More on MB12

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Here's one more archive message of our experience (after the list of

links to help your research).

Please do follows 's advice and research very thoroughly the MB12

treatments ahead of time, the probable and potential side effects

(including temporary behavioral implications), how you shouldn't make

ANY other dietary changes or supplement changes during the first 5 weeks

to allow a clean evaluation of whether the patient responds or not and

how, additional mineral/vitamin/other supplements that you may need to

add as the MB12 starts working. Stay in contact with your doctor to

discuss in a short timeframe all changes observed and be ready to alter

the program including stopping it, if deemed necessary. (This applies to

ANY type of medical or other treatment for any of us and does not mean

the treatment is unsafe.)

Resources about various MB12 therapies

www.drneubrander.com

www.stankurtz.com

http://www.childrenscornerschool.com/mb12nasalspray.htm

http://www.talkaboutcuringautism.org/medical/methyl-b12-treatments.htm

Discussion groups on MB12 (but it is talked about about on most autism

boards)

mb12 valtrex/

Scientific studies about MB12/Methylation Cycle

http://www.drneubrander.com/Files/Oxidative Stress.pdf (Dr Jill )

http://www.drneubrander.com/Files/Deth Testimony.pdf (Dr Deth)

http://www.autismweb.com/forum/viewtopic.php?t=8529 & postdays=0 & postorder=asc &

Here are a few of the compounding pharmacies (does require

prescription)..price shop

and check out MB12Valtrex where they are in the know about pricing

comparisons.

I don't think sublingual drops require a prescription though but check

all ingredients if you don't get it compounded clean.

http://www.coastalcompounding.com/

http://www.collegepharmacy.com/

http://www.fallonpharmacy.com/

http://www.hopewellrx.com/wellness/links.shtml

http://www.leesilsby.com/contact.html

On 05July2007 momresearch wrote

Hi Wendi

Here's some info based on our experience...

The MB12 shots are given with a syringe and tiny tiny needle (the ones

used to give insulin) - and it's given in fatty tissue just below the

surface. It's nerve-wracking on the first one you give - we give our

son his while he's sleeping about 5am (my husband is up that early - not

me) so we take advantage. I tried giving it after he was just asleep

but often I'd fall asleep waiting for him to get asleep good enough. I

even tried the Emla cream for a while but that would wake him up twice

(once to put on the Emla and once to give the shot). It really is a

painless shot - if one does have pain it is probably because the pH of

the formula is too high (that has happened to some peoples batches that

the pharmacy replaced for free).

As for there not being side effects........that's not so true. The

MB12 alters the body's metabolic system in some way too...not only can

there be hyperactiveness for up to several months, there can also be

insomnia, increased mouthing of objects (like putting things in your

mouth like an infant, eating dirt or licking things you wouldn't

expect). My son had a neurologic reaction that was rare but it

happened for several weeks...but improved after adding in folinic acid

(that we had to them remove because it made him spacey...not present).

We did get some pluses mixed in with the period of adjustment for his

body to get used to the new changes -- he would go to his own bed when

I'd say it was time for bed and WANTED TO, his eye contact clicked in,

he could distinguish between hot and cold, he acknowledged and

communicated pain when he hurt himself - before he was indifferent. He

could say and understand more things, too, so there was an improvement

in his auditory processing system. His digestion also changed for the

better but that was due to a combination of treatments and which cannot

be attributed to any single treatment by itself. The MB12 wasn't a

magic talking shot, but has helped his global well-being. (oh - and he

hasn't eaten meat in 3 years so he doesn't get much B12 in his diet

otherwise due to his severe food selectivity)

As you begin this process, observe objectively, keep an open dialogue

with your DAN! for ANY odd changes or questions/doubts you may

have....it may take several weeks to notice some changes - good or bad

or none. Check out Dr. Neubrander's questionnaire (it's on his

website)...he also has a forum where he and his brother Rick respond to

questions. And remember not to make any other dietary or supplement

changes during the first 6 weeks - unless some of the negative symptoms

might warrant the addition of zinc or folinic/folic acid earlier (with

your DAN! ok). At the end of 6 weeks, discuss with your DAN! and

decide together if your child " responded " or not - not all kids do.

P.S.

Don't worry about a build up because the MB12 is water soluable. If you

accidently were to inject into muscle (i.e. too deep which is hard to do

with the tiny needle) the urine would be red where the MB12 is expelled

from the body.