Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 , Glad you are back with us. Hope you back problems are over. Hang in there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 , Sorry to hear you still have no relief from that pain. I have faith in this group and believe we have settled down to give support to each other. I know you have tried many things but ti seems there must be some solution for you! You know I live close and I would be happy to help if there is anyway that I can. ... Even if you do have all those animals...I'll wear my boots! LOL Love, Patty -----Original Message-----From: gina413@... [mailto:gina413@...] Sent: Tuesday, June 03, 2003 11:06 PM Subject: [ ] Our Support Group To Everyone: I have not been able to post or read many emails recently due to severe back pain.I pray that all will settle down and that we can bring our group back to what it was before, a peaceful and loving support group, which we all desperately need.To all who have had recent procedures, may you be blessed with good results. For those who are awaiting procedures, may they go smoothly for you and pain free.And, especially for those who are awaiting a new liver, may God bless you with the perfect one and hasten your wait.For all of you who are suffering the day-to-day pains and inconveniences of this disease, as well as multiple diseases, may God give you the strength and courage and sense of humor to carry on with grace.I pray that God will place His hand on this group and calm the waters.Love and prayers -gina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 .. > > For all of you who are suffering the day-to-day pains and inconveniences of > this disease, as well as multiple diseases, may God give you the strength and > courage and sense of humor to carry on with grace. Hi Thank you for those wonderful thoughts. Some days are really hard to handle. I try to think possitve thoughts as much as I can. Hugs, Ginger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 I love this group and believe that we could all do so much to share our experiences. It is so true that we all must find restraint and not abuse others who hold different opinions. Janice [sPAM][ ] Our support group Due to circumstances, I've been speaking to some of the original moderators who have not been posting here but who want to come back. There is going to be a few tweaks to this group to get this group back to being a warm, supportive and informative place to come. In the coming weeks you will be seeing more posts from some of the " old timers " that have words of wisdom to share and we are looking forward to more of this group feeling free to also join in to share their views. We are aware that what works for most doesn't work for all and as always encourage everyone to share their view as well as alternatives. However there are strategies or therapies that are known by professionals as well as parents to be more or less appropriate for the majority. New parents to our group are looking for guidance as to what would be the best way to start. We may not all agree, but we will encourage all to write their opinions in a way that doesn't hurt others. We will no longer post messages that express opinions in an angry way. It will still be the same group -just a bit warmer. A place to come and share information and hopes and fears and strategies -like it was for the most part for it's entire existence. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 That is so nice to hear. I came to this group for help and direction but I read alot of bickering and not alot of helpful information unless I looked way back. I actually left soon after finding ya'll because I did feel like this was a support group I was looking for. But after recieving this message from the moderator I will be back for help and support. Thank you, Thank you, Thank you!!! > > Due to circumstances, I've been speaking to some of the original > moderators who have not been posting here but who want to come back. > There is going to be a few tweaks to this group to get this group > back to being a warm, supportive and informative place to come. In > the coming weeks you will be seeing more posts from some of the " old > timers " that have words of wisdom to share and we are looking forward > to more of this group feeling free to also join in to share their > views. > > We are aware that what works for most doesn't work for all and as > always encourage everyone to share their view as well as > alternatives. However there are strategies or therapies that are > known by professionals as well as parents to be more or less > appropriate for the majority. New parents to our group are looking > for guidance as to what would be the best way to start. > > We may not all agree, but we will encourage all to write their > opinions in a way that doesn't hurt others. We will no longer post > messages that express opinions in an angry way. > > It will still be the same group -just a bit warmer. A place to come > and share information and hopes and fears and strategies –like it was > for the most part for it's entire existence. > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 THANK YOU! It is nice to hear. I am also a member of Natural Late Talkers. Which is a very great support group. I would recommend it for help encouraging speech and language development. It has helped me tremendously. I have held off looking here as much b/c it makes me sad when the moms are trying to one up each other and make one feel inferior for doing what they think to be right. It was frustrating to read what I did read b/c I wanted to scream, " you are BOTH right!! " And your children are all very lucky to have all of you. Obviously everyone here is very convicted to do right by their children. I am glad moderators will take the focus in the right direction. Kris Reichert <reicherts6@...> wrote: That is so nice to hear. I came to this group for help and direction but I read alot of bickering and not alot of helpful information unless I looked way back. I actually left soon after finding ya'll because I did feel like this was a support group I was looking for. But after recieving this message from the moderator I will be back for help and support. Thank you, Thank you, Thank you!!! > > Due to circumstances, I've been speaking to some of the original > moderators who have not been posting here but who want to come back. > There is going to be a few tweaks to this group to get this group > back to being a warm, supportive and informative place to come. In > the coming weeks you will be seeing more posts from some of the " old > timers " that have words of wisdom to share and we are looking forward > to more of this group feeling free to also join in to share their > views. > > We are aware that what works for most doesn't work for all and as > always encourage everyone to share their view as well as > alternatives. However there are strategies or therapies that are > known by professionals as well as parents to be more or less > appropriate for the majority. New parents to our group are looking > for guidance as to what would be the best way to start. > > We may not all agree, but we will encourage all to write their > opinions in a way that doesn't hurt others. We will no longer post > messages that express opinions in an angry way. > > It will still be the same group -just a bit warmer. A place to come > and share information and hopes and fears and strategies –like it was > for the most part for it's entire existence. > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Although I know my GD is not one of the natural late talkers (oh how I wish she were) - I so agree with 's post. It is just do hard in the beginning to start learning all of this and then all of a sudden feel like you are not doing enough . DAN docs and biomed wise and diet wise. I am an educated former public school kindergarten teacher and my school was on the lower socio-economic side of the tracks so to speak. Maybe some of you can understand that I have taught every type of child in the world it seems like, from crack children to who knows what, and I NEVER, EVER had a child with apraxia. Because of this list, I have been able to look back and see where the children who had SID tendencies were in my classroom - but I had never been educated in regards to this and their parents had no idea either - but they knew what it took for their child to cope and trust me, I learned to believe in the parent and that they knew best!!!! I think this list is headed back in the right direction!! I totally respect the opinion of all parents and what they think is helping their child to succeed. I also know what it feels like to not really believe what they do and to also not have the money to pursue their methods. Trust me, that is not a good feeling . . . the what ifs. . . . Sincerely, Pam in GA. kristen cook wrote: > > THANK YOU! It is nice to hear. I am also a member of Natural Late > Talkers. Which is a very great support group. I would recommend it for > help encouraging speech and language development. It has helped me > tremendously. I have held off looking here as much b/c it makes me sad > when the moms are trying to one up each other and make one feel > inferior for doing what they think to be right. It was frustrating to > read what I did read b/c I wanted to scream, " you are BOTH right!! " > And your children are all very lucky to have all of you. Obviously > everyone here is very convicted to do right by their children. I am > glad moderators will take the focus in the right direction. > > > Kris Reichert <reicherts6@... <mailto:reicherts6%40>> > wrote: > That is so nice to hear. I came to this group for help and direction > but I read alot of bickering and not alot of helpful information > unless I looked way back. I actually left soon after finding ya'll > because I did feel like this was a support group I was looking for. > But after recieving this message from the moderator I will be back > for help and support. Thank you, Thank you, Thank you!!! > > > > > > Due to circumstances, I've been speaking to some of the original > > moderators who have not been posting here but who want to come back. > > There is going to be a few tweaks to this group to get this group > > back to being a warm, supportive and informative place to come. In > > the coming weeks you will be seeing more posts from some of the " old > > timers " that have words of wisdom to share and we are looking > forward > > to more of this group feeling free to also join in to share their > > views. > > > > We are aware that what works for most doesn't work for all and as > > always encourage everyone to share their view as well as > > alternatives. However there are strategies or therapies that are > > known by professionals as well as parents to be more or less > > appropriate for the majority. New parents to our group are looking > > for guidance as to what would be the best way to start. > > > > We may not all agree, but we will encourage all to write their > > opinions in a way that doesn't hurt others. We will no longer post > > messages that express opinions in an angry way. > > > > It will still be the same group -just a bit warmer. A place to > come > > and share information and hopes and fears and strategies --like it > was > > for the most part for it's entire existence. > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Thanks Becky and Molly! I totally agree. I also am concerned about the " new direction " as I'm fairly new to this group and have a son who needs more intervention than just fish oil, vitamin E, and speech therapy. It's been those moms who " get that " that have helped me and encouraged me so much! I hope this group can welcome (that doesn't necessarily mean agree with) the fact that there are many types of interventions that can be helpful. Personally, I will feel alienated if this group becomes mostly/only about fish oil, vitamin E, speech therapy, and school placement....and if there are posts that are being censored that can be helpful for people on this board. in CA > > I totally agree with Becky here. I think the topic of controlling group dynamics is what some people do their dissertations on and there they are usually studying groups of 20 or 30 people or maybe up to 100 but certainly not the 7,653 people we have in this group. I think it is awesome how this group works and if it does " change " , I hope it is not by too much, or in anyway that will stifle natural discussions. > > Molly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Hi and Molly -- I totally agree. I feel that all interventions that work are worth a post. Somethings work for one child and not another. I have had many professionals, slp, ot, behavioralists etc. echo this sentiment as well. We personally have had no success with the fish oil and vitamin e (although she did have to go off of the e for a couple of surgeries). Her success is coming from Rosenfeld- oral motor exercises, PROMPT, The Listening program and NACD exercises. We also had great success with mild Hyperbaric oxygen, but it was not sustainable success. Once the treatments stopped, so did the speech. Plus, it was not covered by insurance and quite expensive. Let's keep an open mind about things but remember that most of us on this board are parnets and are not really authorized to give advice to other parents. It is all antectdoctal until studies exist that verify data. I really don't want sensorship of topics. I am totally open to interventions that are safe and have the potential to help her speech. I welcome all input, and we just parents need to filter and run things past local professionals who work with the child. I am very results oriented. As a non-professional that is what I feel is the best approach . Sharon spearson40 <brentsusan@...> wrote: Thanks Becky and Molly! I totally agree. I also am concerned about the " new direction " as I'm fairly new to this group and have a son who needs more intervention than just fish oil, vitamin E, and speech therapy. It's been those moms who " get that " that have helped me and encouraged me so much! I hope this group can welcome (that doesn't necessarily mean agree with) the fact that there are many types of interventions that can be helpful. Personally, I will feel alienated if this group becomes mostly/only about fish oil, vitamin E, speech therapy, and school placement....and if there are posts that are being censored that can be helpful for people on this board. in CA > > I totally agree with Becky here. I think the topic of controlling group dynamics is what some people do their dissertations on and there they are usually studying groups of 20 or 30 people or maybe up to 100 but certainly not the 7,653 people we have in this group. I think it is awesome how this group works and if it does " change " , I hope it is not by too much, or in anyway that will stifle natural discussions. > > Molly The information transmitted is intended only for the person or entity to which it is addressed and may contain confidential, proprietary, and/or privileged material. Any review, retransmission, dissemination or other use of, or taking of any action in reliance upon, this information by persons or entities other than the intended recipient is prohibited. If you receive this in error, please contact the sender and delete the material from all computers. Sharon Lang --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 I have been part of this group for 5 years and love how it publishes ALL multidisplinary approaches. I need that with my guy. What normally works with apraxic kids does not normally work with my son. Yes this group has lifted me up, gave me tough love and yes its kinda like my cyber family. Even families have tifs here and there but you know they will never go away....exactly like this group. thanks to lisa and all moderators. Your intellegence and kindness always shines chris [ ] Our support group Due to circumstances, I've been speaking to some of the original moderators who have not been posting here but who want to come back. There is going to be a few tweaks to this group to get this group back to being a warm, supportive and informative place to come. In the coming weeks you will be seeing more posts from some of the " old timers " that have words of wisdom to share and we are looking forward to more of this group feeling free to also join in to share their views. We are aware that what works for most doesn't work for all and as always encourage everyone to share their view as well as alternatives. However there are strategies or therapies that are known by professionals as well as parents to be more or less appropriate for the majority. New parents to our group are looking for guidance as to what would be the best way to start. We may not all agree, but we will encourage all to write their opinions in a way that doesn't hurt others. We will no longer post messages that express opinions in an angry way. It will still be the same group -just a bit warmer. A place to come and share information and hopes and fears and strategies –like it was for the most part for it's entire existence. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Pam welcome!! We will try to have more new member information as well to support people when they come here without a diagnosis and don't know where to start. It's awesome to have teachers here because there are so many multisensory learning styles we've shared here over the years and you'll be one of the best to add input on what worked or didn't work in the classroom with this or that type of child with a unique learning style. I have a great archive about various proven approaches for education that I'll archive and post. For those that wonder about this group. We will of course as always share all views -we are only moderating so that all parents and professionals feel comfortable posting again -so no more emails that make someone feel upset. We want all to feel comfortable to disagree with what is posted here -and recently many did not. If you check the archives a large amount of parents and professionals posted about many subjects for the past 8 years up till recently -and as far as I recall nothing has been considered off topic. We talk about holidays, travel, TV, cooking..everything. What doesn't relate to parents and professionals that care about children?! We want this group to once again be a warm place that shares all views –a support group where we all can consider each other friends. And many of us over the years were not just friends via email –but got to meet up too- and even the first time we meet it's like we knew each other for years…because we did! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 thank you so much for the kind words. You have so much to share yourself being an ABA therapist that has a child with apraxia. You are one of the " old timers " we hope to hear more from!! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Thanks for posting this " new direction. " I'm a new-ish member that's been lurking for a while. I have a two year old who is only severely verbally apraxic (I don't mean that in any way other than that's her only medical diagnosis). She doesn't have autism or any other medical conditions. I almost disenrolled from this group because every conversation from the time I've joined has been about autism, fish oil or vitamin E. While I don't mind people having those conversations because that's a huge part of many people's lives (and often a " co-condition " with apraxia), the group just was not seeming like a place that was friendly to just verbal apraxia as a diagnosis. I felt like my daughter needed to have " more wrong " to be part of the conversation here. I came here looking for support because there's such a lack of information out there on this condition. I'm glad to see that this may become a great resource for me! As a little background about us: Our daughter, Katy, is severely verbally apraxic (no motor apraxia, just verbal). She's 26 months old, a firecracker and the light of our life. My husband is in the Air Force and we currently live in Germany, so resources are even more scarce for us here. We've found a great developmental pediatrician (who, unfortunately, is getting out of the military and moving to Ohio to work at an apraxia clinic there) and an American Speech Language Pathologist who sees us out of her home. We finally got our first " Mmmm " noise out of her in the last week or so; progress is wonderful! Again, thanks for posting about the direction and intention of this group; it helped to make ME feel more comfortable about staying. Jenn > > Pam welcome!! We will try to have more new member information as > well to support people when they come here without a diagnosis and > don't know where to start. It's awesome to have teachers here > because there are so many multisensory learning styles we've shared > here over the years and you'll be one of the best to add input on > what worked or didn't work in the classroom with this or that type of > child with a unique learning style. I have a great archive about > various proven approaches for education that I'll archive and post. > > For those that wonder about this group. We will of course as always > share all views -we are only moderating so that all parents and > professionals feel comfortable posting again -so no more emails that > make someone feel upset. We want all to feel comfortable to disagree > with what is posted here -and recently many did not. > > If you check the archives a large amount of parents and professionals > posted about many subjects for the past 8 years up till recently -and > as far as I recall nothing has been considered off topic. We talk > about holidays, travel, TV, cooking..everything. What doesn't relate to parents > and professionals that care about children?! > > We want this group to once again be a warm place that shares all > views –a support group where we all can consider each other friends. > And many of us over the years were not just friends via email –but > got to meet up too- and even the first time we meet it's like we knew > each other for years…because we did! > > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Hi Jenn and welcome! Thanks for sharing. This group has from the start been a group that's made up of parents and professionals who care for children with many types of speech and/or language delays and/or disorders. There are parents here for example with undiagnosed " late talkers " and we just have not heard from them in awhile. It's actually a really good thing when there is a mix of us to share because we all learn from each other as many diagnoses can overlap -or down the road we learn that our child does have co diagnosis. While this group is open to parents of all children with communication impairments -including hearing impaired, autistic etc. it wasn't that all that posted recently had a child with autism, or autism and apraxia –but because of society focus on autism -many here started following an autism approach -including ABA in some cases! That's understandable if the much more basic approach to apraxia -ST and OT and EFAs were tried first and didn't work -but some were trying that to start. The overwhelming majority (if you check the archives) have success with the basic approach to apraxia. On the other hand- most of us are dealing with more than verbal apraxia…we just don't know that when our child is 2 -and we learn through professionals and observations as they continue to grow and more and more is expected of them. This is also why it's important to take your child for a neurodevelopmental medical exam when your child is suspected of apraxia to confirm or rule out other diagnosis such as sensory integration dysfunction etc. The earlier you know - the sooner to start appropriate therapies to get them up to speed by kindergarten. Don't let it overwhelm you -perhaps we aren't meant to know more than what we have to know at each stage. We'll be here to help along the way. It's OK to have any type of emotion when we find out our child has more than a simple delay –or " more " than " just " verbal apraxia. And it's OK to be completely overwhelmed and saddened to find out your child has apraxia. And as I was one of those parents it's never " just " apraxia when you find out!!! It's OK to be upset " just " because your child is a " late talker " too! Please know that I too believed Tanner to just have apraxia and have my first message posted to a grouplist about that below…but down the road found out he had a few other things we needed to help him address. The incredible news is that the majority of our children if you check history are up to speed to be mainstreamed by kindergarten- and of course many have learned with communication impaired children that it's best to start kindergarten at 6 vs. 5 to give them that one extra year of therapy and developmental time. If you have questions after reading the following please share them. This group has always been a wealth of information for all of us, no matter how long we've been here. Below is a new member archived message, and an " EFA 101 basics " archived message to hopefully answer more of your questions for now (did you read The Late Talker yet?) For updated information on vitamin E and more - please visit the links section here /links What type of apraxic like speech behaviors are you seeing that makes you and the SLP suspect your child has apraxia vs. a simple delay in speech? Is your child talking at all yet? At your child's age - without speech, it's difficult to diagnose verbal apraxia -they could " suspect " verbal apraxia and begin treatment just in case, which wouldn't hurt your child if he ended up just having a simple delay. Just a few questions before we could provide more accurate answers: Does your child have signs of oral apraxia? (for example, can he on command smile, imitate funny faces, blow bubbles...if you put peanut butter anywhere around his mouth can he lick it off no matter where it is?) http://www.cherab.org/information/speechlanguage/oralapraxia.html Does your child have any neurological " soft signs " such as hypotonia or sensory integration dysfunction? http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html Who else evaluated your child? Was it only the SLP through your town school or was he also in Early Intervention through the state? (birth to three) Was he evaluated by both a speech pathologist as well as an occupational therapist? Was/were they knowledgeable about apraxia? (If your child wasn't diagnosed by an occupational therapist as well and professionals suspect apraxia -I highly recommend you request that too either through both the school as well as private through insurance for many reasons) To answer any questions you may have about taking your child to see a neurodevelopmental MD if he has not yet been to one and apraxia is suspected... in one word - " Yes!!! " I would have your child diagnosed (private) by a neurodevelopmental medical doctor (developmental pediatrician or pediatric neurologist) who is knowledgeable about apraxia and other neurologically based multi-faceted communication impairments for numerous reasons. Reasons include (but not limited to) *having a " hero " on the outside of the school who can assist in a therapeutic plan and oversee your child's development over the years *advocacy support with the insurance company * ruling out or confirming any neurological soft signs or any other reasons for the delay in speech *help those that ask " why isn't he talking yet " understand this is a medical condition -and has nothing to do with your child's cognitive ability. (if in your child's case it doesn't. Apraxia in itself does not affect a child's cognitive ability -and speaking early or late is no indication of a child's intelligence. Also contrary to popular belief -most who have speech impairments have average to above average intelligence) Here's an article written by Neurodevelopmental Pediatrician Dr. Marilyn Agin that was featured as a cover article in Contemporary Pediatrics -a trade magazine for hundreds of thousands of pediatric medical professionals across the US. (I wrote the parent guide) " The " late talker " -when silence isn't golden Not all children with delayed speech are " little Einsteins " or garden variety " late bloomers. " Some have a speech-language disorder that will persist unless warning signs are recognized and intervention comes early. Includes a Guide for Parents. " Cover feature article by Late Talker co-author Marilyn Agin MD http://www.contemporarypediatrics.com/contpeds/article/articleDetail.jsp?id=1327\ \ 20 Parent guide of article by Late Talker co-author Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 thank you! [ ] Re: Our support group thank you so much for the kind words. You have so much to share yourself being an ABA therapist that has a child with apraxia. You are one of the " old timers " we hope to hear more from!! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Jenn- I wanted to add WELCOME to the group-- I hope you post more often. I'm sure that there are many challenges that you face being in Germany and in the military, and those challenges would maybe help many others dealing with similar situations. I'm sure you have a lot to offer the group! Becky **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 I think that , you've brought up a VERY good point. I know that there are several parents here with very young diagnosed toddlers, and something that I wish I knew ahead of time is the chances of my child having MORE than " just " Verbal Apraxia. I wish someone had prepared me for that-- The last statistic I've seen on this is an overwhelming 90% Co-morbidity rate for those with Verbal Apraxia to also have some other condition, usually Global Apraxia, which is why we see kids with low muscle tone in their trunk, or gross/fine motor issues, etc. I wasn't aware of this in the beginning, so was a little shocked to find out that as he got a little older, it became more and more evident that there was " something more " there other than just the verbal apraxia. Becky In a message dated 3/25/2008 7:46:15 A.M. Eastern Daylight Time, kiddietalk@... writes: It's actually a really good thing when there is a mix of us to share because we all learn from each other as many diagnoses can overlap -or down the road we learn that our child does have co diagnosis. **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Becky, It is almost as though Mark got diagnosed in 'stages'. Before being diagnosed with dyspraxia, he was diagnosed with expressive and receptive language delays.... a year later, it was hypotonia and gross motor delay.... wait another year and then we had fine motor delay (on the 15% so it was pretty severe) and then FINALLY in first grade, he was diagnosed with dyspraxia. Quite frankly.... he had it all along but no one wanted to diagnose a child so young..... today we recognize the importance of early intervention but still not every one is qualified to diagnose dyspraxia so they give you little 'hints' with words like motor planning issues and hypotonia ake dyspraxia. If you have hypotonia.... you are on the road towards dyspraxia especially if your child is apraxic. Work it YOUNG! The younger the better.... Don't wait and see..... My Dad was talking today about how wonderful Mark's recovery is and how it is so amazing that he has come so far. He is a bit of a fuddy-duddy and always believed Mark to be autistic and never quite believed that he could get better..... I indicated that my son's dyspraxia would never have seen grade 1 had I known at age 3 what I know today. We talked about the importance of telling others and letting people know that kids simply do not grow out of this condition but must be recovered from this condition. Recovery is possible but it is time consuming and requires determination and unwavering 'belief' on the part of the parents. Janice Mother of Mark, 13 [sPAM]Re: [ ] Re: Our support group I think that , you've brought up a VERY good point. I know that there are several parents here with very young diagnosed toddlers, and something that I wish I knew ahead of time is the chances of my child having MORE than " just " Verbal Apraxia. I wish someone had prepared me for that-- The last statistic I've seen on this is an overwhelming 90% Co-morbidity rate for those with Verbal Apraxia to also have some other condition, usually Global Apraxia, which is why we see kids with low muscle tone in their trunk, or gross/fine motor issues, etc. I wasn't aware of this in the beginning, so was a little shocked to find out that as he got a little older, it became more and more evident that there was " something more " there other than just the verbal apraxia. Becky In a message dated 3/25/2008 7:46:15 A.M. Eastern Daylight Time, kiddietalk@... writes: It's actually a really good thing when there is a mix of us to share because we all learn from each other as many diagnoses can overlap -or down the road we learn that our child does have co diagnosis. **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 I hope so. We se great things with speech and even the tone is good but the hand that was a problem from the start is doing a peekaboo thing. One day at a time.Not giving up, not doing anything rash out of desperation. > > Becky, > > It is almost as though Mark got diagnosed in 'stages'. Before being diagnosed with dyspraxia, he was diagnosed with expressive and receptive language delays.... a year later, it was hypotonia and gross motor delay.... wait another year and then we had fine motor delay (on the 15% so it was pretty severe) and then FINALLY in first grade, he was diagnosed with dyspraxia. > > Quite frankly.... he had it all along but no one wanted to diagnose a child so young..... today we recognize the importance of early intervention but still not every one is qualified to diagnose dyspraxia so they give you little 'hints' with words like motor planning issues and hypotonia ake dyspraxia. > > If you have hypotonia.... you are on the road towards dyspraxia especially if your child is apraxic. Work it YOUNG! The younger the better.... Don't wait and see..... > > My Dad was talking today about how wonderful Mark's recovery is and how it is so amazing that he has come so far. He is a bit of a fuddy- duddy and always believed Mark to be autistic and never quite believed that he could get better..... > > I indicated that my son's dyspraxia would never have seen grade 1 had I known at age 3 what I know today. We talked about the importance of telling others and letting people know that kids simply do not grow out of this condition but must be recovered from this condition. Recovery is possible but it is time consuming and requires determination and unwavering 'belief' on the part of the parents. > > Janice > Mother of Mark, 13 > > > > > > [sPAM]Re: [ ] Re: Our support group > > > I think that , you've brought up a VERY good point. I know that there > are several parents here with very young diagnosed toddlers, and something > that I wish I knew ahead of time is the chances of my child having MORE than > " just " Verbal Apraxia. I wish someone had prepared me for that-- > > The last statistic I've seen on this is an overwhelming 90% Co- morbidity > rate for those with Verbal Apraxia to also have some other condition, usually > Global Apraxia, which is why we see kids with low muscle tone in their trunk, or > gross/fine motor issues, etc. > I wasn't aware of this in the beginning, so was a little shocked to find out > that as he got a little older, it became more and more evident that there > was " something more " there other than just the verbal apraxia. > > Becky > > > In a message dated 3/25/2008 7:46:15 A.M. Eastern Daylight Time, > kiddietalk@... writes: > > It's actually a > really good thing when there is a mix of us to share because we all > learn from each other as many diagnoses can overlap -or down the road > we learn that our child does have co diagnosis. > > **************Create a Home Theater Like the Pros. Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15? ncid=aolhom00030000000001) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Thanks! We definitely do have more challenges being here, but that's part of life and we deal with it and overcome it. We have two more years left here and after that I have a feeling we'll help " direct " the military as to where we want to be next to get Katy the best possible care. They really DO try to take care of families in the military; if that means that they assign us close to the best treatment facility they can, then they'll make every attempt to do it. I'm sure in a year or so I'll need a lot of direction from people as to where in the US the best place for us to land next will be! > > Jenn- > I wanted to add WELCOME to the group-- I hope you post more often. I'm > sure that there are many challenges that you face being in Germany and in the > military, and those challenges would maybe help many others dealing with > similar situations. I'm sure you have a lot to offer the group! > > Becky > > > > **************Create a Home Theater Like the Pros. Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Jenn -Tricia Morin who I co founded Speechville with was a moderator here and is also a military family with an apraxic son. She has put together a wealth of support information! She's moved probably 3 or 4 times since starting with our group! Here's just one archive from Tricia /message/33958 Let me know if you have any specific questions! ===== Quote Link to comment Share on other sites More sharing options...
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