Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Much of what you have written sounds like classic apraxia signs. I know years ago kids with apraxia were diagnosed just as having sensory issues -all the symptoms were assumed due to just the sensory issues -but as we know today (and as this group knew then) apraxia is typically a mix of sensory, motor planning and weakness issues. And...drooling could be for any or all of the above reasons as well as others too. Most however don't drool due to sensory issues -but weakness issues -oral motor weakness. We don't know for a fact what causes apraxia or any other of the multifaceted communication impairments we see today - but we do know that no matter what the cause there are ways to get your child up to speed. I have an archived " drooling " post below but it's geared more toward preschool age. It's most important that if you don't yet have a neurodevelopmental exam from one that is knowledgeable about apraxia etc. to do so as soon as possible. At the age your child is he becomes at risk for teasing on top of everything else so you want to address this right away. There is much help out there. At times you have to go outside of those that you may even love that have worked with your child for years and years but meanwhile your child has had not as much progress as others like him. You should have goals for 3 and 6 months and if they are not being met -explore other methods. What grade is your child in now? What's written into his IEP if you are in the US? What type of therapy and is it one on one and how often? From: " kiddietalk " <kiddietalk@...> Date: Sat Jan 3, 2004 12:40 pm Subject: Re: Apraxia and salivation? Hi Liz, As you know as a member who has been around for a bit (and one I know from NJ!) this topic has come around before. I love your suggestion of the chin tap for the older child -perhaps the one I was told for Dakota works best for a preschool child. If this topic is relevant you may want to read on. I found this archive from October with lots of information and links in it and hope it helps someone! ~~~~~~~~~~~~~~~start archive message From: " kiddietalk " <kiddietalk@...> Date: Mon Oct 13, 2003 10:07 pm Subject: Re: excess saliva Hi diapermom 2! You don't say your child's age since some aspects may be developmental, but based on your email name of diapermom -I guess either your son is young has potty delays. I do understand your son has saliva just sitting/pooling in the mouth and he's either not swallowing often enough, which is also part of what can happen when a child drools too even though your son is not drooling, or his body is producing more saliva than he really needs. Unfortunately the former (drooling) is yet another one that I can relate to with my oldest son, and fortunately this too did pass! You first want to rule out there are no medical, physical etc reasons for too much saliva in the mouth. http://www.alsa-or.org/treatment/Saliva http://www.technologyandlanguage.com/presentations/drooling/ http://www.duit.uwa.edu.au/web/inclusion/disability/saliva.html There are medications (and probably nutritional interventions as well!) to reduce saliva in the mouth if that is the reason. http://www.alsa-or.org/treatment/Saliva I also read there can be psychological triggers of too much saliva - such as nervousness. So could be a number of reasons. Again however you are the first to mention too much saliva here...without the drooling part. In addition to discussing with your child's MD, as well as specialists such as ENTs, which I highly recommend -perhaps some of the strategies for droolers will work for your child in the meantime? The following are two or three archived messages from about 2 years ago. This never came up before either because it's not common for a child to have lots of saliva in their mouth and not drool -or most don't want to talk about it -so the archives are on drooling. As far as drooling -Tanner never really went thought even the 'normal' drooping stage -Dakota made up for that big time -but has not drooled at all for years. Therapy deals with lots of stuff, strategies help cover what therapy misses -this is yet another example. Hope some of the following can help. From: " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 I wouldn't worry too much about the th and r errors in a 6 year old (I am a speech pathologist).?? Those error sounds are developmental and will hopefully correct on their own soon.? Many SLP's wont work on those sounds with a 6 year old because they are develiopmental.? As for the drooling, are you doing any strenghtening exercises ?? You can try drinking thick liquids like milkshakes, pudding or apple sauce through different size straws.? [ ] Drooling:: what to do for 6yo My 6yo has been in speech therapy since 3 at school and in private therapy. I was told his drooling was sensory related and it did get better when he was in OT. We they tested him and said he didn't need OT anymore and since then the drooling has gone back to what it was. He also has problems putting words together to make sentences. He can say words individually but when he has to put them together they sound like mumbling. However, some of what he says is clear. He does excellent on articulation testing, but when he tried to make a sentence he has problems forming the thoughts and putting together in a sentence. He will say " cream " for " hungry " . Has problems with /th/, /l/, and maybe /r/ sounds. The speech therapist doesn't think it is anything to worry about. Also, his sentences seem short to me. But, he has moments when he will talk and talk. He also keeps referring to females as " he " or " him " . He is trying to get this correct because he will point it out to me when he does it right. Can anyone suggest anything I can do for him, because no one is working on the articulation. Speech therapy is usually work on words ending in /sh/. I have found a lady who does mood-Bell, but she is self trained. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Eliminating milk stopped all my kids from drooling. vaborn9902 wrote: > My 6yo has been in speech therapy since 3 at school and in private > therapy. I was told his drooling was sensory related and it did get > better when he was in OT. We they tested him and said he didn't > need OT anymore and since then the drooling has gone back to what it > was. > > He also has problems putting words together to make sentences. He > can say words individually but when he has to put them together they > sound like mumbling. However, some of what he says is clear. He > does excellent on articulation testing, but when he tried to make a > sentence he has problems forming the thoughts and putting together > in a sentence. He will say " cream " for " hungry " . Has problems > with /th/, /l/, and maybe /r/ sounds. The speech therapist doesn't > think it is anything to worry about. > > Also, his sentences seem short to me. But, he has moments when he > will talk and talk. He also keeps referring to females as " he " > or " him " . He is trying to get this correct because he will point it > out to me when he does it right. > > Can anyone suggest anything I can do for him, because no one is > working on the articulation. Speech therapy is usually work on > words ending in /sh/. > > I have found a lady who does mood-Bell, but she is self trained. > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 His DAN has said that he is hypotonia. I do crawling exercises with him and his shoulder joints pop and he complains about his armpits hurting when we do them. What kind of doctor do I need to take him to for a " neurodevelopmental exam from one that is knowledgeable about apraxia etc. " I don't have any problem taking him to others that can help him, I just have listened to the SLP and OT who are suppose to be good at what they do. I have questioned constantly if he and his brother are progressing as they think they should. They are meeting the goals that they have set. I just don't see their daily living as much improved. I sometimes think that their improvements are because of the age and not really because of therapy. He is in kindergarten and gets speech therapy at school once a week with two others. If I remember the last IEP, I think they think he's only got pronouns problems. The therapist from last year had told me that she would evaluate his drooling, but when I later pressed her to evaulate it, she said she had and he didn't have a problem. Yeah. He is also getting 30 min. of speech a week in private and she usually works on words ending with /sh/. He did get OT for 30 min a week and that stopped because she said he didn't test as needing therapy anymore. His drooling has gone back to very noticable since he stopped OT. It's been about a year and I don't remember what the evaulation from the private therapy said so I would have to look that up again. Thanks so much for your advice. > > Much of what you have written sounds like classic apraxia signs. I > know years ago kids with apraxia were diagnosed just as having > sensory issues -all the symptoms were assumed due to just the sensory > issues -but as we know today (and as this group knew then) apraxia is > typically a mix of sensory, motor planning and weakness issues. > And...drooling could be for any or all of the above reasons as well > as others too. Most however don't drool due to sensory issues -but > weakness issues -oral motor weakness. > > We don't know for a fact what causes apraxia or any other of the > multifaceted communication impairments we see today - but we do know > that no matter what the cause there are ways to get your child up to > speed. I have an archived " drooling " post below but it's geared more > toward preschool age. It's most important that if you don't yet have > a neurodevelopmental exam from one that is knowledgeable about > apraxia etc. to do so as soon as possible. At the age your child is he becomes at > risk for teasing on top of everything else so you want to address > this right away. There is much help out there. At times you have to > go outside of those that you may even love that have worked with your > child for years and years but meanwhile your child has had not as much > progress as others like him. You should have goals for 3 and 6 months and if > they are not being met -explore other methods. What grade is your > child in now? What's written into his IEP if you are in the US? > What type of therapy and is it one on one and how often? > > From: " kiddietalk " <kiddietalk@...> > Date: Sat Jan 3, 2004 12:40 pm > Subject: Re: Apraxia and salivation? > > > Hi Liz, > > As you know as a member who has been around for a bit (and one I > know from NJ!) this topic has come around before. I love your > suggestion of the chin tap for the older child -perhaps the one I > was told for Dakota works best for a preschool child. If this topic > is relevant you may want to read on. I found this archive from October > with lots of information and links in it and hope it helps someone! > ~~~~~~~~~~~~~~~start archive message > > From: " kiddietalk " <kiddietalk@...> > Date: Mon Oct 13, 2003 10:07 pm > Subject: Re: excess saliva > > Hi diapermom 2! > > You don't say your child's age since some aspects may be > developmental, but based on your email name of diapermom -I guess > either your son is young has potty delays. > > I do understand your son has saliva just sitting/pooling in the > mouth and he's either not swallowing often enough, which is > also part of what can happen when a child drools too even though > your son is not drooling, or his body is producing more saliva than > he really needs. Unfortunately the former (drooling) is yet another > one that I can relate to with my oldest son, and fortunately this > too did pass! > > You first want to rule out there are no medical, physical etc > reasons for too much saliva in the mouth. > http://www.alsa-or.org/treatment/Saliva > http://www.technologyandlanguage.com/presentations/drooling/ > http://www.duit.uwa.edu.au/web/inclusion/disability/saliva.html > There are medications (and probably nutritional interventions as > well!) to reduce saliva in the mouth if that is the reason. > http://www.alsa-or.org/treatment/Saliva > I also read there can be psychological triggers of too much saliva - > such as nervousness. So could be a number of reasons. Again > however you are the first to mention too much saliva here...without > the > drooling part. > > In addition to discussing with your child's MD, as well as > specialists such as ENTs, which I highly recommend -perhaps some of > the strategies for droolers will work for your child in the meantime? > > The following are two or three archived messages from about 2 years > ago. This never came up before either because it's not common for a > child to have lots of saliva in their mouth and not drool -or most > don't want to talk about it -so the archives are on drooling. > > As far as drooling -Tanner never really went thought even > the 'normal' drooping stage -Dakota made up for that big time -but > has not drooled at all for years. Therapy deals with lots of stuff, > strategies help cover what therapy misses -this is yet another > example. Hope some of the following can help. > > From: " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Hi, My son drooled at 6 as well and it was aweful for him at school. Actually, it is a social stigma that followed him from the grade 1-2 kids for years so..... I feel for your boy. Firstly, as politicly unpopular on this board (lord knows why?)..... in OUR case, the drooling and the sensory numbness around the face had a direct relationship to the casien (milk) products my son was eating. As many of kids with global issues suffer from milk intolerance, you may want to give a 3 week elimination diet a shot and see if it helps. While we 'taught' my son to swallow with cues, he never lost that saliva filled 'juicey' sound to his voice until we had been milk free for about 4 months. He simply was producing too much saliva in his mouth! Note that if you are milk intolerant, it does not mean you will be so forever but that your body may be reacting to something for now whereas if you have an allergy.... that is a forever problem. I am noticing that the more we resolve my sons health issues, the more casien products his body is able to tolerate with the help of enzymes (not Lactaid). As Mark grew older, I realized that for some reason, he just seemed to produce more saliva than was normal! I constantly had to verbally cue him to swallow. There simply was something " wrong " here. Mark, himself, attributes that saliva filled mouth to being thirsty. That is the personal feelings of a 13 year old boy so it is a pretty unscientific observation but it is true..... the child used to always be dying of thirst. This is a sign of EFA deficiency so if you find the same thing...... could be something to look into. My son is on a personalized vitamin plan now and like magic.... that ever present yearning to drink has stopped so obviously something he was deficient in contributed to this issue. One of the things we had to do with my boy is to firm up his mouth and jaw. We did this by using an appliance available at the NACD bookstore (a few people here have bought it without taking their kids there) called a myomunchee. For 15 minutes a day, the child wears the myomunchee and chews, chews, and chews some more. This had the effect of really tightening the muscle groups in my sons jaw. Here is a link to the bookstore and look at program items. NACD is where I take my son for home therapy plans and they have really healed my boy from dyspraxia. http://www.nacdbookstore.com/ There are also various stimulators that you can purchase at the therapy sites to stimulate feeling and sensation on the mouth. While I have never used these items, I have seen them many times in my 'therapy' shopping but I am sure that many moms here have used them. Here is a good lip workout..... get a large button and string it with dental floss. Have your son hold it flat against his teeth using only lip power. Once he can do this, then have a little game of tug-a-war.... 2 minutes, 2 times daily for 3 months! Note: When the larger button is conquored, get a tad smaller and then work down slowly and incrementaly to a standard sized mans shirt button. This is a fun exercise and it really works lip strength! Another item that NACD had me use to strengthen the lips is the http://www.talktools.net horns and straws program. This is a fun program and my son used to have fun doing it each day. We also use the Bite blocks from Talktools as a stabilizer when we do our oral motor exercises and they are really nice. Hope this gives you some ideas and though right now it seems that he will drool forever and no one really understands the social consequences.... believe me.... I do and it is a nightmare for your boy! But with OT work and experimentation with diet (if you haven't already) that drooly mouth does get better. Janice Mother of Mark, 13 [sPAM][ ] Drooling:: what to do for 6yo My 6yo has been in speech therapy since 3 at school and in private therapy. I was told his drooling was sensory related and it did get better when he was in OT. We they tested him and said he didn't need OT anymore and since then the drooling has gone back to what it was. He also has problems putting words together to make sentences. He can say words individually but when he has to put them together they sound like mumbling. However, some of what he says is clear. He does excellent on articulation testing, but when he tried to make a sentence he has problems forming the thoughts and putting together in a sentence. He will say " cream " for " hungry " . Has problems with /th/, /l/, and maybe /r/ sounds. The speech therapist doesn't think it is anything to worry about. Also, his sentences seem short to me. But, he has moments when he will talk and talk. He also keeps referring to females as " he " or " him " . He is trying to get this correct because he will point it out to me when he does it right. Can anyone suggest anything I can do for him, because no one is working on the articulation. Speech therapy is usually work on words ending in /sh/. I have found a lady who does mood-Bell, but she is self trained. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 We had that experience specifically with milk. ENT later confirmed he has seen this with *some* kids as did OT. Neither recommended milk loss though. > > My 6yo has been in speech therapy since 3 at school and in private > > therapy. I was told his drooling was sensory related and it did get > > better when he was in OT. We they tested him and said he didn't > > need OT anymore and since then the drooling has gone back to what it > > was. > > > > He also has problems putting words together to make sentences. He > > can say words individually but when he has to put them together they > > sound like mumbling. However, some of what he says is clear. He > > does excellent on articulation testing, but when he tried to make a > > sentence he has problems forming the thoughts and putting together > > in a sentence. He will say " cream " for " hungry " . Has problems > > with /th/, /l/, and maybe /r/ sounds. The speech therapist doesn't > > think it is anything to worry about. > > > > Also, his sentences seem short to me. But, he has moments when he > > will talk and talk. He also keeps referring to females as " he " > > or " him " . He is trying to get this correct because he will point it > > out to me when he does it right. > > > > Can anyone suggest anything I can do for him, because no one is > > working on the articulation. Speech therapy is usually work on > > words ending in /sh/. > > > > I have found a lady who does mood-Bell, but she is self trained. > > > > Thanks. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 If you have no problems trying out new ideas, I have taken my son to The National Association for Child Development for the past year and a half and these people have changed my boys outcome! This is a non-profit organization so it is reasonably priced and they 'know' our kids. Since the success I have had with Mark, there are a few moms who take there kids to NACD who are on this board. They have two main offices, one in West Chester, PA and the other in Ogden, Utah and then there about 10 other cities that the staff travel to so that they can evaluate kids every three months and design home therapy plans for the moms to do. The staff of NACD work with kids from the severely brain-injured to CP to ASD to dyspraxia and all sorts of syndromes that I have never heard of before, to the typical child to the supremely gifted. Most of their accellerated kids started out like ours and the success Mark has had under their care is amazing and wonderful. He has blossomed and just recently received a Neurotypical evaluation. It is very hard work but I shall forever be in the debt of this organization for how they saved my child at age 11. The exercises that I gave you on my previous email are all from NACD. Here are a few videos to watch. http://www.nacd.org/tour/video.html http://www.nacd.org/tour/video2.html http://www.nacd.org/tour/video3.html Kids with dyspraxia need more than 1 or 2 times a week of therapy in order to beat it..... especially if it is global dyspraxia/apraxia. They need daily therapy particularly if they are older. The older you get with dyspraxia, the more behind your peer group you get. So if you have good therapy, ensure that you are getting exercises (homework) to do every single day. Note that we see an environmental doctor too (like a DAN) so that was part of the sollution but the therapy was the major component to our success. Janice Mother of Mark, 13 Re: excess saliva > > Hi diapermom 2! > > You don't say your child's age since some aspects may be > developmental, but based on your email name of diapermom -I guess > either your son is young has potty delays. > > I do understand your son has saliva just sitting/pooling in the > mouth and he's either not swallowing often enough, which is > also part of what can happen when a child drools too even though > your son is not drooling, or his body is producing more saliva than > he really needs. Unfortunately the former (drooling) is yet another > one that I can relate to with my oldest son, and fortunately this > too did pass! > > You first want to rule out there are no medical, physical etc > reasons for too much saliva in the mouth. > http://www.alsa-or.org/treatment/Saliva > http://www.technologyandlanguage.com/presentations/drooling/ > http://www.duit.uwa.edu.au/web/inclusion/disability/saliva.html > There are medications (and probably nutritional interventions as > well!) to reduce saliva in the mouth if that is the reason. > http://www.alsa-or.org/treatment/Saliva > I also read there can be psychological triggers of too much saliva - > such as nervousness. So could be a number of reasons. Again > however you are the first to mention too much saliva here...without > the > drooling part. > > In addition to discussing with your child's MD, as well as > specialists such as ENTs, which I highly recommend -perhaps some of > the strategies for droolers will work for your child in the meantime? > > The following are two or three archived messages from about 2 years > ago. This never came up before either because it's not common for a > child to have lots of saliva in their mouth and not drool -or most > don't want to talk about it -so the archives are on drooling. > > As far as drooling -Tanner never really went thought even > the 'normal' drooping stage -Dakota made up for that big time -but > has not drooled at all for years. Therapy deals with lots of stuff, > strategies help cover what therapy misses -this is yet another > example. Hope some of the following can help. > > From: " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Thanks for sharing professional information - and please continue to join in! Here's some more back from years years ago: Feeding Strategies to Increase Sensory Organization by A. Ortega, M.S., CCC-SLP http://www.cherab.org/information/speechlanguage/feeding.html Strategies to Enhance Mealtime Behaviors by A. Ortega, M.S., CCC-SLP http://www.cherab.org/information/speechlanguage/mealtimetips.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Actually, no one has suggested that I do anything about the drooling. The SLP never has mentioned it, but the OT told me it was sensory. I'm going to try the straw thing. Do you know of any websites that give exercises that I can try? Thanks. > > I wouldn't worry too much about the th and r errors in a 6 year old (I am a speech pathologist).?? Those error sounds are developmental and will hopefully correct on their own soon.? Many SLP's wont work on those sounds with a 6 year old because they are develiopmental.? As for the drooling, are you doing any strenghtening exercises ?? You can try drinking thick liquids like milkshakes, pudding or apple sauce through different size straws.? > > > [ ] Drooling:: what to do for 6yo > > > > > > > My 6yo has been in speech therapy since 3 at school and in private > therapy. I was told his drooling was sensory related and it did get > better when he was in OT. We they tested him and said he didn't > need OT anymore and since then the drooling has gone back to what it > was. > > He also has problems putting words together to make sentences. He > can say words individually but when he has to put them together they > sound like mumbling. However, some of what he says is clear. He > does excellent on articulation testing, but when he tried to make a > sentence he has problems forming the thoughts and putting together > in a sentence. He will say " cream " for " hungry " . Has problems > with /th/, /l/, and maybe /r/ sounds. The speech therapist doesn't > think it is anything to worry about. > > Also, his sentences seem short to me. But, he has moments when he > will talk and talk. He also keeps referring to females as " he " > or " him " . He is trying to get this correct because he will point it > out to me when he does it right. > > Can anyone suggest anything I can do for him, because no one is > working on the articulation. Speech therapy is usually work on > words ending in /sh/. > > I have found a lady who does mood-Bell, but she is self trained. > > Thanks. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 We drink Rice Dream and pretty much no cheese. He only really gets ice cream once in a while at school, and the only other milk is in the processed foods he eats. Would this be too much milk? Thanks. --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 have you checked for heavy metal toxicity? my son had 50 single unintellible words at 3.5. At that point I came to the end of my rope with the mainstream/conventional route. We started DAN and everything changed. First, we worked on his immune problems, and voila - where there were only labels ie. hypertonia, there were now reasons for the problems. How dare I ask for a root cause for all of these systemic problems? Bottom line: the real " apraxia " was in truth a damaged detox system - no mainstream/conventional professional had come close to anything but waste my time and a boat load of money. When toxins can't get out - dyspraxia, apraxia, autism, allergies - basically the new childhood epidemics. As we get the toxins out - his ability to communicate improves. To properly, effectively and cost efficiently deal with this problem you MUST have a professional who is focusing on it. Or, you spend spend your days shuttling your kid to therapy and hope he grows out of it. All I can say is I am glad I didn't listen to the phd who told me to concentrate on therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 If you are testing for elimination diet purposes elimination is what you would need to do to get the best idea if it is an issue. > > We drink Rice Dream and pretty much no cheese. He only really gets > ice cream once in a while at school, and the only other milk is in > the processed foods he eats. Would this be too much milk? > > Thanks. > > > > --- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 We had to eliminate all milk in every source. vaborn9902 wrote: > We drink Rice Dream and pretty much no cheese. He only really gets > ice cream once in a while at school, and the only other milk is in > the processed foods he eats. Would this be too much milk? > > Thanks. > > > > --- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 I don't know any specific websites but Super Duper Inc. is a great company that has a website of products/programs you can? buy and it has free shipping!? One more thing- I've seen a lot of kids who drool or have that slushy speech and it turns out that their tonsils are really enlarged and caused a lot of these problems.? Just a thought! Amy [ ] Drooling:: what to do for 6yo > > > > > > > My 6yo has been in speech therapy since 3 at school and in private > therapy. I was told his drooling was sensory related and it did get > better when he was in OT. We they tested him and said he didn't > need OT anymore and since then the drooling has gone back to what it > was. > > He also has problems putting words together to make sentences. He > can say words individually but when he has to put them together they > sound like mumbling. However, some of what he says is clear. He > does excellent on articulation testing, but when he tried to make a > sentence he has problems forming the thoughts and putting together > in a sentence. He will say " cream " for " hungry " . Has problems > with /th/, /l/, and maybe /r/ sounds. The speech therapist doesn't > think it is anything to worry about. > > Also, his sentences seem short to me. But, he has moments when he > will talk and talk. He also keeps referring to females as " he " > or " him " . He is trying to get this correct because he will point it > out to me when he does it right. > > Can anyone suggest anything I can do for him, because no one is > working on the articulation. Speech therapy is usually work on > words ending in /sh/. > > I have found a lady who does mood-Bell, but she is self trained. > > Thanks. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Eliminating milk eliminates my son's drooling. He will drool if he sneak in some sort of milk products. --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 , in a nutshell could you tell me what you did to correct the immune problems. We have done supplements, dmsa (briefly) and hbot (really seemed to help). He seems to keep a white tongue, but recently tested for strep showed none. I made him do the spit in the jar of water to test for yeast, but it didn't show anything. How did you know that it was immune problems, did your child stay sick? Thanks for your help. > > have you checked for heavy metal toxicity? my son had 50 single > unintellible words at 3.5. At that point I came to the end of my > rope with the mainstream/conventional route. > > We started DAN and everything changed. First, we worked on his > immune problems, and voila - where there were only labels ie. > hypertonia, there were now reasons for the problems. How dare I ask > for a root cause for all of these systemic problems? > > Bottom line: the real " apraxia " was in truth a damaged detox system - > no mainstream/conventional professional had come close to anything > but waste my time and a boat load of money. > > When toxins can't get out - dyspraxia, apraxia, autism, allergies - > basically the new childhood epidemics. > > As we get the toxins out - his ability to communicate improves. > > To properly, effectively and cost efficiently deal with this problem > you MUST have a professional who is focusing on it. > > Or, you spend spend your days shuttling your kid to therapy and hope > he grows out of it. > > All I can say is I am glad I didn't listen to the phd who told me to > concentrate on therapy. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Tonsils are large, but doesn't seem to affect his breathing at night, unlike his brother who has large tonsils and adenoids. > > > > I wouldn't worry too much about the th and r errors in a 6 year > old (I am a speech pathologist).?? Those error sounds are > developmental and will hopefully correct on their own soon.? Many > SLP's wont work on those sounds with a 6 year old because they are > develiopmental.? As for the drooling, are you doing any > strenghtening exercises ?? You can try drinking thick liquids like > milkshakes, pudding or apple sauce through different size straws.? > > > > > > [ ] Drooling:: what to do for 6yo > > > > > > > > > > > > > > My 6yo has been in speech therapy since 3 at school and in private > > therapy. I was told his drooling was sensory related and it did > get > > better when he was in OT. We they tested him and said he didn't > > need OT anymore and since then the drooling has gone back to what > it > > was. > > > > He also has problems putting words together to make sentences. He > > can say words individually but when he has to put them together > they > > sound like mumbling. However, some of what he says is clear. He > > does excellent on articulation testing, but when he tried to make > a > > sentence he has problems forming the thoughts and putting together > > in a sentence. He will say " cream " for " hungry " . Has problems > > with /th/, /l/, and maybe /r/ sounds. The speech therapist doesn't > > think it is anything to worry about. > > > > Also, his sentences seem short to me. But, he has moments when he > > will talk and talk. He also keeps referring to females as " he " > > or " him " . He is trying to get this correct because he will point > it > > out to me when he does it right. > > > > Can anyone suggest anything I can do for him, because no one is > > working on the articulation. Speech therapy is usually work on > > words ending in /sh/. > > > > I have found a lady who does mood-Bell, but she is self > trained. > > > > Thanks. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 : Not every apraxic child is vaccine impaired! Not every single child needs to run to a DAN either. It is wonderful that you were able to find a DAN to help you help your child. I find it sad that you bash mainstream doctors every chance you get because they couldn't help you. You have a child with a unique situation. I have had some not so good doctors and I have had some wonderful doctors that have helped my child. Apraxia/dyspraxia involves so much and there are a lot of options for parents to help their children! Drooling could be an oral motor problem which is common in apraxia and a good SLP would be able to evaluate a child and do oral motor therapy to help in the areas that need help!! http://www.speech- therapy-on-video.com/oralmotorexercises.html http://www.speech-therapy-on-video.com/oralmotor.html Oral motor therapy OR Hyposensitivity to oral input (under-registers)as a sensory issue stated in the message by the mother that OT helped with this sensory issue! SLP could help with this also. http://www.sensory-processing-disorder.com/sensory-processing- disorder-checklist.html (copy and paste) Sensory Info http://www.sensory-processing-disorder.com/sensory-integration- activities.html (copy and paste) acitivities for sensory issues 14. ORAL MOTOR TOYS/PRODUCTS/GAMES: Occupational Therapists and Speech Therapists treat hundreds of children every day who have difficulties with oral motor control and difficulty regulating sensory input in the mouth (hypo- or hyper- sensitive). These are the children who have difficulties with speech, eating, are constantly putting things in their mouth, drooling, or never eating anything besides applesauce and yogurt. Tina > > have you checked for heavy metal toxicity? my son had 50 single > unintellible words at 3.5. At that point I came to the end of my > rope with the mainstream/conventional route. > > We started DAN and everything changed. First, we worked on his > immune problems, and voila - where there were only labels ie. > hypertonia, there were now reasons for the problems. How dare I ask > for a root cause for all of these systemic problems? > > Bottom line: the real " apraxia " was in truth a damaged detox system - > no mainstream/conventional professional had come close to anything > but waste my time and a boat load of money. > > When toxins can't get out - dyspraxia, apraxia, autism, allergies - > basically the new childhood epidemics. > > As we get the toxins out - his ability to communicate improves. > > To properly, effectively and cost efficiently deal with this problem > you MUST have a professional who is focusing on it. > > Or, you spend spend your days shuttling your kid to therapy and hope > he grows out of it. > > All I can say is I am glad I didn't listen to the phd who told me to > concentrate on therapy. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Drooling often a symptom associated with low tone in the mouth area and/or mouth breathing. Ask a speech pathologist for oral motor exercises to strengthen the lips, tongue etc. It can also be sensory in that the child does not recognize or feel the build up of saliva. Use verbal prompts as a reminder for him to swallow. Other options include medications and surgery to redirect the salivary glands. Randi (mom to handsome Graham, 11yo CP for lack of a better diagnosis, hypotonia, non-verbal, MR) Founder, Giving Greetings Cards & Gifts www.SayitwithSymbols.com www.CafePress.com/SayitwithSymbol Gift Shop Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Right, and the mouth breathing, in our case, was part of the milk puzzle according to our ENT. > > Drooling often a symptom associated with low tone in the mouth area and/or > mouth breathing. Ask a speech pathologist for oral motor exercises to > strengthen the lips, tongue etc. It can also be sensory in that the child > does not recognize or feel the build up of saliva. Use verbal prompts as a > reminder for him to swallow. Other options include medications and surgery > to redirect the salivary glands. > > > > Randi (mom to handsome Graham, 11yo CP for lack of a better diagnosis, > hypotonia, non-verbal, MR) > > > > Founder, Giving Greetings Cards & Gifts > > www.SayitwithSymbols.com > > www.CafePress.com/SayitwithSymbol Gift Shop > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Personally, I do think a damaged detox system is the one thing a lot of us *may* have in common. The cause is what I think differs. Is metal the cause of all of this? Even if it is did the metal come first or the genetic predisposition, the allergy, etc.? I think no one, not even some of the DANs look at this enough. What is the sense of chelating, supplementing or dieting if you eat the wrong food for your genetic profile? Fail to address an allergen? Continue bathe or drink bad water? Use too much of or the wrong supplements? Continue to get shots with preservatives you cannot handle or unpreserved and staggered shots with viruses or other ingredients you can't handle? Plus there is the issue of viruses and/or bacterial infections received in utero (not to mention metal from mom's amalgams. Since one of the things that came up for me on our journey was a dx of Epstein Barr it does make me wonder if I had that with either pregnancy. Some things I may never know. Doesn't keep me from looking. Not saying anyone else should look. I think in the end all of us should do what we are most comfortable for the safety and welfare of our individual children and be comfortable enough in our own decisins not to chide others for theirs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 , Ditto here! We conquored a LOT with therapy but we are doing round 5 of DMSA to get the lead and mercury out..... I can see my son normalizing right before my very eyes. My child had been damaged by metals and the real path to healing is to get rid of them! This is politically unpopular but I think that as of tonight, Larry King will change that and we will all be more comfortable about speaking of these issues without getting all hot under the collar. Society has got to 'get over-itself' and do its best for the sake of the children. We must rise above and rescue our kids and our planet. Bottom line is: imo, the metals must come out and the metabolic pathways must get healed or our children will never be completely normal! They will always be a step or two behind everyone else. That is no way to live if you can help it. Janice Mother of Mark, 13 [sPAM][ ] Re: Drooling:: what to do for 6yo have you checked for heavy metal toxicity? my son had 50 single unintellible words at 3.5. At that point I came to the end of my rope with the mainstream/conventional route. We started DAN and everything changed. First, we worked on his immune problems, and voila - where there were only labels ie. hypertonia, there were now reasons for the problems. How dare I ask for a root cause for all of these systemic problems? Bottom line: the real " apraxia " was in truth a damaged detox system - no mainstream/conventional professional had come close to anything but waste my time and a boat load of money. When toxins can't get out - dyspraxia, apraxia, autism, allergies - basically the new childhood epidemics. As we get the toxins out - his ability to communicate improves. To properly, effectively and cost efficiently deal with this problem you MUST have a professional who is focusing on it. Or, you spend spend your days shuttling your kid to therapy and hope he grows out of it. All I can say is I am glad I didn't listen to the phd who told me to concentrate on therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Ice-cream is a tough one. To really 'see' whether or not casien is an issue, you need to completely eliminate it for a period of 3 weeks from your life. No casien in anything.... even white bread has it! So if you want to check this, do it right so that you absolutely 'know' for sure. Three weeks of milk free and then have a milk day.... we tested it by going to Dairy Queen after 3 weeks! Some have a variety of milk products for a day and then you need to go back to milk free for a few days to see the reaction. Some milk responders will react that day (as my son did) or they react the next day or two. If your son has a reaction..... don't worry.... you won't miss it! Those of us with kids who are milk free have kids who have responded 'violently' to the consequences of milk. There are peptides in milk that mimic an opiate response in some people and this affects many different systems. In order to see it, the casien must be completely out of the body and this takes 3 weeks to accomplish. So..... a 3 week trial elimination diet is the only way to absolutely " know " . If you don't see a reaction then add it back in and move on to the next source of possible issues.... your child is not a responder. If your child IS a responder, you will find real progress when you get rid of the milk completely for a while. Janice Mother of Mark, 13 [sPAM][ ] Re: Drooling:: what to do for 6yo We drink Rice Dream and pretty much no cheese. He only really gets ice cream once in a while at school, and the only other milk is in the processed foods he eats. Would this be too much milk? Thanks. --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 All children are wired a bit differently. That said, in my case, I really have to credit hyperbaric oxygen therapy for helping boost my sons impaired immune system to where I felt comfortable enough to use a compounded chelator. But we did about 1.5 year of fairly consistant supplementation (and testing) prior to doing 40 dives of hyperbarics in a hard chamber. And, I will also say if you get the feeling you've reached your current Dr.'s limit - it's not a bad idea to get a fresh pair of eyes on the case. And, I do continually read and research and stay on top of any new studies. And, there are conferences held all over the country with the top Dr.'s speaking, new information/studies shared. If you go to a conference, you will know immediately if you are moving forward or your stagnating. I hope that answered your question. > > , in a nutshell could you tell me what you did to correct the > immune problems. We have done supplements, dmsa (briefly) and hbot > (really seemed to help). He seems to keep a white tongue, but > recently tested for strep showed none. I made him do the spit in > the jar of water to test for yeast, but it didn't show anything. > > How did you know that it was immune problems, did your child stay > sick? > > Thanks for your help. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 The only thing that cleared up my son's drool was no milk in ANYTHING! I now hate holidays where the kids get candy and treats. Valentines Day was pretty awful in our house. The kids snuck some candy and the drool was back along with other horrid behaviors. Look for items that state " PARVE " as these are dairy free for religious reasons. I agree with Janice below. > > Ice-cream is a tough one. To really 'see' whether or not casien is an issue, you need to completely eliminate it for a period of 3 weeks from your life. No casien in anything.... even white bread has it! So if you want to check this, do it right so that you absolutely 'know' for sure. Three weeks of milk free and then have a milk day.... > > we tested it by going to Dairy Queen after 3 weeks! Some have a variety of milk products for a day and then you need to go back to milk free for a few days to see the reaction. Some milk responders will react that day (as my son did) or they react the next day or two. If your son has a reaction..... don't worry.... you won't miss it! > > Those of us with kids who are milk free have kids who have responded 'violently' to the consequences of milk. There are peptides in milk that mimic an opiate response in some people and this affects many different systems. In order to see it, the casien must be completely out of the body and this takes 3 weeks to accomplish. > > So..... a 3 week trial elimination diet is the only way to absolutely " know " . If you don't see a reaction then add it back in and move on to the next source of possible issues.... your child is not a responder. If your child IS a responder, you will find real progress when you get rid of the milk completely for a while. > > Janice > Mother of Mark, 13 > > > > > > > [sPAM][ ] Re: Drooling:: what to do for 6yo > > > We drink Rice Dream and pretty much no cheese. He only really gets > ice cream once in a while at school, and the only other milk is in > the processed foods he eats. Would this be too much milk? > > Thanks. > > --- > > > > > Quote Link to comment Share on other sites More sharing options...
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