Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Hetal, I've got to agree with hubby! He has a good point. I would worry about sedation as well and you've so nearly recovered from autism..... oooooh.... be careful! Let me say, my son had an MRI at the age of 7 and it was singularly uneventful..... completely normal and nothing worth noting. Can't you wait until your boy is a little bigger, a little stronger and a little older? What is this LKVS? Will an MRI confirm it? Will you do anything different (ie. meds, etc) if you know for sure that he has it? Or would you just 'know' and carry on as you have done. I think this would be a big factor if I was making this decision. We will cross our fingers for you no matter what decision you make. Janice [sPAM][ ] MRI- pros and cons I asked my Neuro to order an MRI for my 33 month old son and he reluctantly agreed to it. My son weighs 32 pounds and is 37 inches tall. I wanted to get some feedback with regards to pros and cons of sedation and whether it is worth doing. My husband really isn't on board as he fears the dangers of sedation and possible regression. My son has a dx of Autism and Apraxia of Speech. He is considered nearly recovered from Autism . No seizure activity known. He might possibly have LKVS (Landau Kleffner Variant Syndrome) according to the Washington University lab results. I appreciate any and all input. Thank you, Hetal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 Hetal, I have been in a similar situation and decided it was best that we not regress, due to anateshia (sp). I could not take the chance, as MRIs probably would not have told me a thing. But do I second guess myself? Sometimes, but my warrior mother instinct tells me I am on the right track. Best Wishes to you on this one, Colleen Mother of Charlie 2.5 years Re: [ ] MRI- pros and cons Hetal, I've got to agree with hubby! He has a good point. I would worry about sedation as well and you've so nearly recovered from autism..... oooooh.... be careful! Let me say, my son had an MRI at the age of 7 and it was singularly uneventful..... completely normal and nothing worth noting. Can't you wait until your boy is a little bigger, a little stronger and a little older? What is this LKVS? Will an MRI confirm it? Will you do anything different (ie. meds, etc) if you know for sure that he has it? Or would you just 'know' and carry on as you have done. I think this would be a big factor if I was making this decision. We will cross our fingers for you no matter what decision you make. Janice [sPAM][ ] MRI- pros and cons I asked my Neuro to order an MRI for my 33 month old son and he reluctantly agreed to it. My son weighs 32 pounds and is 37 inches tall. I wanted to get some feedback with regards to pros and cons of sedation and whether it is worth doing. My husband really isn't on board as he fears the dangers of sedation and possible regression. My son has a dx of Autism and Apraxia of Speech. He is considered nearly recovered from Autism . No seizure activity known. He might possibly have LKVS (Landau Kleffner Variant Syndrome) according to the Washington University lab results. I appreciate any and all input. Thank you, Hetal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 This issue came up for us with a CT Scan last year when we thought we only had " delays. " Pediatrician wanted CT to address early fontanelle closure. Well, CT Scan would only confirm what we already knew, that it had closed early. I took him to a neuro and asked if my assessment of this was correct and that they would do nothing different with this info. She said yes and to go home and enjoy him. If I were in your shoes it comes down to this: What are they looking for? If they find it would it help you get better help for the child or would you just know something and not be able to do anything different? If so, I'd bag it. Hang tough whatever you do and if the test is needed be sure to talk to the anesthesiologist about allergioes and safest options. Best Wishes! > > Hetal, > > I have been in a similar situation and decided it was best that we not > regress, due to anateshia (sp). I could not take the chance, as MRIs > probably would not have told me a thing. But do I second guess myself? > Sometimes, but my warrior mother instinct tells me I am on the right track. > > Best Wishes to you on this one, > > Colleen > > Mother of Charlie 2.5 years > > > Re: [ ] MRI- pros and cons > > > > Hetal, > > I've got to agree with hubby! He has a good point. I would worry about > sedation as well and you've so nearly recovered from autism..... > > oooooh.... be careful! > > Let me say, my son had an MRI at the age of 7 and it was singularly > uneventful..... completely normal and nothing worth noting. > > Can't you wait until your boy is a little bigger, a little stronger and a > little older? What is this LKVS? Will an MRI confirm it? Will you do > anything different (ie. meds, etc) if you know for sure that he has it? Or > would you just 'know' and carry on as you have done. I think this would be a > big factor if I was making this decision. > > We will cross our fingers for you no matter what decision you make. > > Janice > > [sPAM][ ] MRI- pros and cons > > I asked my Neuro to order an MRI for my 33 month old son and he > reluctantly agreed to it. My son weighs 32 pounds and is 37 inches > tall. I wanted to get some feedback with regards to pros and cons of > sedation and whether it is worth doing. > > My husband really isn't on board as he fears the dangers of sedation > and possible regression. My son has a dx of Autism and Apraxia of > Speech. He is considered nearly recovered from Autism . No seizure > activity known. He might possibly have LKVS (Landau Kleffner Variant > Syndrome) according to the Washington University lab results. > > I appreciate any and all input. > Thank you, > Hetal > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 We also have opted not to have an MRI. Our Neuro has said it might help provide answers to why but short of something very unusual it wouldn't change the treatment. Having had several MRIs myself (in both older and newer machines) complete sedation for a young one would be necessary in order to get an accurate test. I know docs say sedation is fine, but we know our kids are on the sensitive end of the spectrum anyway. Besides, docs also say immunizations are safe. Mother of Sydney 23 months > > Hetal, > > I have been in a similar situation and decided it was best that we not > regress, due to anateshia (sp). I could not take the chance, as MRIs > probably would not have told me a thing. But do I second guess myself? > Sometimes, but my warrior mother instinct tells me I am on the right track. > > Best Wishes to you on this one, > > Colleen > > Mother of Charlie 2.5 years > > > Re: [ ] MRI- pros and cons > > > > Hetal, > > I've got to agree with hubby! He has a good point. I would worry about > sedation as well and you've so nearly recovered from autism..... > > oooooh.... be careful! > > Let me say, my son had an MRI at the age of 7 and it was singularly > uneventful..... completely normal and nothing worth noting. > > Can't you wait until your boy is a little bigger, a little stronger and a > little older? What is this LKVS? Will an MRI confirm it? Will you do > anything different (ie. meds, etc) if you know for sure that he has it? Or > would you just 'know' and carry on as you have done. I think this would be a > big factor if I was making this decision. > > We will cross our fingers for you no matter what decision you make. > > Janice > > [sPAM][ ] MRI- pros and cons > > I asked my Neuro to order an MRI for my 33 month old son and he > reluctantly agreed to it. My son weighs 32 pounds and is 37 inches > tall. I wanted to get some feedback with regards to pros and cons of > sedation and whether it is worth doing. > > My husband really isn't on board as he fears the dangers of sedation > and possible regression. My son has a dx of Autism and Apraxia of > Speech. He is considered nearly recovered from Autism . No seizure > activity known. He might possibly have LKVS (Landau Kleffner Variant > Syndrome) according to the Washington University lab results. > > I appreciate any and all input. > Thank you, > Hetal > > Quote Link to comment Share on other sites More sharing options...
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