Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Thank you so much for all the info Anja On Thu, Jan 15, 2009 at 12:05 PM, kiddietalk <kiddietalk@...> wrote: > Hi Anja, > > I have an archive below but in short you don't have to worry about the > mercury because it binds to the protein which is the muscle of the > fish. There have been numerous studies on testing fish oils for > mercury and there is never any issue with mercury in fish oils. > http://www.cherab.org/news/iomletters.html > (more on mercury in the archive below) > > The main issue is rancidity -which is tested by the peroxide level. > > I have just put up new member info at > our new CHERAB facebook page at the discussion board: > (under " Newly diagnosed with apraxia info " ) > Think this is the direct link but don't know for sure: > > http://www.facebook.com/profile.php?id=1131155429 & ref=name#/topic.php?uid=115029\ 735601 & topic=7329 > > If not you can find it here > http://www.facebook.com/group.php?gid=115029735601 > > The rest is an archive on EFAs. > I do plan on cleaning up the following and putting this up there too > to make it easier for everyone to find all on one page. > (LOVE FB!!) > > ~~~~~~~~~~~~~~~~~~~~~~~~~~ > > The following is an old EFA archive from this group which has worked > in this group for years so it's up on the Speechville message > board. > > Recently there are a few members who are staying with the same > formula -but raising the dosage to multi dosing two to three times a > day and anecdotally they are observing even more dramatic and > accelerated surges. Due to recent messages I want to clarify that > the following was for the average new member who in the majority > will have a child that is 2 to 4 years old. If your child is around > 5 or older you will probably want to start at one a day just for a > week or so and then increase right away to two. Not that you won't > see any changes on the lower dosage but for older children the one a > day (which is comparable to the dosage in infant formula) may not be > enough. Most see the first surges in a day to three weeks almost > across the board. If following a low dose program -most see the > first plateau somewhere between 3-6 months and the second somewhere > between 6 months to a year following the lower dosage way. We don't > know yet as a group if and when plateaus are reached with higher > dosage supplementation. If however you hit a plateau at any point - > you probably want to look to increase dosage -especially if you are > at one a day with a 4 year old say. > > You can run by your child's MD -start with the basic and observe and > go from there. With fish oils typically the changes are within one > day to three weeks almost across the board -so you'll know pretty > soon whether it's " working " ! Let us know the good news! > ~~~~~~~~~~~~~~~~~~~~ > What fish oil should I give to my baby or child? > > The confusion is more the brand names than the formulas. In > actuality there really is no such thing as a " children's EFA " > perfect for all children yet. However fish oils can be marketed to > children by making fun flavorings and smaller capsules. Most of > the parents I know squeeze the oil out of the capsule anyway -so > that's besides the point for most of our group. > > EFAs are now in baby formula and food, and EFAs come and are used in > a variety of formulas for children for various reasons. Mainly we > hear about the use of them for healthy brain development in regards > to children and they are even proven to help with asthma! > > Dosage that was used for years (again today it's a bit higher faster) > > " I will use the following examples with the brand name ProEFA since > that's the formula/dosage that seems to work the best for most of us > (Efalex and EyeQ are similar Omega 3/6 formulas that also have good > reports) For any brand name of Omega 3/6 formula -you could make > the same formula by mixing together fish oil and either primrose or > borage seed oil if you prefer -or as found -another brand > name with a similar formula (and I hope also a good quality) > > If you mix two fish oils together which is fine if you know why you > are doing that: Look at the amount of DHA, EPA (Omega 3) and the > amount of GLA (Omega 6) and then add them all together to see what > formula and dosage you now have is. So for those of you that ask - > you can mix any brand names together you would like -however what > you could change is the three things above (dosage, formula and > *quality (*if one of the companies you start using has rancid oils > which is not uncommon when it comes to fish oils -so make sure all > brands you use are pure) Keep in mind in anecdotal feedback done by > parents from all over through CHERAB -that pure Omega 3 or pure > Omega 6 either showed no results -or very little results in almost > all cases. Pure Omega 3 would include pure cod liver oil, fish oil, > flax seed oil without any Omega 6. So even though there is only a > small amount of GLA (Omega 6) in the formulas we found to be > successful -GLA appears to be important to be there for some > reason. GLA has anti-inflammatory properties which perhaps enable > to DHA and EPA to get to where it's needed in the brain? > > Dosage of one capsule a day ProEFA that at the lowest dosage appears > to be the best - > 148 mg EPA > 99 mg DHA > 40 mg GLA > > There is much more in the archives both here -as well as more > information at > http://www.cherab.org/information/indexinformation.html#diet > > EFA tips and sources > http://www.cherab.org/information/dietaryeffects/efatips.html > > http://www.cherab.org/information/dietaryeffects/efabasics.html > > About mercury and fish oil (vs. eating fish) > > " Fish oils have been tested for various heavy metals like mercury > and there has been enough preliminary proof through studies, as well > as theory from reputable sources, that as I've posted many times > I've heard that the oils from fish may be the safest way to get the > benefits of the EFAs without the toxins due to the fact that mercury > etc. binds to the proteins/muscles of the fish. " Measurement of > mercury levels in concentrated over-the-counter fish oil > preparations: is fish oil healthier than fish? " > > " CONCLUSIONS: Fish are rich in omega-3 fatty acids, and their > consumption is recommended to decrease the risk of coronary artery > disease. However, fish such as swordfish and shark are also a source > of exposure to the heavy metal toxin, mercury. The fish oil brands > examined in this manuscript have negligible amounts of mercury and > may provide a safer alternative to fish consumption. " > Division of Laboratory Medicine, Department of Pathology, > Massachusetts General Hospital and Harvard Medical School, Boston, > Mass 02114, USA. > http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? > cmd=Retrieve & db=PubMed & list_uids=1\ > 4632570 & dopt=Abstract > > And one other thing to keep in mind for those like me who do eat > both fish and take fish oil, there are toxins in the fish you eat > that won't be in the oil For example while mercury etc. binds to > the protein (muscle of the fish) so it's not in the oil of the > fish. From what I've read -the largest problem with fish oil itself > is rancidity. Oxygen and fish oil doesn't mix well. Pharmaceutical > brands of fish oil are typically tested low in peroxide > levels/rancidity. Consumer Reports had this to say (most likely > because toxins in many cases bind to the protein and most oils are > not tested for rancidity) > > " Consumer Reports tested 16 top-selling fish-oil pills which, like > other supplements, aren't closely regulated by the FDA. > Consumer Reports' Metcalf says the test results are > reassuring, " We found that all 16 brands that we tested had the > amount of Omega-3s that they said they did, which is good news. And, > we don't always find that with supplements. " > > Since fish can contain toxins, Metcalf says Consumer Reports also > checked the supplements for purity, " We tested for three kinds of > toxins that often appear in fish - mercury, dioxin, and PCBs. " > > Testers didn't find significant levels of toxins in any of the pills > tested, so you don't have to worry about contaminants. " > > http://abclocal.go.com/kfsn/features/consumerwatch/consumer_070303_omega3.html > > " The omega-3 fatty acids offer some unique benefits, should they > prove to be truly effective mood stabilizers. The advantages of the > omega-3 fatty acids as mood stabilizers include the apparent acute > efficacy in both the manic and depressive phases of bipolar > disorder, their lack of toxicity, as well as high patient > acceptance. In addition, omega-3 fatty acids confer some health > benefits during chronic use, such as possible reduction in the risk > of a fatal myocardial infarction. In addition, the omega-3 fatty > acids have no documented adverse drug interactions, and appear to be > safe (and possibly beneficial) in pregnancy and in children. " > http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html > > " I had the wonderful opportunity to hear ph Hibbeln, M.D., > Chief, Outpatient Clinic National Institute of Alcoholism and Alcohol > Abuse, NIH, Bethesda, land at the First Apraxia Conference > http://www.cherab.org/news/scientific.htm lecture about the > importance of PUFA -especially during pregnancy when you are growing > a brain inside you. If you don't consume enough PUFAs while > pregnant -the babies body will pull it from the mother's body. It's > his theory and research as to why so many mom's experience post > partum depression. http://www.beachpsych.com/pages/cc46.html In > additionit is proven that the PUFAs are important for cognitive > ability. http://neuroscience.nih.gov/Lab.asp?Org_ID=352 > > Here is a quote from the US Department of Agriculture, > Environmental Chemistry Laboratory, Agricultural Research Service, > 20705, Beltsville, MD, USA > > Brain-specific lipids from marine, lacustrine, or terrestrial food > resources: potential impact on early African Homo sapiens. The > polyunsaturated fatty acid (PUFA) composition of the mammalian > central nervous system is almost wholly composed of two long-chain > polyunsaturated fatty acids (LC-PUFA), docosahexaenoic acid (DHA) > and arachidonic acid (AA). PUFA are dietarily essential, thus normal > infant/neonatal brain, intellectual growth and development cannot be > accomplished if they are deficient during pregnancy and lactation. > Uniquely in the human species, the fetal brain consumes 70% of the > energy delivered to it by mother. DHA and AA are needed to construct > placental and fetal tissues for cell membrane growth, structure and > function. Contemporary evidence shows that the maternal circulation > is depleted of AA and DHA during fetal growth. Sustaining normal > adult human brain function also requires LC-PUFA.Homo sapiens is > unlikely to have evolved a large, complex, metabolically expensive > brain in an environment which did not provide abundant dietary LC- > PUFA. > http://www.unl.ac.uk/ibchn/e_Link/cbpbbmb2002.htm > > Since I receive lots of calls about this -I wanted to list the most > common changes in an apraxic or other speech disordered child on > EFAs from what I've read and heard and seen. > > 1. Increase in babbling or attempts at sounds. > 2. Increase in imitation. > Changes also can be looked for in (what you see as positive or > negative) > sleep > attention > appetite > focus > behavior > stools > > Next will come a breakthrough of something you were probably working > on for a bit -so you will be excited but will think " Well -I don't > want to get my hopes up we were working on that for awhile now - > maybe it's just a coincidence " However after the second or third > surge in a short period of time -and then another - you are pretty > sure things are different and it's at this point the professionals > and the rest of the family and your friends are noticing it too - > maybe about two to three weeks now. > > OK -the next stage is pure elation and hope -you see the light and > no longer feel as desperate and want to share this new information > with everyone and anyone. As the months go by and your child > continues to progress at a much more rapid rate -you may even start > to doubt the original diagnosis -especially if you started EFA > supplementation at two -and perhaps the SLP that diagnosed the > apraxia who also was at first excited is starting to second guess if > the original diagnosis was correct as well. > > Unless you have to stop the ProEFA (or other Essential Fatty Acids) > and literally have the chance to see the regression of acquired > speech and language skills, attempts, and changes in behavior like > we did with Tanner (and/or have a chance to again witness the second > surge when your child is put back on the EFAs) -that doubt will > probably remain somewhere in your mind and in others around your > child. So the " I told you that he would start talking when he was > ready " comments should be expected of course. > > Up to this point is understandable to me -it's the point after this > that is confusing to me, and perhaps not the best stage for our > children and for raising awareness or having research done to find > out what is happening to our children and why. Perhaps because we > have truly hit a paradigm shift... > > As Dr. Agin states the EFAs actually appear to be in some > ways " curing " the apraxic child -even those diagnosed with severe > oral and verbal apraxia, hypotonia, sensory and behavioral issues. > Especially those started at younger ages. > > The child on ProEFA or some other EFA formula's like it no longer > fits the criteria of the classic definition of apraxia -and yet > doesn't fit the classic perception of what a late talker is > either... > > Some of the parents become more focused on other everyday activities > with their child and start to drift away from the support sources. > Problem with this attitude is that unless your child is really up to > speed on all aspects of speech and language, the support sources > that helped in the beginning will still benefit your child today. > ProEFA alone is not the only answer and until we know how and why it > works (or why in a handful of children it doesn't) we can't improve > on it " > > Difference between Omega 3/6 oils and other types of oils like CLO > > ProEFA is an Omega 3 (DHA and higher EPA) formula with a small > amount of Omega 6 (GLA) The Omega 3 in the ProEFA is from fish oil - > not from the liver of the fish -so no vitamin A. Only fish oil made > from the liver of the fish contain vitamin A. > > Children's DHA is cod liver oil which since it's from the liver of > the cod fish, it naturally contains Vitamin A. Cod liver oil only > contains Omega 3 (DHA and EPA) Here's some information from the > professional anecdotal feedback which is part of the history of this > group http://www.cherab.org/information/historyEFA.html > > " Most of our experience is with one, 1.0 gram capsule of ProEFA > (Complete Omega) that contains 144 mg EPA, 99 mg DHA and 40 mg of > GLA. We know that this combination appeared to work well. There > were some other supplements used but we could not conclude anything > about them. I can only say that both EPA and DHA are important and > GLA appears to have an additional positive effect on speech. > > ALA, linoleic and oleic acids in " The Total Omega " contribute very > little to the EPA, DHA, and GLA effect. > > I see at least 2 possibilities that you could use if you decide to > make the transition from short-chain omega-3s in plants (flax seed > oil containing alpha-linolenic acid or ALA, C18:2n-3) to the long- > chain mixture of EPA (C20:5n-3) and DHA (C22:6n-3). These are DHA > Jr. (30 mg DHA and 20 mg EPA in a serving unit) and Coromega (350 mg > EPA and 230 mg DHA). Both of these have been anecdotally successful > in the past. > > Coromega can be divided in two and taken one half in the morning the > other in the evening. If you choose this mode you will provide your > son with the equivalent EPA+DHA of 2 ProEFA capsules per day without > the GLA. > > Flax seed oil or freshly ground flax seeds are an excellent source > of the essential omega-3 alpha-linolenic acid (ALA or LNA) which is > the quintessential parent member of the omega-3 family of essential > fatty acids (EFAs). The body transforms it into EPA and the EPA > into DHA. This transformation is very inefficient (the yield is > about 10%) and is further inhibited by over consumption of omega-6 > fatty acids from most vegetable oils or certain disease states. > Therefore, it is advisable to independently consume also ready made > EPA and DHA from good quality fish of from high quality fish oil > supplements. Some recommended intakes are listed on the > Introductory lecture on EFAs that I gave at the First Conference on > Therapy of Verbal Apraxia, July 23-24, 2001, town, NJ. ( > http://www.cherab.org/news/scientific.html ) > > The CHERAB Foundation's positive research results on potential > improvement in speech following EFA supplementation are based > on the use of ProEFA (Complete Omega) and that contains also > another essential fatty acid, GLA which is an omega-6 fatty acid. > The latter appears to be beneficial to children with apraxia. It is > not present in flax seed/flaxseed oil. > > None of these materials present with any known side effects or > known toxicity in an otherwise healthy person. Nevertheless, we > advise every user of supplements to use them under medical > supervision. We don't know your child and we cannot provide you > with medical advice. > > Sincerely, > Katz, Ph.D. " > > ===== > Quote Link to comment Share on other sites More sharing options...
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