Can you recommend a knowledgable nutritionist?

[Guest guest]

Nutritionists who are conversant with CD are few and far between.

Before you go to the trouble of traveling to get an answer, you may want to

explore other possibilities. The first would be to investigate the

possibility that you are being exposed to gluten from an unsuspected

source. To help us know what would help, can you give the list a bit more

information on your level of knowledge and experience with the gluten-free

lifestyle? It would also help to know how long you have been off gluten.

One thought that comes to mind, considering that you are

overseas, many countries consider wheat starch to be an acceptable food for

celiacs; if you are eating those products that could be a source of

trouble. Beyond that, you may be one of those who reacts strongly,

especially during the first few years of healing, and needs to be extremely

careful of any source of gluten, no matter how minimal. This could

include breathing in burnt or airborne gluten (from toast or other

gluten-containing product made by a family member), handling food that contains

gluten (including pet food), or gluten from non-food sources (hair or skin care

products, cosmetics, supplements, medications). Another possibility is

that you may be sensitive to other foods other than gluten (soy, dairy, corn);

if this is so, you will probably be able to reintroduce those foods to your

diet after avoiding them for a year or two. These are the first issues to

look at; when you let us know a bit more, we can probably zero in a bit more

specifically.

Pam Newbury

From:

[mailto: ] On

Behalf Of bri.seoane

Sent: Sunday, May 11, 2008 9:56 Pm

I live overseas and was just diagnosed with

celiac disease. I'm

thinking of flying " home " to the Bay Area to try to locate a

nutritionist that can help me unravel the mystery of why, despite

avoiding what I know is harmful, I continue to get sick.

Suggestions?

[Guest guest]

If you are a member of Kaiser, here are the particulars for Barbara Dodson at Kaiser Santa Clara:

Barbara Dodson, MS,RD,ILBC

General Pediatric Nutrition

Pediatric Nutrition Specialty: Celiac, Gastrointestinal, Weight Management

Adult Nutrition Specialty: Celiac

Contact Number: (408) 851-9898

She runs a quarterly (more-or-less) get together that first started to provide support and interactions for kids with CS and their parents then expanded to include adults with CS. The last meeting she had one of the GI specialists knowledgeable about CS speak on AT-1001. The next meeting (end of May) I believe that she plans to have someone speak on probiotics and CS. HogleFreelance academic librarianInstructor, online researchEmail:

jjhogle@...Web: www.blueroom.com

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Thank you ! This is what both my elderly mother and brother with Down's have been needing--someone knowledgeable of celiac at the Santa Clara Kaiser.Bea"j. hogle" <jjhogle@...> wrote: If you are a member of Kaiser, here are the particulars for Barbara Dodson at Kaiser Santa Clara: Barbara Dodson, MS,RD,ILBC General Pediatric Nutrition Pediatric Nutrition Specialty: Celiac, Gastrointestinal, Weight

Management Adult Nutrition Specialty: Celiac Contact Number: (408) 851-9898 She runs a quarterly (more-or-less) get together that first started to provide support and interactions for kids with CS and their parents then expanded to include adults with CS. The last meeting she had one of the GI specialists knowledgeable about CS speak on AT-1001. The next meeting (end of May) I believe that she plans to have someone speak on probiotics and CS. HogleFreelance academic librarianInstructor, online researchEmail: jjhogle Web: www.blueroom.com Be a better friend, newshound, and know-it-all with

Mobile. Try it now.