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You have to have an official diagnosis from a Developmental

Pediatrician in order to get services. My 3 yr old son with PDDNOS

wouldn't have gotten his (paid in full by the state of mass.) home

based aba services for 3 hrs day/5 days week in my home for the past

year without a diagnosis. He also wouldn't have gotten into the aba

based classroom at our public school without the diagnosis as well.

And, the earlier you help a child, the better. So, I only see

advantages to getting a diagnosis.

I don't know what the advantages are to NOT having a diagnosis?

But, my husband and I did make a decision to not tell our extended

family and friends, and neighbors (especially, neighbors) about our

sons' diagnosis. We felt it was none of their business and we didn't

want him " labelled " by others who might not understand his condition

and treat him different because they might be scared of it. We wanted

him treated just like our other children in our family.

budsmom

> Are there any advantages or disadvantages to having a diagnosis of

> Autism versus PDD (and/or ADHD) or vice versa as far as obtaining

> services whether it be Beckett or school (I am in Georgia -

> Gwinnett County) services?

> I have heard that sometimes children are denied services based on

what

> type of diagnosis they have. I have 2 ASD children. Thanks for any

> advice.

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An evaluation can give such great information specific to just that

child. And, if there isn't one, then the people working with that

child are limited to guessing, or worse yet, have an idea of things

that might help make your kiddo's life easier, and reach him/her

educationally, but not be able to do any of them because s/he doesn't

qualify for services without the testing. Getting my son evaluated

was the very best thing we did for him. My son was determined not to

be on the spectrum, but to be educationally special needs due to his

LD's. The evaluation was a road map for the services he got, which

were the services he needed more or less. That was the advantage of

his evaluation.

---

Are there any advantages or disadvantages to having a diagnosis of

Autism versus PDD (and/or ADHD) or vice versa as far as obtaining

services whether it be Beckett or school (I am in Georgia -

Gwinnett County) services?

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> Are there any advantages or disadvantages to having a diagnosis of

> Autism versus PDD (and/or ADHD) or vice versa as far as obtaining

> services whether it be Beckett or school (I am in Georgia -

> Gwinnett County) services?

Advantages: can be easier to obtain services and govt benefits.

Disadvantages: I can't obtain private medical insurance for my son,

because of his dx.

Dana

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Dana:

If your son has never had a lapse in health insurance coverage, either

public or private, then he should be covered on any future policies.

That's per the HIPPA (or is it HIPAA) policy. Check with your State's

Insurance Commission about the specifics -- but HIPPA (or HIPAA -- I am

horrible with acronyms!!!) is a Federal statute.

Missy in Md.

> > Are there any advantages or disadvantages to having a diagnosis of

> > Autism versus PDD (and/or ADHD) or vice versa as far as obtaining

> > services whether it be Beckett or school (I am in Georgia -

> > Gwinnett County) services?

>

>

> Advantages: can be easier to obtain services and govt benefits.

>

> Disadvantages: I can't obtain private medical insurance for my son,

> because of his dx.

>

> Dana

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> Dana:

>

> If your son has never had a lapse in health insurance coverage, either

> public or private, then he should be covered on any future policies.

I am self-employed and subject to underwriting. Currently, my son has

state health insurance, because no private provider will sell me a

policy for him.

Dana

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  • 1 year later...

In read someplace recently, can't remember where as I am always reading

something about autism/Asperger's, that the DSMV (?) has recently been updated

to say that for a diagnosis of Asperger's, a speech delay is NOW allowed. I

think this is, like, very brand-new. This kind of makes sense, because it

seems like you'd give some one a diagnosis based on what's going on now, no

matter what was going on then?!

Anita W.

__________________________________________________

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  • 1 year later...
Guest guest

I am the grandmother of Corbin who will be 3 in April. He was recently

diagnosed with Apraxia. The diagnosis was done through the state help

that has provided therapy until he turns three and then will attend

the early childhood program in our school district. I have noticed

that some children in the group have been diagnosed by specialists, and

I was wondering if the way my grandson was diagnosed is okay? He was

diagnosed in January, so we are very new to this. We(my son and

daughter-in-law) have researched and read everything we can find. The

book " The Late Talker " lead us to this group. I am Corbin's caregiver

during the day while everyone works. He has progressed a great deal

with the SLP coming to my home twice a week. He can now say about 30

words spontaneoulsy and has always been very " verbal " He literally

carries on conversations by just making sounds and using facial and

hand expressions. I am a vegan and after reading about the Fish Oil,

we opted to go with Flax Oil, and we saw improvement in just days. I

kind of got off track from my question on the diagnosis. Thanks

Pat Nicholson

(Nana)

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Guest guest

The only reason my son was diagnosed by a specialist was because my

pediatrician did not think there was anything wrong even though he had no

words at the age of 2!. My son was also seen by early intervention until

the age of 3 y.o., and they immediately said he was very behind but didn't

know what to call it. At the age of 3, I took him to a neuro-developmental

pediatrician and she diagnosed him with severe oral/verbal apraxia,

hypotonia & sensory integration disorder. She recommended he be given

Pro-EFA, Pro-EPA & be provided Speech Therapy (Individual) @ school @ least

3x a week and privately 1 to 2x a week. I did all that and have added

" natural " Vitaman E and Carnaware to his supplements. I'm currently

providing him with Listening Therapy to address some auditory processing

issues that I think he has though he has not been diagnosed (too young

yet). At 6.y.o, my son is speaking in sentences. He has improved

tremendously scholastically which was very behind and has made strides with

conversational speech. He has a ways to go but he's a success story in my

eyes...He didn't speak anything until about 4 y.o. and then it was 1 or 2

words sentences at most...

It's great to read a grandmother is inquiring and curious. Many grandmas go

into denial mode.

Myra

" nicholson_pat "

<nananicholson@at

t.net> To

Sent by:

childrensapraxian cc

et@...

m Subject

[ ] Question

about diagnosis

03/12/2008 01:58

PM

Please respond to

childrensapraxian

et@...

m

I am the grandmother of Corbin who will be 3 in April. He was recently

diagnosed with Apraxia. The diagnosis was done through the state help

that has provided therapy until he turns three and then will attend

the early childhood program in our school district. I have noticed

that some children in the group have been diagnosed by specialists, and

I was wondering if the way my grandson was diagnosed is okay? He was

diagnosed in January, so we are very new to this. We(my son and

daughter-in-law) have researched and read everything we can find. The

book " The Late Talker " lead us to this group. I am Corbin's caregiver

during the day while everyone works. He has progressed a great deal

with the SLP coming to my home twice a week. He can now say about 30

words spontaneoulsy and has always been very " verbal " He literally

carries on conversations by just making sounds and using facial and

hand expressions. I am a vegan and after reading about the Fish Oil,

we opted to go with Flax Oil, and we saw improvement in just days. I

kind of got off track from my question on the diagnosis. Thanks

Pat Nicholson

(Nana)

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