Re: Re: WAS New study - Majority and the purpose of thi...

[Guest guest]

In a message dated 2/25/2008 11:53:56 A.M. Eastern Standard Time,

missy@... writes:

My son is autistic and apraxic. I feel more or less unwelcome here. Thanks

tho.

I hope that this message comes through to you--

I've always thought that there was a TON of information given from this

board geared for those Autistic and Apraxic children here.

I'm sorry you feel unwelcome :-(

becky

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[Guest guest]

I don't think anyone's child knows about the disagreements people have over

the computer. My son has PDD NOS and Apraxia, another member left because she

too felt unwelcome. The problem is a lot of times Apraxia can be paired

with other issues or the other way around. To say to go elsewhere is not up to

you, if you don't care for what is being posted erase it! Sick of it and done

with it, somehow somebody has to stop this negativity or everyone will leave.

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[Guest guest]

missy, I'm just reading these posts today, so have to catch up from the

weekend. But no one should make anyone feel unwelcomed. Hang in there. Carolyn

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[Guest guest]

, I am probably also considered an " old timer. " Clearly, has

helped countless kids by starting this list and discussing how essential fatty

acids help children with apraxia and neurologically based speech delays and

disorders, including my own. We are should be grateful.

But I think your post really came off sounding like look this is what our

list is about, and maybe you don't belong here. I know you didn't mean that. But

that is clearly how the person you posted about took it and I'm not

surprised.

Autistic, autistic-like, and children with neurological issues, all come

under the description you posted for this list. Autistic children and children

as my own child who do have apraxia but know the cause because we had MRI's

done, come under neurologically based speech and language disorders.

I know that none of us mean to be disrespectful to others but I do

understand why some newer posters are getting upset. They aren't the ones who

first

brought up the " majority, " and they didn't also refer to children as having

mental retardation to distinguish them from " just " having apraxia. Now I know

that these comments weren't intentionally meant to offend anyone, but clearly

and understandably they did. I personally was offended by that term which is

being more and more replaced with cognitive impairments and developmentally

disabled.

So, I hope that everyone can try to look at their posts and think gee, how

are they likely to be interpreted..will they offend someone, be interpreted to

rudely discount some other person's opinion, etc.

Let's get back to welcoming all posts and let posters, whether they are new

or " old timers " like me, decide what therapy/intervention they choose to try

for their child without discounting their comments. Now, I have not see you do

that, so please don't take my post as suggesting that. I just don't want

people to feel that they are not welcomed and can understand why the poster

felt

that way.

Carolyn from NJ

**************Ideas to please picky eaters. Watch video on AOL Living.

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[Guest guest]

I will never leave. This board has helped us a lot eventhough I do not

respond to many of the posts. I love this board since it has helped us so much

and

many of the people here have really been supported of Josh and I so thanks

to all of you. I always try to read all the posts even if they do not pertain

to me because maybe I WILL learn something and I have even talked to

over the phone a couple times. I felt like I was talking to a movie star. I have

been reading the posts for 4 years now.

**************Ideas to please picky eaters. Watch video on AOL Living.

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[Guest guest]

Don,t leave

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

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