Re: Re: Warren Fried and DyspraxiaUSA...Go Warren!

[Guest guest]

i have to add something here to other message.

 

My son does have an official diagnosis of Oral and Verbal Dyspraxia of speech.

However when he was diagnosed at age 3 by a developmental pedaitrician. My son

is now age 10. I officailly checked into the theory that Dyspraxia has some

relation to autism. I have seen 4 different specialists on this  issue regarding

my son. The original person who diagnosed my son told me that there was no way

my son was on the spectrum. The second person who was a highly qualified SLP in

Dyspraxia. Told me that my son does indeed have all the classic signs of both

oral and verbal dyspraxia. The third person was a pediatric developmental

psychologist who told me my son was not on the spectrum at all. Although it

appears he very well could be. But has no clear signs of autism at all. He did a

mini Iq test on my son he scored in the above average range. he suspects he has

a high normal to above average IQ.The only one is SID that is noticeable. Has

major meltdowns when

in contact when the things that are sensory bothersome. The fourth person told

me that Dyspraxia and autism are not related at all. However from what I have

read though they do seem similar in some areas . Some of the symptoms are

actually symptoms of both.

 

But it is possible keep in mind to have very severe Dyspraxia which  is in my

sons case and not have Autism.

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: Warren Fried and DyspraxiaUSA...Go Warren!

Date: Monday, August 25, 2008, 9:47 AM

that's it -constructional dyspraxia! I'd say according to the

following chart from the National Center For Learning Disabilities

that most here represent Ideational and oromotor dyspraxia (or

apraxia) Yeah -no insulting childhoodapraxiaofs peech name here just

Oromotor Dyspraxia... and! they are aware that it affects ages starting

in childhood growing to adult! -maybe we should all start calling it

dyspraxia?! We'll have Harry Potter to help us raise awareness too!

Hey old timer - " you was right girlfriend!! "

http://www.verbaldy spraxia.com ('s site and she's a moderator here)

Dyspraxia by Category

Category Indicates difficulty with:

Ideomotor Dyspraxia Inability to complete single-step motor tasks

such as combing hair and waving goodbye.

Ideational Dyspraxia

Difficulty with multi-step tasks like brushing teeth, making a bed,

putting clothes on in order, as well as buttoning and buckling

Oromotor Dyspraxia

Difficulties coordinating the muscle movements needed to pronounce

words

Constructional Dyspraxia

Problems with establishing spatial relationships - for instance being

able to accurately position or move objects from one place to another

http://www.ncld. org/content/ view/467/ 391/

=====

[Guest guest]

Jeanne,

My son was very severely dyspraxic... it was global....plus he had some pretty

nasty auditory processing issues going on and he has never been considered

autistic. BUT..... after having him tested metabolically, he does exhibit many

of the same issues as the ASD kids.

In my mind, I sort of think of dyspraxia as the evil twin sister of autism.....

not autistic but some of the traits exhibited are so similiar in their nature.

The physical therapy to treat dyspraxia is far different from standard autism

therapy but the supplements my son takes, his gut permeability and his tendency

toward candida overgrowth are definately the same issues that are being treated

in the ASD kids. But, he seems to have these issues to a far lesser degree then

the ASD kids; almost as though it were a light version.

What seems to separate the dyspraxic kids from the ASD kids is the severe

hypotonia that dyspraxic children often have to contend with. It is a brutal

monster!

What we really noticed when we tested him was how significantly his body stores

were of all of the EFAs, COQ10 and carnitine. He was bottom of the barrel low.

He also had literally no vitamin A in his system, very low glutathione levels

and he had late stage sulfate deficiency. Addressing these deficiencies have

made the world of difference for him. It was also apparent in testing that he

had some major bacteria issues going on.

We have him on a good mito cocktail with great success and it alleviated all of

his issues with fatigue. My son tested out high in lead toxicity and oral

chelation with DMSA absolutely changed his ability to attend and it improved his

speech significantly.

Of course, nothing replaces good solid daily therapy and this has been the key

to recovering my child. But... I don`t know that we would have achieved the

level of recovery that we have currently without addressing his metabolic

issues, ridding his body of yeast and of lead toxicity and adjusting his diet to

promote his good health.

So.... while no one has ever said the ``A`` word to us, I do consider my son as

being on the spectrum. I think that this is because as his dyspraxia was

addressed, he became more ADD and when we worked the ADD, he started to become

absolutely neurotypical. We still have some minor fine motor issues left but I

am confident that we can get these resolved this next year. If not.... then

there is always the keyboard! I believe that at long last..... we have FINALLY

gotten his speech normalized. I am always frightened to say this since

everytime I do..... we get another speech regression that lasts for a few weeks!

And, I get deflated!

In the end.... we can fiddle with labels all we want; it just is what it is and

every child is unique and different. Some of their symptoms overlap, some are

comorbid but all are individuals and we must look at our own child and decide

what is uniquely best for him or her.

Take care,

Janice

Mother of Mark, 13

[ ] Re: Warren Fried and DyspraxiaUSA...Go Warren!

Date: Monday, August 25, 2008, 9:47 AM

that's it -constructional dyspraxia! I'd say according to the

following chart from the National Center For Learning Disabilities

that most here represent Ideational and oromotor dyspraxia (or

apraxia) Yeah -no insulting childhoodapraxiaofs peech name here just

Oromotor Dyspraxia... and! they are aware that it affects ages starting

in childhood growing to adult! -maybe we should all start calling it

dyspraxia?! We'll have Harry Potter to help us raise awareness too!

Hey old timer - " you was right girlfriend!! "

http://www.verbaldy spraxia.com ('s site and she's a moderator here)

Dyspraxia by Category

Category Indicates difficulty with:

Ideomotor Dyspraxia Inability to complete single-step motor tasks

such as combing hair and waving goodbye.

Ideational Dyspraxia

Difficulty with multi-step tasks like brushing teeth, making a bed,

putting clothes on in order, as well as buttoning and buckling

Oromotor Dyspraxia

Difficulties coordinating the muscle movements needed to pronounce

words

Constructional Dyspraxia

Problems with establishing spatial relationships - for instance being

able to accurately position or move objects from one place to another

http://www.ncld. org/content/ view/467/ 391/

=====

[Guest guest]

Hi ,

 

Thanks for your response. I totally appreciate everything your doing and I am

enjoying helping contribute to the new site being developed. I hope you received

my email I sent to you via the CHERAB contact link. I guess we've found our

first issue we disagree on at least a little bit. For example the article you

quote from Columbia contains sections such as: " In addition to lacking 3-D

vision, Fried has no concept of distances, weights, right and left, or any other

spatial relationship. He is also more sensitive to bright lights, bright colors

and loud noises than an average person. "

 

After hearing from these other posts, is this really the person we want

representing Dyspraxia to the USA? As other responses have pointed out, he takes

your money and you receive nothing in return. I personally have communicated

with him and spoke to him directly. I developed flyer's for his cause which I

assume he's now taken and is using (I don't know...he does not respond to my

emails any longer). Further more as has also been pointed out by other responses

he has no open mind towards all and any methods to help our children. In fact

his response to me on adding more about helping parents and children with

Dyspraxia was apathetic and instead he only is concerned with adults who suffer.

This is fine and dandy, good for him. But don't represent yourself as a

spokesperson for all people, including children, with Dyspraxia! In addition his

website seems to be basically a method to absorb donations to cover his

" lectures " (I would like to hear one). He

provides nothing to actually help parents and children. Yes he is, according to

him, distributing a public service announcement to all radio stations in the US,

but what does it say? Has anyone heard it? He would not send me a sample.

 

Is this the person you want to see on Good Morning America one day taking about

Dyspraxia, knowing his point of view and attitude?  

You are the one who SHOULD be on Good Morning America, CNN, ABC, etc.... 

How is it he has obtained 501© - Non Profit Organization Status? Does CHERAB

also enjoy this status as it should? I honestly do not know but if not it

should. Basically I obviously have a beef with Warren. He has lied to me, taken

my money, my time and then left me hanging. He is not the person we as parents

of children with Apraxia, Dyspraxia, etc.., want speaking for us. Let him have

his corner focused on helping adults cope. That's great! But what I feel he is

doing is misrepresentation.

 

Anyone who would like contact information on the newspapers or other media

outlets he's spoken to please contact me directly at Dustywave2000@....

They need to hear our point of view as well. I have already written my letters.

Just Goggle him if you want to give him your response directly. Nuff said...

 

I hate to come across so harshly but I think something needs to be done to point

out Warren is not speaking for all people, especially children, who suffer from

Dyspraxia.

 

PEACE

Dusty (a.k.a. Wolflover)

 

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: Warren Fried and DyspraxiaUSA...Go Warren!

Date: Monday, August 25, 2008, 9:07 AM

I don't know who he is but did a quick search and found nothing

bad. He's only 27 years old and says he was first diagnosed at 19 -

so much later than most of our children. If that's true then he's

like and of course he may have issues that our children don't

have. Here's 's page again

http://www.cherab. org/news/ .html

But no- I've never heard anyone say dyspraxia means you can't see in 3D!!

But 3D may not be the scientific way of saying limited or no depth perception?

So I searched under that with dyspraxia and found:

" Titre du document / Document title

Constructional dyspraxia in preterm diplegia : isolation from visual and visual

perceptual impairments

Auteur(s) / Author(s)

KOEDA T. (1) ; INOUE M. (2) ; TAKESHITA K. (1) ;

Affiliation( s) du ou des auteurs / Author(s) Affiliation( s)

(1) Division of Child Neurology, Tottori University Faculty of Medicine, Yonago,

JAPON

(2) Institute of Neurological Sciences, Department of Ophthalmology, Tottori

University Faculty of Medicine, Yonago, JAPON

Objective : To evaluate ophthalmological profiles, visual perception and

constructional function in preterm children with spastic diplegia (SD) and to

clarify their neuropsychological deficits in comparison with a control group.

Methods: Thirty-five SD and 34 control children were investigated for visual

acuity, eye position, stereoacuity, depth perception, visual perception,

visuo-spatial construction and constructional praxis. Each of the results was

compared among the four groups as SD with and without strabismus, and control

with and without strabismus. Results: Strabismic SD showed worse visual acuity,

worse stereoacuity and worse depth perception than the other groups.

Constructional dyspraxia was detected in 94.1% of SD either with or without

strabismus, while it was rare in the control group. There was no significant

contribution of visual acuity, eye position, stereoacuity or depth perception to

constructional dyspraxia by stepwise multiple

linear regression analysis. Conclusion: Strabismic preterm SD children are at

high risk for visual dysfunction. Constructional dyspraxia was frequently found

in SD children and may be a dysfunction isolated from ophthalmological and

visual perceptual dysfunctions. Constructional dyspraxia, preterm infant,

spastic diplegia, visual perception. "

http://cat.inist. fr/?aModele= afficheN & cpsidt=2843006

So maybe it's not related to typical dyspraxia but to constructional dyspraxia

whatever that is?

I'm sure if wasn't diagnosed dyspraxic at 19 which wasn't that long

ago -someone would have said something. And hey -he's written about

in a blog in the same breath as Radcliffe. " Radcliffe and

Fried are hardly alone in their struggles "

So he is getting some amount of awareness!

Tuesday, August 19, 2008

Harry Potter Has Dyspraxsia

" Twenty-seven- year-old Warren Fried of Chicago told ABCNews.com that

he was diagnosed with dyspraxia at age 19 -- after years of living an

isolated childhood with no explanation for why some of the easiest

challenges proved so difficult.

When I was growing up, I always knew there was something different

about me, " said Fried, adding that using buttons and zippers is still

difficult.

" In school, every subject I tried, I failed, " said Fried, who founded

Dyspraxia USA two-and-a-half years ago to help other families with

children suffering from the disorder. " Even the simplest things, like

drawing and staying in the lines, was hard. "

Radcliffe and Fried are hardly alone in their struggles, according to

the National Center for Learning Disabilities in New York City, which

estimates about 6 percent of all children show some signs of

dyspraxia and 70 percent of those are boys. "

http://dawgoregon. blogspot. com/2008/ 08/harry- potter-has- dyspraxsia. html

And here's an article about him I found at the library online

Columbia College: Man's crusade helps shed light on rare neurological disorder.

(From University Wire)

Source: The America's Intelligence Wire

Publication Date: 06-JUN-06

Byline:

When he moved into his new Lincoln Park apartment, Warren Fried bought a table

to help fill out the empty space in his living room. He also purchased a corner

table, but it didn't seem to fit anywhere in the room. But the real problem was

that Fried had no idea what a corner was to begin with.

Fried suffers from a rare neurological disorder called dyspraxia, which, among

other things, prohibits him from seeing 3-D space. He has never seen a corner.

In addition to lacking 3-D vision, Fried has no concept of distances, weights,

right and left, or any other spatial relationship. He is also more sensitive to

bright lights, bright colors and loud noises than an average person. This leads

to difficulties performing tasks a typical person wouldn't think twice about --

he lacks the fine motor skills to button a jacket, can't drive a car and has no

short-term memory.

According to the Developmental Adult Neuro-Diversity Association, a support

group for people with the disorder, dyspraxia, formerly known as Clumsy Child

Syndrome or Minimal Brain Damage, falls into the same category of disorders as

Asperger's syndrome and autism.

Dyspraxia often manifests itself alongside attention deficit disorder and

dyslexia. The condition is characterized by a lack of coordination, speech and

writing impairments, perception problems, poor social skills and emotional and

behavioral problems, according to the National Institute of Neurological

Disorders and Stroke, which aims to reduce the burden from neurological

diseases.

Fried, 24, who has lived in various places in the United States and the United

Kingdom, came to Chicago on a crusade to increase awareness of his disorder. In

January of 2006, Fried formed a nonprofit group called Dyspraxia USA, which

provides support and social gatherings for dyspraxics in the Chicagoland area.

Based on a model set by the Developmental Adult Neuro-Diversity Association in

the UK, Fried hopes Dyspraxia USA will provide information and support to

American dyspraxics. The disease is not listed in the Diagnostic and Statistics

Manual of the American Psychiatric Association, which means insurance companies

do not recognize it, and there is no official therapy available to treat it.

Individual therapies are needed to treat all the aspects of dyspraxia and can

become costly and time consuming.

In addition to a lack of available treatment, many dyspraxics simply lack

information and knowledge about the disease. Fried has received dozens of

e-mails from around the world from dyspraxics and their family members inquiring

about the disease and his organization.

Sharon Hartwick of Warren, Mich., whose 6-year-old son has dyspraxia, found

Fried's group online and said she has high hopes for Dyspraxia USA. Hartwick

said in an e-mail that one of the biggest challenges in raising a child with

dyspraxia is that it is a " hidden condition. " " As a society we judge by looking

at people, looking for some visual defect or abnormality, " she wrote.

She said that because her son looks like an average little boy, other people

assume there is nothing wrong with him and that his difficulties are the result

of misbehavior rather than a disability.

Like many people with dyspraxia, Fried also suffers from a variety of other

disorders, including attention deficit disorder and another neurological

disorder called Asperger's syndrome.

Fried's attention deficit disorder causes his mind to work faster than his body.

He said that because of the disorder, he has difficulty organizing his thoughts

in a logical pattern. Fried said that writing an essay is impossible since his

thoughts move too quickly for his hand to get them on the paper. But he also

said the quick thoughts make him want to work harder at Dyspraxia USA.

Though dyspraxics are highly functioning, many often have emotional disorders

and other neurological conditions because they find it difficult to fit in with

a typical social dynamic. Low self-esteem, depression, behavioral disorders and

eating disorders are often associated with dyspraxia.

Judith Trytten, a clinical psychologist who specializes in Asperger's syndrome

and autism, said that living with dyspraxia can be like placing yourself in a

foreign country and never adapting.

Trytten said raising awareness is the first step to diagnosing dyspraxia and

helping people deal with these roadblocks. She said in the case of Asperger's

syndrome, although her patients have a hard time functioning in social

situations, they are often quite talented in other areas and their condition

helps them to see details that a typical person might miss.

" What many people consider neurological deficits are actually benefits because

other people don't have them, " Trytten said. " It's a group of people who have a

very different skill set that others often don't recognize. " Fried hopes that

Dyspraxia USA will bring people with the disease together to help them build the

confidence needed to function in everyday life.

Roy Moller, a dyspraxic from Glasgow, Scotland, said in an e-mail that he is

encouraged by groups like Dyspraxia USA and sees hope.

" Finding out you're not a freak and that all the issues you've had all your life

are linked by a common cause is very liberating, " Moller wrote.

For more information on Dyspraxia USA, please vvisit www.dyspraxiausa. com or

call (312) 207-0000.

((Distributed via M2 Communications Ltd - http://www.m2. com))

http://www.accessmy library.com/ coms2/summary_ 0286-15542284_ ITM

Unless I hear something bad about him -I'm proud of him!

=====

[Guest guest]

Hi ,

 

Thanks again for your additional information. OK, I'll buy it " constructional

dyspraxia " . That is fine. My beef is he is representing himself as THE VOICE of

Dyspraxia. And I personally feel he needs to make clear that this is the

specific type of Dyspraxia he suffers from and also point out the children

who suffer from various other degrees of the disorder. Also he should use his

influnence to promote more help for parents of children with Dyspaxia. Finally

he should stop taking people's money in the promise of " great things " and the

disappearing. I'm done talking about this issue now. I feel better<g>. I'm going

to put him out of my mind and focus on the blog instead. I'd also love to

contibute more to the new site but I can contact on that.

 

THANK YOU SO MUCH FOR WHAT YOU DO!

 

PEACE,

a.k.a. " Dusty " , a.k.a " Wolflover "

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: Warren Fried and DyspraxiaUSA...Go Warren!

Date: Monday, August 25, 2008, 9:47 AM

that's it -constructional dyspraxia! I'd say according to the

following chart from the National Center For Learning Disabilities

that most here represent Ideational and oromotor dyspraxia (or

apraxia) Yeah -no insulting childhoodapraxiaofs peech name here just

Oromotor Dyspraxia... and! they are aware that it affects ages starting

in childhood growing to adult! -maybe we should all start calling it

dyspraxia?! We'll have Harry Potter to help us raise awareness too!

Hey old timer - " you was right girlfriend!! "

http://www.verbaldy spraxia.com ('s site and she's a moderator here)

Dyspraxia by Category

Category Indicates difficulty with:

Ideomotor Dyspraxia Inability to complete single-step motor tasks

such as combing hair and waving goodbye.

Ideational Dyspraxia

Difficulty with multi-step tasks like brushing teeth, making a bed,

putting clothes on in order, as well as buttoning and buckling

Oromotor Dyspraxia

Difficulties coordinating the muscle movements needed to pronounce

words

Constructional Dyspraxia

Problems with establishing spatial relationships - for instance being

able to accurately position or move objects from one place to another

http://www.ncld. org/content/ view/467/ 391/

=====

[Guest guest]

OK. So I just heard from Warren, how ironic. I also received an email from his

web devloper who is developing a new website for DyspraxiaUSA. They had asked

for permission to use 's photo and story so I had said yes. So she sent

me the link to his page and it's cool. So I guess I should back off on Warren a

little. I told him as much so hopefully peace is made.

 

looks like you were right again...surprise, surprise<g>

 

PEACE

a.k.a-Dusty

a.k.a - Wolflover

From: kiddietalk <kiddietalk (DOT) com>

Subject: [childrensapraxiane t] Re: Warren Fried and DyspraxiaUSA. ..Go Warren!

@groups. com

Date: Monday, August 25, 2008, 9:47 AM

that's it -constructional dyspraxia! I'd say according to the

following chart from the National Center For Learning Disabilities

that most here represent Ideational and oromotor dyspraxia (or

apraxia) Yeah -no insulting childhoodapraxiaofs peech name here just

Oromotor Dyspraxia... and! they are aware that it affects ages starting

in childhood growing to adult! -maybe we should all start calling it

dyspraxia?! We'll have Harry Potter to help us raise awareness too!

Hey old timer - " you was right girlfriend!! "

http://www.verbaldy spraxia.com ('s site and she's a moderator here)

Dyspraxia by Category

Category Indicates difficulty with:

Ideomotor Dyspraxia Inability to complete single-step motor tasks

such as combing hair and waving goodbye.

Ideational Dyspraxia

Difficulty with multi-step tasks like brushing teeth, making a bed,

putting clothes on in order, as well as buttoning and buckling

Oromotor Dyspraxia

Difficulties coordinating the muscle movements needed to pronounce

words

Constructional Dyspraxia

Problems with establishing spatial relationships - for instance being

able to accurately position or move objects from one place to another

http://www.ncld. org/content/ view/467/ 391/

=====

[Guest guest]

Dusty....

I just had to comment. I am glad that you are taking on Warren Fried! Good

for you!

" In addition to lacking 3-D vision, Fried has no concept of distances,

weights, right and left, or any other spatial relationship. He is also more

sensitive to bright lights, bright colors and loud noises than an average

person. "

--Mark had some of those issues..... the 3d thing, I believe is a lack of

proprioception and poor central detailed vision. We resolved this for Mark in

about 5 months.

The loud noises issue can be tackled using a Sound therapy program such as

Tomatis, Berrard, The Listening Program or Therapeutic Listening Program.

The Right and Left issue was handled via a simple game called The Wepman Game

similiar to Simon Says in a mere three months.

We worked those things for Mark..... and RESOLVED them! Warren Fried is not

interested in getting others help in resolving dyspraxic issues but seems more

to be interested in BEING dyspraxic and having others stay the same rather then

to seek assistance.

That is what bothers me about him; he doesnt believe in help for these issues

and he passes this message on to parents of children and other young adults who

are lost and vunerable in trying to get a handle on dyspraxia.

Is this the person you want to see on Good Morning America one day taking

about Dyspraxia, knowing his point of view and attitude?

-- NOT A CHANCE!!!

Janice

[Guest guest]

I do agree with you on these points. My son too overcame his inability to speak

via therapy. He overcame his physical disadvantages by taking on playing

basketball on his school inta-league team and finally scored his first goal

after 4 years of playing!

He also had " eye-tracking " issues which were overcome in one year via Visual

therapy and a computer program. He of course still has issues but he knows that

he can tackle them and overcome. Most recently he had been terrified of any

flying bug (since being stung by a wasp 3 years ago). One day not too long ago

he noticed a bug on the ground which I knew was a " Ground Hornet " (common here in

NC). He was getting all up close to it and observing it for about 5 minutes

before I called him away so he would not get stung. Later I told him what he had

been observing and that what I had been telling him about how they don't even

know he's there most of the time. Sibce then he has been fine. All summer he has

had no problems. At Lake Waccamaw where my parents have a house there are " Dirt

Dobbers " which can sting but usually just fly around you in twos and threes

checking you out and never have I been stung by one in all my life. He's no

longer afraid of them

either...I'm so proud of him. It just proves there is nothing that they can not

overcome! I will discuss this with Warren since we've now made re-contact as of

yesterday. I've seen his new website being developed and it does include a

section on Dyspraxic Kids BUT no suggestions on therapy only a list of the

symptoms.

I will attempt to persuade him to add more on how to confront these symptoms.

Thanks for the feedback and support!

 

Dusty

a.k.a - Wolflover

[Guest guest]

Liz,

I did a variety of things to rework his vision....

Children typically develop their central detail vision and their

nearpoint/farpoint visual skills during the creeping time of development. So

when a baby creeps on it's hands and knees, it's eyes begin to focus on farpoint

as well as near point. Mark did not crawl properly and did a lot of bum

scooting so this skill was not fully developed in him. When we redid the

creeping component for him, he stopped getting lost all of the time, stopped

falling down the stairs and stopped bumping into objects. We did this in

conjunction with using the pinhole glasses but I know in my heart that it was

the crawling, creeping, marching, skipping program that really changed this

aspect of his abilities in a 'big' way.

But, his proprioception was still out of whack and his visual skills with

regards to detail vision were still quite weak. We then did pleoptics which

really targeted the central detail vision and he was able to find and locate

objects, construct objects and work this area much better.

For his overall body proprioception, we continued on with body work, addressing

his low muscle tone and incorporated cardiovascular fitness into his daily life.

Again, we saw much improvement but the awareness was still lacking a tad.

So..... we continued to work it some more.... this time with some fun teenager

stuff; he did 15 minutes of Dance, Dance Revolution per day for 3 months and

this finished this off for him. He now has neurotypical judgement of distances,

speed and all of that 'stuff'. So, I cannot say that it was one thing.... we

chipped away at this problem over the course of 2 years with the variety of

exercises that work vision as well as the body.

Even our ball tossing that we did every day to work his hand dominance and to

alleviate his ambidexterous behaviour works visual skills at the same time.

Ball tossing works vision by requiring that the eyes smoothly transition from

far point to near point vision and back again.

It is quite amazing how complex our body systems are and what we truly take for

granted with what our bodies are designed to do... You only 'see' it when

something is not working properly and then it stands out.

Janice

Mother of Mark, 13

[sPAM][ ] Re: Warren Fried and DyspraxiaUSA...Go

Warren!

Re: --Mark had some of those issues..... the 3d thing, I believe is a

lack of

proprioception and poor central detailed vision. We resolved this for

Mark in

about 5 months.

How? I have this. When is this supposed to develop typically?

[Guest guest]

Hi Janice,

 

Thank you for your response. However I was only telling my son story so far. Yes

I do agree that some of my sons symptoms are on the spectrum.

 

I am happy to report though with intensive speech therapy over the last 7 years

(still receiving intensive ST). My son has mad exceptional gains in his speech.

He can now finally hols a conversation with you and most people can pretty much

understand most of the words now or get enough of the sentence to understand

him. I learning lots of new things about my son everyday. I always knew that

even though he could not verbalise his thoughts at the time. I so knew the

information was going in and being processed just the same. I am now finding out

that my son was taking in everything in the world around him all this time. He

heard every conversation and every word told to him. He understood. Now he is

actually starting to repeat evrything he has learned and is learning around him.

He has repeated some of the most embarrassing things to people. He evn tells me

things that I never knew about myself. It is really amazing to discover these

things.

 

Like other people have mentioned in the past. Seeing the world through their

eyes is really fascinating to me also. My son finds the littlest things and

notices things no one else would. My son is learning right along be side his

peers in school. He may be able to verbalize everything all at once but the

informatuion is being processed.

 

My son also has been receiving intensive OT also (still also). I ahve seen huge

gains in this area also. He can now hop on one foot,jump, throw and catch a ball

without losing focus etc. The biggest improvement is that his handwriting is

much better. He actually loves to write the letters of the alaphabet. Now that

he is learning to speell. He actually is trying to write stories. Not much of

them make sense but the words are speeled correctly. He also starting to

recognize words in print and is now able to some signs he is always pointing out

what things say to me. He is just excited about that especially when I tell him

thats right.

 

It is so wonderful to hear him ask questions these days. He asks so many

questions that it actually annoys some people. But i love to hear him ask them

and i answer every one with a big smile on my face.

 

Jeanne

mom to 10