Re: Stopping fish oil with no regression? NEW OUTLOOK

[Guest guest]

Shyann wanted to share this information for some time. I find it is

especially important for those of you with young children who have

not yet verbalized. Shyann, 9 years, was on fish oils for the first

time in her life this year. Then she quit following Speak. Now she is

back on the EFA/EPA (and YES the EFA tates better than EPA!) and she

would like to share the results of her experience regarding fish

oils. This is paraphrazed of coarse, but mostly in her own words.

1. Don't think for one second that fish oils arn't working.

2. Just because someone (your child) can't start speaking better

doesn't mean the fish oils arn't working.

3. You (child) won't get so frustrated taking oils.

4. Other things in life get better. (refering to academics)

5. Things start to go pop in your head when you take oils. You just

will be trying to do something like spelling and before (taking oils)

you would forget the next letter and then (with oils) your brain just

kind of pops and it's like you can hear it (your brain popping)and

then suddenly you know the next letter and it all makes sense.

6. Don't let your Mommie stop the oils (<sign>, so sorry Shyann)

before going to the doctor (neorologist in our instance) because you

(the reader) don't know how hard it is for your kid to have to live

not knowing. (Live without the benefit of fish oils; having known

something, and then having to struggle with the understanding of

something you previously knew or understood)

7. I understand things better about things. (she understands concepts)

8. MOST IMPORTANT!!! DON'T WAIT FOR YOUR KID TO SPEAK BETTER. That's

all EVERYONE cares about!. But there are alot of things going on

inside your brain that are getting better BEFORE your speech

improves!!! Maybe your little girl or boy can't talk to tell you

these things SO I AM LETTING YOU KNOW!!!

So out of the mind and mouth of a 9 year old who wants to share with

all adults about apaxia. She actually has some valid points.

Love, Joy and Shyann

> Hi

> Here is my expeience about stopping fish oils.

>

> My daughter has been on fish oil/vit E supplements for about 3

> years. In the meanwhile she has been to speech therapy non stop.

> She was never on Speak, just the complete, EPA, Vit E and gamma

pills.

>

> Over this last summer I decided to take a break from the

> supplements. Anyway I decided to stop all her supplements in

June.

> In August we missed 3 to 4 therapy sessions and when her therapist

> saw her, she blamed her sudden lack of speech to the missed

sessions.

> She barely got 2 words out and you could not understand her.

> It happened so gradually that I have to say I did not notice it at

> the beginning.

>

> In the meanwhile her sentitivity to noise came back. She became

very

> distracted with trucks passing, phones ringing, where she started

> covering her ears and screaming turing red. Almost looks like she

> was in pain. Something she used to do before we had started her

> supplements.

>

> So we realized something was very wrong. We put her back on the

> supplements, and sure enough within a week her speech went from 2

> words to 5 to 6 words sentences.

> Her sensitivity to noise went down tremendously.

> On our next therapy session, the therapist was amazed at the

> difference than I told her how I had stopped and started it.

>

> She is missing something in her body that the supplements are

making

> a huge difference.

>

> I am in the process of changing doctors so I can run tests on her

to

> see whats going on.

>

[Guest guest]

Thanks for the info - especially the first-hand accounts from Shyann.

Elena - we don't see a DAN dr (although my son is not autistic, I'm

sure a DAN would help). My son's neuro is sending him for bloodwork

next month (testing an amino acid), and I would like an accurate

answer on the rest of his levels, so I'm having his pediatrician

write a script for the rest of the vitamins to be checked on the same

blood draw. Without the fish oils and vitamin E, hopefully I'll have

an accurate answer as to where the underlying problems are.

I'm thinking of switching neuro's as well. Not only is the one I see

almost an hour away, she isn't seeming to treat his apraxia. I don't

know what to expect, but the first visit she did an MRI/ EEG/

bloodwork, and this time around she gave me another bloodwork

(methylhisitidines) that may have been an issue and may have been

human error. Other than that, it's " see you in a few months " . I want

someone who will really look into underlying causes. I'm taking him

to another appt in Jan, but I may look into another dr if I don't get

more answers.

I'm hoping that all of this gets figured out soon. While I'm enjoying

the non-sensory Nick, I know it's not what's best for him or his

speech. The fish oils are waiting for him when find the right

answers. And I'd like to see if there's a difference when we restart

them if we slowly build up, which I did not do last time.

Thanks for the answers!!!

[Guest guest]

Please thank Shyann from us. When I first tried oils with my son we

did not get speech. I figured him a nonresponder. I now realize he

was so darn gutimpaired than they could not cover it all. Plus, what

she says coincides with so much of what you read...that all systems

have to be up to par to prevent compensation, etc. I kept retrying

the oils and while we don't do " the formula " here we have gotten

help.

Can I ask you or anyone else, anyone have sleep disruption from the

oils? Even if temporary? That seems to be going on here but I want to

be sure. I am only now asking after ruling out other factors.

>

>

>

>

>

>

> Shyann wanted to share this information for some time.

I find it is

>

> especially important for those of you with young children who have

>

> not yet verbalized. Shyann, 9 years, was on fish oils for the first

>

> time in her life this year. Then she quit following Speak. Now she

is

>

> back on the EFA/EPA (and YES the EFA tates better than EPA!) and

she

>

> would like to share the results of her experience regarding fish

>

> oils. This is paraphrazed of coarse, but mostly in her own words.

>

>

>

> 1. Don't think for one second that fish oils arn't working.

>

> 2. Just because someone (your child) can't start speaking better

>

> doesn't mean the fish oils arn't

working.

>

> 3. You (child) won't get so frustrated taking oils.

>

> 4. Other things in life get better. (refering to academics)

>

> 5. Things start to go pop in your head when you take oils. You just

>

> will be trying to do something like spelling and before (taking

oils)

>

> you would forget the next letter and then (with oils) your brain

just

>

> kind of pops and it's like you can hear it (your brain popping)and

>

> then suddenly you know the next letter and it all makes sense.

>

> 6. Don't let your Mommie stop the oils (<sign>, so sorry Shyann)

>

> before going to the doctor (neorologist in our instance) because

you

>

> (the reader) don't know how hard it is for your kid to have to live

>

> not knowing. (Live without the benefit of fish oils; having known

>

> something, and then having to struggle with the understanding of

>

> something you previously knew or understood)

>

> 7. I understand things better about things. (she understands

concepts)

>

> 8. MOST IMPORTANT!!! DON'T WAIT FOR YOUR KID TO SPEAK BETTER.

That's

>

> all EVERYONE cares about!. But there are alot of things going on

>

> inside your brain that are getting better BEFORE your speech

>

> improves!!! Maybe your little girl or boy can't talk to tell you

>

> these things SO I AM LETTING YOU KNOW!!!

>

>

>

> So out of the mind and mouth of a 9 year old who wants to share

with

>

> all adults about apaxia. She actually has some valid points.

>

>

>

> Love, Joy and Shyann

>

>

>

> > Hi

>

> > Here is my expeience about stopping fish oils.

>

> >

>

> > My daughter has been on fish oil/vit E supplements for about 3

>

> > years. In the meanwhile she has been to speech therapy non

stop.

>

> > She was never on Speak, just the complete, EPA, Vit E and gamma

>

> pills.

>

> >

>

> > Over this last summer I decided to take a break from the

>

> > supplements. Anyway I decided to stop all her supplements in

>

> June.

>

> > In August we missed 3 to 4 therapy sessions and when her

therapist

>

> > saw her, she blamed her sudden lack of speech to the missed

>

> sessions.

>

> > She barely got 2 words out and you could not understand her.

>

> > It happened so gradually that I have to say I did not notice it

at

>

> > the beginning.

>

> >

>

> > In the meanwhile her sentitivity to noise came back. She became

>

> very

>

> > distracted with trucks passing, phones ringing, where she started

>

> > covering her ears and screaming turing red. Almost looks like

she

>

> > was in pain. Something she used to do before we had started her

>

> > supplements.

>

> >

>

> > So we realized something was very wrong. We put her back on the

>

> > supplements, and sure enough within a week her speech went from 2

>

> > words to 5 to 6 words sentences.

>

> > Her sensitivity to noise went down tremendously.

>

> > On our next therapy session, the therapist was amazed at the

>

> > difference than I told her how I had stopped and started it.

>

> >

>

> > She is missing something in her body that the supplements are

>

> making

>

> > a huge difference.

>

> >

>

> > I am in the process of changing doctors so I can run tests on her

>

> to

>

> > see whats going on.

>

> >

>

>

>

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