was a way to keep the alcohol and ditch the gluten). And then the Europeans apparently spent a great deal of time in Central Asia before entering Europe. National Geographic has found that homeland by tracing the male genetic line. My sources are bits and pieces from things like “Guns, Germs and Steel”, the National Geographic specials on tracing our genetic heritage (broadly), comments by people about their Eastern European grandparents eating mostly oat porridge and goat meat and opening a bake shop (wheat!!) after the war when they could, teaching my kids at home about “the long, long story of where we came from”, some genetics work in my own schooling, some conversations on the group GFCFNN, perhaps the book “Against the Grain”. Etc, etc.etc. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 4:52 PM Subject: RE: [ ] Regarding chance glutening remedies My understanding is that not many non-Europeans have this condition although like I said the Vikings got around and spread it through their genes and then of course that got replicated by others. Who knows where all they went " a-Viking " though they often went by river as well as ocean. It seems that in Scandinavia and British Isles etc. wheat etc. was not introduced as early as in the rest of Europe--by 1500 years, and even then they ate mostly barley. Honestly there was no conspiracy of any kind in the development of celiac. Its just a genetic fluke. Before 15,000 years ago humans on earth ate much in the way of grains. There was a trade-off for everyone to go from nomadic Hunter Gatherer to Settled Grain Eater. Children did not grow as much when they ate less meat. By eating a higher grain diet people started not living as long as well due to the appearance of more degenerative diseases. As far as gluten goes, its interesting that the northern wheat has more gluten in it due to to shorter growing season.Interestingly celiac also often causes short stature if contracted early enough--though it seems eating a high grain diet causes everyone some short stature issues if not enough protein is eaten. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Is that true? What about Africans? At the Celiac Conference a few years ago, they said that the heist population with Celiac were African refugees. Also, I read recently that wheat read was not regularly used until the Egyptians began to make beer for the Jewish slaves. I also have some Jewish & Russian ancestry (like someone else mentioned). Perhaps there is some root in enslaving the Jewish population with gut-destroying brew? From: [mailto: ] On Behalf Of TrVerb@... Sent: Friday, May 02, 2008 11:51 AM Subject: Re: [ ] Regarding chance glutening remedies I think in general it would be interesting for someone to investigate the old dietary practices and remedies of Scandinavians since they seem to be the source (as far as I can figure) for this celiac condition--and the old Vikings then spread their genes around so to speak. Plus a significant number of the Scandinavian and British warriors were taken in by the old Roman Army during Caeser's time--which is why I think so many Italians also have this condition. Bea Connie Hampton <connie@hampton-connie@hacon> wrote: Probiotics don’t last long in the body and need to be eaten daily for the best effects – sauerkraut, kefir, kefired apple juice, traditional lactofermented pickles, etc. really help on a daily basis and are quite traditional. Stanford researchers are working on an enzyme therapeutic to use against cross contamination but they are not there yet. Clays like pascalite (www.pascalite.www – I don’t get anything for mentioning them) also can help by sticking to the sticky gliadin peptides. Red wine has been mentioned as well. I am so glad that you described all that you did, Bea. I will print this out and see if any of these herbs and vitamins help me. I usually just take my migraine to bed and lose 6 hours. Connie From: @ celiacbayar @<wbr>yah @ celiOn Behalf Of j. hogle Sent: Friday, May 02, 2008 12:21 AM @ celiacbayar ce Subject: Re: [ ] Regarding chance glutening remedies Hi Bea: I don't mean to imply that " ...just the probiotics are all that is needed as a remedy. " I am only pointing out research whose results, thus far, are proving " interesting. I don't mean to imply that " ...just the probiotics are all that is needed as a remedy. " I am only pointing out research whose results, thus far, are proving " interesting.<wbr> " I will follow it, other quality research, On the other hand, as you note, it may often be worthwhile to err " ...on the side of kitchen sink methodology. On the other hand, as you note, it may often be worthwhile to err " ...on the side of kitchen sink methodology.<wbr>.. " because, as long as the kitchen sinks don't have any inherent problems themselves, we might as well try those potentially salutary tools (medicines, herbs, probiotics, whatever) that are showing at least a reasonable amount of anecdotal success. A good analogy might be the many people who were taking glucosamine and condroitin years before scienti The one thing we need to be sure is that we and our loved ones don't fall victims to often-expensive scams by or products from vendors who know how to prey on people with illnesses, needs, and fears. Fortunately, there are numerous high-quality Web sites (such as Consumer Reports Health subscription site, the government's MedLinePlus, the Mayo Clinic, the not-for-profit Celiac organizations, and many, many more that can provide us with objective information on the " cures, " " medicines, " herbs, etc., that are of questionable value or are complete frauds. Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) jj Web: www.blueroom.www Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroomhttp://www.bluerhttp] ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) bea> @ celiacb To Sent: Thursday, May 1, 2008 6:52:00 PM Subject: Re: [ ] Regarding chance glutening remedies Hi , And here I thought it was the " glutenase " powder and the " glucoamylase " that made the difference with the Gluten-zyme etc.---not the probiotics. Due to your sharp eye I now see the 5 ingredient probiotic blend. Its great news however if the probiotics do help to such a great degree. The Gluten-zyme by the way also has varying different kinds of peptidase activity as well as " strong acid protease " and amylase. We do need double blind studies I agree wholeheartedly, both for regular supplements and herbs since they too really do seem to help in my experience and for other people with celiac that I know. However for now without the studies for the most part (except for the study you cite), its nice to know that its possible these new gluten enzyme like products actually help--as well as the probiotics. I also think the enzymes in the pineapple and papaya helped me too--which makes sense since they counteract swelling and scar tissue formation. Question is of course, next time do I use the whole kitchen sink remedy or not? This is where studies are important, though probably for now for myself I can use trial and error--as a kind of personal science. For now I erred on the side of kitchen sink methodology since I did not want to get sick once again and just threw everything that I had available to me at it. I think it would be great however if various people here on the celiac group did try some of these products and remedies and let us all know if it helped them or not when inadvertently glutened. At least it would be a start -- from " nothing one can do " (sigh!) to definitely " doing something! " Since I was affected quite dramatically about 4 times this winter after I went " pure " with not only my diet but also my sundries etc. I am very happy I did not seriously get sick again. If as you imply just the probiotics are all that is needed as a remedy, I would be highly surprised. However I am open to that being true nevertheless. It would be great in fact since it would be so very simple...and fit in with some of the Northern European people's diet -- since in ancient times they practically lived on fermented reindeer milk for a good part of the year. Bea " j. hogle " <jjhogle (DOT) com> wrote: I'm glad that the Glutenzyme product worked for you, but I would like to see how well the Lactobacillus brevis, Lactobacillus acidophilus, Gluten protease, and Amylase in " Glutenzyme " works in a double-blind, well-controlled research study. On the other hand, in a recent peer-reviewed scientific paper available (abstract, at least) from PubMed.gov, Finnish researchers found that ... " Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions " and that it " ...would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. " Early stage research, but very interesting. Below I've included the PubMed citation in Medline format for the paper that was published in the April 16, 2008 e-edition of the Journal of Clinical and Experimental Immunology. Cheers, Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) com Web: www.blueroom. com Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroom ..com/realityaint .htm] ============ CITATION ============ === Lindfors K et al. Live probiotic Bifidobacteriu. ..[PMID: 18422736] Related Articles, Links PMID - 18422736 OWN - NLM STAT - Publisher DA - 20080421 PUBM - Print-Electronic IS - 1365-2249 (Electronic) DP - 2008 Apr 16 TI - Li ve probiotic Bifidobacterium lactis bacteria inhibit the toxic effects induced by wheat gliadin in epithelial cell culture. AB - Wheat gliadin induces severe intestinal symptoms and small-bowel mucosal damage in coeliac disease patients. At present, the only effective treatment for the disease is a strict life-long gluten-free diet. In this study we investigated whether probiotics Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions. The ability of live probiotics to inhibit peptic-tryptic digested gliadin-induced damage to human colon cells Caco-2 was evaluated by measuring epithelial permeability by transepithelial resistance, actin cytoskeleton arrangements by the extent of membrane ruffling and expression of tight junctional protein ZO-1. B. lactis inhibited the gliadin-induced increase dose-dependently in epithelial permeability, higher concentrations completely abolishing the gliadin-induced decrease in transepithelial resistance. The same bacterial strain also inhibited the formation of membrane ruffles in Caco-2 cells induced by gliadin administration. Furthermore, it also protected the tight junctions of Caco-2 cells against the effects of gliadin, as evinced by the pattern of ZO-1 expression. We conclude thus that live B. lactis bacteria can counteract directly the harmful effects exerted by coeliac-toxic gliadin and would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. AD - Paediatric Research Centre, Medical School, University of Tampere, Finland, Department of Peadiatrics, Tampere University Hospital, Tampere, Finland. AU - Lindfors K AU - Blomqvist T AU - Juuti-Uusitalo K AU - Stenman S AU - Venalainen J AU - Maki M AU - Kaukinen K LA - ENG PT - JOURNAL ARTICLE DEP - 20080416 TA - Clin Exp Immunol JT - Clinical and experimental immunology JID - 0057202 EDAT - 2008/04/22 09:00 MHDA - 2008/04/22 09:00 AID - CEI3635 [pii] AID - 10.1111/j.1365- 2249.2008. 03635.x [doi] PST - aheadofprint SO - Clin Exp Immunol. 2008 Apr 16;. ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) com> Sent: Wednesday, April 30, 2008 5:16:43 PM Subject: [ ] Regarding chance glutening remedies Last week I had both the confronting experience of being glutened by chance at a supposedly celiac aware restaurant-- the bane of most celiacs--and discovered some remedies that actually worked for me. This after having gotten shooting D just from a food handler who prepared my tea after making someone else a sandwich in February as well as other equivalent experiences since I have gone off all trace hidden glutens! What happened is that I asked for and got some pineapple and fresh papaya at the establishment I was eating at after I discovered they had put soy sauce in my dish (after I had been assured they wouldn't). I had already eaten about 1/2 my portion--and wasn't paying as much attention as I might since it was supposed to be a " safe " and experienced restaurant concerning the gluten matter. If I had brought along my papain/bromelain caps that would have been the easy equivalent to the pineapple and papaya. As it was the owner ran across the street and bought me some fresh papaya. I also immediately took some pancreatin enzymes I had brought along--a double dose. Right after dinner my date and I went over to a natural foods store and I bought this new product called Gluten-zyme by Country Life. There was another bottle of a different brand that cost a little more that also looked pretty equivalent. Again I immediately took a double dose. That night I took another dose and two more the next day just to make sure. Instead of shooting D I had inflammation in my feet and calves which went down after I took my co-enzyme B vitamins. I wasn't home where I usually have my herbs and most of my stuff so I didn't take dandelion (to clean out the liver), cleavers (to clean out the lymphs), marshmallow root (to soothe and heal the lining of the intestines), and nattokinase or serrapeptidase (to counteract scar tissue in the intestines as well as inflammation) etc. until the next day--I probably should have got some at the store but wasn't feeling quite that rich. The following day my only other symptom was a small pimple on my face, often a sign of glutening in the old pre pure days before I went off all hidden gluten. I did feel a little depressed (another symptom) but then recovered after going for a long walk and working on clay (clay pulls out toxins through the skin of the hands and feet etc.). I bet going for a sauna would have worked too. Taking the dandelion etc. also helped a great deal. It was a big discovery for me. I keep hearing there is nothing you can do except grin and bear it, but I discovered that at least for me there are remedies. I feel like I no longer have to be terrified of going out to eat, especially with these new gluten-eating enzymes out there. I wonder if this would help others? Methinks it would. Please try it in an emergency and let me (and us all) know if it does. I still think its not wise to court experiences like this, but hey they happen. Especially for someone like me that is actually trying to have a life outside of my safe cocoon sometimes. Another note--in case of shooting D right away (before you can take action or know you needed to), pepto bismol tablets or their equivalent work great. They are easy to carry in the purse or pocket or whatever. Another remedy is to make a tea with either blackberry or guava leaves. Meadowsweet I hear also works. Bea Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Messages in this topic (23) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Database | Polls | Members | Calendar Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe Recent Activity • 5 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Ads on Learn more now. Reach customers searching for you. .. ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Yes thats true, ground, leached acorns for instance were an important part of the diet on the West Coast.It really is interesting to consider how much people in general enjoy grains of whatever type and yet the fact is that eating so much of them as we tend to do isn't that great for anyone. I think it is wise to scale back on even the alternative grains for better health. I try to only have one meal and maybe one snack with my alternative grain stuff. I find if I eat more than that I feel "off".Ironically the grain shortage around the world may improve some people's health -- assuming they don't die of starvation first! Hopefully more people will grow their own squashes, potatoes and other tubers for instance.BeaConnie Hampton <connie@...> wrote: Bea and Lily, Corn was a bit more regional than “All First Nations Peoples at corn”. But beyond that, diabetes is very high among the First Nations people who eat wheat and we don’t know what their genetic heritage includes (we being those of us in this discussion just now). It could be that the peoples that came over the Behring Straits came from stock that spent some time in the Middle East at the dawn of barley eating. Or not. Or their sacred stories are true and they came from here. I do agree that humans generally have not evolved to eat such a high grain diet. I think we did eat far more fruits and veggies in season, picked and eaten on the spot much like bonobos and chimps do now in the wild. That said, our genes have changed quite a bit in the last 15,000 years as we moved into different environments with different edible and partially edible plants which each group became adapted to (or not). We have also adapted the plants – cultivated potatoes are not as poisonous as their wild cousins, cabbage comes in an amazing variety of shapes and parts now, wheat can be grown in places it did not originally evolve for. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 8:31 PM Subject: RE: [ ] Regarding chance glutening remedies Hi Connie, True, however my understanding is that Native Americans don't often just rely on corn now and eat a lot of wheat these days. I have several members of my family for instance that show that to be true--as well as people I met when my parents were archaeologists in the Pacific Northwest etc. and when I have been places that have a large Native American population. Granted, the fact everyone is genetically mixed up with everyone else in this country makes discernment of some of these "facts" difficult however. Nevertheless it is said by several scientists like Dr. Green (A Hidden Epidemic), Noel Boaz (Evolving Health) and Braly (Dangerous Grains) as well as proponents of the "Paleo diet" that most everyone does better not eating a grain filled diet, even if that grain is rice, corn or whatever--not to speak of wheat. It makes sense if we believe the archaeology which indicates grains were not part of the regular diet up until 15,000 years ago (when big game became more difficult to find). Given that we humans have been here so much longer than that, it is argued that our bodies are more adapted to eating other things for carbohydrate like tubers, roots and squashes -- as well as some fruit (when in season). It is claimed in fact that many of the degenerative diseases for everybody comes from eating a high grain (especially processed) diet. However, even so, not everyone has an automatic response wherein their intestinal villi get attacked by their own immune system like we do when we eat gluten if we have celiac. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Yes, but most Native Americans historically subsisted on corn, rather than wheat. From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 7:02 PM Subject: RE: [ ] Regarding chance glutening remedies Well these are interesting theories. It could just be true although honestly I have heard nothing about it. I want to look into it and see if what you suggest could be correct or not. The fact most Native Americans don't have this condition makes me wonder about it however. Bea Connie Hampton <conniehampton-research> wrote: Bea, I’m not at all sure that non-Europeans don’t have celiac – it could just be a reporting/identification issue. And many non-Europeans do not use wheat the way Europeans do – at every meal in every dish – Asian and Pre-Columbian foods generally do not have gluten (well – there are Chinese noodles and Korean soy sauce, but still, rice!) So it is not so much that celiac genes mutated and got spread as much as it is that the celiac genes are the old ones and that the non-celiac genes are the mutated ones that got spread. The Vikings (my people!) certainly did spread their genes around – both after they settled in Scandinavia (the Rus in Russia) and before they got there in most of the rest of Europe (and never mind the Celts who started very close to the wheat bearing lands and certainly have a long tradition of both beer and whiskey from barley – one wonders if distillation was a way to keep the alcohol and ditch the gluten). And then the Europeans apparently spent a great deal of time in Central Asia before entering Europe. National Geographic has found that homeland by tracing the male genetic line. My sources are bits and pieces from things like “Guns, Germs and Steel”, the National Geographic specials on tracing our genetic heritage (broadly), comments by people about their Eastern European grandparents eating mostly oat porridge and goat meat and opening a bake shop (wheat!!) after the war when they could, teaching my kids at home about “the long, long story of where we came from”, some genetics work in my own schooling, some conversations on the group GFCFNN, perhaps the book “Against the Grain”. Etc, etc.etc. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 4:52 PM Subject: RE: [ ] Regarding chance glutening remedies My understanding is that not many non-Europeans have this condition although like I said the Vikings got around and spread it through their genes and then of course that got replicated by others. Who knows where all they went "a-Viking" though they often went by river as well as ocean. It seems that in Scandinavia and British Isles etc. wheat etc. was not introduced as early as in the rest of Europe--by 1500 years, and even then they ate mostly barley. Honestly there was no conspiracy of any kind in the development of celiac. Its just a genetic fluke. Before 15,000 years ago humans on earth ate much in the way of grains. There was a trade-off for everyone to go from nomadic Hunter Gatherer to Settled Grain Eater. Children did not grow as much when they ate less meat. By eating a higher grain diet people started not living as long as well due to the appearance of more degenerative diseases. As far as gluten goes, its interesting that the northern wheat has more gluten in it due to to shorter growing season.Interestingly celiac also often causes short stature if contracted early enough--though it seems eating a high grain diet causes everyone some short stature issues if not enough protein is eaten. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Is that true? What about Africans? At the Celiac Conference a few years ago, they said that the heist population with Celiac were African refugees. Also, I read recently that wheat read was not regularly used until the Egyptians began to make beer for the Jewish slaves. I also have some Jewish & Russian ancestry (like someone else mentioned). Perhaps there is some root in enslaving the Jewish population with gut-destroying brew? From: [mailto: ] On Behalf Of TrVerb@... Sent: Friday, May 02, 2008 11:51 AM Subject: Re: [ ] Regarding chance glutening remedies I think in general it would be interesting for someone to investigate the old dietary practices and remedies of Scandinavians since they seem to be the source (as far as I can figure) for this celiac condition--and the old Vikings then spread their genes around so to speak. Plus a significant number of the Scandinavian and British warriors were taken in by the old Roman Army during Caeser's time--which is why I think so many Italians also have this condition. Bea Connie Hampton <connie@hampton-connie@hacon> wrote: Probiotics don’t last long in the body and need to be eaten daily for the best effects – sauerkraut, kefir, kefired apple juice, traditional lactofermented pickles, etc. really help on a daily basis and are quite traditional. Stanford researchers are working on an enzyme therapeutic to use against cross contamination but they are not there yet. Clays like pascalite (www.pascalite.www – I don’t get anything for mentioning them) also can help by sticking to the sticky gliadin peptides. Red wine has been mentioned as well. I am so glad that you described all that you did, Bea. I will print this out and see if any of these herbs and vitamins help me. I usually just take my migraine to bed and lose 6 hours. Connie From: @ celiacbayar @<wbr>yah @ celiOn Behalf Of j. hogle Sent: Friday, May 02, 2008 12:21 AM @ celiacbayar ce Subject: Re: [ ] Regarding chance glutening remedies Hi Bea: I don't mean to imply that "...just the probiotics are all that is needed as a remedy." I am only pointing out research whose results, thus far, are proving "interesting. I don't mean to imply that "...just the probiotics are all that is needed as a remedy." I am only pointing out research whose results, thus far, are proving "interesting.<wbr>" I will follow it, other quality research, On the other hand, as you note, it may often be worthwhile to err "...on the side of kitchen sink methodology. On the other hand, as you note, it may often be worthwhile to err "...on the side of kitchen sink methodology.<wbr>.." because, as long as the kitchen sinks don't have any inherent problems themselves, we might as well try those potentially salutary tools (medicines, herbs, probiotics, whatever) that are showing at least a reasonable amount of anecdotal success. A good analogy might be the many people who were taking glucosamine and condroitin years before scienti The one thing we need to be sure is that we and our loved ones don't fall victims to often-expensive scams by or products from vendors who know how to prey on people with illnesses, needs, and fears. Fortunately, there are numerous high-quality Web sites (such as Consumer Reports Health subscription site, the government's MedLinePlus, the Mayo Clinic, the not-for-profit Celiac organizations, and many, many more that can provide us with objective information on the "cures," "medicines," herbs, etc., that are of questionable value or are complete frauds. Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) jj Web: www.blueroom.www Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroomhttp://www.bluerhttp] ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) bea> @ celiacb To Sent: Thursday, May 1, 2008 6:52:00 PM Subject: Re: [ ] Regarding chance glutening remedies Hi , And here I thought it was the "glutenase" powder and the "glucoamylase" that made the difference with the Gluten-zyme etc.---not the probiotics. Due to your sharp eye I now see the 5 ingredient probiotic blend. Its great news however if the probiotics do help to such a great degree. The Gluten-zyme by the way also has varying different kinds of peptidase activity as well as "strong acid protease" and amylase. We do need double blind studies I agree wholeheartedly, both for regular supplements and herbs since they too really do seem to help in my experience and for other people with celiac that I know. However for now without the studies for the most part (except for the study you cite), its nice to know that its possible these new gluten enzyme like products actually help--as well as the probiotics. I also think the enzymes in the pineapple and papaya helped me too--which makes sense since they counteract swelling and scar tissue formation. Question is of course, next time do I use the whole kitchen sink remedy or not? This is where studies are important, though probably for now for myself I can use trial and error--as a kind of personal science. For now I erred on the side of kitchen sink methodology since I did not want to get sick once again and just threw everything that I had available to me at it. I think it would be great however if various people here on the celiac group did try some of these products and remedies and let us all know if it helped them or not when inadvertently glutened. At least it would be a start -- from "nothing one can do" (sigh!) to definitely "doing something!" Since I was affected quite dramatically about 4 times this winter after I went "pure" with not only my diet but also my sundries etc. I am very happy I did not seriously get sick again. If as you imply just the probiotics are all that is needed as a remedy, I would be highly surprised. However I am open to that being true nevertheless. It would be great in fact since it would be so very simple...and fit in with some of the Northern European people's diet -- since in ancient times they practically lived on fermented reindeer milk for a good part of the year. Bea "j. hogle" <jjhogle (DOT) com> wrote: I'm glad that the Glutenzyme product worked for you, but I would like to see how well the Lactobacillus brevis, Lactobacillus acidophilus, Gluten protease, and Amylase in "Glutenzyme" works in a double-blind, well-controlled research study. On the other hand, in a recent peer-reviewed scientific paper available (abstract, at least) from PubMed.gov, Finnish researchers found that ..."Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions" and that it "...would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease." Early stage research, but very interesting. Below I've included the PubMed citation in Medline format for the paper that was published in the April 16, 2008 e-edition of the Journal of Clinical and Experimental Immunology. Cheers, Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) com Web: www.blueroom. com Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroom ..com/realityaint .htm] ============ CITATION ============ === Lindfors K et al. Live probiotic Bifidobacteriu. ..[PMID: 18422736] Related Articles, Links PMID - 18422736 OWN - NLM STAT - Publisher DA - 20080421 PUBM - Print-Electronic IS - 1365-2249 (Electronic) DP - 2008 Apr 16 TI - Li ve probiotic Bifidobacterium lactis bacteria inhibit the toxic effects induced by wheat gliadin in epithelial cell culture. AB - Wheat gliadin induces severe intestinal symptoms and small-bowel mucosal damage in coeliac disease patients. At present, the only effective treatment for the disease is a strict life-long gluten-free diet. In this study we investigated whether probiotics Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions. The ability of live probiotics to inhibit peptic-tryptic digested gliadin-induced damage to human colon cells Caco-2 was evaluated by measuring epithelial permeability by transepithelial resistance, actin cytoskeleton arrangements by the extent of membrane ruffling and expression of tight junctional protein ZO-1. B. lactis inhibited the gliadin-induced increase dose-dependently in epithelial permeability, higher concentrations completely abolishing the gliadin-induced decrease in transepithelial resistance. The same bacterial strain also inhibited the formation of membrane ruffles in Caco-2 cells induced by gliadin administration. Furthermore, it also protected the tight junctions of Caco-2 cells against the effects of gliadin, as evinced by the pattern of ZO-1 expression. We conclude thus that live B. lactis bacteria can counteract directly the harmful effects exerted by coeliac-toxic gliadin and would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. AD - Paediatric Research Centre, Medical School, University of Tampere, Finland, Department of Peadiatrics, Tampere University Hospital, Tampere, Finland. AU - Lindfors K AU - Blomqvist T AU - Juuti-Uusitalo K AU - Stenman S AU - Venalainen J AU - Maki M AU - Kaukinen K LA - ENG PT - JOURNAL ARTICLE DEP - 20080416 TA - Clin Exp Immunol JT - Clinical and experimental immunology JID - 0057202 EDAT - 2008/04/22 09:00 MHDA - 2008/04/22 09:00 AID - CEI3635 [pii] AID - 10.1111/j.1365- 2249.2008. 03635.x [doi] PST - aheadofprint SO - Clin Exp Immunol. 2008 Apr 16;. ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) com> Sent: Wednesday, April 30, 2008 5:16:43 PM Subject: [ ] Regarding chance glutening remedies Last week I had both the confronting experience of being glutened by chance at a supposedly celiac aware restaurant-- the bane of most celiacs--and discovered some remedies that actually worked for me. This after having gotten shooting D just from a food handler who prepared my tea after making someone else a sandwich in February as well as other equivalent experiences since I have gone off all trace hidden glutens! What happened is that I asked for and got some pineapple and fresh papaya at the establishment I was eating at after I discovered they had put soy sauce in my dish (after I had been assured they wouldn't). I had already eaten about 1/2 my portion--and wasn't paying as much attention as I might since it was supposed to be a "safe" and experienced restaurant concerning the gluten matter. If I had brought along my papain/bromelain caps that would have been the easy equivalent to the pineapple and papaya. As it was the owner ran across the street and bought me some fresh papaya. I also immediately took some pancreatin enzymes I had brought along--a double dose. Right after dinner my date and I went over to a natural foods store and I bought this new product called Gluten-zyme by Country Life. There was another bottle of a different brand that cost a little more that also looked pretty equivalent. Again I immediately took a double dose. That night I took another dose and two more the next day just to make sure. Instead of shooting D I had inflammation in my feet and calves which went down after I took my co-enzyme B vitamins. I wasn't home where I usually have my herbs and most of my stuff so I didn't take dandelion (to clean out the liver), cleavers (to clean out the lymphs), marshmallow root (to soothe and heal the lining of the intestines), and nattokinase or serrapeptidase (to counteract scar tissue in the intestines as well as inflammation) etc. until the next day--I probably should have got some at the store but wasn't feeling quite that rich. The following day my only other symptom was a small pimple on my face, often a sign of glutening in the old pre pure days before I went off all hidden gluten. I did feel a little depressed (another symptom) but then recovered after going for a long walk and working on clay (clay pulls out toxins through the skin of the hands and feet etc.). I bet going for a sauna would have worked too. Taking the dandelion etc. also helped a great deal. It was a big discovery for me. I keep hearing there is nothing you can do except grin and bear it, but I discovered that at least for me there are remedies. I feel like I no longer have to be terrified of going out to eat, especially with these new gluten-eating enzymes out there. I wonder if this would help others? Methinks it would. Please try it in an emergency and let me (and us all) know if it does. I still think its not wise to court experiences like this, but hey they happen. Especially for someone like me that is actually trying to have a life outside of my safe cocoon sometimes. Another note--in case of shooting D right away (before you can take action or know you needed to), pepto bismol tablets or their equivalent work great. They are easy to carry in the purse or pocket or whatever. Another remedy is to make a tea with either blackberry or guava leaves. Meadowsweet I hear also works. Bea Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Messages in this topic (23) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Database | Polls | Members | Calendar Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe Recent Activity • 5 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Ads on Learn more now. Reach customers searching for you. . ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 According to Dr. Mercola, you are correct, human beings are not supposed to eat grain, or at the very least, a diet low in grain. The funny thing is that my sister convinced me to try a macrobiotic diet. ALL I did at first was cut out the meat and up my grain intake. I gained about ten pounds and was exhausted all the time. Then I read Dr. Mercola’s No Grain Diet. He said that grain creates an insulin reaction in our bodies, and that it makes us gain weight, because our body thinks it is famine time. (My summary, not his). After just CUTTTING DOWN on grains, I lost an inch in my waist. I started the full blown “no grainness” on Friday, well see how it goes… Also, don’t diabetes and celiac often go hand in hand? I wonder how many First Nations people have diabetes AND celiac but are just undiagnosed because they are overweight and most docs think of celiac as a “wasting disease”… From: [mailto: ] On Behalf Of Connie Hampton Sent: Saturday, May 03, 2008 10:10 AM Subject: RE: [ ] Regarding chance glutening remedies Bea and Lily, Corn was a bit more regional than “All First Nations Peoples at corn”. But beyond that, diabetes is very high among the First Nations people who eat wheat and we don’t know what their genetic heritage includes (we being those of us in this discussion just now). It could be that the peoples that came over the Behring Straits came from stock that spent some time in the Middle East at the dawn of barley eating. Or not. Or their sacred stories are true and they came from here. I do agree that humans generally have not evolved to eat such a high grain diet. I think we did eat far more fruits and veggies in season, picked and eaten on the spot much like bonobos and chimps do now in the wild. That said, our genes have changed quite a bit in the last 15,000 years as we moved into different environments with different edible and partially edible plants which each group became adapted to (or not). We have also adapted the plants – cultivated potatoes are not as poisonous as their wild cousins, cabbage comes in an amazing variety of shapes and parts now, wheat can be grown in places it did not originally evolve for. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 8:31 PM Subject: RE: [ ] Regarding chance glutening remedies Hi Connie, True, however my understanding is that Native Americans don't often just rely on corn now and eat a lot of wheat these days. I have several members of my family for instance that show that to be true--as well as people I met when my parents were archaeologists in the Pacific Northwest etc. and when I have been places that have a large Native American population. Granted, the fact everyone is genetically mixed up with everyone else in this country makes discernment of some of these " facts " difficult however. Nevertheless it is said by several scientists like Dr. Green (A Hidden Epidemic), Noel Boaz (Evolving Health) and Braly (Dangerous Grains) as well as proponents of the " Paleo diet " that most everyone does better not eating a grain filled diet, even if that grain is rice, corn or whatever--not to speak of wheat. It makes sense if we believe the archaeology which indicates grains were not part of the regular diet up until 15,000 years ago (when big game became more difficult to find). Given that we humans have been here so much longer than that, it is argued that our bodies are more adapted to eating other things for carbohydrate like tubers, roots and squashes -- as well as some fruit (when in season). It is claimed in fact that many of the degenerative diseases for everybody comes from eating a high grain (especially processed) diet. However, even so, not everyone has an automatic response wherein their intestinal villi get attacked by their own immune system like we do when we eat gluten if we have celiac. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Yes, but most Native Americans historically subsisted on corn, rather than wheat. From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 7:02 PM Subject: RE: [ ] Regarding chance glutening remedies Well these are interesting theories. It could just be true although honestly I have heard nothing about it. I want to look into it and see if what you suggest could be correct or not. The fact most Native Americans don't have this condition makes me wonder about it however. Bea Connie Hampton <conniehampton-research> wrote: Bea, I’m not at all sure that non-Europeans don’t have celiac – it could just be a reporting/identification issue. And many non-Europeans do not use wheat the way Europeans do – at every meal in every dish – Asian and Pre-Columbian foods generally do not have gluten (well – there are Chinese noodles and Korean soy sauce, but still, rice!) So it is not so much that celiac genes mutated and got spread as much as it is that the celiac genes are the old ones and that the non-celiac genes are the mutated ones that got spread. The Vikings (my people!) certainly did spread their genes around – both after they settled in Scandinavia (the Rus in Russia) and before they got there in most of the rest of Europe (and never mind the Celts who started very close to the wheat bearing lands and certainly have a long tradition of both beer and whiskey from barley – one wonders if distillation was a way to keep the alcohol and ditch the gluten). And then the Europeans apparently spent a great deal of time in Central Asia before entering Europe. National Geographic has found that homeland by tracing the male genetic line. My sources are bits and pieces from things like “Guns, Germs and Steel”, the National Geographic specials on tracing our genetic heritage (broadly), comments by people about their Eastern European grandparents eating mostly oat porridge and goat meat and opening a bake shop (wheat!!) after the war when they could, teaching my kids at home about “the long, long story of where we came from”, some genetics work in my own schooling, some conversations on the group GFCFNN, perhaps the book “Against the Grain”. Etc, etc.etc. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 4:52 PM Subject: RE: [ ] Regarding chance glutening remedies My understanding is that not many non-Europeans have this condition although like I said the Vikings got around and spread it through their genes and then of course that got replicated by others. Who knows where all they went " a-Viking " though they often went by river as well as ocean. It seems that in Scandinavia and British Isles etc. wheat etc. was not introduced as early as in the rest of Europe--by 1500 years, and even then they ate mostly barley. Honestly there was no conspiracy of any kind in the development of celiac. Its just a genetic fluke. Before 15,000 years ago humans on earth ate much in the way of grains. There was a trade-off for everyone to go from nomadic Hunter Gatherer to Settled Grain Eater. Children did not grow as much when they ate less meat. By eating a higher grain diet people started not living as long as well due to the appearance of more degenerative diseases. As far as gluten goes, its interesting that the northern wheat has more gluten in it due to to shorter growing season.Interestingly celiac also often causes short stature if contracted early enough--though it seems eating a high grain diet causes everyone some short stature issues if not enough protein is eaten. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Is that true? What about Africans? At the Celiac Conference a few years ago, they said that the heist population with Celiac were African refugees. Also, I read recently that wheat read was not regularly used until the Egyptians began to make beer for the Jewish slaves. I also have some Jewish & Russian ancestry (like someone else mentioned). Perhaps there is some root in enslaving the Jewish population with gut-destroying brew? From: [mailto: ] On Behalf Of TrVerb@... Sent: Friday, May 02, 2008 11:51 AM Subject: Re: [ ] Regarding chance glutening remedies I think in general it would be interesting for someone to investigate the old dietary practices and remedies of Scandinavians since they seem to be the source (as far as I can figure) for this celiac condition--and the old Vikings then spread their genes around so to speak. Plus a significant number of the Scandinavian and British warriors were taken in by the old Roman Army during Caeser's time--which is why I think so many Italians also have this condition. Bea Connie Hampton <connie@hampton-connie@hacon> wrote: Probiotics don’t last long in the body and need to be eaten daily for the best effects – sauerkraut, kefir, kefired apple juice, traditional lactofermented pickles, etc. really help on a daily basis and are quite traditional. Stanford researchers are working on an enzyme therapeutic to use against cross contamination but they are not there yet. Clays like pascalite (www.pascalite.www – I don’t get anything for mentioning them) also can help by sticking to the sticky gliadin peptides. Red wine has been mentioned as well. I am so glad that you described all that you did, Bea. I will print this out and see if any of these herbs and vitamins help me. I usually just take my migraine to bed and lose 6 hours. Connie From: @ celiacbayar @<wbr>yah @ celiOn Behalf Of j. hogle Sent: Friday, May 02, 2008 12:21 AM @ celiacbayar ce Subject: Re: [ ] Regarding chance glutening remedies Hi Bea: I don't mean to imply that " ...just the probiotics are all that is needed as a remedy. " I am only pointing out research whose results, thus far, are proving " interesting. I don't mean to imply that " ...just the probiotics are all that is needed as a remedy. " I am only pointing out research whose results, thus far, are proving " interesting.<wbr> " I will follow it, other quality research, On the other hand, as you note, it may often be worthwhile to err " ...on the side of kitchen sink methodology. On the other hand, as you note, it may often be worthwhile to err " ...on the side of kitchen sink methodology.<wbr>.. " because, as long as the kitchen sinks don't have any inherent problems themselves, we might as well try those potentially salutary tools (medicines, herbs, probiotics, whatever) that are showing at least a reasonable amount of anecdotal success. A good analogy might be the many people who were taking glucosamine and condroitin years before scienti The one thing we need to be sure is that we and our loved ones don't fall victims to often-expensive scams by or products from vendors who know how to prey on people with illnesses, needs, and fears. Fortunately, there are numerous high-quality Web sites (such as Consumer Reports Health subscription site, the government's MedLinePlus, the Mayo Clinic, the not-for-profit Celiac organizations, and many, many more that can provide us with objective information on the " cures, " " medicines, " herbs, etc., that are of questionable value or are complete frauds. Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) jj Web: www.blueroom.www Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroomhttp://www.bluerhttp] ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) bea> @ celiacb To Sent: Thursday, May 1, 2008 6:52:00 PM Subject: Re: [ ] Regarding chance glutening remedies Hi , And here I thought it was the " glutenase " powder and the " glucoamylase " that made the difference with the Gluten-zyme etc.---not the probiotics. Due to your sharp eye I now see the 5 ingredient probiotic blend. Its great news however if the probiotics do help to such a great degree. The Gluten-zyme by the way also has varying different kinds of peptidase activity as well as " strong acid protease " and amylase. We do need double blind studies I agree wholeheartedly, both for regular supplements and herbs since they too really do seem to help in my experience and for other people with celiac that I know. However for now without the studies for the most part (except for the study you cite), its nice to know that its possible these new gluten enzyme like products actually help--as well as the probiotics. I also think the enzymes in the pineapple and papaya helped me too--which makes sense since they counteract swelling and scar tissue formation. Question is of course, next time do I use the whole kitchen sink remedy or not? This is where studies are important, though probably for now for myself I can use trial and error--as a kind of personal science. For now I erred on the side of kitchen sink methodology since I did not want to get sick once again and just threw everything that I had available to me at it. I think it would be great however if various people here on the celiac group did try some of these products and remedies and let us all know if it helped them or not when inadvertently glutened. At least it would be a start -- from " nothing one can do " (sigh!) to definitely " doing something! " Since I was affected quite dramatically about 4 times this winter after I went " pure " with not only my diet but also my sundries etc. I am very happy I did not seriously get sick again. If as you imply just the probiotics are all that is needed as a remedy, I would be highly surprised. However I am open to that being true nevertheless. It would be great in fact since it would be so very simple...and fit in with some of the Northern European people's diet -- since in ancient times they practically lived on fermented reindeer milk for a good part of the year. Bea " j. hogle " <jjhogle (DOT) com> wrote: I'm glad that the Glutenzyme product worked for you, but I would like to see how well the Lactobacillus brevis, Lactobacillus acidophilus, Gluten protease, and Amylase in " Glutenzyme " works in a double-blind, well-controlled research study. On the other hand, in a recent peer-reviewed scientific paper available (abstract, at least) from PubMed.gov, Finnish researchers found that ... " Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions " and that it " ...would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. " Early stage research, but very interesting. Below I've included the PubMed citation in Medline format for the paper that was published in the April 16, 2008 e-edition of the Journal of Clinical and Experimental Immunology. Cheers, Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) com Web: www.blueroom. com Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroom ..com/realityaint .htm] ============ CITATION ============ === Lindfors K et al. Live probiotic Bifidobacteriu. ..[PMID: 18422736] Related Articles, Links PMID - 18422736 OWN - NLM STAT - Publisher DA - 20080421 PUBM - Print-Electronic IS - 1365-2249 (Electronic) DP - 2008 Apr 16 TI - Li ve probiotic Bifidobacterium lactis bacteria inhibit the toxic effects induced by wheat gliadin in epithelial cell culture. AB - Wheat gliadin induces severe intestinal symptoms and small-bowel mucosal damage in coeliac disease patients. At present, the only effective treatment for the disease is a strict life-long gluten-free diet. In this study we investigated whether probiotics Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions. The ability of live probiotics to inhibit peptic-tryptic digested gliadin-induced damage to human colon cells Caco-2 was evaluated by measuring epithelial permeability by transepithelial resistance, actin cytoskeleton arrangements by the extent of membrane ruffling and expression of tight junctional protein ZO-1. B. lactis inhibited the gliadin-induced increase dose-dependently in epithelial permeability, higher concentrations completely abolishing the gliadin-induced decrease in transepithelial resistance. The same bacterial strain also inhibited the formation of membrane ruffles in Caco-2 cells induced by gliadin administration. Furthermore, it also protected the tight junctions of Caco-2 cells against the effects of gliadin, as evinced by the pattern of ZO-1 expression. We conclude thus that live B. lactis bacteria can counteract directly the harmful effects exerted by coeliac-toxic gliadin and would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. AD - Paediatric Research Centre, Medical School, University of Tampere, Finland, Department of Peadiatrics, Tampere University Hospital, Tampere, Finland. AU - Lindfors K AU - Blomqvist T AU - Juuti-Uusitalo K AU - Stenman S AU - Venalainen J AU - Maki M AU - Kaukinen K LA - ENG PT - JOURNAL ARTICLE DEP - 20080416 TA - Clin Exp Immunol JT - Clinical and experimental immunology JID - 0057202 EDAT - 2008/04/22 09:00 MHDA - 2008/04/22 09:00 AID - CEI3635 [pii] AID - 10.1111/j.1365- 2249.2008. 03635.x [doi] PST - aheadofprint SO - Clin Exp Immunol. 2008 Apr 16;. ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) com> Sent: Wednesday, April 30, 2008 5:16:43 PM Subject: [ ] Regarding chance glutening remedies Last week I had both the confronting experience of being glutened by chance at a supposedly celiac aware restaurant-- the bane of most celiacs--and discovered some remedies that actually worked for me. This after having gotten shooting D just from a food handler who prepared my tea after making someone else a sandwich in February as well as other equivalent experiences since I have gone off all trace hidden glutens! What happened is that I asked for and got some pineapple and fresh papaya at the establishment I was eating at after I discovered they had put soy sauce in my dish (after I had been assured they wouldn't). I had already eaten about 1/2 my portion--and wasn't paying as much attention as I might since it was supposed to be a " safe " and experienced restaurant concerning the gluten matter. If I had brought along my papain/bromelain caps that would have been the easy equivalent to the pineapple and papaya. As it was the owner ran across the street and bought me some fresh papaya. I also immediately took some pancreatin enzymes I had brought along--a double dose. Right after dinner my date and I went over to a natural foods store and I bought this new product called Gluten-zyme by Country Life. There was another bottle of a different brand that cost a little more that also looked pretty equivalent. Again I immediately took a double dose. That night I took another dose and two more the next day just to make sure. Instead of shooting D I had inflammation in my feet and calves which went down after I took my co-enzyme B vitamins. I wasn't home where I usually have my herbs and most of my stuff so I didn't take dandelion (to clean out the liver), cleavers (to clean out the lymphs), marshmallow root (to soothe and heal the lining of the intestines), and nattokinase or serrapeptidase (to counteract scar tissue in the intestines as well as inflammation) etc. until the next day--I probably should have got some at the store but wasn't feeling quite that rich. The following day my only other symptom was a small pimple on my face, often a sign of glutening in the old pre pure days before I went off all hidden gluten. I did feel a little depressed (another symptom) but then recovered after going for a long walk and working on clay (clay pulls out toxins through the skin of the hands and feet etc.). I bet going for a sauna would have worked too. Taking the dandelion etc. also helped a great deal. It was a big discovery for me. I keep hearing there is nothing you can do except grin and bear it, but I discovered that at least for me there are remedies. I feel like I no longer have to be terrified of going out to eat, especially with these new gluten-eating enzymes out there. I wonder if this would help others? Methinks it would. Please try it in an emergency and let me (and us all) know if it does. I still think its not wise to court experiences like this, but hey they happen. Especially for someone like me that is actually trying to have a life outside of my safe cocoon sometimes. Another note--in case of shooting D right away (before you can take action or know you needed to), pepto bismol tablets or their equivalent work great. They are easy to carry in the purse or pocket or whatever. Another remedy is to make a tea with either blackberry or guava leaves. Meadowsweet I hear also works. Bea Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Messages in this topic (23) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Database | Polls | Members | Calendar Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe Recent Activity • 5 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Ads on Learn more now. Reach customers searching for you. .. ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Hi Lillyth,Really that is very interesting about the macrobiotic diet and your experience. I will say however that for some people it does work for them at least for a while since in some ways it help the body to detox to be off meat. But after a while I have noticed they rely on drinking coffee to keep them stimulated since otherwise they often seem to be flagged. Different things do work for different people after all. I think however that people with celiac tend to need more meat than others and less grains. This can be tricky though with those who tend to get RA. For them they need to not eat meat so much. They are too high with arachidonic acid. For them being a vegetarian makes sense.However this deal with the grains really is something. According to the Paleo diet people, one can still eat carbohydrates, although its better to emphasize regular leafy vegetables, fruit and some meat. One can also get carried away with eating too much meat. In the old days people didn't have lots of meat all the time after all. It depended on the availability of the game. No one had refrigerators. They made varieties of jerky. I've heard its best to eat no more meat in a day than fits on the palm of your hand. It seems good advice.Its all a matter of balance and finding what balance works for you.My understanding nevertheless that a high grain diet and a whole variety of degenerative diseases go hand in hand notwithstanding the celiac. With celiac it put the screws on even harder.Its interesting what you say about First Nation, grain and diabetes. My nephew who is 1/4 Cherokee has diabetes big time. He now likes to make fun of my celiac. He easily could have the two combined since he also has deep Celtic and Swedish roots and lots of celiac sprue and food sensitivities in other generations. His father who is 1/2 Cherokee and 1/2 English notices he does better when he goes off all grains. He loses weight and stops having heart problems. He likes to not be pure however so he won't react to every little bit of gluten that floats his way. Whether the Cherokee part is contributing to this problem or not its hard to tell. He's become an energy healer by the way after a lifetime of being a building contractor...BeaLillyth Denaghy Keogh-Quillan <lillythdenaghykeogh@...> wrote: According to Dr. Mercola, you are correct, human beings are not supposed to eat grain, or at the very least, a diet low in grain. The funny thing is that my sister convinced me to try a macrobiotic diet. ALL I did at first was cut out the meat and up my grain intake. I gained about ten pounds and was exhausted all the time. Then I read Dr. Mercola’s No Grain Diet. He said that grain creates an insulin reaction in our bodies, and that it makes us gain weight, because our body thinks it is famine time. (My summary, not his). After just CUTTTING DOWN on grains, I lost an inch in my waist. I started the full blown “no grainness” on Friday, well see how it goes… Also, don’t diabetes and celiac often go hand in hand? I wonder how many First Nations people have diabetes AND celiac but are just undiagnosed because they are overweight and most docs think of celiac as a “wasting disease”… From: [mailto: ] On Behalf Of Connie Hampton Sent: Saturday, May 03, 2008 10:10 AM Subject: RE: [ ] Regarding chance glutening remedies Bea and Lily, Corn was a bit more regional than “All First Nations Peoples at corn”. But beyond that, diabetes is very high among the First Nations people who eat wheat and we don’t know what their genetic heritage includes (we being those of us in this discussion just now). It could be that the peoples that came over the Behring Straits came from stock that spent some time in the Middle East at the dawn of barley eating. Or not. Or their sacred stories are true and they came from here. I do agree that humans generally have not evolved to eat such a high grain diet. I think we did eat far more fruits and veggies in season, picked and eaten on the spot much like bonobos and chimps do now in the wild. That said, our genes have changed quite a bit in the last 15,000 years as we moved into different environments with different edible and partially edible plants which each group became adapted to (or not). We have also adapted the plants – cultivated potatoes are not as poisonous as their wild cousins, cabbage comes in an amazing variety of shapes and parts now, wheat can be grown in places it did not originally evolve for. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 8:31 PM Subject: RE: [ ] Regarding chance glutening remedies Hi Connie, True, however my understanding is that Native Americans don't often just rely on corn now and eat a lot of wheat these days. I have several members of my family for instance that show that to be true--as well as people I met when my parents were archaeologists in the Pacific Northwest etc. and when I have been places that have a large Native American population. Granted, the fact everyone is genetically mixed up with everyone else in this country makes discernment of some of these "facts" difficult however. Nevertheless it is said by several scientists like Dr. Green (A Hidden Epidemic), Noel Boaz (Evolving Health) and Braly (Dangerous Grains) as well as proponents of the "Paleo diet" that most everyone does better not eating a grain filled diet, even if that grain is rice, corn or whatever--not to speak of wheat. It makes sense if we believe the archaeology which indicates grains were not part of the regular diet up until 15,000 years ago (when big game became more difficult to find). Given that we humans have been here so much longer than that, it is argued that our bodies are more adapted to eating other things for carbohydrate like tubers, roots and squashes -- as well as some fruit (when in season). It is claimed in fact that many of the degenerative diseases for everybody comes from eating a high grain (especially processed) diet. However, even so, not everyone has an automatic response wherein their intestinal villi get attacked by their own immune system like we do when we eat gluten if we have celiac. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Yes, but most Native Americans historically subsisted on corn, rather than wheat. From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 7:02 PM Subject: RE: [ ] Regarding chance glutening remedies Well these are interesting theories. It could just be true although honestly I have heard nothing about it. I want to look into it and see if what you suggest could be correct or not. The fact most Native Americans don't have this condition makes me wonder about it however. Bea Connie Hampton <conniehampton-research> wrote: Bea, I’m not at all sure that non-Europeans don’t have celiac – it could just be a reporting/identification issue. And many non-Europeans do not use wheat the way Europeans do – at every meal in every dish – Asian and Pre-Columbian foods generally do not have gluten (well – there are Chinese noodles and Korean soy sauce, but still, rice!) So it is not so much that celiac genes mutated and got spread as much as it is that the celiac genes are the old ones and that the non-celiac genes are the mutated ones that got spread. The Vikings (my people!) certainly did spread their genes around – both after they settled in Scandinavia (the Rus in Russia) and before they got there in most of the rest of Europe (and never mind the Celts who started very close to the wheat bearing lands and certainly have a long tradition of both beer and whiskey from barley – one wonders if distillation was a way to keep the alcohol and ditch the gluten). And then the Europeans apparently spent a great deal of time in Central Asia before entering Europe. National Geographic has found that homeland by tracing the male genetic line. My sources are bits and pieces from things like “Guns, Germs and Steel”, the National Geographic specials on tracing our genetic heritage (broadly), comments by people about their Eastern European grandparents eating mostly oat porridge and goat meat and opening a bake shop (wheat!!) after the war when they could, teaching my kids at home about “the long, long story of where we came from”, some genetics work in my own schooling, some conversations on the group GFCFNN, perhaps the book “Against the Grain”. Etc, etc.etc. Connie From: [mailto: ] On Behalf Of Beatrice Garth Sent: Friday, May 02, 2008 4:52 PM Subject: RE: [ ] Regarding chance glutening remedies My understanding is that not many non-Europeans have this condition although like I said the Vikings got around and spread it through their genes and then of course that got replicated by others. Who knows where all they went "a-Viking" though they often went by river as well as ocean. It seems that in Scandinavia and British Isles etc. wheat etc. was not introduced as early as in the rest of Europe--by 1500 years, and even then they ate mostly barley. Honestly there was no conspiracy of any kind in the development of celiac. Its just a genetic fluke. Before 15,000 years ago humans on earth ate much in the way of grains. There was a trade-off for everyone to go from nomadic Hunter Gatherer to Settled Grain Eater. Children did not grow as much when they ate less meat. By eating a higher grain diet people started not living as long as well due to the appearance of more degenerative diseases. As far as gluten goes, its interesting that the northern wheat has more gluten in it due to to shorter growing season.Interestingly celiac also often causes short stature if contracted early enough--though it seems eating a high grain diet causes everyone some short stature issues if not enough protein is eaten. Bea Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote: Is that true? What about Africans? At the Celiac Conference a few years ago, they said that the heist population with Celiac were African refugees. Also, I read recently that wheat read was not regularly used until the Egyptians began to make beer for the Jewish slaves. I also have some Jewish & Russian ancestry (like someone else mentioned). Perhaps there is some root in enslaving the Jewish population with gut-destroying brew? From: [mailto: ] On Behalf Of TrVerb@... Sent: Friday, May 02, 2008 11:51 AM Subject: Re: [ ] Regarding chance glutening remedies I think in general it would be interesting for someone to investigate the old dietary practices and remedies of Scandinavians since they seem to be the source (as far as I can figure) for this celiac condition--and the old Vikings then spread their genes around so to speak. Plus a significant number of the Scandinavian and British warriors were taken in by the old Roman Army during Caeser's time--which is why I think so many Italians also have this condition. Bea Connie Hampton <connie@hampton-connie@hacon> wrote: Probiotics don’t last long in the body and need to be eaten daily for the best effects – sauerkraut, kefir, kefired apple juice, traditional lactofermented pickles, etc. really help on a daily basis and are quite traditional. Stanford researchers are working on an enzyme therapeutic to use against cross contamination but they are not there yet. Clays like pascalite (www.pascalite.www – I don’t get anything for mentioning them) also can help by sticking to the sticky gliadin peptides. Red wine has been mentioned as well. I am so glad that you described all that you did, Bea. I will print this out and see if any of these herbs and vitamins help me. I usually just take my migraine to bed and lose 6 hours. Connie From: @ celiacbayar @<wbr>yah @ celiOn Behalf Of j. hogle Sent: Friday, May 02, 2008 12:21 AM @ celiacbayar ce Subject: Re: [ ] Regarding chance glutening remedies Hi Bea: I don't mean to imply that "...just the probiotics are all that is needed as a remedy." I am only pointing out research whose results, thus far, are proving "interesting. I don't mean to imply that "...just the probiotics are all that is needed as a remedy." I am only pointing out research whose results, thus far, are proving "interesting.<wbr>" I will follow it, other quality research, On the other hand, as you note, it may often be worthwhile to err "...on the side of kitchen sink methodology. On the other hand, as you note, it may often be worthwhile to err "...on the side of kitchen sink methodology.<wbr>.." because, as long as the kitchen sinks don't have any inherent problems themselves, we might as well try those potentially salutary tools (medicines, herbs, probiotics, whatever) that are showing at least a reasonable amount of anecdotal success. A good analogy might be the many people who were taking glucosamine and condroitin years before scienti The one thing we need to be sure is that we and our loved ones don't fall victims to often-expensive scams by or products from vendors who know how to prey on people with illnesses, needs, and fears. Fortunately, there are numerous high-quality Web sites (such as Consumer Reports Health subscription site, the government's MedLinePlus, the Mayo Clinic, the not-for-profit Celiac organizations, and many, many more that can provide us with objective information on the "cures," "medicines," herbs, etc., that are of questionable value or are complete frauds. Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) jj Web: www.blueroom.www Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroomhttp://www.bluerhttp] ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) bea> @ celiacb To Sent: Thursday, May 1, 2008 6:52:00 PM Subject: Re: [ ] Regarding chance glutening remedies Hi , And here I thought it was the "glutenase" powder and the "glucoamylase" that made the difference with the Gluten-zyme etc.---not the probiotics. Due to your sharp eye I now see the 5 ingredient probiotic blend. Its great news however if the probiotics do help to such a great degree. The Gluten-zyme by the way also has varying different kinds of peptidase activity as well as "strong acid protease" and amylase. We do need double blind studies I agree wholeheartedly, both for regular supplements and herbs since they too really do seem to help in my experience and for other people with celiac that I know. However for now without the studies for the most part (except for the study you cite), its nice to know that its possible these new gluten enzyme like products actually help--as well as the probiotics. I also think the enzymes in the pineapple and papaya helped me too--which makes sense since they counteract swelling and scar tissue formation. Question is of course, next time do I use the whole kitchen sink remedy or not? This is where studies are important, though probably for now for myself I can use trial and error--as a kind of personal science. For now I erred on the side of kitchen sink methodology since I did not want to get sick once again and just threw everything that I had available to me at it. I think it would be great however if various people here on the celiac group did try some of these products and remedies and let us all know if it helped them or not when inadvertently glutened. At least it would be a start -- from "nothing one can do" (sigh!) to definitely "doing something!" Since I was affected quite dramatically about 4 times this winter after I went "pure" with not only my diet but also my sundries etc. I am very happy I did not seriously get sick again. If as you imply just the probiotics are all that is needed as a remedy, I would be highly surprised. However I am open to that being true nevertheless. It would be great in fact since it would be so very simple...and fit in with some of the Northern European people's diet -- since in ancient times they practically lived on fermented reindeer milk for a good part of the year. Bea "j. hogle" <jjhogle (DOT) com> wrote: I'm glad that the Glutenzyme product worked for you, but I would like to see how well the Lactobacillus brevis, Lactobacillus acidophilus, Gluten protease, and Amylase in "Glutenzyme" works in a double-blind, well-controlled research study. On the other hand, in a recent peer-reviewed scientific paper available (abstract, at least) from PubMed.gov, Finnish researchers found that ..."Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions" and that it "...would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease." Early stage research, but very interesting. Below I've included the PubMed citation in Medline format for the paper that was published in the April 16, 2008 e-edition of the Journal of Clinical and Experimental Immunology. Cheers, Hogle Freelance academic librarian Instructor, online research Email: jjhogle (DOT) com Web: www.blueroom. com Reality ain't what you think it is Art Graphics & Photographs [http://www.blueroom .com/realityaint .htm] ============ CITATION ============ === Lindfors K et al. Live probiotic Bifidobacteriu. ..[PMID: 18422736] Related Articles, Links PMID - 18422736 OWN - NLM STAT - Publisher DA - 20080421 PUBM - Print-Electronic IS - 1365-2249 (Electronic) DP - 2008 Apr 16 TI - Li ve probiotic Bifidobacterium lactis bacteria inhibit the toxic effects induced by wheat gliadin in epithelial cell culture. AB - Wheat gliadin induces severe intestinal symptoms and small-bowel mucosal damage in coeliac disease patients. At present, the only effective treatment for the disease is a strict life-long gluten-free diet. In this study we investigated whether probiotics Lactobacillus fermentum or Bifidobacterium lactis can inhibit the toxic effects of gliadin in intestinal cell culture conditions. The ability of live probiotics to inhibit peptic-tryptic digested gliadin-induced damage to human colon cells Caco-2 was evaluated by measuring epithelial permeability by transepithelial resistance, actin cytoskeleton arrangements by the extent of membrane ruffling and expression of tight junctional protein ZO-1. B. lactis inhibited the gliadin-induced increase dose-dependently in epithelial permeability, higher concentrations completely abolishing the gliadin-induced decrease in transepithelial resistance. The same bacterial strain also inhibited the formation of membrane ruffles in Caco-2 cells induced by gliadin administration. Furthermore, it also protected the tight junctions of Caco-2 cells against the effects of gliadin, as evinced by the pattern of ZO-1 expression. We conclude thus that live B. lactis bacteria can counteract directly the harmful effects exerted by coeliac-toxic gliadin and would clearly warrant further studies of its potential as a novel dietary supplement in the treatment of coeliac disease. AD - Paediatric Research Centre, Medical School, University of Tampere, Finland, Department of Peadiatrics, Tampere University Hospital, Tampere, Finland. AU - Lindfors K AU - Blomqvist T AU - Juuti-Uusitalo K AU - Stenman S AU - Venalainen J AU - Maki M AU - Kaukinen K LA - ENG PT - JOURNAL ARTICLE DEP - 20080416 TA - Clin Exp Immunol JT - Clinical and experimental immunology JID - 0057202 EDAT - 2008/04/22 09:00 MHDA - 2008/04/22 09:00 AID - CEI3635 [pii] AID - 10.1111/j.1365- 2249.2008. 03635.x [doi] PST - aheadofprint SO - Clin Exp Immunol. 2008 Apr 16;. ----- Original Message ---- From: Beatrice Garth <beagarth (DOT) com> Sent: Wednesday, April 30, 2008 5:16:43 PM Subject: [ ] Regarding chance glutening remedies Last week I had both the confronting experience of being glutened by chance at a supposedly celiac aware restaurant-- the bane of most celiacs--and discovered some remedies that actually worked for me. This after having gotten shooting D just from a food handler who prepared my tea after making someone else a sandwich in February as well as other equivalent experiences since I have gone off all trace hidden glutens! What happened is that I asked for and got some pineapple and fresh papaya at the establishment I was eating at after I discovered they had put soy sauce in my dish (after I had been assured they wouldn't). I had already eaten about 1/2 my portion--and wasn't paying as much attention as I might since it was supposed to be a "safe" and experienced restaurant concerning the gluten matter. If I had brought along my papain/bromelain caps that would have been the easy equivalent to the pineapple and papaya. As it was the owner ran across the street and bought me some fresh papaya. I also immediately took some pancreatin enzymes I had brought along--a double dose. Right after dinner my date and I went over to a natural foods store and I bought this new product called Gluten-zyme by Country Life. There was another bottle of a different brand that cost a little more that also looked pretty equivalent. Again I immediately took a double dose. That night I took another dose and two more the next day just to make sure. Instead of shooting D I had inflammation in my feet and calves which went down after I took my co-enzyme B vitamins. I wasn't home where I usually have my herbs and most of my stuff so I didn't take dandelion (to clean out the liver), cleavers (to clean out the lymphs), marshmallow root (to soothe and heal the lining of the intestines), and nattokinase or serrapeptidase (to counteract scar tissue in the intestines as well as inflammation) etc. until the next day--I probably should have got some at the store but wasn't feeling quite that rich. The following day my only other symptom was a small pimple on my face, often a sign of glutening in the old pre pure days before I went off all hidden gluten. I did feel a little depressed (another symptom) but then recovered after going for a long walk and working on clay (clay pulls out toxins through the skin of the hands and feet etc.). I bet going for a sauna would have worked too. Taking the dandelion etc. also helped a great deal. It was a big discovery for me. I keep hearing there is nothing you can do except grin and bear it, but I discovered that at least for me there are remedies. I feel like I no longer have to be terrified of going out to eat, especially with these new gluten-eating enzymes out there. I wonder if this would help others? Methinks it would. Please try it in an emergency and let me (and us all) know if it does. I still think its not wise to court experiences like this, but hey they happen. Especially for someone like me that is actually trying to have a life outside of my safe cocoon sometimes. Another note--in case of shooting D right away (before you can take action or know you needed to), pepto bismol tablets or their equivalent work great. They are easy to carry in the purse or pocket or whatever. Another remedy is to make a tea with either blackberry or guava leaves. Meadowsweet I hear also works. Bea Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Messages in this topic (23) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Database | Polls | Members | Calendar Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe Recent Activity • 5 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Ads on Learn more now. Reach customers searching for you. . ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 There are many different kinds of gluten-free diets, and I know a fair number of people that DON'T rely on meat and are actually gluten-free vegetarians, including myself. We tend to eat more vegetables (lovely and gluten free), and grains are a good part of our diet. I try to eat as much whole grain, higher protein GF grains and flours as possible, myself and not worry too much about it. It probably is a good idea to trim posts for those who read the board by digest... - > > Hi Lillyth, > Different things do work for different people after all. I think however that people with celiac tend to need more meat than others and less grains. This can be tricky though with those who tend to get RA. For them they need to not eat meat so much. They are too high with arachidonic acid. For them being a vegetarian makes sense. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Just as I was saying. We are all different. For some being a vegetarian really works whether one has celiac or not. Part of it I think is due to heredity. And part of it may have to do when celiac first asserted itself due to how much leaky gut problem you have and how long you have had it.For myself being a vegetarian never did work although I tried several times. I ended up getting severely ill each time. I have too many food sensitivities to survive without some meat though a little is better than having a lot.However I still eat a diet high in vegetables, much higher than many vegetarians in fact.I think my case may be a little more extreme than some since I was first dx'd with sprue as an infant and then reintroduced to gluten at age 4 with disastrous effects (which my family ignored) although I did grow.My family tends to have pretty extreme food sensitivities it appears throughout the generations. None of us seem to do well as vegetarians though my youngest brother keeps trying. Eventually he gets sick however and has to resort to eating some fish or chicken or eggs.Methinks however we have lost the thread. I would rather talk about how to remedy chance glutenings. Has anyone else come up with remedies that work for them other than just riding it through? Has anyone else tried this Gluten-zyme or equivalent? And/or bromelain/papain (or pineapple/papaya) or high grade pro-biotics and got good effects from it when CC'd etc.??Beaseamaiden399 <seamaiden399@...> wrote: There are many different kinds of gluten-free diets, and I know a fair number of people that DON'T rely on meat and are actually gluten-free vegetarians, including myself. We tend to eat more vegetables (lovely and gluten free), and grains are a good part of our diet. I try to eat as much whole grain, higher protein GF grains and flours as possible, myself and not worry too much about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2008 Report Share Posted May 5, 2008 Yup, gotcha. I'm not a fan of a meat heavy, carb-free diet diet myself, which is really part of what inspired my post- just trying to add an alternative eating model. However, of course everyone can't eat the same diet and I think some diets just don't work for some individuals, especially factoring in intolerances. It's absolutely true that just eating vegetarian doesn't mean healthy eating- I had a friend who was a short lived vegetarian that subsisted on corn chips and salsa- not at all a balanced diet. So, hurrah for vegetables and balanced, complete diets- whatever that means to the individuals involved. And, moving on, I'm currently taking a very good enzyme by Source Naturals " Daily Essential Enzymes " that I highly recommend. I don't use it for accidental glutening, but just to help with food digestion in general. If I should get glutened again, I'll take it and report back. (But let's hope I don't have to!) - (gf since age 3, thank goodness without any re-introductions of gluten since then!) > > Just as I was saying. We are all different. For some being a vegetarian really works whether one has celiac or not. Part of it I think is due to heredity. And part of it may have to do when celiac first asserted itself due to how much leaky gut problem you have and how long you have had it. > Methinks however we have lost the thread. I would rather talk about how to remedy chance glutenings. Has anyone else come up with remedies that work for them other than just riding it through? Has anyone else tried this Gluten-zyme or equivalent? And/or bromelain/papain (or pineapple/papaya) or high grade pro-biotics and got good effects from it when CC'd etc.?? > > Bea Quote Link to comment Share on other sites More sharing options...
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