Guest guest Posted July 4, 2004 Report Share Posted July 4, 2004 Dearest Kris, Nice to meet you! As an educator I can say that your instructor can also lead you to the right direction. May I ask what school you are attending and who are your instructors? I know two San instructors there. You may also want to purchase a study guide book to direct you. Besure to study each of my tutorials. You are sent only a sample of them there are more. Check out each link as well. I have recently placed a very LONG Post for Stuart who asked a similar question. I will repost it later with the correct title in it so it will be easy to find. Keep checking your email/site. Also Kris I would be interested in knowing if you are going to do an 'externship' perhaps called an internship that is sponsored by your school? Let me say that no one is allowed to give you exact questions from the exam. However to lead you to topics that you must study and know about is acceptable. Thank you so very much for your question. Keep em coming! I hope this has helped you out. Respectfully, Jeanetta Mastron CPhT BSChem Pharm Tech Program Director/Educator Founder/Owner of this site > I am a PT student in San and will be taking certification in > November. I would like any tips or information that would be helpful > in passing the certification test. Any help would be appreciated. > Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Hello, I am a PT student in Corpus CHristi, scheduled to take the test next week in San . From what i hear the math is really important. My weakest point seems to be the drug interactions and brand/generic, while ihave learned a lot, there seems to be a bit more than i thought. I am just worried that the ones i dont know will be on the test. kris <kcrc316@...> wrote: I am a PT student in San and will be taking certification in November. I would like any tips or information that would be helpful in passing the certification test. Any help would be appreciated. Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Dear , I know you will do well on the exam. In the mean time during this next week open all of the Tutorials in the files section: especially those that are Math Tutorials in your weakest areas. Read and study them. If you have questions about them post your questions! During the test Do not worry about what you don't know, focus on what you do know. You know enough and a lot to pass. You have been studying so you have been exposed to much information. You will do just fine! Love ya Jeanetta Canales <netgrl77@...> wrote: Hello, I am a PT student in Corpus CHristi, scheduled to take the test next week in San . From what i hear the math is really important. My weakest point seems to be the drug interactions and brand/generic, while ihave learned a lot, there seems to be a bit more than i thought. I am just worried that the ones i dont know will be on the test. kris <kcrc316@...> wrote: I am a PT student in San and will be taking certification in November. I would like any tips or information that would be helpful in passing the certification test. Any help would be appreciated. Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 I am new to the group too. My mother has fibr and I have RA. I have an appointment to talk to a dr tomorrow and hopefully I can get started on LDN. I am 55 too and know the feeling of feeling 90 years old. I would like to sleep at night and not hurt so much when I wake up. Sometimes I don't want to sleep because I know I have to wake up and I will hurt. I am very hopeful and excited about taking LDN. I have always said God dosen't give you more than you can handle. Also I look around and can always see someone else worse off than me. Of course, I do have my days of feeling sorry for myself . Take care of yourself so youan take care of your child. > > Hello, > I am new to the group; I have fibromyalgia and have been sick for many years ( since 1982) have tried many different therapies and modes of treatment for this disease. > I have been on LDN now for 3 days... the sleeplessness has not been fun but was better on the 3rd nite...I don't sleep well anyway, but I just have to say that I live in Houston...by all rights I should of FLARED > today but did not...my car broke down yesterday..major money to fix it that I don't have...that was a huge stress, then the stupid hurricane threat which really stressed me out until I finally realized Houston was in the clear.....so I did not get 5 minutes rest yesterday and was soooooooooooooooo > stressed...I did not flare.... I don't feel as stiff and have as much pain as I had....I am on 4.5 mg. each nite...I would love to talk to anybody who has fibro that is on this drug ....... to all of you who have autoimmune diseases I amhoping and praying one day they can help all who suffer.... I am very grateful to be on LDN and also want to say > that anybody who wants to try this drug should..... it is a lifesaver...I get up in the morning and don't feel like I am 90 years old. > I am 55 years old and with fibro was so stiff and sore most the time I just wanted to give up.... I can't...I have a 14 year old daughter with down syndrome who needs me.... my passion in life is my minihorse.... He is so cute.... Now maybe I can take care of things better with less pain...the hardest part was > I got off of ultram cold turkey , I had been on this drug for 3 years...Now I feel pain but that is okay..... I am so happy not to pop ultram all day ( I took it 3 times a day...)...God bless all of you and I hope for wellness one day at a time.... Michele Luna > > -- > I am using the free version of SPAMfighter for private users. > It has removed 2597 spam emails to date. > Paying users do not have this message in their emails. > Get the free SPAMfighter here: http://www.spamfighter.com/len > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 Cindi, I hope you get on the LDN as soon as possible, I think it will make a difference, I feel normal....which is totally wierd.... I have not felt normal for a long, long time..... am not taking any narcotics and that is a Godsend.... keep in touch and let me know how it goes..am praying for you, Michele p.s. can your mother try to get on LDN? [low dose naltrexone] Re: Hi, I am new! I am new to the group too. My mother has fibr and I have RA. I have an appointment to talk to a dr tomorrow and hopefully I can get started on LDN. I am 55 too and know the feeling of feeling 90 years old. I would like to sleep at night and not hurt so much when I wake up. Sometimes I don't want to sleep because I know I have to wake up and I will hurt. I am very hopeful and excited about taking LDN. I have always said God dosen't give you more than you can handle. Also I look around and can always see someone else worse off than me. Of course, I do have my days of feeling sorry for myself . Take care of yourself so youan take care of your child. >> Hello,> I am new to the group; I have fibromyalgia and have been sick for many years ( since 1982) have tried many different therapies and modes of treatment for this disease.> I have been on LDN now for 3 days... the sleeplessness has not been fun but was better on the 3rd nite...I don't sleep well anyway, but I just have to say that I live in Houston...by all rights I should of FLARED > today but did not...my car broke down yesterday..major money to fix it that I don't have...that was a huge stress, then the stupid hurricane threat which really stressed me out until I finally realized Houston was in the clear.....so I did not get 5 minutes rest yesterday and was soooooooooooooooo> stressed...I did not flare.... I don't feel as stiff and have as much pain as I had....I am on 4.5 mg. each nite...I would love to talk to anybody who has fibro that is on this drug ....... to all of you who have autoimmune diseases I amhoping and praying one day they can help all who suffer.... I am very grateful to be on LDN and also want to say > that anybody who wants to try this drug should..... it is a lifesaver...I get up in the morning and don't feel like I am 90 years old.> I am 55 years old and with fibro was so stiff and sore most the time I just wanted to give up.... I can't...I have a 14 year old daughter with down syndrome who needs me.... my passion in life is my minihorse.... He is so cute.... Now maybe I can take care of things better with less pain...the hardest part was > I got off of ultram cold turkey , I had been on this drug for 3 years...Now I feel pain but that is okay..... I am so happy not to pop ultram all day ( I took it 3 times a day...)...God bless all of you and I hope for wellness one day at a time.... Michele Luna > > -- > I am using the free version of SPAMfighter for private users.> It has removed 2597 spam emails to date.> Paying users do not have this message in their emails.> Get the free SPAMfighter here: http://www.spamfighter.com/len>I am using the free version of SPAMfighter for private users.It has removed 2597 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 Hi, My name is Yvette and I have a son that has not yet been diagnosed with Apraxia but does display the symptoms. He is 2 years old and has about 10 words. He does not use them in sentences. He generalizes also. So, dada can be my husband or my husbands car. He will not repeat or try to repeat words. He has a huge receptive language just not expressive. He is extremely social too and is always trying to communicate with pointing, grunting and this word that he uses all the time " ES " . He does make some sounds too. He is seeing EI for speech only once a week. We are try to get him into a private facility for more ST. I currently have him on ProEFA liquid and am giving him only 1 teaspoon a day. At first we saw a huge change because he was babbling which he would not do before. THen it slowed down...now it seems to be picking up again and there will be times that he will sit and talk to himself. Such a wonderful sound. So, if any of you have advice I would greatly appreciate it. I so badly want to have a conversation with my son someday. Should I be doing more oil? Other supplements? We are working on signing too...seems to be a good thing. Well, that is it for now.... Thanks! Yvette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Hi there! I am curious as to why he only has speech once a week through EI. I am also new to this and maybe the setup of things in my area is different, but when I stated that I wanted more 1-on-1 therapy (both speech and OT), they were more than accomodating. And I don't have to spend any money on additional therapy...I thought that is what EI was for? ) We also have BCMH coverage for another condition, but once she is diagnosed, we were told that the apraxia can be added to it, also. Our children have a lot of similarities! Not yet diagnosed, but has many symptoms at age 2. She has about 3-5 words, but has been babbling more since we started the fish oil a few days ago! No sentences, no generalizations. She has JUST started to repeat...she says " good girl " in her own way, of course, after we say it and also on her own. She totally understands what we say. We are using the Complete Omega 369 capsule...one a day for now. Signing has helped her frustration level, for sure. in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 , I don't know why our EI is more accomodating. They told me that once a week is all that they can give him. So, with that said we are on a waiting list for a few outside sources. I guess here in NM they do things different. I am just hoping that with the fish oil I will start to see something happening. It was fast results at first but then like I said it slowed down....I am hoping someone on this board will tell me if there is another supplement or maybe I am not giving him enough. Good to hear that your LO is repeating. I so long to hear that from Christian. Maybe someday. Yvette From: <whitmore_dh@...> Subject: [ ] Re: Hi, I am new! Date: Saturday, August 9, 2008, 7:27 AM Hi there! I am curious as to why he only has speech once a week through EI. I am also new to this and maybe the setup of things in my area is different, but when I stated that I wanted more 1-on-1 therapy (both speech and OT), they were more than accomodating. And I don't have to spend any money on additional therapy...I thought that is what EI was for? ) We also have BCMH coverage for another condition, but once she is diagnosed, we were told that the apraxia can be added to it, also. Our children have a lot of similarities! Not yet diagnosed, but has many symptoms at age 2. She has about 3-5 words, but has been babbling more since we started the fish oil a few days ago! No sentences, no generalizations. She has JUST started to repeat...she says " good girl " in her own way, of course, after we say it and also on her own. She totally understands what we say. We are using the Complete Omega 369 capsule...one a day for now. Signing has helped her frustration level, for sure. in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Hi Yvette! Welcome! I have a new member archive below but just wanted to let you know that you are using what is comparable to 4 capsules of ProEFA. Most of us have found that raising the EPA a bit higher creates an even greater surge than increasing the ProEFA. You may want to decrease to 1/2 tsp and add one capsule of ProEPA. Below is much more info! Here's a very long archive both about apraxia as well as fish oils and vitamin E. Re: Hi! New and wondering about apraxia. Hi Mrs Laurie and welcome! Your son sounds like he has some oral apraxia which would of course need to be confirmed by professionals. If oral apraxia is present together with your child's delay he should at least be diagnosed as " suspected apraxia " and appropriate therapy should be provided. He is entitled by federal law to a free and appropriate public education (FAPE) in the least restrictive environment (LRE) which means that if 5 days of one on one speech therapy is appropriate for him then that's what he should receive. What type of speech therapy is he receiving from the school right now when you say " some " ? Below is a very long archive to help -please know that you don't have to understand it all at once -we're here as a group to help! Thanks for sharing. This group has from the start been a group that's made up of parents and professionals who care for children with many types of speech and/or language delays and/or disorders. There are parents here for example with undiagnosed " late talkers " and we just have not heard from them in awhile. It's actually a really good thing when there is a mix of us to share because we all learn from each other as many diagnoses can overlap -or down the road we learn that our child does have co diagnosis. While this group is open to parents of all children with communication impairments -including hearing impaired, autistic etc. it wasn't that all that posted recently had a child with autism, or autism and apraxia -but because of society focus on autism -many here started following an autism approach -including ABA in some cases! That's understandable if the much more basic approach to apraxia -ST and OT and EFAs were tried first and didn't work -but some were trying that to start. The overwhelming majority (if you check the archives) have success with the basic approach to apraxia. On the other hand- most of us are dealing with more than verbal apraxia.we just don't know that when our child is 2 -and we learn through professionals and observations as they continue to grow and more and more is expected of them. This is also why it's important to take your child for a neurodevelopmental medical exam when your child is suspected of apraxia to confirm or rule out other diagnosis such as sensory integration dysfunction etc. The earlier you know - the sooner to start appropriate therapies to get them up to speed by kindergarten. Don't let it overwhelm you -perhaps we aren't meant to know more than what we have to know at each stage. We'll be here to help along the way. It's OK to have any type of emotion when we find out our child has more than a simple delay -or " more " than " just " verbal apraxia. And it's OK to be completely overwhelmed and saddened to find out your child has apraxia. And as I was one of those parents it's never " just " apraxia when you find out!!! It's OK to be upset " just " because your child is a " late talker " too! Please know that I too believed Tanner to just have apraxia and have my first message posted to a grouplist about that below.but down the road found out he had a few other things we needed to help him address. The incredible news is that the majority of our children if you check history are up to speed to be mainstreamed by kindergarten- and of course many have learned with communication impaired children that it's best to start kindergarten at 6 vs. 5 to give them that one extra year of therapy and developmental time. If you have questions after reading the following please share them. This group has always been a wealth of information for all of us, no matter how long we've been here. Below is a new member archived message to hopefully answer more of your questions for now (did you read The Late Talker yet?) For updated information on fish oils and vitamin E and more - please visit the links section here /links What type of apraxic like speech behaviors are you seeing that makes you and the SLP suspect your child has apraxia vs. a simple delay in speech? Is your child talking at all yet? At your child's age - without speech, it's difficult to diagnose verbal apraxia -they could " suspect " verbal apraxia and begin treatment just in case, which wouldn't hurt your child if he ended up just having a simple delay. Just a few questions before we could provide more accurate answers: Does your child have signs of oral apraxia? (for example, can he on command smile, imitate funny faces, blow bubbles...if you put peanut butter anywhere around his mouth can he lick it off no matter where it is?) http://www.cherab.org/information/speechlanguage/oralapraxia.html Does your child have any neurological " soft signs " such as hypotonia or sensory integration dysfunction? http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html Who else evaluated your child? Was it only the SLP through your town school or was he also in Early Intervention through the state? (birth to three) Was he evaluated by both a speech pathologist as well as an occupational therapist? Was/were they knowledgeable about apraxia? (If your child wasn't diagnosed by an occupational therapist as well and professionals suspect apraxia -I highly recommend you request that too either through both the school as well as private through insurance for many reasons) To answer any questions you may have about taking your child to see a neurodevelopmental MD if he has not yet been to one and apraxia is suspected... in one word - " Yes!!! " I would have your child diagnosed (private) by a neurodevelopmental medical doctor (developmental pediatrician or pediatric neurologist) who is knowledgeable about apraxia and other neurologically based multi-faceted communication impairments for numerous reasons. Reasons include (but not limited to) *having a " hero " on the outside of the school who can assist in a therapeutic plan and oversee your child's development over the years *advocacy support with the insurance company * ruling out or confirming any neurological soft signs or any other reasons for the delay in speech *help those that ask " why isn't he talking yet " understand this is a medical condition -and has nothing to do with your child's cognitive ability. (if in your child's case it doesn't. Apraxia in itself does not affect a child's cognitive ability -and speaking early or late is no indication of a child's intelligence. Also contrary to popular belief -most who have speech impairments have average to above average intelligence) Here's an article written by Neurodevelopmental Pediatrician Dr. Marilyn Agin that was featured as a cover article in Contemporary Pediatrics -a trade magazine for hundreds of thousands of pediatric medical professionals across the US. (I wrote the parent guide) " The " late talker " -when silence isn't golden Not all children with delayed speech are " little Einsteins " or garden variety " late bloomers. " Some have a speech-language disorder that will persist unless warning signs are recognized and intervention comes early. Includes a Guide for Parents. " Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics http://contemporarypediatrics.modernmedicine.com/radio_peds4 Actual article (where you can read it for free) http://drgreene.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720 or http://opsc.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720 My parent guide still works (for free) http://www.contemporarypediatrics.com/contpeds/data/articlestandard/contpeds/492\ 004/136315/article.pdf I would also have at least one private " out of pocket " (if possible) exam with a knowledgeable speech pathologist as well. This SLP can coordinate with your child's MD, and school therapist and other professionals, and again be there to assist in a therapeutic plan, help set goals and oversee your child's development over the years if needed. Networking with parents of other speech-impaired children is also possibly one of the best moves you could make in your child's recovery. Others will steer you to the " right " professionals and programs in your area -and you won't feel so alone. I would HIGHLY recommend joining a whose goal is to unite parents and professionals. This group / is through CHERAB http://www.cherab.org The speechville website also has message boards so that you can talk to other parents on particular topics. http://www.speech-express.com/boards/ Check your state resources at Speechville to find local support groups and resources. http://www.speech-express.com/regional-resources.html http://www.speech-express.com/communication-station/regional-support-groups.html (BTW -for anyone who is either running or starting a support group - due to The Late Talker book and the many who will see your group, please make sure your info is up at this website and accurate) For all your other questions including what type of testing -just read " The Late Talker " . (Nike said 'Just Do It!' -I say 'Just Read It!') At Amazon.com you can even start today and read sample pages of the book online! " The first book to show parents how to tell whether a child has a speech delay -or a more serious speech disorder Every parent eagerly awaits the day his or her child will speak for the fist time. For millions of mothers and fathers, however, anticipation turns to anxiety when those initial, all-important words are a long time coming. Many worried parents are reassured that their child is " just a late talker, " but unfortunately, that is not always the case. Co-author Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 I'm always amazed at all the valuable information you provide to newcomers. I should have discovered this list a year and a half ago when the EI/SARC therapist was unable to get Ziana to say anything or even look at her face and week after week was spent accomplishing nothing--and I kept hoping she will just start talking as the pediatrician assured me she would in her own time. Her progress since those days is amazing, once we got the metabolic quirks figured out and the supplements are finally getting to her brain. The PRO EFA is also improving things considerably, I can tell it is a huge improvement over the regular fish oil we'd been giving her since birth. Slowly but surely it's all coming together. I hope all the parents of apraxic kids find their way to this site sooner so they can benefit from all this wealth of knowledge you've put together. Thank you for providing such a thorough explanation and case studies, all the details the parent of a newly diagnosed child needs. Oh, and one more thing, Does CHERAB have any recommendations where to purchase the PRO EFA. We're running out and just thought I'd get it where other parents here get it if there is such a source. We now go through one bottle pretty quickly, she takes 9 a day so it goers fast. Thank you. Elena From: kiddietalk <kiddietalk@...> Subject: [ ] Re: Hi, I am new! Date: Saturday, August 9, 2008, 12:50 PM Hi Yvette! Welcome! I have a new member archive below but just wanted to let you know that you are using what is comparable to 4 capsules of ProEFA. Most of us have found that raising the EPA a bit higher creates an even greater surge than increasing the ProEFA. You may want to decrease to 1/2 tsp and add one capsule of ProEPA. Below is much more info! Here's a very long archive both about apraxia as well as fish oils and vitamin E. Re: Hi! New and wondering about apraxia. Hi Mrs Laurie and welcome! Your son sounds like he has some oral apraxia which would of course need to be confirmed by professionals. If oral apraxia is present together with your child's delay he should at least be diagnosed as " suspected apraxia " and appropriate therapy should be provided. He is entitled by federal law to a free and appropriate public education (FAPE) in the least restrictive environment (LRE) which means that if 5 days of one on one speech therapy is appropriate for him then that's what he should receive. What type of speech therapy is he receiving from the school right now when you say " some " ? Below is a very long archive to help -please know that you don't have to understand it all at once -we're here as a group to help! Thanks for sharing. This group has from the start been a group that's made up of parents and professionals who care for children with many types of speech and/or language delays and/or disorders. There are parents here for example with undiagnosed " late talkers " and we just have not heard from them in awhile. It's actually a really good thing when there is a mix of us to share because we all learn from each other as many diagnoses can overlap -or down the road we learn that our child does have co diagnosis. While this group is open to parents of all children with communication impairments -including hearing impaired, autistic etc. it wasn't that all that posted recently had a child with autism, or autism and apraxia -but because of society focus on autism -many here started following an autism approach -including ABA in some cases! That's understandable if the much more basic approach to apraxia -ST and OT and EFAs were tried first and didn't work -but some were trying that to start. The overwhelming majority (if you check the archives) have success with the basic approach to apraxia. On the other hand- most of us are dealing with more than verbal apraxia.we just don't know that when our child is 2 -and we learn through professionals and observations as they continue to grow and more and more is expected of them. This is also why it's important to take your child for a neurodevelopmental medical exam when your child is suspected of apraxia to confirm or rule out other diagnosis such as sensory integration dysfunction etc. The earlier you know - the sooner to start appropriate therapies to get them up to speed by kindergarten. Don't let it overwhelm you -perhaps we aren't meant to know more than what we have to know at each stage. We'll be here to help along the way. It's OK to have any type of emotion when we find out our child has more than a simple delay -or " more " than " just " verbal apraxia. And it's OK to be completely overwhelmed and saddened to find out your child has apraxia. And as I was one of those parents it's never " just " apraxia when you find out!!! It's OK to be upset " just " because your child is a " late talker " too! Please know that I too believed Tanner to just have apraxia and have my first message posted to a grouplist about that below.but down the road found out he had a few other things we needed to help him address. The incredible news is that the majority of our children if you check history are up to speed to be mainstreamed by kindergarten- and of course many have learned with communication impaired children that it's best to start kindergarten at 6 vs. 5 to give them that one extra year of therapy and developmental time. If you have questions after reading the following please share them. This group has always been a wealth of information for all of us, no matter how long we've been here. Below is a new member archived message to hopefully answer more of your questions for now (did you read The Late Talker yet?) For updated information on fish oils and vitamin E and more - please visit the links section here /links What type of apraxic like speech behaviors are you seeing that makes you and the SLP suspect your child has apraxia vs. a simple delay in speech? Is your child talking at all yet? At your child's age - without speech, it's difficult to diagnose verbal apraxia -they could " suspect " verbal apraxia and begin treatment just in case, which wouldn't hurt your child if he ended up just having a simple delay. Just a few questions before we could provide more accurate answers: Does your child have signs of oral apraxia? (for example, can he on command smile, imitate funny faces, blow bubbles...if you put peanut butter anywhere around his mouth can he lick it off no matter where it is?) http://www.cherab.org/information/speechlanguage/oralapraxia.html Does your child have any neurological " soft signs " such as hypotonia or sensory integration dysfunction? http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html Who else evaluated your child? Was it only the SLP through your town school or was he also in Early Intervention through the state? (birth to three) Was he evaluated by both a speech pathologist as well as an occupational therapist? Was/were they knowledgeable about apraxia? (If your child wasn't diagnosed by an occupational therapist as well and professionals suspect apraxia -I highly recommend you request that too either through both the school as well as private through insurance for many reasons) To answer any questions you may have about taking your child to see a neurodevelopmental MD if he has not yet been to one and apraxia is suspected... in one word - " Yes!!! " I would have your child diagnosed (private) by a neurodevelopmental medical doctor (developmental pediatrician or pediatric neurologist) who is knowledgeable about apraxia and other neurologically based multi-faceted communication impairments for numerous reasons. Reasons include (but not limited to) *having a " hero " on the outside of the school who can assist in a therapeutic plan and oversee your child's development over the years *advocacy support with the insurance company * ruling out or confirming any neurological soft signs or any other reasons for the delay in speech *help those that ask " why isn't he talking yet " understand this is a medical condition -and has nothing to do with your child's cognitive ability. (if in your child's case it doesn't. Apraxia in itself does not affect a child's cognitive ability -and speaking early or late is no indication of a child's intelligence. Also contrary to popular belief -most who have speech impairments have average to above average intelligence) Here's an article written by Neurodevelopmental Pediatrician Dr. Marilyn Agin that was featured as a cover article in Contemporary Pediatrics -a trade magazine for hundreds of thousands of pediatric medical professionals across the US. (I wrote the parent guide) " The " late talker " -when silence isn't golden Not all children with delayed speech are " little Einsteins " or garden variety " late bloomers. " Some have a speech-language disorder that will persist unless warning signs are recognized and intervention comes early. Includes a Guide for Parents. " Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics http://contemporarypediatrics.modernmedicine.com/radio_peds4 Actual article (where you can read it for free) http://drgreene.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720 or http://opsc.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720 My parent guide still works (for free) http://www.contemporarypediatrics.com/contpeds/data/articlestandard/contpeds/492\ 004/136315/article.pdf I would also have at least one private " out of pocket " (if possible) exam with a knowledgeable speech pathologist as well. This SLP can coordinate with your child's MD, and school therapist and other professionals, and again be there to assist in a therapeutic plan, help set goals and oversee your child's development over the years if needed. Networking with parents of other speech-impaired children is also possibly one of the best moves you could make in your child's recovery. Others will steer you to the " right " professionals and programs in your area -and you won't feel so alone. I would HIGHLY recommend joining a whose goal is to unite parents and professionals. This group / is through CHERAB http://www.cherab.org The speechville website also has message boards so that you can talk to other parents on particular topics. http://www.speech-express.com/boards/ Check your state resources at Speechville to find local support groups and resources. http://www.speech-express.com/regional-resources.html http://www.speech-express.com/communication-station/regional-support-groups.html (BTW -for anyone who is either running or starting a support group - due to The Late Talker book and the many who will see your group, please make sure your info is up at this website and accurate) For all your other questions including what type of testing -just read " The Late Talker " . (Nike said 'Just Do It!' -I say 'Just Read It!') At Amazon.com you can even start today and read sample pages of the book online! " The first book to show parents how to tell whether a child has a speech delay -or a more serious speech disorder Every parent eagerly awaits the day his or her child will speak for the fist time. For millions of mothers and fathers, however, anticipation turns to anxiety when those initial, all-important words are a long time coming. Many worried parents are reassured that their child is " just a late talker, " but unfortunately, that is not always the case. Co-author Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Hi, THANK YOU so much for all that info! I am going to look at reducing the PROEFA to 1/2 teaspoon and then I will try adding the PROEPA. I am hoping to see some real progress. It is so hard having a 2 year old that isn't talking. I never know what to tell people. I am glad that I found this group though. Yvette From: kiddietalk <kiddietalk@...> Subject: [ ] Re: Hi, I am new! Date: Saturday, August 9, 2008, 10:50 AM Hi Yvette! Welcome! I have a new member archive below but just wanted to let you know that you are using what is comparable to 4 capsules of ProEFA. Most of us have found that raising the EPA a bit higher creates an even greater surge than increasing the ProEFA. You may want to decrease to 1/2 tsp and add one capsule of ProEPA. Below is much more info! Here's a very long archive both about apraxia as well as fish oils and vitamin E. Re: Hi! New and wondering about apraxia. Hi Mrs Laurie and welcome! Your son sounds like he has some oral apraxia which would of course need to be confirmed by professionals. If oral apraxia is present together with your child's delay he should at least be diagnosed as " suspected apraxia " and appropriate therapy should be provided. He is entitled by federal law to a free and appropriate public education (FAPE) in the least restrictive environment (LRE) which means that if 5 days of one on one speech therapy is appropriate for him then that's what he should receive. What type of speech therapy is he receiving from the school right now when you say " some " ? Below is a very long archive to help -please know that you don't have to understand it all at once -we're here as a group to help! Thanks for sharing. This group has from the start been a group that's made up of parents and professionals who care for children with many types of speech and/or language delays and/or disorders. There are parents here for example with undiagnosed " late talkers " and we just have not heard from them in awhile. It's actually a really good thing when there is a mix of us to share because we all learn from each other as many diagnoses can overlap -or down the road we learn that our child does have co diagnosis. While this group is open to parents of all children with communication impairments -including hearing impaired, autistic etc. it wasn't that all that posted recently had a child with autism, or autism and apraxia -but because of society focus on autism -many here started following an autism approach -including ABA in some cases! That's understandable if the much more basic approach to apraxia -ST and OT and EFAs were tried first and didn't work -but some were trying that to start. The overwhelming majority (if you check the archives) have success with the basic approach to apraxia. On the other hand- most of us are dealing with more than verbal apraxia.we just don't know that when our child is 2 -and we learn through professionals and observations as they continue to grow and more and more is expected of them. This is also why it's important to take your child for a neurodevelopmental medical exam when your child is suspected of apraxia to confirm or rule out other diagnosis such as sensory integration dysfunction etc. The earlier you know - the sooner to start appropriate therapies to get them up to speed by kindergarten. Don't let it overwhelm you -perhaps we aren't meant to know more than what we have to know at each stage. We'll be here to help along the way. It's OK to have any type of emotion when we find out our child has more than a simple delay -or " more " than " just " verbal apraxia. And it's OK to be completely overwhelmed and saddened to find out your child has apraxia. And as I was one of those parents it's never " just " apraxia when you find out!!! It's OK to be upset " just " because your child is a " late talker " too! Please know that I too believed Tanner to just have apraxia and have my first message posted to a grouplist about that below.but down the road found out he had a few other things we needed to help him address. The incredible news is that the majority of our children if you check history are up to speed to be mainstreamed by kindergarten- and of course many have learned with communication impaired children that it's best to start kindergarten at 6 vs. 5 to give them that one extra year of therapy and developmental time. If you have questions after reading the following please share them. This group has always been a wealth of information for all of us, no matter how long we've been here. Below is a new member archived message to hopefully answer more of your questions for now (did you read The Late Talker yet?) For updated information on fish oils and vitamin E and more - please visit the links section here http://health. groups.. com/group/ childrensapraxia net/links What type of apraxic like speech behaviors are you seeing that makes you and the SLP suspect your child has apraxia vs. a simple delay in speech? Is your child talking at all yet? At your child's age - without speech, it's difficult to diagnose verbal apraxia -they could " suspect " verbal apraxia and begin treatment just in case, which wouldn't hurt your child if he ended up just having a simple delay. Just a few questions before we could provide more accurate answers: Does your child have signs of oral apraxia? (for example, can he on command smile, imitate funny faces, blow bubbles...if you put peanut butter anywhere around his mouth can he lick it off no matter where it is?) http://www.cherab. org/information/ speechlanguage/ oralapraxia. html Does your child have any neurological " soft signs " such as hypotonia or sensory integration dysfunction? http://www.cherab. org/information/ speechlanguage/ parentfriendlyso ftsigns.html Who else evaluated your child? Was it only the SLP through your town school or was he also in Early Intervention through the state? (birth to three) Was he evaluated by both a speech pathologist as well as an occupational therapist? Was/were they knowledgeable about apraxia? (If your child wasn't diagnosed by an occupational therapist as well and professionals suspect apraxia -I highly recommend you request that too either through both the school as well as private through insurance for many reasons) To answer any questions you may have about taking your child to see a neurodevelopmental MD if he has not yet been to one and apraxia is suspected... in one word - " Yes!!! " I would have your child diagnosed (private) by a neurodevelopmental medical doctor (developmental pediatrician or pediatric neurologist) who is knowledgeable about apraxia and other neurologically based multi-faceted communication impairments for numerous reasons. Reasons include (but not limited to) *having a " hero " on the outside of the school who can assist in a therapeutic plan and oversee your child's development over the years *advocacy support with the insurance company * ruling out or confirming any neurological soft signs or any other reasons for the delay in speech *help those that ask " why isn't he talking yet " understand this is a medical condition -and has nothing to do with your child's cognitive ability. (if in your child's case it doesn't. Apraxia in itself does not affect a child's cognitive ability -and speaking early or late is no indication of a child's intelligence. Also contrary to popular belief -most who have speech impairments have average to above average intelligence) Here's an article written by Neurodevelopmental Pediatrician Dr. Marilyn Agin that was featured as a cover article in Contemporary Pediatrics -a trade magazine for hundreds of thousands of pediatric medical professionals across the US. (I wrote the parent guide) " The " late talker " -when silence isn't golden Not all children with delayed speech are " little Einsteins " or garden variety " late bloomers. " Some have a speech-language disorder that will persist unless warning signs are recognized and intervention comes early. Includes a Guide for Parents. " Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics http://contemporary pediatrics. modernmedicine. com/radio_ peds4 Actual article (where you can read it for free) http://drgreene. mediwire. com/main/ Default.aspx? P=Content & ArticleID= 132720 or http://opsc. mediwire. com/main/ Default.aspx? P=Content & ArticleID= 132720 My parent guide still works (for free) http://www.contempo rarypediatrics. com/contpeds/ data/articlestan dard/contpeds/ 492004/136315/ article.pdf I would also have at least one private " out of pocket " (if possible) exam with a knowledgeable speech pathologist as well. This SLP can coordinate with your child's MD, and school therapist and other professionals, and again be there to assist in a therapeutic plan, help set goals and oversee your child's development over the years if needed. Networking with parents of other speech-impaired children is also possibly one of the best moves you could make in your child's recovery. Others will steer you to the " right " professionals and programs in your area -and you won't feel so alone. I would HIGHLY recommend joining a whose goal is to unite parents and professionals. This group http://groups. / group/childrensa praxianet/ is through CHERAB http://www.cherab. org The speechville website also has message boards so that you can talk to other parents on particular topics. http://www.speech- express.com/ boards/ Check your state resources at Speechville to find local support groups and resources. http://www.speech- express.com/ regional- resources. html http://www.speech- express.com/ communication- station/regional -support- groups.html (BTW -for anyone who is either running or starting a support group - due to The Late Talker book and the many who will see your group, please make sure your info is up at this website and accurate) For all your other questions including what type of testing -just read " The Late Talker " . (Nike said 'Just Do It!' -I say 'Just Read It!') At Amazon.com you can even start today and read sample pages of the book online! " The first book to show parents how to tell whether a child has a speech delay -or a more serious speech disorder Every parent eagerly awaits the day his or her child will speak for the fist time. For millions of mothers and fathers, however, anticipation turns to anxiety when those initial, all-important words are a long time coming. Many worried parents are reassured that their child is " just a late talker, " but unfortunately, that is not always the case. Co-author Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Hi Yvette! As long as you are seeing the surges then you'll keep on seeing them. At times we all have to tweak the dosage as you can do the 2 ProEFA to 1 ProEPA twice a day or three times a day. You don't have to do or understand everything at once as there are many of us to help you along the way. Back when my son was diagnosed with apraxia in 1999 the school of thought from many of the experts was that you couldn't diagnose apraxia until 3 years old. We know today that's not true especially if your child has signs of oral apraxia and/or if you get a neurologist involved who can diagnose the " soft signs " Even if a professional isn't comfortable diagnosing apraxia yet in a 2 year old they can diagnose the child as " suspected apraxia " and help you advocate for appropriate services. That could help you in securing more therapy now as well as when your child is 3 years old and transisitions to the preschool program. Signing is wonderful- it's honestly the first way my son actually " spoke " to me. It's so incredible you have no idea to have a way to communicate with your child until they learn to speak. Check out every type of simple alternative communication. Here's an archive from dear (so far so good with the cancer drug) Re: PECS, sign and speech Hi everyone and welcome newcomers! There is a comprehensive website, YAACK, which answer questions and concerns about the use of ACC devices. I feel members will find this resource informative/helpful for those interested in learning more about augmentative and alternative communication. Mustafa Augmentative and Alternative Communication (AAC) Connecting Young Kids (YAACK) Home Page http://aac.unl.edu/yaack/index.html " Augmentative and Alternative Communication (AAC) Connecting Young Kids (YAACK) is a website that covers issues related to AAC and young children. Its purpose is to provide information and guidance to families, teachers, speech/language pathologists and anyone else who is involved with a child with special communication needs. It is intended to be easy to understand and practical, and to cover a wide range of topics dealing with AAC and AAC-related issues of children at various ages and stages of communication ability, and with different strengths, disabilities and learning characteristics. YAACK is based on the premise that the purpose of AAC is to assist the child in attaining the quality of life that approaches the level of satisfaction and meaningfulness that would have been possible if the child did not have a communication disability. Therefore, the child's ability to communicate when, where and what is desired is the goal; AAC is just the means. YAACK emphasizes the individuality of each child, and stresses the fact that there is no single solution or set of procedures that will work for every child. Success depends on really getting to know and understand the child, and then developing and implementing a communication program that takes into account his or her unique characteristics. " What is augmentative and alternative communication (AAC)? http://aac.unl.edu/yaack/b0.html When does a child need AAC? http://aac.unl.edu/yaack/b1.html Risk factors for a communication impairment http://aac.unl.edu/yaack/b1.html#b1a Does AAC impede natural speech? —and other fears http://aac.unl.edu/yaack/b2.html Finding answers to specific AAC questions http://aac.unl.edu/yaack/b5.html Communication boards and VOCAs http://aac.unl.edu/yaack/d5.html#d5b Children with specific disabilities http://aac.unl.edu/yaack/d4.html Children with apraxia http://aac.unl.edu/yaack/d4.html#d4f Children with motor impairments http://aac.unl.edu/yaack/d4.html#d4a On-line AAC discussion groups http://aac.unl.edu/yaack/b5.html#b5a Books http://aac.unl.edu/yaack/b5.html#b5b " The following are listings of books on AAC and communication-related issues. " " Selected Books on Augmentative Communication and Adaptive Play " compiled by J. Burkhart is located at www.lburkhart.com/sr.htm#2. " Augmentative and Alternative Communication Related Reference List " compiled by Dr. R. Beukelman and Dr. Pat Mirenda at aac.unl.edu/aacinref.html. Other Internet resources http://aac.unl.edu/yaack/b5.html#b5c " The following are Internet websites with a strong focus on AAC and/or communication disability-related issues. They are not arranged in any particular order. " ~~~~~~~~end of archive from PS -we're glad you found us too! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Ok, so I need some help. How should I start dosing him with the ProEFA? Should I give him 1/2 teaspoon 2-3 daily? Or less or more? What is the difference with giving him 1 teaspoon in the morning? Maybe it is best not all at once. I am going to look for the PROEPA and when I find it I will add 1 capsule once a day right? WOW...lots of questions. I just get so excited when I find that maybe more supplements might help. Thanks!! Yvette From: kiddietalk <kiddietalk@...> Subject: [ ] Re: Hi, I am new! Date: Saturday, August 9, 2008, 10:20 PM Hi Yvette! As long as you are seeing the surges then you'll keep on seeing them. At times we all have to tweak the dosage as you can do the 2 ProEFA to 1 ProEPA twice a day or three times a day. You don't have to do or understand everything at once as there are many of us to help you along the way. Back when my son was diagnosed with apraxia in 1999 the school of thought from many of the experts was that you couldn't diagnose apraxia until 3 years old. We know today that's not true especially if your child has signs of oral apraxia and/or if you get a neurologist involved who can diagnose the " soft signs " Even if a professional isn't comfortable diagnosing apraxia yet in a 2 year old they can diagnose the child as " suspected apraxia " and help you advocate for appropriate services. That could help you in securing more therapy now as well as when your child is 3 years old and transisitions to the preschool program. Signing is wonderful- it's honestly the first way my son actually " spoke " to me. It's so incredible you have no idea to have a way to communicate with your child until they learn to speak. Check out every type of simple alternative communication. Here's an archive from dear (so far so good with the cancer drug) Re: PECS, sign and speech Hi everyone and welcome newcomers! There is a comprehensive website, YAACK, which answer questions and concerns about the use of ACC devices. I feel members will find this resource informative/ helpful for those interested in learning more about augmentative and alternative communication. Mustafa Augmentative and Alternative Communication (AAC) Connecting Young Kids (YAACK) Home Page http://aac.unl. edu/yaack/ index.html " Augmentative and Alternative Communication (AAC) Connecting Young Kids (YAACK) is a website that covers issues related to AAC and young children. Its purpose is to provide information and guidance to families, teachers, speech/language pathologists and anyone else who is involved with a child with special communication needs. It is intended to be easy to understand and practical, and to cover a wide range of topics dealing with AAC and AAC-related issues of children at various ages and stages of communication ability, and with different strengths, disabilities and learning characteristics. YAACK is based on the premise that the purpose of AAC is to assist the child in attaining the quality of life that approaches the level of satisfaction and meaningfulness that would have been possible if the child did not have a communication disability. Therefore, the child's ability to communicate when, where and what is desired is the goal; AAC is just the means. YAACK emphasizes the individuality of each child, and stresses the fact that there is no single solution or set of procedures that will work for every child. Success depends on really getting to know and understand the child, and then developing and implementing a communication program that takes into account his or her unique characteristics. " What is augmentative and alternative communication (AAC)? http://aac.unl. edu/yaack/ b0.html When does a child need AAC? http://aac.unl. edu/yaack/ b1.html Risk factors for a communication impairment http://aac.unl. edu/yaack/ b1.html#b1a Does AAC impede natural speech? —and other fears http://aac.unl. edu/yaack/ b2.html Finding answers to specific AAC questions http://aac.unl. edu/yaack/ b5.html Communication boards and VOCAs http://aac.unl. edu/yaack/ d5.html#d5b Children with specific disabilities http://aac.unl. edu/yaack/ d4.html Children with apraxia http://aac.unl. edu/yaack/ d4.html#d4f Children with motor impairments http://aac.unl. edu/yaack/ d4.html#d4a On-line AAC discussion groups http://aac.unl. edu/yaack/ b5.html#b5a Books http://aac.unl. edu/yaack/ b5.html#b5b " The following are listings of books on AAC and communication- related issues. " " Selected Books on Augmentative Communication and Adaptive Play " compiled by J. Burkhart is located at www.lburkhart. com/sr.htm# 2. " Augmentative and Alternative Communication Related Reference List " compiled by Dr. R. Beukelman and Dr. Pat Mirenda at aac.unl.edu/ aacinref. html. Other Internet resources http://aac.unl. edu/yaack/ b5.html#b5c " The following are Internet websites with a strong focus on AAC and/or communication disability-related issues. They are not arranged in any particular order. " ~~~~~~~~end of archive from PS -we're glad you found us too! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Why not start with the 1/2 tsp of ProEFA oil with the one capsule of ProEPA once a day in the AM and then increase to two or three times a day. The difference between ProEFA and ProEPA (can't remember if it was you that asked) is that ProEFA is highest in EPA and then DHA with a bit of GLA. DHA and EPA are Omega 3 oils and GLA is an Omega 6 oil typically found in primrose or borage seed oil in the formulas we've found as a group to work. The ProEPA is a more expensive oil to produce so it's a bit more expensive. Research in the UK found that the EPA appears to be more important then the DHA for some reason. We've found the same in our group. Here's a link that explains how I learned which formula was the best back in 2000 and proved that to be the case over time in this group with other children just like my son Tanner through parental feedback which led to professional anecdotal feedback: http://www.cherab.org/information/historyEFA.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Hi , I'm new here too. Did you see my e-mail about using Coromega, an omega 3 supplement? It's on the web at coromega.com/index3.html Thanks, Carol O'Donnell _____ From: [mailto: ] On Behalf Of kiddietalk Sent: Sunday, August 10, 2008 4:02 PM Subject: [ ] Re: Hi, I am new! Why not start with the 1/2 tsp of ProEFA oil with the one capsule of ProEPA once a day in the AM and then increase to two or three times a day. The difference between ProEFA and ProEPA (can't remember if it was you that asked) is that ProEFA is highest in EPA and then DHA with a bit of GLA. DHA and EPA are Omega 3 oils and GLA is an Omega 6 oil typically found in primrose or borage seed oil in the formulas we've found as a group to work. The ProEPA is a more expensive oil to produce so it's a bit more expensive. Research in the UK found that the EPA appears to be more important then the DHA for some reason. We've found the same in our group. Here's a link that explains how I learned which formula was the best back in 2000 and proved that to be the case over time in this group with other children just like my son Tanner through parental feedback which led to professional anecdotal feedback: http://www.cherab. <http://www.cherab.org/information/historyEFA.html> org/information/historyEFA.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 OK, Sorry for all the emails and questions but I just want to get it right. I was looking at nordic naturals website and I can't find ProEPA just an EPA or EPA extra. Which one am I looking for? I don't know if I mentioned but my son is 26 months...just hoping that the doseages are safe.. Like I said we have been doing about a teaspoon of PROEFA with no bad results. Thanks! Yvette From: kiddietalk <kiddietalk@...> Subject: [ ] Re: Hi, I am new! Date: Sunday, August 10, 2008, 2:01 PM Why not start with the 1/2 tsp of ProEFA oil with the one capsule of ProEPA once a day in the AM and then increase to two or three times a day. The difference between ProEFA and ProEPA (can't remember if it was you that asked) is that ProEFA is highest in EPA and then DHA with a bit of GLA. DHA and EPA are Omega 3 oils and GLA is an Omega 6 oil typically found in primrose or borage seed oil in the formulas we've found as a group to work. The ProEPA is a more expensive oil to produce so it's a bit more expensive. Research in the UK found that the EPA appears to be more important then the DHA for some reason. We've found the same in our group. Here's a link that explains how I learned which formula was the best back in 2000 and proved that to be the case over time in this group with other children just like my son Tanner through parental feedback which led to professional anecdotal feedback: http://www.cherab. org/information/ historyEFA. html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Hi Yvette! Ask away it's fine! About the safety for children. One capsule of ProEFA is about the dosage of EFAs the FDA approved for infant formula. Wow so much on this I don't know which to quote (google PUFA infant etc.) Just out in the news Prenatal Exposure to n-3 Polyunsaturated Fatty Acids Protects Against Asthma CME News Author: Laurie Barclay, MD CME Author: Désirée Lie, MD, MSEd Release Date: July 14, 2008; Valid for credit through July 14, 2009 Physicians - maximum of 0.25 AMA PRA Category 1 Credit(s)™ for physicians; Family Physicians - up to 0.25 AAFP Prescribed credit(s) for physicians July 14, 2008 — Intake of n-3 polyunsaturated fatty acids (n-3 PUFAs) in late pregnancy may have prophylactic effects against asthma in children, according to the results of a randomized, prospective study reported in the July issue of the American Journal of Clinical Nutrition. " Evidence suggests that asthma is rooted in the intrauterine environment and that intake of marine ...n-3 PUFAs in pregnancy may have immunomodulatory effects on the child, " write Sjurdur F. Olsen, from Statens Serum Institut in Copenhagen, Denmark, and colleagues. " Our aim was to examine whether increasing maternal intake of n-3 PUFAs in pregnancy may affect offspring risk of asthma. " The study cohort was a population-based sample of 533 women with normal pregnancies in 1990 who were recruited and randomized at approximately gestational week 30 and who were asked to take study capsules until delivery. Participants were randomized 2:1:1 to receive four 1-g gelatin capsules per day containing fish oil providing 2.7 g n-3 PUFAs (n = 266); four 1-g, similar-appearing capsules per day containing olive oil (n = 136); or no oil capsules (n = 131). Of 531 liveborn children, 528 were identified in registries, and 523 were still alive by August 2006. Using a mandatory registry that recorded diagnoses reported from hospital contacts, the investigators extracted diagnoses from the International Classification of Diseases, 10th Revision. During a 16-year follow-up, an asthma-related diagnosis was reported in 19 children from the fish oil and olive oil groups, including 10 diagnosed with allergic asthma. For the fish oil vs the olive oil group, the hazard rate of asthma was reduced by 63% (95% confidence interval [CI], 8% - 85%; P = .03), and the hazard rate of allergic asthma was reduced by 87% (95% CI, 40% - 97%; P = ..01). " Under the assumption that intake of olive oil in the dose provided here was inert, our results support that increasing n-3 PUFAs in late pregnancy may carry an important prophylactic potential in relation to offspring asthma, " the study authors write. Limitations of this study include few data to evaluate the dose-response relationship between maternal intake of n-3 PUFAs and offspring asthma. " Clearly, there is a need for both large RCTs [randomized clinical trials] with long follow-ups as well as mechanistic studies, " the study authors conclude. " Trials should also be undertaken that test the potential immunomodulatory effects on the offspring of various doses of n-3 PUFAs supplemented during various time windows during gestation. " The European Union FP6 consortium, Early Nutrition Programming Project, The Danish Obesity Research Centre from the Danish Strategic Research Council, The Lundbeck Foundation, and The Danish Medical Research Council supported this study. The study authors have disclosed no relevant financial relationships. Am J Clin Nutr. 2008;88:167-175. Clinical Context The cause of asthma remains enigmatic. Maternal factors such as smoking, infections, and antibiotic use during pregnancy have been implicated in the occurrence of asthma and atopic disorders in the offspring as well as dietary intake of antioxidants, vitamins A and D, folate, and pollutants. These factors suggest that maternal intake of marine n-3 PUFAs, eicosapentaenoic acid (EPA), and docosahexaenoic acid (DHA) may affect immune function and the risk for asthma in the offspring. This is a follow-up study of children of mothers who were in a randomized clinical trial during pregnancy who were assigned to either n-3 PUFA supplementation, olive oil placebo, or no supplementation, to examine their incidence of asthma. Study Highlights Included were 533 women from a midwife clinic in Denmark who were randomized in 2:1:1 ratio to receive 1 of 3 treatments during pregnancy. The primary goal of the study was to investigate the protective effect of marine fish oil on preventing preterm delivery. Excluded from the study were women with a history of placental abruption, any bleeding in the current pregnancy, multiple pregnancies, allergy to fish, and regular use of fish oil. Women were interviewed about lifestyle factors and after delivery about compliance to assigned treatment and adverse effects. The investigators estimated adherence by weighing boxes containing the medications at each clinic visit. The treatments were four 1-g gelatin capsules of Pikasol (Lube Ltd, Hadsund, Denmark) fish oil daily (32% EPA and 23% DHA with 2 mg of tocopherol/mL corresponding to 2.7-g marine n-3 PUFA daily), identical-appearing olive oil capsules, or no supplements. Olive oil was chosen as the placebo because it had no known effect on the risk for asthma or on the pregnancy. The supplements were taken from 30 weeks of gestation until delivery. A food frequency questionnaire was used to stratify women further by fish intake (low, medium, and high). The children were tracked with use of 10-digit identifiers linked to their mothers in the Danish National Patient Registry. For each child, diagnoses with International Classification of Diseases, 10th Revision, codes were extracted, and incidence of asthma and allergic conditions was documented. Most diagnoses of asthma were given by pediatricians or pediatric pulmonologists. Most children were tracked to age 15 to 16 years. The analysis compared only the fish oil with the olive oil group as placebo because the authors considered that the no-treatment group may have voluntarily ingested fish oil supplements, which would have confounded the findings. Of 533 assigned fetuses, 531 were born and 522 were still alive by 2006. There were 8 cases of asthma in the fish oil (n = 263) vs 11 cases in the olive oil group (n = 136). The corresponding hazard ratio (HR) for asthma for the fish oil group was 0.37 (95% CI, 0.15 - 0.92). The number of children with a diagnosis of allergic asthma was 2 in the fish oil and 8 in the olive oil group. The HR for allergic asthma in the fish oil vs the olive oil group was 0.13 (95% CI, 0.03 - 0.60). When the diagnoses were expanded to include other allergic conditions, there were 11 cases of asthma (all types), atopic dermatitis, or allergic rhinitis in the fish oil and 13 in the olive oil group. The corresponding HR for other allergic conditions in the fish oil vs the olive oil group was 0.43 (95% CI, 0.19 - 0.96). In the low, middle, and high fish intake groups, the HRs for all types of asthma were 0.13, 0.54, and 0.36, but none of these associations were statistically significant. The authors concluded that fish oil supplementation in pregnant mothers was associated with a decreased risk for asthma in their offspring, independent of fish intake. Pearls for Practice Maternal use of fish oil during pregnancy is associated with a reduced incidence of asthma and allergic asthma in the offspring. Potential maternal causes of asthma in the offspring include smoking; infections; antibiotic use; dietary intake of antioxidants, vitamins A and D, and folate; and pollutants during pregnancy. http://www.medscape.com/viewarticle/577464 From: " Katz, Ph.D. " Date: Thu Nov 22, 2001 11:24 am Subject: Re: nervous about 2nd child Dear Kathie and Eileen, The question is can EFAs be supplemented to younger children so that verbal apraxia/dyspraxia can be prevented? The simple theoretical answer to this is a yes. Recently, the U.S. Food and Drug Administration approved the addition of 100 mg/day of DHA (Docosahexaenoic, an omega-3 EFA) and 100 mg/day of ARA (arachidonic acid, an omega-6 EFA) that is produced from GLA to infant formula. The purpose is to make infant formulas more like breast milk. So, giving the content of one ProEFA to an eight months old would provide about the same amount of DHA and half the ARA. Since some of the linoleic acid from the borage oil will be transformed by body into ARA, the total ARA will be close to the 100 mg/day dose. The 140 mg of EPA will be welcomed by the body. Recommendation: Since these are over the counter nutritional supplements the decision as to undertake this preventive pathway or not is ultimately yours. Nevertheless, please contact your pediatrician and share this information with him/her. I shall be happy to answer your pediatrician's questions on the above. I would like to hear from all those who want to try supplementing siblings with EFA for preventive purposes BEFORE STARTING THE SUPPLEMENTATION. It would be great if we could follow the changes in the supplemented sibling as they happen. Best wishes and have a Happy Thanksgiving! Katz, Ph. D. http://www.cherab.org/information/dietaryeffects/efatips.html And here's more " CONCLUSIONS: Fish are rich in omega-3 fatty acids, and their consumption is recommended to decrease the risk of coronary artery disease. However, fish such as swordfish and shark are also a source of exposure to the heavy metal toxin, mercury. The fish oil brands examined in this manuscript have negligible amounts of mercury and may provide a safer alternative to fish consumption. " Division of Laboratory Medicine, Department of Pathology, Massachusetts General Hospital and Harvard Medical School, Boston, Mass 02114, USA. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve & db=PubMed & list_uids=1\ 4632570 & dopt=Abstract " The omega-3 fatty acids offer some unique benefits, should they prove to be truly effective mood stabilizers. The advantages of the omega-3 fatty acids as mood stabilizers include the apparent acute efficacy in both the manic and depressive phases of bipolar disorder, their lack of toxicity, as well as high patient acceptance. In addition, omega-3 fatty acids confer some health benefits during chronic use, such as possible reduction in the risk of a fatal myocardial infarction. In addition, the omega-3 fatty acids have no documented adverse drug interactions, and appear to be safe (and possibly beneficial) in pregnancy and in children. " http://ods.od.nih.gov/news/conferences/w6w3_abstracts.html " I had the wonderful opportunity to hear ph Hibbeln, M.D., Chief, Outpatient Clinic National Institute of Alcoholism and Alcohol Abuse, NIH, Bethesda, land at the First Apraxia Conference http://www.cherab.org/news/scientific.htm lecture about the importance of PUFA -especially during pregnancy when you are growing a brain inside you. If you don't consume enough PUFAs while pregnant -the babies body will pull it from the mother's body. It's his theory and research as to why so many mom's experience post partum depression. http://www.beachpsych.com/pages/cc46.html In additionit is proven that the PUFAs are important for cognitive ability. http://neuroscience.nih.gov/Lab.asp?Org_ID=352 Here is a quote from the US Department of Agriculture, Environmental Chemistry Laboratory, Agricultural Research Service, 20705, Beltsville, MD, USA Brain-specific lipids from marine, lacustrine, or terrestrial food resources: potential impact on early African Homo sapiens. The polyunsaturated fatty acid (PUFA) composition of the mammalian central nervous system is almost wholly composed of two long-chain polyunsaturated fatty acids (LC-PUFA), docosahexaenoic acid (DHA) and arachidonic acid (AA). PUFA are dietarily essential, thus normal infant/neonatal brain, intellectual growth and development cannot be accomplished if they are deficient during pregnancy and lactation. Uniquely in the human species, the fetal brain consumes 70% of the energy delivered to it by mother. DHA and AA are needed to construct placental and fetal tissues for cell membrane growth, structure and function. Contemporary evidence shows that the maternal circulation is depleted of AA and DHA during fetal growth. Sustaining normal adult human brain function also requires LC-PUFA.Homo sapiens is unlikely to have evolved a large, complex, metabolically expensive brain in an environment which did not provide abundant dietary LC- PUFA. http://www.unl.ac.uk/ibchn/e_Link/cbpbbmb2002.htm (PS was all from the super long new member archive I sent -did you see that?) You can buy from the store or find on many sites online -just go to Google and put in " proefa " (make sure it's from Nordic Naturals) or did you see the resources here http://www.cherab.org/information/dietaryeffects/efabasics.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Hi again Yvette! Whoops just misssed that it was the ProEPA you were looking for. The " EPA " is the same product in the commercial line you can buy at the stores and the ProEPA is the professional line so do compare the costs as the pro line always costs less. Since you couldn't find it at the Nordic site http://shopinserviceinc2.goestores.com/ http://www.shop-in-service.com/proefa.htm special for free shipping with the ProEFA Hope that helps! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Is EPA extra too much? Thanks for being understanding with all my questions! From: kiddietalk <kiddietalk@...> Subject: [ ] Re: Hi, I am new! Date: Sunday, August 10, 2008, 3:37 PM Hi again Yvette! Whoops just misssed that it was the ProEPA you were looking for. The " EPA " is the same product in the commercial line you can buy at the stores and the ProEPA is the professional line so do compare the costs as the pro line always costs less. Since you couldn't find it at the Nordic site http://shopinservic einc2.goestores. com/ http://www.shop- in-service. com/proefa. htm special for free shipping with the ProEFA Hope that helps! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 I found if I raised the EPA higher than one (regular) capsule to 2 capsules of ProEFA that Tanner regressed. Probably the ratio of Omega 3 to 6 was off too much. I take the ProEPA xtra at times but don't give it to either of my children. If you try it let us know - but many of us tried to keep raising the EPA and found what I did - too high and you see a regression. All that matters is dosage - formula and quality of the oils. OK I've got to get off this computer now- there is an entire school of dolphins out in my backyard and it brings me back to Flipper (my favorite show when I was a kid -but no -none of the dolphins play with us and none of us jump in the water to swim with them) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Lis my son is 13 and weighs 120 pounds- should i start with one or two capsules of PRO EFA daily? He is non verbal. When do i add Vitamin E and is there a brand recommeded and who much of that? should he also be taking COD Liver OIL for Vitamin a or would this be too much oils== thank you for your help From: kiddietalk <kiddietalk@...> Subject: [ ] Re: Hi, I am new! Date: Sunday, August 10, 2008, 6:29 PM I found if I raised the EPA higher than one (regular) capsule to 2 capsules of ProEFA that Tanner regressed. Probably the ratio of Omega 3 to 6 was off too much. I take the ProEPA xtra at times but don't give it to either of my children. If you try it let us know - but many of us tried to keep raising the EPA and found what I did - too high and you see a regression. All that matters is dosage - formula and quality of the oils. OK I've got to get off this computer now- there is an entire school of dolphins out in my backyard and it brings me back to Flipper (my favorite show when I was a kid -but no -none of the dolphins play with us and none of us jump in the water to swim with them) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Ok, I am ready to go! I just bought some EPA! So, hopefully I can get this right..... I am going to cut back on the ProEFA to 1/2 teaspoon 1 time a day? then I am going to add 1 capsule of EPA. Right? At what time would you recommend me giving the second half teaspoon of ProEFA? A couple of weeks? OK...and one last ? I don't need to add more than one capsule of EPA right? One cap is enough...just increase the EFA? Sheesh...all this can get confusing. Yvette From: kiddietalk <kiddietalk@...> Subject: [ ] Re: Hi, I am new! Date: Sunday, August 10, 2008, 4:29 PM I found if I raised the EPA higher than one (regular) capsule to 2 capsules of ProEFA that Tanner regressed. Probably the ratio of Omega 3 to 6 was off too much. I take the ProEPA xtra at times but don't give it to either of my children. If you try it let us know - but many of us tried to keep raising the EPA and found what I did - too high and you see a regression. All that matters is dosage - formula and quality of the oils. OK I've got to get off this computer now- there is an entire school of dolphins out in my backyard and it brings me back to Flipper (my favorite show when I was a kid -but no -none of the dolphins play with us and none of us jump in the water to swim with them) ===== Quote Link to comment Share on other sites More sharing options...
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