Re: Hi - I'm New Here! (long)

[Guest guest]

Can anyone help me with the Omega Oil questions?

Thanks, Jill

>

> Hi Everyone!

>

> I am so excited to have found this group. My name is Jill and I

have a

> 3 year old DS with a big time speech delay. (about a year behind)

He

> also has SPD/SSD and possible CAPD. We received services for a

year

> thru birth to 3 and now we are in the school dist for speech and

spec

> ed preschool.

>

> DS had severe ear infections from 11 months - 25 months old, he

went

> from saying words and even little sentences at 12 mos " mama whats

> that? " to not talking at all, just yelling, pointing and grunting.

He

> had fluid on his middle ears for over 9 months. We had an awful

ped

> who kept telling us that it will clear up and he will be fine. But

in

> the mean time we had a little boy who went from happy to

sad/confused

> and WILD!!! I have massive mothers guilt from letting the ear

> infections go for so long. I was so stupid to keep listening to

the

> doc!!

>

> I Finally got a second opinion and found a great ENT who said DS

was

> the worst she had seen in a while - 2 days later he had tubes put

in.

> That was about 10 months ago, he has gone from no words to abut 50

a

> day - he comes up with new words every week - but he still has a

hard

> time getting the words out. I totally suspect apraxia, his OT

thinks

> so too. His SPT thinks he is too young for the diagnosis. His

> receptive skills are great, his expressive are way behind. Speech

> therapy was useless thru birth to 3, the SPT was not very good, and

DS

> would not co-operate very much. Since turning 3 last month he now

gets

> speech thru the school district, which seems much better and he

> qualified for spec ed preschool - I think b/c he would not co-

operate

> for 1 hour sessions of therapy - so they apply speech therapy

during a

> school setting.

>

> I have taken DS to about 10 different doctors and therapists, the

last

> doc we saw this fall - a DAN! doc did a full autism screening and

> advised DS was not on the spectrum (like all the other docs had

said

> before) but something was NOT neuro typical. He is a sensory

seeker,

> and very hard to understand. He suspected apraxia too - but could

not

> make that diagnosis.

>

> We saw the greatest leaps with GFCF Diet and DAN! protocol, his

SPD/SSD

> is totally in check these days - very calm and organized - follows

> directions very well - but the Speech is VERY slow going.

>

> I am so excited to have found this group - I literally spent hours

> reading all your links last night and listening to the voice

> recordings. The Cherub Organization seems AWESOME!!!

>

> We currently give DS Nordic Naturals Arctic Cod Liver Oil. Which

is

> mainly Omega 3's. But now I need to start him on the PRO EFA.

>

> My question - how much do you give your children? Our DAN! has us

give

> DS 2 tsp of CLO a day. Woud this be the same for the PRO EFA?

>

> Sorry so long - so excited to learn more!

>

> Thanks, Jill

>

[Guest guest]

hi Jill,

the ratio that works for everyone here is

-complete omega 3-6-9 2 gelcaps nordic naturals

-EPA nordic naturals      1 gelcap

i just use a push pin and squeeze the product into some yogourt.

just fyi, the liquid stuff tends to go rancid quickly, so that why the gelcaps.

you don't really know if it has turned until you start seeing regressions.

hth

sandy                                    

________________________________

From: jilltracy74 <jilltracy74@...>

Sent: Monday, December 22, 2008 9:08:18 AM

Subject: [ ] Re: Hi - I'm New Here! (long)

Can anyone help me with the Omega Oil questions?

Thanks, Jill

>

> Hi Everyone!

>

> I am so excited to have found this group. My name is Jill and I

have a

> 3 year old DS with a big time speech delay. (about a year behind)

He

> also has SPD/SSD and possible CAPD. We received services for a

year

> thru birth to 3 and now we are in the school dist for speech and

spec

> ed preschool.

>

> DS had severe ear infections from 11 months - 25 months old, he

went

> from saying words and even little sentences at 12 mos " mama whats

> that? " to not talking at all, just yelling, pointing and grunting.

He

> had fluid on his middle ears for over 9 months. We had an awful

ped

> who kept telling us that it will clear up and he will be fine. But

in

> the mean time we had a little boy who went from happy to

sad/confused

> and WILD!!! I have massive mothers guilt from letting the ear

> infections go for so long. I was so stupid to keep listening to

the

> doc!!

>

> I Finally got a second opinion and found a great ENT who said DS

was

> the worst she had seen in a while - 2 days later he had tubes put

in.

> That was about 10 months ago, he has gone from no words to abut 50

a

> day - he comes up with new words every week - but he still has a

hard

> time getting the words out. I totally suspect apraxia, his OT

thinks

> so too. His SPT thinks he is too young for the diagnosis. His

> receptive skills are great, his expressive are way behind. Speech

> therapy was useless thru birth to 3, the SPT was not very good, and

DS

> would not co-operate very much. Since turning 3 last month he now

gets

> speech thru the school district, which seems much better and he

> qualified for spec ed preschool - I think b/c he would not co-

operate

> for 1 hour sessions of therapy - so they apply speech therapy

during a

> school setting.

>

> I have taken DS to about 10 different doctors and therapists, the

last

> doc we saw this fall - a DAN! doc did a full autism screening and

> advised DS was not on the spectrum (like all the other docs had

said

> before) but something was NOT neuro typical. He is a sensory

seeker,

> and very hard to understand. He suspected apraxia too - but could

not

> make that diagnosis.

>

> We saw the greatest leaps with GFCF Diet and DAN! protocol, his

SPD/SSD

> is totally in check these days - very calm and organized - follows

> directions very well - but the Speech is VERY slow going.

>

> I am so excited to have found this group - I literally spent hours

> reading all your links last night and listening to the voice

> recordings. The Cherub Organization seems AWESOME!!!

>

> We currently give DS Nordic Naturals Arctic Cod Liver Oil. Which

is

> mainly Omega 3's. But now I need to start him on the PRO EFA.

>

> My question - how much do you give your children? Our DAN! has us

give

> DS 2 tsp of CLO a day. Woud this be the same for the PRO EFA?

>

> Sorry so long - so excited to learn more!

>

> Thanks, Jill

>

__________________________________________________________________

Canada Toolbar: Search from anywhere on the web, and bookmark your

favourite sites. Download it now at

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[Guest guest]

Jill here's a new member archive that may help:

Below is a new member archive that keeps it simple on what to know to

start.

Re: Hi! New and wondering about apraxia.

Hi Mrs Laurie and welcome!

Your son sounds like he has some oral apraxia which would of course

need to be confirmed by professionals. If oral apraxia is present

together with your child's delay he should at least be diagnosed

as " suspected apraxia " and appropriate therapy should be provided.

He is entitled by federal law to a free and appropriate public

education (FAPE) in the least restrictive environment (LRE) which

means that if 5 days of one on one speech therapy is appropriate for

him then that's what he should receive. What type of speech therapy

is he receiving from the school right now when you say " some " ?

Below is a very long archive to help -please know that you don't have

to understand it all at once -we're here as a group to help!

Thanks for sharing. This group has from the start been a group

that's made up of parents and professionals who care for children

with many types of speech and/or language delays and/or disorders.

There are parents here for example with undiagnosed " late talkers "

and we just have not heard from them in awhile. It's actually a

really good thing when there is a mix of us to share because we all

learn from each other as many diagnoses can overlap -or down the road

we learn that our child does have co diagnosis.

While this group is open to parents of all children with

communication impairments -including hearing impaired, autistic etc.

it wasn't that all that posted recently had a child with autism, or

autism and apraxia -but because of society focus on autism -many here

started following an autism approach -including ABA in some cases!

That's understandable if the much more basic approach to apraxia -ST

and OT and EFAs were tried first and didn't work -but some were

trying that to start.

The overwhelming majority (if you check the archives) have success

with the basic approach to apraxia.

On the other hand- most of us are dealing with more than verbal

apraxia.we just don't know that when our child is 2 -and we learn

through professionals and observations as they continue to grow and

more and more is expected of them. This is also why it's important

to take your child for a neurodevelopmental medical exam when your

child is suspected of apraxia to confirm or rule out other diagnosis

such as sensory integration dysfunction etc. The earlier you know -

the sooner to start appropriate therapies to get them up to speed by

kindergarten.

Don't let it overwhelm you -perhaps we aren't meant to know more

than what we have to know at each stage. We'll be here to help along

the way. It's OK to have any type of emotion when we find out our

child has more than a simple delay -or " more " than " just " verbal

apraxia. And it's OK to be completely overwhelmed and saddened to

find out your child has apraxia. And as I was one of those parents

it's never " just " apraxia when you find out!!!

It's OK to be upset " just " because your child is a " late talker " too!

Please know that I too believed Tanner to just have apraxia and have

my first message posted to a grouplist about that below.but down the

road found out he had a few other things we needed to help him

address. The incredible news is that the majority of our children if

you check history are up to speed to be mainstreamed by kindergarten-

and of course many have learned with communication impaired children

that it's best to start kindergarten at 6 vs. 5 to give them that one

extra year of therapy and developmental time.

If you have questions after reading the following please share them.

This group has always been a wealth of information for all of us, no

matter how long we've been here.

Below is a new member archived message to hopefully answer more of

your questions for now (did you read The Late Talker yet?) For updated

information on fish oils and vitamin E and more - please visit the

links section here

/links

What type of apraxic like speech behaviors are you seeing that makes

you and the SLP suspect your child has apraxia vs. a simple delay in

speech? Is your child talking at all yet? At your child's age -

without speech, it's difficult to diagnose verbal apraxia -they

could " suspect " verbal apraxia and begin treatment just in case,

which wouldn't hurt your child if he ended up just having a simple

delay. Just a few questions before we could provide more accurate

answers:

Does your child have signs of oral apraxia? (for example, can he on

command smile, imitate funny faces, blow bubbles...if you put peanut

butter anywhere around his mouth can he lick it off no matter where

it is?)

http://www.cherab.org/information/speechlanguage/oralapraxia.html

Does your child have any neurological " soft signs " such as hypotonia

or sensory integration dysfunction?

http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html

Who else evaluated your child? Was it only the SLP through your

town school or was he also in Early Intervention through the state?

(birth to three) Was he evaluated by both a speech pathologist as

well as an occupational therapist? Was/were they knowledgeable

about apraxia? (If your child wasn't diagnosed by an occupational

therapist as well and professionals suspect apraxia -I highly

recommend you request that too either through both the school as

well as private through insurance for many reasons)

To answer any questions you may have about taking your child to see a

neurodevelopmental MD if he has not yet been to one and apraxia is

suspected... in one word - " Yes!!! " I would have your child diagnosed

(private) by a neurodevelopmental medical doctor (developmental

pediatrician or pediatric neurologist) who is knowledgeable about

apraxia and other neurologically based multi-faceted communication

impairments for numerous reasons. Reasons include (but not limited

to)

*having a " hero " on the outside of the school who can assist in a

therapeutic plan and oversee your child's development over the years

*advocacy support with the insurance company

* ruling out or confirming any neurological soft signs or any other

reasons for the delay in speech

*help those that ask " why isn't he talking yet " understand this is a

medical condition -and has nothing to do with your child's cognitive

ability. (if in your child's case it doesn't. Apraxia in itself

does not affect a child's cognitive ability -and speaking early or

late is no indication of a child's intelligence. Also contrary to

popular belief -most who have speech impairments have average to

above average intelligence)

Here's an article written by Neurodevelopmental Pediatrician Dr.

Marilyn Agin that was featured as a cover article in Contemporary

Pediatrics -a trade magazine for hundreds of thousands of pediatric

medical professionals across the US. (I wrote the parent guide)

" The " late talker " -when silence isn't golden

Not all children with delayed speech are " little Einsteins " or garden

variety " late bloomers. " Some have a speech-language disorder that

will persist unless warning signs are recognized and intervention

comes early. Includes a Guide for Parents. "

Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics

http://contemporarypediatrics.modernmedicine.com/radio_peds4

Actual article (where you can read it for free)

http://opsc.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720

There are also many activities parents can do at home with their

child to

promote the development of speech. These are detailed in the Guide

for Parents

http://www.contemporarypediatrics.com/contpeds/article/articleDetail.jsp?id=1363\

15

This guide was written by

[Guest guest]

Hello,

can you kindly give out the name of this ENT?

thanks,

Rhea

________________________________

From: jilltracy74 <jilltracy74@...>

Sent: Sunday, December 21, 2008 1:49:56 PM

Subject: [ ] Hi - I'm New Here! (long)

Hi Everyone!

I am so excited to have found this group. My name is Jill and I have a

3 year old DS with a big time speech delay. (about a year behind) He

also has SPD/SSD and possible CAPD. We received services for a year

thru birth to 3 and now we are in the school dist for speech and spec

ed preschool.

DS had severe ear infections from 11 months - 25 months old, he went

from saying words and even little sentences at 12 mos " mama whats

that? " to not talking at all, just yelling, pointing and grunting. He

had fluid on his middle ears for over 9 months. We had an awful ped

who kept telling us that it will clear up and he will be fine. But in

the mean time we had a little boy who went from happy to sad/confused

and WILD!!! I have massive mothers guilt from letting the ear

infections go for so long. I was so stupid to keep listening to the

doc!!

I Finally got a second opinion and found a great ENT who said DS was

the worst she had seen in a while - 2 days later he had tubes put in.

That was about 10 months ago, he has gone from no words to abut 50 a

day - he comes up with new words every week - but he still has a hard

time getting the words out. I totally suspect apraxia, his OT thinks

so too. His SPT thinks he is too young for the diagnosis. His

receptive skills are great, his expressive are way behind. Speech

therapy was useless thru birth to 3, the SPT was not very good, and DS

would not co-operate very much. Since turning 3 last month he now gets

speech thru the school district, which seems much better and he

qualified for spec ed preschool - I think b/c he would not co-operate

for 1 hour sessions of therapy - so they apply speech therapy during a

school setting.

I have taken DS to about 10 different doctors and therapists, the last

doc we saw this fall - a DAN! doc did a full autism screening and

advised DS was not on the spectrum (like all the other docs had said

before) but something was NOT neuro typical. He is a sensory seeker,

and very hard to understand. He suspected apraxia too - but could not

make that diagnosis.

We saw the greatest leaps with GFCF Diet and DAN! protocol, his SPD/SSD

is totally in check these days - very calm and organized - follows

directions very well - but the Speech is VERY slow going.

I am so excited to have found this group - I literally spent hours

reading all your links last night and listening to the voice

recordings. The Cherub Organization seems AWESOME!!!

We currently give DS Nordic Naturals Arctic Cod Liver Oil. Which is

mainly Omega 3's. But now I need to start him on the PRO EFA.

My question - how much do you give your children? Our DAN! has us give

DS 2 tsp of CLO a day. Woud this be the same for the PRO EFA?

Sorry so long - so excited to learn more!

Thanks, Jill

[Guest guest]

Rhea - I am in Wisconsin - her name is Dr. and she is

highly recommended.

>

> Hello,

> can you kindly give out the name of this ENT?

> thanks,

>

> Rhea

>

>

>

>

> ________________________________

> From: jilltracy74 <jilltracy74@...>

>

> Sent: Sunday, December 21, 2008 1:49:56 PM

> Subject: [ ] Hi - I'm New Here! (long)

>

>

> Hi Everyone!

>

> I am so excited to have found this group. My name is Jill and I

have a

> 3 year old DS with a big time speech delay. (about a year behind)

He

> also has SPD/SSD and possible CAPD. We received services for a year

> thru birth to 3 and now we are in the school dist for speech and

spec

> ed preschool.

>

> DS had severe ear infections from 11 months - 25 months old, he

went

> from saying words and even little sentences at 12 mos " mama whats

> that? " to not talking at all, just yelling, pointing and grunting.

He

> had fluid on his middle ears for over 9 months. We had an awful ped

> who kept telling us that it will clear up and he will be fine. But

in

> the mean time we had a little boy who went from happy to

sad/confused

> and WILD!!! I have massive mothers guilt from letting the ear

> infections go for so long. I was so stupid to keep listening to the

> doc!!

>

> I Finally got a second opinion and found a great ENT who said DS

was

> the worst she had seen in a while - 2 days later he had tubes put

in.

> That was about 10 months ago, he has gone from no words to abut 50

a

> day - he comes up with new words every week - but he still has a

hard

> time getting the words out. I totally suspect apraxia, his OT

thinks

> so too. His SPT thinks he is too young for the diagnosis. His

> receptive skills are great, his expressive are way behind. Speech

> therapy was useless thru birth to 3, the SPT was not very good, and

DS

> would not co-operate very much. Since turning 3 last month he now

gets

> speech thru the school district, which seems much better and he

> qualified for spec ed preschool - I think b/c he would not co-

operate

> for 1 hour sessions of therapy - so they apply speech therapy

during a

> school setting.

>

> I have taken DS to about 10 different doctors and therapists, the

last

> doc we saw this fall - a DAN! doc did a full autism screening and

> advised DS was not on the spectrum (like all the other docs had

said

> before) but something was NOT neuro typical. He is a sensory

seeker,

> and very hard to understand. He suspected apraxia too - but could

not

> make that diagnosis.

>

> We saw the greatest leaps with GFCF Diet and DAN! protocol, his

SPD/SSD

> is totally in check these days - very calm and organized - follows

> directions very well - but the Speech is VERY slow going.

>

> I am so excited to have found this group - I literally spent hours

> reading all your links last night and listening to the voice

> recordings. The Cherub Organization seems AWESOME!!!

>

> We currently give DS Nordic Naturals Arctic Cod Liver Oil. Which is

> mainly Omega 3's. But now I need to start him on the PRO EFA.

>

> My question - how much do you give your children? Our DAN! has us

give

> DS 2 tsp of CLO a day. Woud this be the same for the PRO EFA?

>

> Sorry so long - so excited to learn more!

>

> Thanks, Jill

>

>

>

>

>

>

>