Re: Re: Stopping fish oil with no regression? NEW OUTLOOK

November 29, 2008

Thank you Joy, that is so beautifully put. Thank you Shyann!

I think it is very important that we realize. Fish oil is a good supplement for

ANYONE, precisely because it boosts brain function and kids with any

neurological disorders need this desperately, no matter what their precise

affliction is. Now different formulas and combinations may work for different

kids--depending on their other deficiencies etc. --but fish oil is the best

supplement we could be giving them, I am convinced of that and was giving it to

her even before I ever knew she had apraxia. Now of course the problem was she

was NOT absorbing--due to her leaky gut which i did not know about ant the other

nutritional deficiencies created. So a lot of parents need to fully understand

the absorption factors before giving up on fish oil, and more importnatly, as

Shyann says, it

really helps a lot more than speech--it is the most powerful and safe anti

inflamatory there is and helps with all inflammatory states in the body,

particularly in the brain--it really boosts brain power for everyone, young and

old. It is the last thing i would ever give up, in fact never would, we all

take it because we all need it, the young old, stressed parents dealing with it

all--everyone needs the fish oil, and you need it to maintain brain power and

clarity focus etc, not when you realize you're losing it, by then it amyy be too

altre for the fish oil to erase the full damage. It definitely is the best

thing to take give, we gave it as Christmas gifts to everyone a few year

ago--with adequate literature of course so they would hopeful read, understand

and continue.

All the best,

Elena--mom to Ziana --age 4. 3, appraxic with soft signs but otherwise a happy

healthy child and doing GREAT, now that appropriate diet/

supplements and more frequent PROMPT is possible. And yes, for us the B12

shots (she was deficient due to gluten issues and leaky gut) and the PRO

EFA/EPA + E were amazing!

From: Joy Hansen <shyautumnbear@...>

Subject: [ ] Re: Stopping fish oil with no regression? NEW

OUTLOOK

Date: Saturday, November 29, 2008, 11:27 AM

Shyann wanted to share this information for some time. I find it is

especially important for those of you with young children who have

not yet verbalized. Shyann, 9 years, was on fish oils for the first

time in her life this year. Then she quit following Speak. Now she is

back on the EFA/EPA (and YES the EFA tates better than EPA!) and she

would like to share the results of her experience regarding fish

oils. This is paraphrazed of coarse, but mostly in her

own words.

1. Don't think for one second that fish oils arn't working.

2. Just because someone (your child) can't start speaking better

doesn't mean the fish oils arn't working.

3. You (child) won't get so frustrated taking oils.

4. Other things in life get better. (refering to academics)

5. Things start to go pop in your head when you take oils. You just

will be trying to do something like spelling and before (taking oils)

you would forget the next letter and then (with oils) your brain just

kind of pops and it's like you can hear it (your brain popping)and

then suddenly you know the next letter and it all makes sense.

6. Don't let your Mommie stop the oils (<sign>, so sorry Shyann)

before going to the doctor (neorologist in our instance) because you

(the reader) don't know how hard it is for your kid to have to live

not knowing. (Live without the benefit of fish

oils; having known

something, and then having to struggle with the understanding of

something you previously knew or understood)

7. I understand things better about things. (she understands concepts)

8. MOST IMPORTANT!!! DON'T WAIT FOR YOUR KID TO SPEAK BETTER. That's

all EVERYONE cares about!. But there are alot of things going on

inside your brain that are getting better BEFORE your speech

improves!!! Maybe your little girl or boy can't talk to tell you

these things SO I AM LETTING YOU KNOW!!!

So out of the mind and mouth of a 9 year old who wants to share with

all adults about apaxia. She actually has some valid points.

Love, Joy and Shyann

> Hi

> Here is my expeience about stopping fish oils.

>

> My daughter has been on fish oil/vit E supplements for about 3

> years. In the meanwhile she has been to speech therapy non stop.

> She was never on Speak,

just the complete, EPA, Vit E and gamma

pills.

>

> Over this last summer I decided to take a break from the

> supplements. Anyway I decided to stop all her supplements in

June.

> In August we missed 3 to 4 therapy sessions and when her therapist

> saw her, she blamed her sudden lack of speech to the missed

sessions.

> She barely got 2 words out and you could not understand her.

> It happened so gradually that I have to say I did not notice it at

> the beginning.

>

> In the meanwhile her sentitivity to noise came back. She became

very

> distracted with trucks passing, phones ringing, where she started

> covering her ears and screaming turing red. Almost looks like she

> was in pain. Something she used to do before we had started her

> supplements.

>

> So we realized something was very wrong. We put her back on the

>

supplements, and sure enough within a week her speech went from 2

> words to 5 to 6 words sentences.

> Her sensitivity to noise went down tremendously.

> On our next therapy session, the therapist was amazed at the

> difference than I told her how I had stopped and started it.

>

> She is missing something in her body that the supplements are

making

> a huge difference.

>

> I am in the process of changing doctors so I can run tests on her

to

> see whats going on.

>

------------------------------------

November 29, 2008

If you're looking for underlying causes and the current neurologist has not been

able to help--few really know how to help apraxic kids BTW---but my suggestion

is look for a biomedically trained pediatrician--otherwise known as a DAN

doctor--but it doesn't have to be it's just that most of them get this special

training to help autistic kids and the same protocols actually help anybody with

neurological disorders--autism is just the most common unfortunately. .

Ziana is not autistic either, but it is all a neurological disorders continuum.

And metabolic disorders such as malabsorptions and deficiencies and oxidative

stress due to various causes which results in mitochomdiral dysfunction are all

common in all neurological disorders. Only biomedically trained doctors look

into that, very few geneticists, and nutritionists, and even fewer

neurologists--their strengths are elsewhere, definitely not in speech problems.

Good luck!

-Elena

December 5, 2008

Thank you and Shyann so much for posting this!!!! I am in tears! My little 19

month old dd also says thank you!