diagnosis question

[Guest guest]

So recently I posted a question about gene testing and CD and everyone

was super helpful so I am hoping I can post one more question to you

all since you are more experienced with CD.

Three months ago I was diagnosed with CD based off of elevated blood

tests and a questionable biopsy. The biopsy showed some damage, but it

was not typical villi flattening. I went for a second opinion to a

different doctor. At that point I had been gluten free for awhile and

already felt much better. He wanted to do a gene test for CD so I did

that. Well I got my gene test results back today and he said I have

both the markers for CD. So to me it sounded like a pretty certain

diagnosis of CD, but he said since my biopsy was abnormal there could

still be a chance I don't have it. I am supposed to go in for a follow

up so he can look at my biopsy slides again.

From all my reading it seems like the elevated blood test, positive

results from being gluten free, and positive gene markers should be

enough to make a diagnosis, especially when coupled with the symptoms

I had before going GF and the damage in the intestine. At this point I

just want to be done with the doctor's visits and questioning, and

want to be at peace with being GF, but I also don't want to make a

lifelong decision about being GF if I don't have too. I guess I am

wondering how much more evidence does a doctor need to feel certain

it's CD.

I don't know if I should keep my next appt which is next month. The

only thing in question was the type of/and level of damage that was

in my intestine, but aren't I correct in thinking that I could still

have CD and it could just be in the early stages of intestinal damage?

Thanks in advance for your help!