Re: Help with hyperactivity

[Guest guest]

Hi--

My name is and I have a daughter who was diagnosed by one person with

apraxia, and two others as not having it. Do you mind my asking why it took so

long? What were 's speech patterns? I just don't want it to take so long

to diagnose her if she does have it or something else. Any info/tips anyone

could give me would be greatly appreciated. Thank you--

Alice <fan4tractors@...> wrote:

My grandson, , is 10. It took 4 years to accurately diagnose him

with developmental apraxia. He's been to speech for more than 3 years

and has tutoring even now 2 times per week.

He is hyperactive and now seems very immature. Is this normal?

Since he has apraxia I was also wondering if taking sign language would

be of any value? He is extremely frustrated now. He continues to have

difficulty forming words and reads at a 6 year old level. He's getting

behind rapidly now.

Any guidance on how to deal with his poor social skills? He has 2

brothers and 1 sister. (No, they don't live with me but the

frustration is growing.) wants to be an only child. I think

this is another part of his frustration.

Alice

---------------------------------

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[Guest guest]

Hi and welcome to the group-

How old is your daughter? What are the symptoms of speech you are

seeing? My son had symptoms of verbal apraxia and sensory

integration dysfunction at age 2. He was diagnosed by a Pediatric

Neurologist. Who are the 3 people that have said yes and no to

apraxia and why?

/message/64508

Here is a new member message that is filled with information that

will get you started. It is very long, but worth the read.

Here is the link to the link section:

/links

If you have more questions, please ask away and I am sure someone

here can help you find the answers or point you in the direction to

find the answer.

Hope this helps,

Tina

> My grandson, , is 10. It took 4 years to accurately

diagnose him

> with developmental apraxia. He's been to speech for more than 3

years

> and has tutoring even now 2 times per week.

>

> He is hyperactive and now seems very immature. Is this normal?

> Since he has apraxia I was also wondering if taking sign language

would

> be of any value? He is extremely frustrated now. He continues to

have

> difficulty forming words and reads at a 6 year old level. He's

getting

> behind rapidly now.

>

> Any guidance on how to deal with his poor social skills? He has 2

> brothers and 1 sister. (No, they don't live with me but the

> frustration is growing.) wants to be an only child. I think

> this is another part of his frustration.

>

> Alice

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

>

[Guest guest]

Total guesswork here -- some of the immaturity might be coming from a

processing delay. Does he have age-appropriate receptive language

skills? Regarding hyperactivity, we've addressed this primarily with

diet. My son seems like he has ADHD when he eats foods with

additives -- artificials primarily, but we also avoid MSG and HFCS

when possible. " Healing the New Childhood Epidemics " by Bock

is a great book for learning about biomedical interventions, and

while his official topics are autism, ADHD, allergies, and asthma,

many, many things are relevant to children in other categories.

It must be very difficult to be a grandparent in this situation.

Lots of ideas, but it is still up to the parents to execute it all.

I applaud you for your proactive interest. I have heard a fair

number of stories where the grandparents are really saboteurs because

they don't " believe " there is a problem, or on the other hand, avoid

the " problem " grandchildren.

in NJ

>

> My grandson, , is 10. It took 4 years to accurately diagnose

him

> with developmental apraxia. He's been to speech for more than 3

years

> and has tutoring even now 2 times per week.

>

> He is hyperactive and now seems very immature. Is this normal?

> Since he has apraxia I was also wondering if taking sign language

would

> be of any value? He is extremely frustrated now. He continues to

have

> difficulty forming words and reads at a 6 year old level. He's

getting

> behind rapidly now.

>

> Any guidance on how to deal with his poor social skills? He has 2

> brothers and 1 sister. (No, they don't live with me but the

> frustration is growing.) wants to be an only child. I

think

> this is another part of his frustration.

>

> Alice

>

[Guest guest]

Alice -check out Janice 's posts about her son Mark. I

personally think " apraxia " is the label du jour which is probably why

the differeing opinions. You will find that many, but not all

parents on this board seek the source/the root cause of the speech

problem and thus have environmental or DAN Dr.'s to help them

navigate toward recovery.

I have kept a file of Janices' posts about her son Mark - it is worth

going back and reading.

mother to recovering 5 yr old - toxic vaccines = global

apraxia/dyspraxia

> My grandson, , is 10. It took 4 years to accurately

diagnose him

> with developmental apraxia. He's been to speech for more than 3

years

> and has tutoring even now 2 times per week.

>

> He is hyperactive and now seems very immature. Is this normal?

> Since he has apraxia I was also wondering if taking sign language

would

> be of any value? He is extremely frustrated now. He continues to

have

> difficulty forming words and reads at a 6 year old level. He's

getting

> behind rapidly now.

>

> Any guidance on how to deal with his poor social skills? He has 2

> brothers and 1 sister. (No, they don't live with me but the

> frustration is growing.) wants to be an only child. I think

> this is another part of his frustration.

>

> Alice

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

>

[Guest guest]

Apraxia has nothing to do with hyperactivity. There are many

children with apraxia who appear to be lethargic if they also have

low tone. Apraxia may be yet another diagnosis du jour just like

ADHD or autism in that children are being misdiagnosed -but as a

diagnosis, apraxia is unique and it used to be rare. Apraxia is a

motor planning disorder which today typically co exists with other

issues such as sensory or weakness. The first step of course would

be a speech and hearing evaluation however a knowledgeable

neurodevelopmental medical exam is highly recommended if apraxia is

suspected. In this group through the years we have found great

success with appropriate therapy including motor planning and

strengthening speech therapy as well as oral motor therapy for most,

occupational therapy to address motor planning deficits, weakness and

sensory issues of the body, as well as physical therapy in some

cases. Some have also included complementary alternative therapies

including therapeutic listening, cranial sacral therapy, hippo

therapy, music therapy (ride therapy!!) etc. -however one of the most

significant changes reported here comes with the addition of

essential fatty acids with a mix of Omega 3/6 oils- and today with

vitamin E as well. Apraxia may have some symptoms that overlap with

autism such as lack of speech or sensory issues -but they are not the

same diagnosis. A child with apraxia will be in a more appropriate

placement in most cases with hearing impaired children then with

autistic children.

For a large group of parents of children diagnosed as autistic -there

is the biomedical route which includes a visit to a defeat autism now

or dan- but that is not a step one for apraxia and for a great

majority historically again it was never needed. In this group

historically most followed with great success the basics talked about

in The Late Talker book -Contemporary Pediatrics and through the

history of the archives here -various traditional and alternative

therapy and EFAs/E. However if the basics don't work -DAN and

special diets and other methods that may be costly and more complex

may be needed to best help that unique child diagnosed with apraxia.

As always -there may be misdiagnosis, or perhaps a secondary

diagnosis that also needs to be addressed was missed.

If one wants to read about children with apraxia -there is an entire

wealth of archives of thousands of children diagnosed with apraxia

and other issues your years here and it's interesting to look at the

history of one of the children that sounds like your own. For me -my

hero for Tanner was 's son Khalid as they both had similar

symptoms and I always dreamed Tanner would do as well as Khalid.

It's a way to bring hope when you aren't sure of your child's

future. It's also a way to learn how to avoid problems along the

way. It does appear that if you follow a success story you'll end up

with your own.

=====

[Guest guest]

Thanks so much. I bumped into some of her responses and you're right...they do

seem to be useful to me.

I think it's just so difficult to look at a child that appears normal and then

have to remind myself that he has a brain that functions a lot like he's had a

stroke.

He's had so many problems...none real serious as some of these responses seem

but frustrating never the less.

I really appreciate the input.

Alice

[Guest guest]

Thanks for your input. I'll pass it on. Our daughter has 4 children and 2

jobs. She really has limited time to do any research. She and her husband do

try.

When our daughter was a child it was my parents that indeed sabotaged our

parenting so we know how important it is to follow their lead. They just need

help finding sources.

Thanks again.

Alice

[ ] Re: Help with hyperactivity

Total guesswork here -- some of the immaturity might be coming from a

processing delay. Does he have age-appropriate receptive language

skills? Regarding hyperactivity, we've addressed this primarily with

diet. My son seems like he has ADHD when he eats foods with

additives -- artificials primarily, but we also avoid MSG and HFCS

when possible. " Healing the New Childhood Epidemics " by Bock

is a great book for learning about biomedical interventions, and

while his official topics are autism, ADHD, allergies, and asthma,

many, many things are relevant to children in other categories.

It must be very difficult to be a grandparent in this situation.

Lots of ideas, but it is still up to the parents to execute it all.

I applaud you for your proactive interest. I have heard a fair

number of stories where the grandparents are really saboteurs because

they don't " believe " there is a problem, or on the other hand, avoid

the " problem " grandchildren.

in NJ

>

> My grandson, , is 10. It took 4 years to accurately diagnose

him

> with developmental apraxia. He's been to speech for more than 3

years

> and has tutoring even now 2 times per week.

>

> He is hyperactive and now seems very immature. Is this normal?

> Since he has apraxia I was also wondering if taking sign language

would

> be of any value? He is extremely frustrated now. He continues to

have

> difficulty forming words and reads at a 6 year old level. He's

getting

> behind rapidly now.

>

> Any guidance on how to deal with his poor social skills? He has 2

> brothers and 1 sister. (No, they don't live with me but the

> frustration is growing.) wants to be an only child. I

think

> this is another part of his frustration.

>

> Alice

>

[Guest guest]

I emailed your questions to our daughter so she could give you better info.

talked late when he did talk. His speech was poor and enunciating L's,

S's and W's is still nearly impossible. He was probably 3 before he talked well

enough to know anything he was saying.

We live near Duke University Medical Center and you would think that they would

have some information on this condition but they have been little help.

Speech therapy is the only thing they have suggested. he took it for 3 years

and then Duke told him his insurance would no longer cover his need.

He has been to all the public school evaluations and now is taking speech,

again, at the public school. This speech patho is so kind. She was more upset

then we were when she had to tell us his likelihood of correct speech. I think

the missing 2-3 years of nonspeech patho has helped him. He has caught on much

faster this time and the SLP is encouraged.

it is nearly impossible to pass education when you can't read or speak.

I spoke with my daughter, , last night and sent your email to her.

This group site is a great opportunity to get answers. Stick with it!

I encourage you to hold on to what you know about your child. Often the medical

community will see a child for 5 minutes and make a diagnosis or judgement that

is not based on the whole picture. You must be the advocate.

Keep up posted on your progress.

Alice

Re: [ ] Help with hyperactivity

Hi--

My name is and I have a daughter who was diagnosed by one person with

apraxia, and two others as not having it. Do you mind my asking why it took so

long? What were 's speech patterns? I just don't want it to take so long

to diagnose her if she does have it or something else. Any info/tips anyone

could give me would be greatly appreciated. Thank you--

Alice <fan4tractors@ verizon.net> wrote:

My grandson, , is 10. It took 4 years to accurately diagnose him

with developmental apraxia. He's been to speech for more than 3 years

and has tutoring even now 2 times per week.

He is hyperactive and now seems very immature. Is this normal?

Since he has apraxia I was also wondering if taking sign language would

be of any value? He is extremely frustrated now. He continues to have

difficulty forming words and reads at a 6 year old level. He's getting

behind rapidly now.

Any guidance on how to deal with his poor social skills? He has 2

brothers and 1 sister. (No, they don't live with me but the

frustration is growing.) wants to be an only child. I think

this is another part of his frustration.

Alice

------------ --------- --------- ---

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