Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Colleen-- do you mean me or someone else? bek In a message dated 1/15/2009 10:45:13 P.M. Eastern Standard Time, colleen.somerville@... writes: Amy, There is one mom on the apraxiadyspraxiabioThere is one mom on the apraxiadys with type 1 diabeties if you wanted to join. Hope that helps! Colleen [childrens Anyone out there have a child with severe Apraxia and Type 1 Diabetes? Our son was just diagnosied with diabetes this week. Because he can't talk, is only 3, we had no idea that he was this sick-until doctors finally agreed to a urine test. Just checking to see if there is anyone out there with a child with Apraxia and diabetes. Amy [Non-text portions of this message have been removed] **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Amy- I am Becky, and my son, Asa (4 1/2) was just hospitalized on 12/20/12/24 with the onset of Juv. Type 1 and yes, he is also severely Apraxic/Dyspraxic I would love to talk to you offline if you ever wanted to-- my email is _TBNiesh@..._ (mailto:TBNiesh@...) Becky In a message dated 1/15/2009 10:22:35 P.M. Eastern Standard Time, akdemmons@... writes: Anyone out there have a child with severe Apraxia and Type 1 Diabetes? Our son was just diagnosied with diabetes this week. Because he can't talk, is only 3, we had no idea that he was this sick-until doctors finally agreed to a urine test. Just checking to see if there is anyone out there with a child with Apraxia and diabetes. Amy **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 My son is type 1 also. Charlotte Henry **************Inauguration '09: Get complete coverage from the nation's capital.(http://www.aol.com?ncid=emlcntaolcom00000027) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Amy, There is one mom on the apraxiadyspraxiabiomed board whose so was just dx with type 1 diabeties if you wanted to join. Hope that helps! Colleen [ ] Apraxia and Diabetic Anyone out there have a child with severe Apraxia and Type 1 Diabetes? Our son was just diagnosied with diabetes this week. Because he can't talk, is only 3, we had no idea that he was this sick-until doctors finally agreed to a urine test. Just checking to see if there is anyone out there with a child with Apraxia and diabetes. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 I have made 300 business cards and I give them to 's teachers, associates, other people he comes into contact with. One side of the card has symptoms: hunger nervousness and shakiness perspiration dizzyness or lightheadedness sleepiness confusion difficulty sleeping (nightmares) difficulty sleeping feeling anxious or weak the other side of the card has the treatment of hypoglycemia and says that if you think your blood glucose level is too low to use a meter to check your levels and if the level is below 70 to have one of these quick fix foods right away to raise your blood glucose level 2 or 3 glucose tablets 4 ouncews of any fruit juice 4 oz of a regular not diet soft drink 8 oz milk 5 or 6 pieces of hard candy 1 or 2 teaspoons of sugar or candy I have also used plain sugar on my finger tip and applied to the gums when Josh was unable to respond Josh can kind of tell when he is getting low as he will kind of get a blank stare and he can have trouble walking because he is weak or he will be unable to open his mouth. The first sign of diabetes is usually a wet bed, nightmares being thirsty alot, having to go to bathroom continually. It can be an intermittent problem which makes it harder to identify and when the blood sugar gets too high nausea is another symptom. Dehydration can be very fast and severe and usually requires iv fluids and close monitoring of glucose levels. We took his blood sugarr 6 times a day at first at 8 12 4 8, 12, and 3am I was afraid that something could happen in his sleep at first. There is a mother of 8 also on this board whose son was recently diagnosed. We use insulin pens because they are very convenient. There are monthly support groups here for kids with diabetes. Tyler is the international chairman. She was diagnosed with type 1 in her 40's and she is now in her 7o's. " Insulin is not a cure' is our motto. There is a program called Trial Net who will test siblings free of charge to see if they have the gene associated with diabetes. The most important thing is to closely monitor the diet and test several times a day. We also have an RN at his school. He carries his lunch and I label the carbohydrates on the lunch I pack. It isn't always exact so sometimes we round up or down depending on what he ate last. Skin care is also very important and foot care especially. We found out Josh had a hangnail he had been chewing on and had covered it with a bandaid and we had to treat it very aggressively with soaks 4 times a day oral antibiotics, a antibiotic ointment and 3 office visits. Dental care is also important. Weight loss is another important sign. Josh had only gained a pound in a years time.The fast food places all have nutritional information sheets that list the carbohydrates. He only drinks diet pop unless his numbers are low. Iowa isn't a very big state but we raised over 2 million dollars in this state last year. 85% of all the money raised goes to research. My husbands employee matches any donation we make 100% and I do some volunteer work also. We have a huge walk to raise money and it is a lot of fun for the kids too with inflatables, face painting and lots of activities for the kids. There is also Camp Hertko where diabetic kids go to camp. No kid is ever turned away regardless of their ability to pay. I get all the thanks I need whenever I like into my sons eyes. He feels so much better now. We still have issues but they seem trivial compared to what we have accomplished. We only have to see our endocrinologist every 3 months now. I also carry a business card for autism that says; Autism helpful hints for interactions with individuals with autism use simple language, speak slowly and carefully use concrete terms and ideas repeat simple questions allowing 10-15 seconds for a response proceed slowly and give encouragement do not attempt to physically stop self-stimulating behavior remember each individual with autism is unique and may act or react differently please contact a responsible person who is familiar with the individual the other side of the card lists communication may be nonverbal or have very limited verbal abilities may repeat words or phrases in place of normal communication may have difficulty expressing needs using gestures or pointing behavior may have tantrums and display extreme distress for no appearant reason may exhibit inappropriate giggling or laughing may show no real fear of danger may be sensitive to touch, bright light or sound may appear insensitive to pain may exhibit self stimulating behavior such as hand flapping, finger flicking, body rocking in criminal justice situations may not understand rights may have difficulty remembering facts or details of offenses may become anxious in new situations may not understand consequences of their actions if Josh has a meltdown or some one stares I just give them a card that way I can give my attention to Josh Hope this helps Contact me anytime Charlotte Henry **************Inauguration '09: Get complete coverage from the nation's capital.(http://www.aol.com?ncid=emlcntaolcom00000027) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Can you decribe some of your  son's symptoms? Our son can't speak either and we are wondering about diabetes. He has and autism dx, but stims a lot when he hasn't had enough to eat. thanks [ ] Apraxia and Diabetic Anyone out there have a child with severe Apraxia and Type 1 Diabetes? Our son was just diagnosied with diabetes this week. Because he can't talk, is only 3, we had no idea that he was this sick-until doctors finally agreed to a urine test. Just checking to see if there is anyone out there with a child with Apraxia and diabetes. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 the warning signs for diabetes are as follows: (there are more, but these are the main ones you typically see) ~Increased Thirst ~Increased Urination ~Bedwetting or accidents ~Sudden un-explained weight loss ~eyes have a glazed over look-- if child is old enough they might be able to tell you their eyes are cloudy, etc (blurred vision) hope this helps bek In a message dated 1/16/2009 1:05:52 P.M. Eastern Standard Time, editaddict@... writes: Can you decribe some of your son's symptoms? Our son can't speak either and we are wondering about diabetes. He has and autism dx, but stims a lot when he hasn't had enough to eat. thanks -----Original Message----- From: akdemmons <_akdemmons@..._ (mailto:akdemmons@...) > _ childrensaprachi_ (mailto: ) Sent: Thu, 15 Jan 2009 10:21 pm Subject: [childrensapraxianeSubject: [childrensapraxian Anyone out there have a child with severe Apraxia and Type 1 Diabetes? Our son was just diagnosied with diabetes this week. Because he can't talk, is only 3, we had no idea that he was this sick-until doctors finally agreed to a urine test. Just checking to see if there is anyone out there with a child with Apraxia and diabetes. Amy [Non-text portions of this message have been removed] **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 this are typically signs or Hypoglycemia (low blood sugar) but not always something you will typically see before the onset of diabetes bek\ In a message dated 1/16/2009 4:21:54 P.M. Eastern Standard Time, stehn4@... writes: hunger nervousness and shakiness perspiration dizzyness or lightheadedness sleepiness confusion difficulty sleeping (nightmares) difficulty sleeping feeling anxious or weak **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 This would be ME! :-) Bek In a message dated 1/16/2009 4:21:54 P.M. Eastern Standard Time, stehn4@... writes: There is a mother of 8 also on this board whose son was recently diagnosed. **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Oh...sorry......you liked my business card idea. Charlotte **************Inauguration '09: Get complete coverage from the nation's capital.(http://www.aol.com?ncid=emlcntaolcom00000027) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 weight loss is the only other symptom I can think of, there are also behavior changes. We really noticed a change in behavior after Josh started getting insulin. He was much more cooperative. **************Inauguration '09: Get complete coverage from the nation's capital.(http://www.aol.com?ncid=emlcntaolcom00000027) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 I see you did put the wight loss on the list. **************Inauguration '09: Get complete coverage from the nation's capital.(http://www.aol.com?ncid=emlcntaolcom00000027) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 My husband's niece has type 1 and her symptoms mimicked a virus. In fact, the drs missed diabetes and she ended up collapsing and was rushed to CHOA via ambulance.  She now has zero pancreatic functioning.  I think that this would not have been missed if they were in Atlanta, but they live in a small city in southern Georgia.  She had all the typical symptoms of diabetes but the drs down played it.  She is not apraxic.  The information transmitted is intended only for the person or entity to which it is addressed and may contain confidential, proprietary, and/or privileged material. Any review, retransmission, dissemination or other use of, or taking of any action in reliance upon, this information by persons or entities other than the intended recipient is prohibited. If you receive this in error, please contact the sender and delete the material from all computers. Sharon Lang From: tbniesh@... <tbniesh@...> Subject: Re: [ ] Apraxia and Diabetic Date: Friday, January 16, 2009, 5:21 PM the warning signs for diabetes are as follows: (there are more, but these are the main ones you typically see) ~Increased Thirst ~Increased Urination ~Bedwetting or accidents ~Sudden un-explained weight loss ~eyes have a glazed over look-- if child is old enough they might be able to tell you their eyes are cloudy, etc (blurred vision) hope this helps bek In a message dated 1/16/2009 1:05:52 P.M. Eastern Standard Time, editaddictaol (DOT) com writes: Can you decribe some of your son's symptoms? Our son can't speak either and we are wondering about diabetes. He has and autism dx, but stims a lot when he hasn't had enough to eat. thanks [childrensapraxian Anyone out there have a child with severe Apraxia and Type 1 Diabetes? Our son was just diagnosied with diabetes this week. Because he can't talk, is only 3, we had no idea that he was this sick-until doctors finally agreed to a urine test. Just checking to see if there is anyone out there with a child with Apraxia and diabetes. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Hi Charlotte: I am more familiar with Type 2 diabetes....so I was reading yesterday about Type 1 and found some articles you might be interested in if you haven't seen them. I thought the genetic connection between diabetes and celiac disease was interesting. It is a lab listed for children with apraxia as is Carnitine. I'm sure you have seen the list of labs for apraxia many times so posting for others that might not have seen it since last posted. Tina Table 4: Suggested Apraxia Work-up Bloodwork • Plasma Vit ADEK levels, zinc, copper, PIVKA-II (Protein- induced in Vit K absence-II; more sensitive test for Vit K deficiency); Methylmalonic acid (screen for B12 bioavailability). • Carnitine (total and free) and acyl-carnitine level • Celiac panel (to include anti gliadin IgG, IgA, tTG and total IgA level) • HLA testing for DQ1, DQ2 and DQ8 alleles (if further clarification needed) • Serum iron, ferriten, TIBC • Comprehensive metabolic panel (including LFTs, albumen) • Complete blood count with diff (CBC) • Food Allergy testing (RAST, skin-prick) Stool: • Malabsorption screen: stool for qualitative fecal fat, pH and reducing substances (72- hour quantitative fecal fat collection is indicated if qualitative fecal fat test is abnormal). --------------------------------------------------------- Additional blood labs to consider, but 2nd tier • CK level, lactic acid, pyruvate, plasma amino acids and urine organic acids if not already done as part of metabolic work-up; consider cholesterol/lipid panel • Chromosome analysis for karyotype, Fragile X, and microchip array (if suspect genetic syndrome) Juvenile diabetes, celiac disease linked Findings may lead to new treatments December 11, 2008 WASHINGTON - Type-1 diabetes and celiac disease, also known as gluten intolerance, share at least some genetic roots, researchers reported yesterday. The findings may lead to new treatments for such autoimmune diseases, which are caused when the body's immune system mistakenly destroys healthy tissue. The results of the study, published in the New England Journal of Medicine, also point to some of the same environmental triggers causing both conditions. " These findings suggest common mechanisms causing both celiac and type-1 diabetes. We did not expect to see this very high degree of shared genetic risk factors, " van Heel of St. Barts Hospital and The London School of Medicine and Dentistry said in a statement. The international team studied 9,339 healthy people, 8,064 people with type-1 diabetes, and also 2,560 people with celiac disease. They found four celiac disease genetic mutations that also appeared often in people with type-1 diabetes and two diabetes mutations that also appeared to raise the risk of celiac disease. Type-1 diabetes, also known as juvenile diabetes, is caused by the destruction of beta cells of the pancreas that produce the insulin necessary to regulate blood sugar levels. It is different from the far more common type-2 diabetes, strongly linked with poor diet and a lack of exercise. Celiac disease, also an autoimmune disorder, attacks the small intestine and makes patients intolerant of gluten, a protein found in wheat, barley, and rye. Symptoms include bloating, abdominal pain, nausea, skin problems, depression, joint or bone pain, and nerve problems. " The next step is to understand how these susceptibility genes affect the immune system, and to keep exploring environmental factors that might alter the risk of type-1 diabetes, which results from an incredibly complex interaction between nature and nurture, " said Todd of Britain's University of Cambridge. The findings, Dr. Plenge of Brigham and Women's Hospital wrote in a commentary in the journal, " have implications beyond the shared genetic causes of type-1 diabetes and celiac disease. " Lupus and rheumatoid arthritis, two other autoimmune diseases, have also been linked in studies, Plenge wrote. He said the findings are likely to lead to new treatments for the conditions. According to the World Health Organization, at least 171 million people worldwide suffer from diabetes, with about 5 to 10 percent of them having type-1. Celiac disease is estimated to affect about 1 percent of people of European descent. ------------------------------------------------ http://www.diabetesmonitor.com/b210.htm information on Diabetes and Thyroid problems ------------------------------------------------ http://www.bio-medicine.org/medicine-news/Carnitine-deficiency-in- children-and-adolescents-with-type-1-diabetes--5337-1/ Carnitine deficiency in children and adolescents with type 1 diabetes Carnitine is essential for the lipid and carbohydrate metabolism, and is known to increase the sensitivity of the cells to insulin.// The use of glucose by the peripheral tissues and proper metabolic control in Type 1 diabetes has potential impact on long-term complications. In diabetes, the metabolism of carbohydrate and fat is abnormal and an association between the proper metabolic control and the development of complications is widely recognized. Decreased plasma carnitine levels have already been reported in patients with type 2 diabetes and an underestimated role of carnitine in the clinical course and the complications has been suggested. The development of microvascular complications is uncommon during childhood and adolescence; however, the principles of proper metabolic control must be imparted from the onset. Recognition of carnitine deficiency in these patients may thus have therapeutic implications. In a study published in vol 18 (5) of Journal of diabetes and its Complications, researchers from the Department of Paediatrics, University of Crete, Greece investigated the carnitine levels in children and adolescents with Type 1 diabetes. The plasma total, free, and acylcarnitine levels in 47 children and adolescents with type 1 diabetes were determined by a radioisotopic assay and compared to the values of a series of anthropometric measurements and metabolic parameters, including blood glycosylated hemoglobin Alc, serum cholesterol and triglycerides, and urine microalbumin levels. The results from the study confirm the relative deficiency of total and free carnitine in children and adolescents with Type 1 diabetes. Furthermore, clear evidence is provided that this decrease is time related and that patients with long-standing Type 1 diabetes are prone to carnitine alterations. Larger studies are needed in order to draw firm conclusions and to explore a possible role, if any, of supplementary carnitine in the ------------------------------------------------------------------ > > I see you did put the wight loss on the list. > **************Inauguration '09: Get complete coverage from the nation's > capital.(http://www.aol.com?ncid=emlcntaolcom00000027) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Thanks for sending me a copy of the article. **************Inauguration '09: Get complete coverage from the nation's capital.(http://www.aol.com?ncid=emlcntaolcom00000027) Quote Link to comment Share on other sites More sharing options...
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