Re: Help with School Services

[Guest guest]

Sounds like you need an advocate.

First they MUST show data on his progress with goals- They must have

documentation that he met the goal and a mere teacher's opinion does not cut it.

 

Has he had an OT eval? Have you given him and indep one?

 

If he needs an aide the need should be shown in his present level narration.

 

Try going to wrightslaw.com for some goo information. Also try COPPA website for

an advocate. Good Luck!

From: casey_heying <casey_heying@...>

Subject: [ ] Help with School Services

Date: Thursday, December 4, 2008, 3:28 PM

Hi Everyone! I am new to this group. Loving all the topics that are

discussed. It helps out tremendously. My son Jordan has apraxia.

He is 3 years old. He is in ECSE at our local school. We recently

had an IEP and it was horrible. They took away a lot of services he

needs. How can they define completed a goal when certainly he has

not. My child is not potty trained (especially BM) and they say he

has completed his goal. One of his other goals is fine motor

skills. (they wont give hims OT though) They say he can hold a

tripod grasp, which i have never seen it or anyone else that works

with him outside the school has seen it. He has sensnory problems(i

got him privatly tested) and they say he doesnt have problems. They

say they dont see that in the classroom. They also say they can NOT

put 1 on 1 on 1 in the IEP. There is not room for it in the IEP .

They have totaly decreased his minutes and i jjust dont know what to

do. he use to go to school 3 hours a day 5 times a week. now he

only goes 1 30 minutes a day 4 days a week. I feel that we need to

increase goals or do something. they say if they did he would be at

a 6 year old level which is untrue. He is not nearly close to what

the other kids his age is. Can you guys please help of give me

advice. '

Just another note, if anyone lives in the St.louis area let me know

also if there are any support groups etc.

Thank you

Casey

------------------------------------

[Guest guest]

What I have done in the past is gotten written statements or " reports " from our

docs and outside therapist about things they say he needs. This way it is not

just me saying these things. I have professionals giving input as well -

although you are his parent and you know what he needs! I made a list of items I

wanted addressed. Has it been 10 days since your IEP? If not, you can still

reject the IEP you may have just signed. You can write a letter saying you want

to have another meeting (even if it has been 10 days you can always do this.)

Then get yourself prepped. I can give you some information from my coach who is

about an hour to hour and a half away from you. She does 2 hours of free

consultation, and she can do it over the phone if you are interested. I live 2

hours from St. Louis, so I am close but not minutes away. I would be more than

happy to talk with you. The advice I got from this board and our coach has been

life saving. I just

posted a blog 2 weeks ago on our site about our latest IEP experience. I gave

links to some forms that may be helpful. Since every child is different there

may be other things that are more appropriate. You can e-mail me if you would

like to talk.

~

Ethan's Mom

Helping Parents of Children with Apraxia~

www.ethanslifewithapraxia.com

csljh2000@...

________________________________

From: casey_heying <casey_heying@...>

Sent: Thursday, December 4, 2008 2:28:51 PM

Subject: [ ] Help with School Services

Hi Everyone! I am new to this group. Loving all the topics that are

discussed. It helps out tremendously. My son Jordan has apraxia.

He is 3 years old. He is in ECSE at our local school. We recently

had an IEP and it was horrible. They took away a lot of services he

needs. How can they define completed a goal when certainly he has

not. My child is not potty trained (especially BM) and they say he

has completed his goal. One of his other goals is fine motor

skills. (they wont give hims OT though) They say he can hold a

tripod grasp, which i have never seen it or anyone else that works

with him outside the school has seen it. He has sensnory problems(i

got him privatly tested) and they say he doesnt have problems. They

say they dont see that in the classroom. They also say they can NOT

put 1 on 1 on 1 in the IEP. There is not room for it in the IEP .

They have totaly decreased his minutes and i jjust dont know what to

do. he use to go to school 3 hours a day 5 times a week. now he

only goes 1 30 minutes a day 4 days a week. I feel that we need to

increase goals or do something. they say if they did he would be at

a 6 year old level which is untrue. He is not nearly close to what

the other kids his age is. Can you guys please help of give me

advice. '

Just another note, if anyone lives in the St.louis area let me know

also if there are any support groups etc.

Thank you

Casey

[Guest guest]

He has had a sensory eval done by an OT. The school OT came and

evaled him a year ago and they said that he had borderline problems.

I think they need to test him again to see if he qualifies for

services. but they told me no. They are showing data but i am not

seeing that stuff at home at all and we work very hard with him. and

his private speech therapist helps with him on all kinds of stuff and

his daycare does too and they do not see it either.

I do have an advocate coming, but i was told they can not talk in the

meeting. is that true?

-

-- In , " L. T. " <mrefus@...> wrote:

>

> Sounds like you need an advocate.

> First they MUST show data on his progress with goals- They must

have documentation that he met the goal and a mere teacher's opinion

does not cut it.

>  

> Has he had an OT eval? Have you given him and indep one?

>  

> If he needs an aide the need should be shown in his present level

narration.

>  

> Try going to wrightslaw.com for some goo information. Also try

COPPA website for an advocate. Good Luck!

>

>

>

> From: casey_heying <casey_heying@...>

> Subject: [ ] Help with School Services

>

> Date: Thursday, December 4, 2008, 3:28 PM

>

> Hi Everyone! I am new to this group. Loving all the topics that

are

> discussed. It helps out tremendously. My son Jordan has apraxia.

> He is 3 years old. He is in ECSE at our local school. We recently

> had an IEP and it was horrible. They took away a lot of services

he

> needs. How can they define completed a goal when certainly he has

> not. My child is not potty trained (especially BM) and they say he

> has completed his goal. One of his other goals is fine motor

> skills. (they wont give hims OT though) They say he can hold a

> tripod grasp, which i have never seen it or anyone else that works

> with him outside the school has seen it. He has sensnory problems

(i

> got him privatly tested) and they say he doesnt have problems.

They

> say they dont see that in the classroom. They also say they can

NOT

> put 1 on 1 on 1 in the IEP. There is not room for it in the IEP .

> They have totaly decreased his minutes and i jjust dont know what

to

> do. he use to go to school 3 hours a day 5 times a week. now he

> only goes 1 30 minutes a day 4 days a week. I feel that we need to

> increase goals or do something. they say if they did he would be

at

> a 6 year old level which is untrue. He is not nearly close to what

> the other kids his age is. Can you guys please help of give me

> advice. '

> Just another note, if anyone lives in the St.louis area let me know

> also if there are any support groups etc.

> Thank you

> Casey

>

>

>

> ------------------------------------

>

>

[Guest guest]

You radvocate needs to observe him in class before going to the meeting so

he/she can assess the needs. You can request a reevaluation plan and request

your own indep one as well. But if he is having difficulty on campus that

related to OT (holding crayon, scissors, eating ,sensory -then he requires

services.

 

Absolutely not- An advocate can speak - If they do not want to speak all they

need is your consent. That is ridiculous. Often I find that the members of the

team don't know what they are doing and don't have correct information. Try

wrightslaw and see what you find. Good Luck!

>

> From: casey_heying <casey_heying@...>

> Subject: [ ] Help with School Services

>

> Date: Thursday, December 4, 2008, 3:28 PM

>

> Hi Everyone! I am new to this group. Loving all the topics that

are

> discussed. It helps out tremendously. My son Jordan has apraxia.

> He is 3 years old. He is in ECSE at our local school. We recently

> had an IEP and it was horrible. They took away a lot of services

he

> needs. How can they define completed a goal when certainly he has

> not. My child is not potty trained (especially BM) and they say he

> has completed his goal. One of his other goals is fine motor

> skills. (they wont give hims OT though) They say he can hold a

> tripod grasp, which i have never seen it or anyone else that works

> with him outside the school has seen it. He has sensnory problems

(i

> got him privatly tested) and they say he doesnt have problems.

They

> say they dont see that in the classroom. They also say they can

NOT

> put 1 on 1 on 1 in the IEP. There is not room for it in the IEP .

> They have totaly decreased his minutes and i jjust dont know what

to

> do. he use to go to school 3 hours a day 5 times a week. now he

> only goes 1 30 minutes a day 4 days a week. I feel that we need to

> increase goals or do something. they say if they did he would be

at

> a 6 year old level which is untrue. He is not nearly close to what

> the other kids his age is. Can you guys please help of give me

> advice. '

> Just another note, if anyone lives in the St.louis area let me know

> also if there are any support groups etc.

> Thank you

> Casey

>

>

>

> ------------------------------------

>

>