Guest guest Posted May 12, 2011 Report Share Posted May 12, 2011 Ditto Joan, I agree. Just to be on the safe side…….. From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Joan ValleeSent: Wednesday, May 11, 2011 4:04 PMinfantile scoliosis treatment Subject: Re: Tasha - Swimming and Gymnastics I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks. Joanmom to Hayden 4Treated at ish Rite Hospital Dallas, TX From: " Bell, Alison " <alison.bell@...>infantile scoliosis treatment Sent: Wed, May 11, 2011 3:42:37 PMSubject: RE: Tasha - Swimming and Gymnastics Hi I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail. Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated. We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. Thank you Alison From: infantile scoliosis treatment on behalf of Sent: Wed 11/05/2011 21:18infantile scoliosis treatment Subject: Tasha - Swimming and Gymnastics Tasha,Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids.In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further.~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2011 Report Share Posted May 12, 2011 Ditto Joan, I agree. Just to be on the safe side…….. From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Joan ValleeSent: Wednesday, May 11, 2011 4:04 PMinfantile scoliosis treatment Subject: Re: Tasha - Swimming and Gymnastics I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks. Joanmom to Hayden 4Treated at ish Rite Hospital Dallas, TX From: " Bell, Alison " <alison.bell@...>infantile scoliosis treatment Sent: Wed, May 11, 2011 3:42:37 PMSubject: RE: Tasha - Swimming and Gymnastics Hi I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail. Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated. We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. Thank you Alison From: infantile scoliosis treatment on behalf of Sent: Wed 11/05/2011 21:18infantile scoliosis treatment Subject: Tasha - Swimming and Gymnastics Tasha,Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids.In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further.~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2011 Report Share Posted May 12, 2011 Oh no! My son is getting a small trampoline next week for his birthday! Should I not buy it? Does anyone know where I can get more information on this? I'm really worried now. > > Ditto Joan, I agree. Just to be on the safe side…….. > > > > From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Joan Vallee > Sent: Wednesday, May 11, 2011 4:04 PM > infantile scoliosis treatment > Subject: Re: Tasha - Swimming and Gymnastics > > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks. > > > > > > > Joan > mom to Hayden 4 > Treated at ish Rite Hospital > Dallas, TX > > > > > > _____ > > From: " Bell, Alison " <alison.bell@...> > infantile scoliosis treatment > Sent: Wed, May 11, 2011 3:42:37 PM > Subject: RE: Tasha - Swimming and Gymnastics > > > > Hi > > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail. > > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated. > > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > Thank you > > Alison > > > > _____ > > From: infantile scoliosis treatment on behalf of > Sent: Wed 11/05/2011 21:18 > infantile scoliosis treatment > Subject: Tasha - Swimming and Gymnastics > > > > Tasha, > Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids. > > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further. > > ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 I know that Nora's dr strictly prohibits the use of them. He says that the force of gravity pulling down on them kinda counteracts what he's trying to accomplish with the casting. I guess whether it be a little impact or alot it still counts. Tonya Perkins Asheboro,NC mother of ,12 & Nora,4 scoliosis, acid reflux 11th cast, still down to 8or9 degrees Greenville Shriners,SC From: gingerert <gingerert@...>infantile scoliosis treatment Sent: Thu, May 12, 2011 12:23:13 PMSubject: Re: trampoline Oh no! My son is getting a small trampoline next week for his birthday! Should I not buy it?Does anyone know where I can get more information on this? I'm really worried now.>> Ditto Joan, I agree. Just to be on the safe side……..> > > > From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Joan Vallee> Sent: Wednesday, May 11, 2011 4:04 PM> infantile scoliosis treatment > Subject: Re: Tasha - Swimming and Gymnastics> > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks.> > > > > > > Joan> mom to Hayden 4> Treated at ish Rite Hospital > Dallas, TX > > > > > > _____ > > From: "Bell, Alison" <alison.bell@...>> infantile scoliosis treatment > Sent: Wed, May 11, 2011 3:42:37 PM> Subject: RE: Tasha - Swimming and Gymnastics> > > > Hi> > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail.> > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated.> > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > Thank you > > Alison > > > > _____ > > From: infantile scoliosis treatment on behalf of > Sent: Wed 11/05/2011 21:18> infantile scoliosis treatment > Subject: Tasha - Swimming and Gymnastics> > > > Tasha,> Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids.> > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further.> > ~> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 I can't speak for others of course, but our son's doc in SLC says " no " to trampolines. As far as more information - there's not much research out there. I did find a bit awhile back and reposted it below. Hope this helps. I'd just talk to your doc about your concerns. My guess would be occasional use would be ok??? But what do I know. LOL. ~ Regression of Juvenile Idiopathic Scoliosis by E. Stehbens and L. . > > Children should avoid repetitive jumping up and down movements, weight lifting, and any vibrational exposure (tractors, bumpy roads, horse riding, pogo sticks, trampolines) which are detrimental and cumulatively aggravate scoliosis. They are akin to impact loading the vertebrae and disks vertically and asymmetrical > > Traction is the only way abnormal spinal curvatures (with rotation and whether single or double) can be corrected. A jungle gym (monkey bars) is highly recommended because the swinging motion applies the stresses equally to both sides of the body, the weight of the lower body providing the mineral density. > > > > Ditto Joan, I agree. Just to be on the safe side…….. > > > > > > > > From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Joan Vallee > > Sent: Wednesday, May 11, 2011 4:04 PM > > infantile scoliosis treatment > > Subject: Re: Tasha - Swimming and Gymnastics > > > > > > > > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks. > > > > > > > > > > > > > > Joan > > mom to Hayden 4 > > Treated at ish Rite Hospital > > Dallas, TX > > > > > > > > > > > > _____ > > > > From: " Bell, Alison " <alison.bell@> > > infantile scoliosis treatment > > Sent: Wed, May 11, 2011 3:42:37 PM > > Subject: RE: Tasha - Swimming and Gymnastics > > > > > > > > Hi > > > > > > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail. > > > > > > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated. > > > > > > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > > > > > Thank you > > > > Alison > > > > > > > > _____ > > > > From: infantile scoliosis treatment on behalf of > > Sent: Wed 11/05/2011 21:18 > > infantile scoliosis treatment > > Subject: Tasha - Swimming and Gymnastics > > > > > > > > Tasha, > > Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids. > > > > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further. > > > > ~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Thank you for posting that. Our doctor has said nothing about restricting activity at all, which is why we were going to purchase an indoor trampoline next week. My son LOVES to bounce, so this is kind of a blow. Maybe we'll buy him monnkey bars instead. They're pretty awesome too. > > > > > > Ditto Joan, I agree. Just to be on the safe side…….. > > > > > > > > > > > > From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Joan Vallee > > > Sent: Wednesday, May 11, 2011 4:04 PM > > > infantile scoliosis treatment > > > Subject: Re: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks. > > > > > > > > > > > > > > > > > > > > > Joan > > > mom to Hayden 4 > > > Treated at ish Rite Hospital > > > Dallas, TX > > > > > > > > > > > > > > > > > > _____ > > > > > > From: " Bell, Alison " <alison.bell@> > > > infantile scoliosis treatment > > > Sent: Wed, May 11, 2011 3:42:37 PM > > > Subject: RE: Tasha - Swimming and Gymnastics > > > > > > > > > > > > Hi > > > > > > > > > > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail. > > > > > > > > > > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated. > > > > > > > > > > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > > > > > > > > > Thank you > > > > > > Alison > > > > > > > > > > > > _____ > > > > > > From: infantile scoliosis treatment on behalf of > > > Sent: Wed 11/05/2011 21:18 > > > infantile scoliosis treatment > > > Subject: Tasha - Swimming and Gymnastics > > > > > > > > > > > > Tasha, > > > Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids. > > > > > > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further. > > > > > > ~ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Ditto Tonya. SLC doesn’t recommend them for that exact reason, either. Great explanation, thanks.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of tonya williamsSent: Thursday, May 12, 2011 7:29 PMinfantile scoliosis treatment Subject: Re: Re: trampoline I know that Nora's dr strictly prohibits the use of them. He says that the force of gravity pulling down on them kinda counteracts what he's trying to accomplish with the casting. I guess whether it be a little impact or alot it still counts. Tonya PerkinsAsheboro,NCmother of ,12 & Nora,4 scoliosis, acid reflux11th cast, still down to 8or9 degreesGreenville Shriners,SC From: gingerert <gingerert@...>infantile scoliosis treatment Sent: Thu, May 12, 2011 12:23:13 PMSubject: Re: trampoline Oh no! My son is getting a small trampoline next week for his birthday! Should I not buy it?Does anyone know where I can get more information on this? I'm really worried now.>> Ditto Joan, I agree. Just to be on the safe side……..> > > > From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Joan Vallee> Sent: Wednesday, May 11, 2011 4:04 PM> infantile scoliosis treatment > Subject: Re: Tasha - Swimming and Gymnastics> > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks.> > > > > > > Joan> mom to Hayden 4> Treated at ish Rite Hospital > Dallas, TX > > > > > > _____ > > From: " Bell, Alison " <alison.bell@...>> infantile scoliosis treatment > Sent: Wed, May 11, 2011 3:42:37 PM> Subject: RE: Tasha - Swimming and Gymnastics> > > > Hi> > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail.> > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated.> > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > Thank you > > Alison > > > > _____ > > From: infantile scoliosis treatment on behalf of > Sent: Wed 11/05/2011 21:18> infantile scoliosis treatment > Subject: Tasha - Swimming and Gymnastics> > > > Tasha,> Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids.> > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further.> > ~> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 When my girl was little (under 2) I bought a hand swing w/ ringers from Lowes, that I hung from the kitchen ceiling. I did this out of desperation, not as a way of having fun. Her spine was approaching 100 and all docs wanted to fuse in that incorrect position.Anyway, that swing ended up being the best! A friend of mine decorated it beautifully, which made it very inviting to lil Olivia. By weeks end she was swinging /spinning on it and LOVED it! Not only was it fun, but it was stretching her severe curves at the same time….keeping her flexible. It remained in our kitchen until she had distractable rod surgery at 8.5 yrs old.There may be pics of this still up on CAST…?Just an idea.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of gingerertSent: Saturday, May 14, 2011 9:26 AMinfantile scoliosis treatment Subject: Re: trampoline Thank you for posting that. Our doctor has said nothing about restricting activity at all, which is why we were going to purchase an indoor trampoline next week. My son LOVES to bounce, so this is kind of a blow. :(Maybe we'll buy him monnkey bars instead. They're pretty awesome too.> > >> > > Ditto Joan, I agree. Just to be on the safe side……..> > > > > > > > > > > > From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Joan Vallee> > > Sent: Wednesday, May 11, 2011 4:04 PM> > > infantile scoliosis treatment > > > Subject: Re: Tasha - Swimming and Gymnastics> > > > > > > > > > > > > > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks.> > > > > > > > > > > > > > > > > > > > > Joan> > > mom to Hayden 4> > > Treated at ish Rite Hospital > > > Dallas, TX > > > > > > > > > > > > > > > > > > _____ > > > > > > From: " Bell, Alison " <alison.bell@>> > > infantile scoliosis treatment > > > Sent: Wed, May 11, 2011 3:42:37 PM> > > Subject: RE: Tasha - Swimming and Gymnastics> > > > > > > > > > > > Hi> > > > > > > > > > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail.> > > > > > > > > > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated.> > > > > > > > > > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > > > > > > > > > Thank you > > > > > > Alison > > > > > > > > > > > > _____ > > > > > > From: infantile scoliosis treatment on behalf of > > > Sent: Wed 11/05/2011 21:18> > > infantile scoliosis treatment > > > Subject: Tasha - Swimming and Gymnastics> > > > > > > > > > > > Tasha,> > > Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids.> > > > > > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further.> > > > > > ~> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 When my girl was little (under 2) I bought a hand swing w/ ringers from Lowes, that I hung from the kitchen ceiling. I did this out of desperation, not as a way of having fun. Her spine was approaching 100 and all docs wanted to fuse in that incorrect position.Anyway, that swing ended up being the best! A friend of mine decorated it beautifully, which made it very inviting to lil Olivia. By weeks end she was swinging /spinning on it and LOVED it! Not only was it fun, but it was stretching her severe curves at the same time….keeping her flexible. It remained in our kitchen until she had distractable rod surgery at 8.5 yrs old.There may be pics of this still up on CAST…?Just an idea.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of gingerertSent: Saturday, May 14, 2011 9:26 AMinfantile scoliosis treatment Subject: Re: trampoline Thank you for posting that. Our doctor has said nothing about restricting activity at all, which is why we were going to purchase an indoor trampoline next week. My son LOVES to bounce, so this is kind of a blow. :(Maybe we'll buy him monnkey bars instead. They're pretty awesome too.> > >> > > Ditto Joan, I agree. Just to be on the safe side……..> > > > > > > > > > > > From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Joan Vallee> > > Sent: Wednesday, May 11, 2011 4:04 PM> > > infantile scoliosis treatment > > > Subject: Re: Tasha - Swimming and Gymnastics> > > > > > > > > > > > > > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks.> > > > > > > > > > > > > > > > > > > > > Joan> > > mom to Hayden 4> > > Treated at ish Rite Hospital > > > Dallas, TX > > > > > > > > > > > > > > > > > > _____ > > > > > > From: " Bell, Alison " <alison.bell@>> > > infantile scoliosis treatment > > > Sent: Wed, May 11, 2011 3:42:37 PM> > > Subject: RE: Tasha - Swimming and Gymnastics> > > > > > > > > > > > Hi> > > > > > > > > > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail.> > > > > > > > > > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated.> > > > > > > > > > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > > > > > > > > > Thank you > > > > > > Alison > > > > > > > > > > > > _____ > > > > > > From: infantile scoliosis treatment on behalf of > > > Sent: Wed 11/05/2011 21:18> > > infantile scoliosis treatment > > > Subject: Tasha - Swimming and Gymnastics> > > > > > > > > > > > Tasha,> > > Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids.> > > > > > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further.> > > > > > ~> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 When my girl was little (under 2) I bought a hand swing w/ ringers from Lowes, that I hung from the kitchen ceiling. I did this out of desperation, not as a way of having fun. Her spine was approaching 100 and all docs wanted to fuse in that incorrect position.Anyway, that swing ended up being the best! A friend of mine decorated it beautifully, which made it very inviting to lil Olivia. By weeks end she was swinging /spinning on it and LOVED it! Not only was it fun, but it was stretching her severe curves at the same time….keeping her flexible. It remained in our kitchen until she had distractable rod surgery at 8.5 yrs old.There may be pics of this still up on CAST…?Just an idea.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of gingerertSent: Saturday, May 14, 2011 9:26 AMinfantile scoliosis treatment Subject: Re: trampoline Thank you for posting that. Our doctor has said nothing about restricting activity at all, which is why we were going to purchase an indoor trampoline next week. My son LOVES to bounce, so this is kind of a blow. :(Maybe we'll buy him monnkey bars instead. They're pretty awesome too.> > >> > > Ditto Joan, I agree. Just to be on the safe side……..> > > > > > > > > > > > From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Joan Vallee> > > Sent: Wednesday, May 11, 2011 4:04 PM> > > infantile scoliosis treatment > > > Subject: Re: Tasha - Swimming and Gymnastics> > > > > > > > > > > > > > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks.> > > > > > > > > > > > > > > > > > > > > Joan> > > mom to Hayden 4> > > Treated at ish Rite Hospital > > > Dallas, TX > > > > > > > > > > > > > > > > > > _____ > > > > > > From: " Bell, Alison " <alison.bell@>> > > infantile scoliosis treatment > > > Sent: Wed, May 11, 2011 3:42:37 PM> > > Subject: RE: Tasha - Swimming and Gymnastics> > > > > > > > > > > > Hi> > > > > > > > > > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail.> > > > > > > > > > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated.> > > > > > > > > > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > > > > > > > > > Thank you > > > > > > Alison > > > > > > > > > > > > _____ > > > > > > From: infantile scoliosis treatment on behalf of > > > Sent: Wed 11/05/2011 21:18> > > infantile scoliosis treatment > > > Subject: Tasha - Swimming and Gymnastics> > > > > > > > > > > > Tasha,> > > Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids.> > > > > > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further.> > > > > > ~> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 Uh oh..abby goes to gymnastics camp every Friday and her favorite is the trampoline..her doc didn't say anthing about restrictions. Guess I'll bring it up at our next visit.. > > > > > > > > Ditto Joan, I agree. Just to be on the safe side…….. > > > > > > > > > > > > > > > > From: infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> [mailto:infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> ] On Behalf Of Joan Vallee > > > > Sent: Wednesday, May 11, 2011 4:04 PM > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > Subject: Re: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > > > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Joan > > > > mom to Hayden 4 > > > > Treated at ish Rite Hospital > > > > Dallas, TX > > > > > > > > > > > > > > > > > > > > > > > > _____ > > > > > > > > From: " Bell, Alison " <alison.bell@> > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > Sent: Wed, May 11, 2011 3:42:37 PM > > > > Subject: RE: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > Hi > > > > > > > > > > > > > > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail. > > > > > > > > > > > > > > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated. > > > > > > > > > > > > > > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > > > > > > > > > > > > > Thank you > > > > > > > > Alison > > > > > > > > > > > > > > > > _____ > > > > > > > > From: infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> on behalf of > > > > Sent: Wed 11/05/2011 21:18 > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > Subject: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > Tasha, > > > > Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids. > > > > > > > > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further. > > > > > > > > ~ > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 Uh oh..abby goes to gymnastics camp every Friday and her favorite is the trampoline..her doc didn't say anthing about restrictions. Guess I'll bring it up at our next visit.. > > > > > > > > Ditto Joan, I agree. Just to be on the safe side…….. > > > > > > > > > > > > > > > > From: infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> [mailto:infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> ] On Behalf Of Joan Vallee > > > > Sent: Wednesday, May 11, 2011 4:04 PM > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > Subject: Re: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > > > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Joan > > > > mom to Hayden 4 > > > > Treated at ish Rite Hospital > > > > Dallas, TX > > > > > > > > > > > > > > > > > > > > > > > > _____ > > > > > > > > From: " Bell, Alison " <alison.bell@> > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > Sent: Wed, May 11, 2011 3:42:37 PM > > > > Subject: RE: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > Hi > > > > > > > > > > > > > > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail. > > > > > > > > > > > > > > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated. > > > > > > > > > > > > > > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > > > > > > > > > > > > > Thank you > > > > > > > > Alison > > > > > > > > > > > > > > > > _____ > > > > > > > > From: infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> on behalf of > > > > Sent: Wed 11/05/2011 21:18 > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > Subject: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > Tasha, > > > > Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids. > > > > > > > > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further. > > > > > > > > ~ > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 We weren't given any limitations like this either. Makenna has been in a gymnastics class since she could walk ~ including trampoline. Just kind of force of habit here - I am a gymnastics coach She participated before we even discovered her scoliosis, continued while she was casted and now after casting she continues as well. Definately something to talk to your doctor about, but make sure you describe what she is participating in. Most orthopedic doctors don't condone the use of trampoline for any one - with or without scoliosis. That's because they are notoriously dangerous and they immediately think of trampolines in someone's back yard with little to no safety rules or supervision. Gymnastics coaches hate trampolines in peoples' yards, too Trampolines are best used in a controlled environment with proper supervision. Generally, they don't approve of gymnastics right away either. I would through out that preschool aged gymnastics doesn't carry with it the pounding and limber movements of more advanced gymnastics. Most preschool gymnastics is symmetrically performed and includes forward rolls, backward rolls, headstands and handstands. USA Gymnastics does not support the introduction of back bends and bridges until the age of 4. Modifications can be made within the right program with the right information. I feel better if Makenna never back bends and her teachers know that. My suggestion would be to know what kind of activity your kids are actually doing and explain that to the doctors. A vague question of " Can she bounce on trampoline? " will only garner a blanket answer. For Makenna, trampoline in gymnastics class included about 5 turns of 10 seconds each. I just think it's important to go over all the benefits as well and know what you are expecting to get out of it ~ communicate that with your doctor. I just want to share more information for an open and informed discussion with your child's doctor. I certainly can't recommend something for your child; as I am not their treating physician. I just wanted to share that we had a good experience with her involvement. Makenna has a rare genetic condition in which the only way the scoliosis associated is ever described is " relentlessly progressive " . The researchers that I have spoken with indicate that Makenna is the only person with this condition that has ever achieved straight If she continues to hold, I think they will be astounded. Clearly, early intervention and treatment were key to her results, but I also believe that the unspoken things she gained from being in the gym had a hand - improved proprioception, vestibular balance and core strength to name a few. Just something to think about Walking this journey is never easy. Trying to make the 'right decision' at every turn is a daunting task. It seems the only thing consistent about scoliosis is that it's completely inconsistent from child to child. Only your doctor can guide you in terms of your child. Again, I only offer this as our experience. Amy ~mom to Makenna. 4 years old. Treated with 4 serial casts at Chicago Shriner's. Currently at Zero! in a brace. > > > > > > > > > > Ditto Joan, I agree. Just to be on the safe side…….. > > > > > > > > > > > > > > > > > > > > From: infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> [mailto:infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> ] On Behalf Of Joan Vallee > > > > > Sent: Wednesday, May 11, 2011 4:04 PM > > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > > Subject: Re: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Joan > > > > > mom to Hayden 4 > > > > > Treated at ish Rite Hospital > > > > > Dallas, TX > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > _____ > > > > > > > > > > From: " Bell, Alison " <alison.bell@> > > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > > Sent: Wed, May 11, 2011 3:42:37 PM > > > > > Subject: RE: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > > > Hi > > > > > > > > > > > > > > > > > > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail. > > > > > > > > > > > > > > > > > > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated. > > > > > > > > > > > > > > > > > > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > > > > > > > > > > > > > > > > > Thank you > > > > > > > > > > Alison > > > > > > > > > > > > > > > > > > > > _____ > > > > > > > > > > From: infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> on behalf of > > > > > Sent: Wed 11/05/2011 21:18 > > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > > Subject: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > > > Tasha, > > > > > Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids. > > > > > > > > > > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further. > > > > > > > > > > ~ > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 We weren't given any limitations like this either. Makenna has been in a gymnastics class since she could walk ~ including trampoline. Just kind of force of habit here - I am a gymnastics coach She participated before we even discovered her scoliosis, continued while she was casted and now after casting she continues as well. Definately something to talk to your doctor about, but make sure you describe what she is participating in. Most orthopedic doctors don't condone the use of trampoline for any one - with or without scoliosis. That's because they are notoriously dangerous and they immediately think of trampolines in someone's back yard with little to no safety rules or supervision. Gymnastics coaches hate trampolines in peoples' yards, too Trampolines are best used in a controlled environment with proper supervision. Generally, they don't approve of gymnastics right away either. I would through out that preschool aged gymnastics doesn't carry with it the pounding and limber movements of more advanced gymnastics. Most preschool gymnastics is symmetrically performed and includes forward rolls, backward rolls, headstands and handstands. USA Gymnastics does not support the introduction of back bends and bridges until the age of 4. Modifications can be made within the right program with the right information. I feel better if Makenna never back bends and her teachers know that. My suggestion would be to know what kind of activity your kids are actually doing and explain that to the doctors. A vague question of " Can she bounce on trampoline? " will only garner a blanket answer. For Makenna, trampoline in gymnastics class included about 5 turns of 10 seconds each. I just think it's important to go over all the benefits as well and know what you are expecting to get out of it ~ communicate that with your doctor. I just want to share more information for an open and informed discussion with your child's doctor. I certainly can't recommend something for your child; as I am not their treating physician. I just wanted to share that we had a good experience with her involvement. Makenna has a rare genetic condition in which the only way the scoliosis associated is ever described is " relentlessly progressive " . The researchers that I have spoken with indicate that Makenna is the only person with this condition that has ever achieved straight If she continues to hold, I think they will be astounded. Clearly, early intervention and treatment were key to her results, but I also believe that the unspoken things she gained from being in the gym had a hand - improved proprioception, vestibular balance and core strength to name a few. Just something to think about Walking this journey is never easy. Trying to make the 'right decision' at every turn is a daunting task. It seems the only thing consistent about scoliosis is that it's completely inconsistent from child to child. Only your doctor can guide you in terms of your child. Again, I only offer this as our experience. Amy ~mom to Makenna. 4 years old. Treated with 4 serial casts at Chicago Shriner's. Currently at Zero! in a brace. > > > > > > > > > > Ditto Joan, I agree. Just to be on the safe side…….. > > > > > > > > > > > > > > > > > > > > From: infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> [mailto:infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> ] On Behalf Of Joan Vallee > > > > > Sent: Wednesday, May 11, 2011 4:04 PM > > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > > Subject: Re: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Joan > > > > > mom to Hayden 4 > > > > > Treated at ish Rite Hospital > > > > > Dallas, TX > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > _____ > > > > > > > > > > From: " Bell, Alison " <alison.bell@> > > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > > Sent: Wed, May 11, 2011 3:42:37 PM > > > > > Subject: RE: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > > > Hi > > > > > > > > > > > > > > > > > > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail. > > > > > > > > > > > > > > > > > > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated. > > > > > > > > > > > > > > > > > > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > > > > > > > > > > > > > > > > > Thank you > > > > > > > > > > Alison > > > > > > > > > > > > > > > > > > > > _____ > > > > > > > > > > From: infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> on behalf of > > > > > Sent: Wed 11/05/2011 21:18 > > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > > Subject: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > > > Tasha, > > > > > Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids. > > > > > > > > > > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further. > > > > > > > > > > ~ > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 We weren't given any limitations like this either. Makenna has been in a gymnastics class since she could walk ~ including trampoline. Just kind of force of habit here - I am a gymnastics coach She participated before we even discovered her scoliosis, continued while she was casted and now after casting she continues as well. Definately something to talk to your doctor about, but make sure you describe what she is participating in. Most orthopedic doctors don't condone the use of trampoline for any one - with or without scoliosis. That's because they are notoriously dangerous and they immediately think of trampolines in someone's back yard with little to no safety rules or supervision. Gymnastics coaches hate trampolines in peoples' yards, too Trampolines are best used in a controlled environment with proper supervision. Generally, they don't approve of gymnastics right away either. I would through out that preschool aged gymnastics doesn't carry with it the pounding and limber movements of more advanced gymnastics. Most preschool gymnastics is symmetrically performed and includes forward rolls, backward rolls, headstands and handstands. USA Gymnastics does not support the introduction of back bends and bridges until the age of 4. Modifications can be made within the right program with the right information. I feel better if Makenna never back bends and her teachers know that. My suggestion would be to know what kind of activity your kids are actually doing and explain that to the doctors. A vague question of " Can she bounce on trampoline? " will only garner a blanket answer. For Makenna, trampoline in gymnastics class included about 5 turns of 10 seconds each. I just think it's important to go over all the benefits as well and know what you are expecting to get out of it ~ communicate that with your doctor. I just want to share more information for an open and informed discussion with your child's doctor. I certainly can't recommend something for your child; as I am not their treating physician. I just wanted to share that we had a good experience with her involvement. Makenna has a rare genetic condition in which the only way the scoliosis associated is ever described is " relentlessly progressive " . The researchers that I have spoken with indicate that Makenna is the only person with this condition that has ever achieved straight If she continues to hold, I think they will be astounded. Clearly, early intervention and treatment were key to her results, but I also believe that the unspoken things she gained from being in the gym had a hand - improved proprioception, vestibular balance and core strength to name a few. Just something to think about Walking this journey is never easy. Trying to make the 'right decision' at every turn is a daunting task. It seems the only thing consistent about scoliosis is that it's completely inconsistent from child to child. Only your doctor can guide you in terms of your child. Again, I only offer this as our experience. Amy ~mom to Makenna. 4 years old. Treated with 4 serial casts at Chicago Shriner's. Currently at Zero! in a brace. > > > > > > > > > > Ditto Joan, I agree. Just to be on the safe side…….. > > > > > > > > > > > > > > > > > > > > From: infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> [mailto:infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> ] On Behalf Of Joan Vallee > > > > > Sent: Wednesday, May 11, 2011 4:04 PM > > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > > Subject: Re: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I would put it away and out of sight so he doesn't see it. Out of sight ,out of mind. See what the specialist says in a few weeks. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Joan > > > > > mom to Hayden 4 > > > > > Treated at ish Rite Hospital > > > > > Dallas, TX > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > _____ > > > > > > > > > > From: " Bell, Alison " <alison.bell@> > > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > > Sent: Wed, May 11, 2011 3:42:37 PM > > > > > Subject: RE: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > > > Hi > > > > > > > > > > > > > > > > > > > > I only joined the group a couple of days ago, but this email is v interesting to me. One of Johannes' first birthday presents was a small trampoline (it has a very small base and a handle to hold on to). He bounces a tiny bit using his knees at the moment. Do you think that it will be ok? He loves it, but if it's harming him then it will go! I asked the orthopaedic surgeon last week and he said it'd be ok - but (a) I got the impression he is very much a generalist and didn't know much about scoliosis (which is why we're being referred) and ( I didn't describe the trampoline in detail. > > > > > > > > > > > > > > > > > > > > Am I being over cautious - or would it be better to get rid of it? Your views would be appreciated. > > > > > > > > > > > > > > > > > > > > We won't see the specialist for weeks and weeks - I found out yesterday that the waiting list is 13 weeks(?!!!), plus the time for the doctor to send the letter (3 weeks!)... so waiting to speak to them seems a bit long. > > > > > > > > > > > > > > > > > > > > Thank you > > > > > > > > > > Alison > > > > > > > > > > > > > > > > > > > > _____ > > > > > > > > > > From: infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> on behalf of > > > > > Sent: Wed 11/05/2011 21:18 > > > > > infantile scoliosis treatment <mailto:infantile scoliosis treatment%40> > > > > > Subject: Tasha - Swimming and Gymnastics > > > > > > > > > > > > > > > > > > > > Tasha, > > > > > Our doc highly recommended swimming for Noah to help build up his core back muscles. He said swimming is great for Scoliosis kids. > > > > > > > > > > In regards to gymnastics though - I'd get some second opinions and do some research. I know that trampline use is discouraged for our Scoli kids because it decompresses the spine. Even if you avoid the trampoline at gymnastics I would think a lot of the other activities might have similar effects. I know our doc had one of his Scoli patients quit gymnastics for this reason. Granted every child is different and in this patient's case she has scoli and suspected connective tissue disorder (so that could have been the determining factor.) Anyway...just something you might want to consider looking into further. > > > > > > > > > > ~ > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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