Regression after AIT ... concerned (kinda long)

[Guest guest]

Hi Everyone,

My high functioning six year old just completed AIT (Berard) eight days ago.

When I did

my research and talked to the therapists who supervised the intensive ten day

program, I

was told to expect regression around day five or six. Well, not only did my son

not

experience regression during the program he actually made gains in speech (more

advanced language and sentence structure) and even made first time comments like

" I

want to be a fireman when I grow up " . Needless to say, I was very excited.

Around five

days the program was completed, he has regressed a lot (for him). Things that I

am

noticing are spinning, bouncing, can't get his attention, less social, loss of

appetite and

regressed back to eating crunchy foods, screams that I scared him if I call his

name from a

different room from the one I am in. He is also very emotional and gets

frustrated much

quicker than when we started.

My Speech therapist assured me that this is normal and that some kids regress

after the

program is finished. Needless to say, I am very concerned and would love to find

other

parents who have done AIT with similar experiences.

One thing I need to share is that my son was taking a course of gentamycin (for

his gut)

and entocort and pentasa during the AIT. When I checked out the Berard websites

it

mentioned that under no circumstances should participants be on any ototoxic

drugs

including gentamycin and steroids. I was assured that the form of gentamycin my

son was

taking was not systematic and that it stayed in the gut to fight psuedamonas.

Well, I am freaked out even more and now I need reassurance ... please

Please feel free to email me off group.

TIA,

Dayna