Hi new member

[Guest guest]

 

How long did you give the PROMPT.  It took us atleast 9 months to see some real

progress.

 

 

Sharon

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Sharon Lang

From: mykitkate <mykitkate@...>

Subject: [ ] Re: Hi new member

Date: Saturday, August 23, 2008, 3:12 PM

it does get overwhelming for all of us. I guess we were

fortionate in that proefa and my son's speech therapist have really

made progress happen for my 3 year old son in just a few months. He

really was silent most of the time before and now I have to watch

what I say because he tries to say what we do. The other day I

thought I heard himm say a curse word (!) He has much more to learn

but most days I know longer feel so helpless. I've learned so much

from the late talker book and from this group. I'm sure you will

learn much here. Welcome!

Kate

>

> Hi

> I have a 5yr old daughter Alyssa. She has been dx:Severe verbal

> apraxia,pdd- nos. She has little to no speech she can say mama abby

and

> baby clearly,maaa for map,pa for pop and awaw for dada,she babbles

as

> though she is talking but it doesnt seem to make anywords . She

has

> sensory problems i.e.dislikes certain noises,crowds, she is

unfocused

> and has anxiety.She is very friendly and affectionate although at

times

> she can have a fit for no reason fitting her self and yelling.She

is

> hypotonic waist up and a little hypertonic in the legs but the docs

say

> no to CP.

> She has recieved OT PT and speech since 6months and then SE

> preschool and will start SE kindergarden in a couple wks. This

summer

> we purchased a spring broad lite augmentive device, she is working

on

> but as of now it is all activity driven. I had a nonverbal

pictorial IQ

> test down she scored a 79 (which proves to the school she is not MR)

> We also tried Prompt therapy it did nothing.She is no low dose

> risperdol .5mls 2xday for aggression and anxiety.

> We have done genetic testing and had a MRI both neg. for any

> abnormalites.

> Just looking for any advice and info?

> She gets OT 2x in school PT 1x and Speech 3 indiv. and 1 small

group

> the school will not give 4 indiv. absolutly refuse..they dont have

the

> staff this is because I will not allow in school therapist to

service

> her, they have a therapist come in to school for Alyssa.

> OUTside of school she has OT and Speech each once a wk during

school

> and in summer each 2x a week.

> Currently I am in NC getting Hyperbaric oxygen teatments for both

of my

> children.

>

> WWW.freewebs. com/abigailmcnam ara

>

[Guest guest]

My 7yr daughter also had doctors telling me it was the worst Apraxia

they'd ever seen. We started EI at 3mos old for PT and added Speech and

OT at about 1yr old. I've never had the time or money to do extra

therapy on the side. She finished 2years and 3 summers in a Special Ed

PS with Speech 4x Individual per week. Her Apraxia was dx when she was

4.5 so the PS only had a few months to learn how to treat her. They had

been doing a lot of oral motor. She went onto K and still had very

little speech- about 10 words and mostly signs.

In our SD where they use Kaufman and the right teacher..her K year her

speech literally took off!! We were shocked, her teachers were shocked,

friends and family were shocked at the progress she made in one school

year!! She has continued to progress since than!!

Stay strong! I think it was a little bit of the right teacher, a little

bit of maturity on her part and something in her head just clicked!

You have done everything you can for your daughter. My dd also has a dx

of Mild CP and had Hydrocephalus as a baby. Genetics and Neurologists

have said that Apraxia is often seen with Hydrocephalus.

[Guest guest]

,

I am so glad I read this post from you. My older son is turning 5 on Sept. 6 and

technically

could start kindergarden (they must be five years old by Dec.2). He has been

tested by

both the kindergarden and preschool teacher and he passes with flying colors,

but

maturity...I am not sure. My little one is my " special needs " boy, the older one

is typically

developing. I have been so on the fence, but you just made the decision easy for

me! I will

keep him in Pre-K for one more year so he can start kindergarden when he just

turns six.

Besides, Larsyn (apraxia, SI, and hypotonia) is keeping me pretty busy! At least

I won't have

to worry too much about homework for my older one if he isn't in kindergarden.

It is crazy

what they expect them to do in school these days. I think we still took naps in

kindergarden, now they read and write basic sentences!

Jenna (mom of Larsyn 2.4 and Chance-almost 5!)

>

> Hi again !

>

> Sorry I got off on the wrong foot with you when I took my time to try

> to help. I spent time to archive for you late last night and you pulled

> out one sentence and then distorted it to say that I was calling you

> clueless. Um no. It's your choice of course what you want to do and I was

> making suggestions based on the thousands of apraxic children that we

> have gotten to know over the almost 10 years in this group. I never

> called you clueless so please don't put words in my mouth. ALL of us

> however are ignorant until we go down a road unless someone suggests

> a different path and advices us why it's easier. Even then it's up

> to us to go that path or not.

>

> As far as ready for kindergarten: Genius runs in my mom's side of

> the family and while it's hard to know exactly what Tanner's

> abilities are -in third grade in some areas he was at 5th grade

> level -my ADHD son Dakota has been tested gifted by various

> neurologists and psychologists. Academically he was ready to start

> kindergarten at 5 -but his birthday is July 30 -and he was not ready

> maturity wise. I have many stories in the archives and I to this day

> regret that I started him in kindergarten at 5 and didn't wait till

> he was 6. On top of that I was new to the town in NJ at the time -we

> had just moved from Long Island NY -and most of the parents in the

> school (which nobody told me) didn't send their " normal " kids to

> kindergarten until 6 years old for academic or athletic reasons.

> They say the more schooled and affluent parents tend to withhold

> kindergarten until 6 if there is a delay in " ANY " area. Like you was

> I insulted that the study (that I didn't publish and that was funded

> by the US Dept of Education as in that long archive I sent to you)

> implied I wasn't schooled or affluent enough?!!!

>

> No -and also like you I didn't know that maturity level is included

> in being " ready " Like you I assumed they just mean academically and

> like you I didn't want to " hold him back " I don't care if anyone

> today called me clueless even for doing what I did because I'll call

> myself clueless. I was!!! As I wrote in the archives many times

> once I started Dakota there was no way to start over. He made

> friends easily and due to his grades he was always a bright student -

> but....he was constantly being yelled at " Dakota pay attention! " or

> whatever. His kindergarten teacher during a parent teacher

> conference actually said to me " all the other children sit nicely on the rug

> during story time but your son is sprawled out on the rug " (as if that

> was horrible) I said to her " Well nobody told me that in this town

> parents don't start their children in kindergarten until they are 6

> years old! All the other children that are sitting nicely on the rug

> are 6 with some going on 7 and my son just turned 5 years old a few

> months ago! He's still a baby and that's why I wish I could have

> started over and put him in kindergarten next year " So the teacher

> said " well I wouldn't advice that because academically he's doing

> very well " there was only one other 5 year old in his class -Molly -

> and both Dakota and Molly were thought to be the ADHD kids. Now

> granted Dakota even long before kindergarten was suspected to be

> ADHD -but for sure his age was at least a year younger than the

> others. I spoke to Dakota and no way did he want to start

> kindergarten the next year and I left it up to him. He went on to be

> yelled at so much by his first grade teacher and I found out from Molly

> that this teacher actually would grab Dakota's desk that he was

> attached to in the chair and whip it across the room to separate him

> from the other children he was trying to play with -and some days

> would whip it out to the hallway and leave my 6 year old there

> alone. Not only did she do this but she yelled at him enough to

> where Molly called her the wicked witch. It was close to the end of

> the year before I found out the nightmare that Dakota lived through

> that year of first grade. Again -excellent grades- the child is

> brilliant and still is- but if I wasn't so " clueless " that child

> could have skipped the abuse. That teacher I nicely call " crispy "

> retired the next year. Dakota is the type of kid not to tell on

> others and he never (again) shared any of that with us until we

> confronted him with what Molly said. When we asked him why he didn't

> tell us he said " I don't know " head down he shrugged. The next year

> (yes this goes on) the teacher was aware there were issues from the

> previous teachers but she unlike the other two felt he needed to be

> classified as ADHD. They started the testing and one on one with the

> school psychologist he scored 99 percentile which meant he wasn't

> qualified for classification. Thing is the same child in a room full

> of children would notice a dot on the ceiling while the teacher was

> asking him a question -or would be playing with his pencil- or

> speaking of pencils since Dakota couldn't sit long would keep getting

> up to sharpen it. This was around the time that all the doctors we

> took him to wanted us to put Dakota on adderall. We ended up not

> long after starting him on the higher dosages of fish oils and the

> rest is history. He was classifed BTW as gifted learning disabled.

>

> Still- in spite of the fish oils working for him -I so wish I didn't

> start him in kindergarten until 6 years old because even though

> (obviously as a gifted child) he was academically ready -he was not

> ready maturity wise. My point to you was that you can always have

> your daughter skip a grade which I doubt for the same reasons Dakota

> didn't want to start over -they become friends with the other kids -

> but if there is a delay in any area to retain in preschool until 6.

>

> About getting up to speed we do have parents here who have

> essentially nonverbal older children or teens and even 2 adults who

> didn't secure appropriate therapies while younger who learn things

> from this group that are not always shared by all of the " experts "

> your child is only 5. Of course you have your child in therapies -

> but getting up to speed I meant you can share a bit more about

> exactly what the therapy is that she's had and we can share

> suggestions. Also I always say that the more severe a child is the

> more short term goals should be set. If there isn't enough progress

> in 3 months to reevaluate therapies, therapists- or diagnosis.

> Advice however is like air -use what you need and let the rest blow

> by you.

>

> My goal is to keep all apraxic children that are able to be

> mainstreamed which is the majority in the mainstream. Perhaps your

> daughter needs to be in a special needs class for her school career.

> Some things you can't be told about and just have to learn

> yourself. I don't know you or her but based on you saying she's

> ready for kindergarten -I think you are in for a life lesson.

>

>

> =====

>

[Guest guest]

Jenna I'm so happy to help. In a strange way helping another avoid

what we did makes it a bit better. Dakota just started HS in all

honors classes and even now at a just turned 14 YO literally 2 weeks

before school starts even though many of his friends here were put in

kindergarten at 5, he is still younger than many of his friends.

(here in Florida school starts mid August and Dakota's b'day again is

July 30th)

A few years ago when Dakota was soon to be 11 my one neighbor had a

party for her 4 year old and hired Batman to come to the party. The

4 year old was the little brother of Dakota's friend Zack who was in

Dakota's grade -but close to 13 years old. Dakota ran into the house

and got his camera and then ran across the street to take pictures of

Batman. He ran right past me and Zack all excited. Zack looked at

me calmly and asked " what is he doing? Why is he taking pictures of

a guy in a Batman costume? " And I said " Zack because he's still a

kid. He's only 10 years old that's all " So Zack said " oh " I have

stories in the archives about some of the days that we took Zack to

Universal with us and at times like that the difference wasn't so

great- but the differences were there in regards to girls. He's a

step ahead of Dakota and honestly a step that I'm not in any rush for

Dakota to get to.

The two continued to be good friends until the parents split up and

Zack moved away and went to a different school so (in a way

thankfully) the two only see each other when Zack visits his dad.

While now at just turned 14 years old Dakota is at the stage where he

and his group of friends from his school who are closer to Dakota's

age (most are 14 or 15) both guys and girls all IM each other or talk

on the phone -at 16 but close to 17 Zack has been hanging out with

some girl who looks pretty mature (at first I thought it was his

mother when I saw the long blond hair and the skimpy outfits) and she

drives! She drives Zack around and hangs out with him -they're a

couple. So while Zack is 16 Dakota is 14 (but was 13 just 3 weeks

ago)

In school the differences are not there anymore as his level of

maturity to be in school is now there. One of the other mothers of

a little girl that used to be in his class just saw Dakota for the

first time and could not get over how Dakota has become so much more

mature and she said she can't believe how now he looks handsome -

" he's looking like a young man I couldn't believe it was Dakota I was

looking at " . One year does make a difference -more than I knew back

when I naively enrolled Dakota in kindergarten. Dakota and I have

had talks about what happened to him in his early years in school and

I told him how sorry I was that he had to go through the being yelled

at so much -of course I'm downplaying it as it was so much more than

yelling and at times bordered on abuse. And even though it's all

cool today -I still wish I knew what I knew now. For 100% sure I

would have started him at 6.

=====

[Guest guest]

Hi, April...welcome. Hope you find what you need here....we're a nice group

e

Mom to 33 months old ASD....Lily NT 6 yrs old

From: april_gork <april_gork@...>autism Sent: Monday, August 10, 2009 8:49:43 AMSubject: Hi New Member

Hi I am a new member with a 5 year old daughter with ppd. My daughter has alot of behavior issues lately. She has been screaming, kicking, and slamming things. This is unlike her to be doing this. We go out if she don't want to go she screams and throws herself to the ground. This happens at home and in the stores. Like this morning she a princess Belle doll. She undress it and gave it to me to dress. Then she asked for the crown. I said you pulled the crown off last night. It is gone. She started screaming. I said it gone. Finally I told her go to time out for screaming. When I told her to come out she got up and slammed my kitchen door hard. So I sent her to her room. The worst part of it the school is pulling her out of the autism program for kindergarten and putting her in a multiple disabiltiy program. I do not feel she is not ready for transition yet for kindergarten.. But they will not listen to me. Anyone have

suggestions? I need help.