Hi - I'm New Here! (long)

[Guest guest]

Hi Everyone!

I am so excited to have found this group. My name is Jill and I have a

3 year old DS with a big time speech delay. (about a year behind) He

also has SPD/SSD and possible CAPD. We received services for a year

thru birth to 3 and now we are in the school dist for speech and spec

ed preschool.

DS had severe ear infections from 11 months - 25 months old, he went

from saying words and even little sentences at 12 mos " mama whats

that? " to not talking at all, just yelling, pointing and grunting. He

had fluid on his middle ears for over 9 months. We had an awful ped

who kept telling us that it will clear up and he will be fine. But in

the mean time we had a little boy who went from happy to sad/confused

and WILD!!! I have massive mothers guilt from letting the ear

infections go for so long. I was so stupid to keep listening to the

doc!!

I Finally got a second opinion and found a great ENT who said DS was

the worst she had seen in a while - 2 days later he had tubes put in.

That was about 10 months ago, he has gone from no words to abut 50 a

day - he comes up with new words every week - but he still has a hard

time getting the words out. I totally suspect apraxia, his OT thinks

so too. His SPT thinks he is too young for the diagnosis. His

receptive skills are great, his expressive are way behind. Speech

therapy was useless thru birth to 3, the SPT was not very good, and DS

would not co-operate very much. Since turning 3 last month he now gets

speech thru the school district, which seems much better and he

qualified for spec ed preschool - I think b/c he would not co-operate

for 1 hour sessions of therapy - so they apply speech therapy during a

school setting.

I have taken DS to about 10 different doctors and therapists, the last

doc we saw this fall - a DAN! doc did a full autism screening and

advised DS was not on the spectrum (like all the other docs had said

before) but something was NOT neuro typical. He is a sensory seeker,

and very hard to understand. He suspected apraxia too - but could not

make that diagnosis.

We saw the greatest leaps with GFCF Diet and DAN! protocol, his SPD/SSD

is totally in check these days - very calm and organized - follows

directions very well - but the Speech is VERY slow going.

I am so excited to have found this group - I literally spent hours

reading all your links last night and listening to the voice

recordings. The Cherub Organization seems AWESOME!!!

We currently give DS Nordic Naturals Arctic Cod Liver Oil. Which is

mainly Omega 3's. But now I need to start him on the PRO EFA.

My question - how much do you give your children? Our DAN! has us give

DS 2 tsp of CLO a day. Woud this be the same for the PRO EFA?

Sorry so long - so excited to learn more!

Thanks, Jill