A BREAK THROUGH!!!

January 9, 2009

Hi all,

I have not posted much at all since we had started the SPEAK supplement and then

had the febrile seizure. I stopped Christian all together with his fish oils.

I started again about 3 or 4 months ago but didn't see any real surges like

everyone else. Christian has been in speech therapy and hippotherapy (started

in AUG). He has recently just started surging with words. This week alone he

has learned about 20 for a total of over 50 in about 2 weeks! I am just so

ecstatic! I really have to contribute this all to the great speech therapist

and the hippotherapy. He has a new horse that has been really organizing his

sensory system and it has made all the difference. I am so thankful for all the

therapists and for all of you and your guidance. I will try to keep updating

as we go along. I am quite busy with 2 little ones!

Yvette

January 9, 2009

Christian I am SO HAPPY TO HEAR THIS and it's music to my ears (or

should I say eyes?)!!! I had been worried about your little one ever

since that day you called me in tears, frantic, saying your son is

" regressing into autistic behaviour... and he isn't autistic. Will he

be OK?!! Will he be OK " with your son screaming nonstop in the

background. It haunted me. That was a day or so before the seizure.

Thank God for the break through now!

Tanner who is now 12 is just starting to be back to where he was

before he was on that product they call speak. I would have to check

how many months he's been off (and he was only on it for 2 weeks!) but

I posted the other day that when I tried to give him just the one

capsule of vitamin E 200/200 (the high gamma one we all used) he got a

headache -that happened twice so I know no extra vitamin e for him at

all. I mean and he was only on speak for 2 weeks -and that was months

ago! But Tanner's regression was HUGE in that as you may recall he

regressed back to groping and seemed he had to relearn even basic

sounds -even the letter " B " . In the history of this group I've never

known any other method to create this severe of a negative reaction.

I have a theory about the fish oils for your child based on Tanner. I

think our children that were affected in some cases like my son are

still healing from speak.

I have a message below from you from early September that the ProEFA

was working. I suspect that like my son Tanner due to the speak your

child is ultra sensitive to any vitamin E and they have 15IUs of

vitamin E in each capsule of ProEFA and ProEPA. Typically that's a

good thing for most of us as fish oils deplete the vitamin E -but for

those of us that had children that may have suffered from

hypervitaminosis E I suspect it just may be more than they need. I think about

a no vitamin E formula for those of us that tried the speak

who have children that regressed or had seizures etc. I know I'd use

it! Anyway due to my son Tanner's gradual improvement I'd say give it

a few more months. Unlike other regressions the vitamin E regression

seemed to stick for Tanner and lingered for months. Very scary.

I was praying I didn't permanently damage Tanner from trying speak.

I have kept Tanner on his regular fish oils (4 ProEFA and 2 ProEPA)

and as I said he's pretty much back to pre-speak now -what? 4 months

later? Try the ProEFA again in another month or two or even three.

If it worked once it should again.

I also have below some messages about hippotherapy for you more to let

you know you are on the right track than anything else as you already

know it's great! Here's a great YouTube on Hippotherapy and Speech

Therapy and why they just work together

LOVE that she says you have to work on the whole body! -so true!

There are many other types of animal therapy that are wonderful to

explore too. Don't even underestimate dogs! There are some amazing

therapy dogs out there and I know that they even use them in our local

library to help teach children to read!

Aren't you a special ed teacher? Do you know about hippotherapy for

some of your students as well?

Re: ride therapy

We did hippotherapy too Leigh and it's all good. For those that

can't afford it or don't have access to it there are other ways to get

vestibular stimulation via movement. The rebounders I just posted

about (mini trampolines) are to me a must have for a child with

apraxia at least when they are preschool age. You can get them with

handles. In addition pet therapy -there's so much about that as well

in the archives on how helpful that is for children with special

needs. Pets give our children " someone " to love and " talk to " who

doesn't judge how well they can or can't say things while they are

still learning. Hippotherapy is kind of a cross between vestibular

stimulation and pet therapy. Growing up my boys had a horse and a

pony for a few years when we were still in New Jersey (OK so it

wasn't official hippotherapy but close enough)

There is no official therapy called ride therapy yet. I just call it

that because without a doubt I notice a surge in Tanner's speech a

day after he goes on the rides. There is information about the 3

theories I've posted why it may be working on the net - stimulation to the

vestibular system, release of chemicals such as adrenaline into the

body, and effects of electro magnetic fields on neurological function

as many of the new rides use electro magnetic energies.

Here's a good coaster article

http://illumin.usc.edu/article.php?articleID=52 & page=1

Who knows -I just know it works and it's fun for not just Tanner but

all of us. I am a huge coaster fan and so are my boys. Below is an

archive that I was lucky enough to find because it showed up being

that Dawn from NJ from 2006 had the same subject name " ride therapy "

~~~~~~~look below -this is Dawn's message from 2006

,

Today Abby had her OT appt, (First one since we got home from Disney)

I told the OT all about our vacation, and Abby going on the " grown

up "

rides. I explained how much you loved them, and your excitement, and

detailed explanations of each ride helped Abby. I told her how when

the

ride was over, she wanted " to try it again " - as she said to all of

us.

The OT right away was so excited, she asked me about Abby's speech.

She

explained to me that the part of the brain that controls speech is

also

effected by vestibular movement(s). And that they are interconnected.

She further told me that Abby's excitement, was probably due to

the " Ahhhh finally I get the right sensory input " And that Abby has

been craving this.

Also, as I was waiting for OT to be over, I ran into Abbys neuro-dev

ped. I explained to her as well. She was very impressed! I told her

that we (like you) call it " ride therapy "

Dawn in nj

~~~~~~~~~~~~~

=====

January 10, 2009

Hi, so wonderful to hear good news. I have not posted in a while,

haven't had to the time. We are not doing well at all here -- ever

since 8 days on SPEAK, Evoni (now 2 y.o.) has had seizures increasing

in frequency and duration. She no longer babbles at all, and now

hardly has the confidence to walk without leaning heavily on us. We

are in a nightmare. I have been continuing Omega 369 throughout. Do

you guys think I should give it a break. Best

>

> Christian I am SO HAPPY TO HEAR THIS and it's music to my ears (or

> should I say eyes?)!!! I had been worried about your little one ever

> since that day you called me in tears, frantic, saying your son is

> " regressing into autistic behaviour... and he isn't autistic. Will he

> be OK?!! Will he be OK " with your son screaming nonstop in the

> background. It haunted me. That was a day or so before the seizure.

> Thank God for the break through now!

>

> Tanner who is now 12 is just starting to be back to where he was

> before he was on that product they call speak. I would have to check

> how many months he's been off (and he was only on it for 2 weeks!) but

> I posted the other day that when I tried to give him just the one

> capsule of vitamin E 200/200 (the high gamma one we all used) he got a

> headache -that happened twice so I know no extra vitamin e for him at

> all. I mean and he was only on speak for 2 weeks -and that was months

> ago! But Tanner's regression was HUGE in that as you may recall he

> regressed back to groping and seemed he had to relearn even basic

> sounds -even the letter " B " . In the history of this group I've never

> known any other method to create this severe of a negative reaction.

>

> I have a theory about the fish oils for your child based on Tanner. I

> think our children that were affected in some cases like my son are

> still healing from speak.

>

> I have a message below from you from early September that the ProEFA

> was working. I suspect that like my son Tanner due to the speak your

> child is ultra sensitive to any vitamin E and they have 15IUs of

> vitamin E in each capsule of ProEFA and ProEPA. Typically that's a

> good thing for most of us as fish oils deplete the vitamin E -but for

> those of us that had children that may have suffered from

> hypervitaminosis E I suspect it just may be more than they need. I

think about a no vitamin E formula for those of us that tried the speak

> who have children that regressed or had seizures etc. I know I'd use

> it! Anyway due to my son Tanner's gradual improvement I'd say give it

> a few more months. Unlike other regressions the vitamin E regression

> seemed to stick for Tanner and lingered for months. Very scary.

> I was praying I didn't permanently damage Tanner from trying speak.

>

> I have kept Tanner on his regular fish oils (4 ProEFA and 2 ProEPA)

> and as I said he's pretty much back to pre-speak now -what? 4 months

> later? Try the ProEFA again in another month or two or even three.

> If it worked once it should again.

>

> I also have below some messages about hippotherapy for you more to let

> you know you are on the right track than anything else as you already

> know it's great! Here's a great YouTube on Hippotherapy and Speech

> Therapy and why they just work together

>

> LOVE that she says you have to work on the whole body! -so true!

>

> There are many other types of animal therapy that are wonderful to

> explore too. Don't even underestimate dogs! There are some amazing

> therapy dogs out there and I know that they even use them in our local

> library to help teach children to read!

>

> Aren't you a special ed teacher? Do you know about hippotherapy for

> some of your students as well?

>

> Re: ride therapy

>

> We did hippotherapy too Leigh and it's all good. For those that

> can't afford it or don't have access to it there are other ways to get

> vestibular stimulation via movement. The rebounders I just posted

> about (mini trampolines) are to me a must have for a child with

> apraxia at least when they are preschool age. You can get them with

> handles. In addition pet therapy -there's so much about that as well

> in the archives on how helpful that is for children with special

> needs. Pets give our children " someone " to love and " talk to " who

> doesn't judge how well they can or can't say things while they are

> still learning. Hippotherapy is kind of a cross between vestibular

> stimulation and pet therapy. Growing up my boys had a horse and a

> pony for a few years when we were still in New Jersey (OK so it

> wasn't official hippotherapy but close enough)

>

> There is no official therapy called ride therapy yet. I just call it

> that because without a doubt I notice a surge in Tanner's speech a

> day after he goes on the rides. There is information about the 3

> theories I've posted why it may be working on the net - stimulation

to the

> vestibular system, release of chemicals such as adrenaline into the

> body, and effects of electro magnetic fields on neurological function

> as many of the new rides use electro magnetic energies.

>

> Here's a good coaster article

> http://illumin.usc.edu/article.php?articleID=52 & page=1

>

> Who knows -I just know it works and it's fun for not just Tanner but

> all of us. I am a huge coaster fan and so are my boys. Below is an

> archive that I was lucky enough to find because it showed up being

> that Dawn from NJ from 2006 had the same subject name " ride therapy "

>

> ~~~~~~~look below -this is Dawn's message from 2006

>

> ,

> Today Abby had her OT appt, (First one since we got home from Disney)

> I told the OT all about our vacation, and Abby going on the " grown

> up "

> rides. I explained how much you loved them, and your excitement, and

> detailed explanations of each ride helped Abby. I told her how when

> the

> ride was over, she wanted " to try it again " - as she said to all of

> us.

>

> The OT right away was so excited, she asked me about Abby's speech.

> She

> explained to me that the part of the brain that controls speech is

> also

> effected by vestibular movement(s). And that they are interconnected.

>

> She further told me that Abby's excitement, was probably due to

> the " Ahhhh finally I get the right sensory input " And that Abby has

> been craving this.

>

> Also, as I was waiting for OT to be over, I ran into Abbys neuro-dev

> ped. I explained to her as well. She was very impressed! I told her

> that we (like you) call it " ride therapy "

>

> Dawn in nj

> ~~~~~~~~~~~~~

>

> =====

>

January 10, 2009

I am new to the group and I have not done a proper introduction of

myself yet, but please do share what methods your speech therapist

uses. (Do you use PROMPT?)

>

> Hi all,

>

> I have not posted much at all since we had started the SPEAK

supplement and then had the febrile seizure. I stopped Christian all

together with his fish oils. I started again about 3 or 4 months ago

but didn't see any real surges like everyone else. Christian

has been in speech therapy and hippotherapy (started in AUG). He has

recently just started surging with words. This week alone he has

learned about 20 for a total of over 50 in about 2 weeks! I am just

so ecstatic! I really have to contribute this all to the great

speech therapist and the hippotherapy. He has a new horse that has

been really organizing his sensory system and it has made all the

difference. I am so thankful for all the therapists and for all of

you and your guidance. I will try to keep updating as we go along.

I am quite busy with 2 little ones!

>

> Yvette

>

January 10, 2009

,

We also had issues with Speak. For us it was a 1 time thing. I am not sure why

or what was happening there but if I were you I would stop and let her system

have a rest. That is what we did with Christian. I think I stopped everything

for about 2 weeks. At least that is my opinion. I hope that things get better

for you guys. I know how scary it can be.

Yvette

,

Yes, we are doing OK. I remember all the conversations we had that day and I am

so grateful that you were there for me. I was so frightened. I do think that

we are on the right track. At least for us. Christian is just exploding with

new words everyday. I can hardly stand it over here. I don't know what

exactly is working but I am not about to try and change anything. He gets hippo

2 times a week and then regular therapy (speech) 2 times a week. Whatever the

case may be I am grateful. I hope that you and Tanner are doing well. I am

sorry to hear that it has taken him so long to recover. I will post more as we

progress over here!

Yvette

From: <mgal33@...>

Subject: [ ] Re: A BREAK THROUGH!!!

Date: Saturday, January 10, 2009, 1:23 PM