Low Muscle Tone

[Guest guest]

> i noticed my 3yr-ol asd son doesnt want to walk a lot lately (always

> sitting down, crawling, raising hands up to us to be carried, etc.),

> and i'm kind of worried. was it because of his low muscle tone?

Carnitine and other aminos can help with muscle tone issues. So can B

vitamins and certain other supplements.

> also, is it ok to give him melatonin (i saw a chewable kind from

> kirkmans website) to help him with the sleep issues. you see he

> sleeps really late (earliest is 11pm) but wakes up very early

> (earliest is 4am!) and is really stressing us out. if you can

> suggest any alternative to melatonin then i guess it would be worth

> a try.

Phenol intolerance and yeast overgrowth are common causes of sleep

issues. You might try adding No-Fenol enzyme, see if that helps.

http://www.danasview.net/phenol.htm

http://www.danasview.net/yeast.htm

Dana

[Guest guest]

Hi Mia,

Definitely get your son on a calcium supplement, and make sure to give him

adequate vitamin D (I think it's 400 IU), either in the same preparation or

elsewhere, to enable his body to use the calcium. Make sure he is getting about

800-1000 mg per day of calcium. If I remember correctly, calcium is part of

either muscle or nerve (or both) conduction, and subclinical rickets (lack of

Vitamin D) can show up as wanting to be picked up when it seems the child should

be able to walk whatever distance (also sensitive scalp when combing hair and

night head sweats).

Hope this helps.

mia_mantaring <mia_mantaring@...> wrote:

hi all!

i noticed my 3yr-ol asd son doesnt want to walk a lot lately (always

sitting down, crawling, raising hands up to us to be carried, etc.),

and i'm kind of worried. was it because of his low muscle tone? fyi,

he doesnt really like anything dairy (except for ice cream!) and is

a very picky eater, and is also lactose intolerant, so he doesnt

really have that much source of calcium in his diet. the only thing

he likes to drink is water, and he doesnt drink that much either.

could it be because of this (no dairy in diet)? he is currently on

afp peptizyde and zyme prime (both chewables). am thinking of giving

him calcium supplements. does anybody have any other suggestions?

also, is it ok to give him melatonin (i saw a chewable kind from

kirkmans website) to help him with the sleep issues. you see he

sleeps really late (earliest is 11pm) but wakes up very early

(earliest is 4am!) and is really stressing us out. if you can

suggest any alternative to melatonin then i guess it would be worth

a try.

thanks!

[Guest guest]

> Carnitine and other aminos can help with muscle tone issues. So

can B

> vitamins and certain other supplements.

>

what is carnitine and where can i buy it?

> > also, is it ok to give him melatonin (i saw a chewable kind from

> > kirkmans website) to help him with the sleep issues. you see he

> > sleeps really late (earliest is 11pm) but wakes up very early

> > (earliest is 4am!) and is really stressing us out. if you can

> > suggest any alternative to melatonin then i guess it would be

worth

> > a try.

>

>

> Phenol intolerance and yeast overgrowth are common causes of sleep

> issues. You might try adding No-Fenol enzyme, see if that helps.

>

> http://www.danasview.net/phenol.htm

>

> http://www.danasview.net/yeast.htm

>

> Dana

>

thanks for replying dana, i might try no-fenol chewables. i have

strong suspicion that he has yeast because his poo smells really

really terrible (sorry for this). this could also be why he flaps

his hands a lot and giggles over nothing (spontaneous giggling?).

mia

[Guest guest]

thanks susan, that helped a lot. now that you've mentioned it, i

know now why my son doesnt want his hair to be combed and has night

head sweats.

regards,

mia

>

> Hi Mia,

>

> Definitely get your son on a calcium supplement, and make sure

to give him adequate vitamin D (I think it's 400 IU), either in the

same preparation or elsewhere, to enable his body to use the

calcium. Make sure he is getting about 800-1000 mg per day of

calcium. If I remember correctly, calcium is part of either muscle

or nerve (or both) conduction, and subclinical rickets (lack of

Vitamin D) can show up as wanting to be picked up when it seems the

child should be able to walk whatever distance (also sensitive scalp

when combing hair and night head sweats).

>

> Hope this helps.

>

>

>

[Guest guest]

thank you so much. My daughter has all 3 of these and is cf,

and I never could make any sense of it. I keep giving the poor girl

OLE, thinking she must have a virus.

I will start giving her calcium daily and let you know if she stops

making me carry her up the (3 flighte of) stairs.

Amy

and subclinical rickets (lack of

> Vitamin D) can show up as wanting to be picked up when it seems the

> child should be able to walk whatever distance (also sensitive scalp

> when combing hair and night head sweats).

> >

> > Hope this helps.

> >

> >

> >

>

[Guest guest]

> what is carnitine and where can i buy it?

It is an amino acid. Look in that section of your local health food

store.

> thanks for replying dana, i might try no-fenol chewables. i have

> strong suspicion that he has yeast because his poo smells really

> really terrible (sorry for this). this could also be why he flaps

> his hands a lot and giggles over nothing (spontaneous giggling?).

For my son, giggling meant phenol intolerance and yeast overgrowth.

Dana

[Guest guest]

> thanks susan, that helped a lot. now that you've mentioned it, i

> know now why my son doesnt want his hair to be combed and has night

> head sweats.

Night sweating, especially on the head, is one sign of the body

detoxing from something it encountered during the day that it did not

tolerate. It is also a sign of mercury toxicity.

Dana

[Guest guest]

i saw an L-Carnitine product in the houston website, is it the same

thing?

> > what is carnitine and where can i buy it?

>

>

> It is an amino acid. Look in that section of your local health

food

> store.

>

>

> > thanks for replying dana, i might try no-fenol chewables. i have

> > strong suspicion that he has yeast because his poo smells really

> > really terrible (sorry for this). this could also be why he

flaps

> > his hands a lot and giggles over nothing (spontaneous giggling?).

>

>

> For my son, giggling meant phenol intolerance and yeast overgrowth.

>

> Dana

>

[Guest guest]

Hello. I am new to the group and would like some advice and opinions.

My 25 month old son was recently evaluated by an OT provided by Early

Intervention. My son was a late walker -- he did not walk until he

was 17 months old and when he did he ran! During his 2 year old

wellness visit, I mentioned to his pediatrician that he does not

speak much. The pediatrician referred us to EI and thus an

evaluation was done.

Much to my surprise, the OT diagnosed him with low muscle tone. This

news is very upsetting to my husband and I but it did make sense.

My son runs around a lot but will also fall a lot. When he sits, he

prefers the " W " position. He seems to understand most things that

are going on but is unable to verbalize. Prior to turning 2 years

old, he was able to speak more words, but now he seems to have

regressed.

Upon the advice of the OT, I took away the night time bottle feeding

and my son is eating more, especially foods of a harder texture. Now

I am working on taking away the sippy cups, but he seems to have a

hard time with the straw cups.

I read everything I can get my hands on regarding hypotonia and quite

frankly it is very scary to me! I am looking on some feedback of

others who have children with this condition and what the ultimate

outcome of EI was. I need some encouragement and hopefully some

positive feedback or success stories.

My son for the most part seems quite normal and generally is a happy

child -- he just needs to speak. Should I seek the advice of a

developmental pediatrician?

EI will be sending a speech therapist to evaluate my son this

Friday. Is there anything specific I should request or should know

before the meeting?

In two weeks, we will be having a meeting with the EI team to discuss

cost share? Is the cost of treatment not covered by insurance? Is

it based on family income only?

I welcome any advice this group can offer. Thank you in advance.

[Guest guest]

First of all, don't think too much about all that hypotonia

research. That is really more applicable to kids with really low

tone. If you didn't even notice it before it's probably mild

hypotonia. That's what my son has. We worked on it in OT and

hippotherapy (PT on a horse), and not only did it improve his tone,

it greatly enhanced his speech production. That truncal tone really

affects a lot of stuff. I picked up the low tone before

our " experts " did -- the pediatrician and SLP both thought he would

be falling all the time if he had low tone, but that's the more

obvious, severe type of hypotonia.

The hippotherapy was the most effective thing we did for low tone,

but there is limited availability in most places. Any regular or

therapeutic riding would be beneficial, but hippotherapy is

structured specifically to work that tone. The other thing that is

great is the playground. Spend as much time there as possible.

Climbing is great for tone and so are the monkey bars. I think

swinging might be good, too, once he can pump. (All swinging is good

for the vestibular sense, even if you are doing all the work for

him.) Tunnels are great, trampolines can help, swimming is awesome

(but difficult to do well if you have motor planning problems.)

You mentioned that he was a late walker. Did he crawl and creep?

When you skip those steps or don't spend enough time at that level,

it can affect your motor skills going forward. Search the archives

for any of Janice's posts on going back to creeping and crawling --

she knows more.

Whenever you see him in that " W " position, gently pull his legs out

of it. It's not really good for him, and it is possible to break the

habit. My niece used to do it all the time, and now she is

completely over it. was the opposite -- he couldn't " W " sit

or sit cross-legged at all. He was really tight.

When my son started preschool, he needed a support to sit through the

whole circle time. That seems like a lifetime ago! My son seems to

be over the low tone (5-3/4 now) most of the time, but you still see

a glimpse every once in awhile. He was sitting in my lap for a story

today, and by the end of the story he had completely slipped out of

my lap. Guess it's still lurking...

Hope that helps!

in NJ

>

> Hello. I am new to the group and would like some advice and

opinions.

>

> My 25 month old son was recently evaluated by an OT provided by

Early

> Intervention. My son was a late walker -- he did not walk until he

> was 17 months old and when he did he ran! During his 2 year old

> wellness visit, I mentioned to his pediatrician that he does not

> speak much. The pediatrician referred us to EI and thus an

> evaluation was done.

>

> Much to my surprise, the OT diagnosed him with low muscle tone.

This

> news is very upsetting to my husband and I but it did make sense.

>

> My son runs around a lot but will also fall a lot. When he sits,

he

> prefers the " W " position. He seems to understand most things that

> are going on but is unable to verbalize. Prior to turning 2 years

> old, he was able to speak more words, but now he seems to have

> regressed.

>

> Upon the advice of the OT, I took away the night time bottle

feeding

> and my son is eating more, especially foods of a harder texture.

Now

> I am working on taking away the sippy cups, but he seems to have a

> hard time with the straw cups.

>

> I read everything I can get my hands on regarding hypotonia and

quite

> frankly it is very scary to me! I am looking on some feedback of

> others who have children with this condition and what the ultimate

> outcome of EI was. I need some encouragement and hopefully some

> positive feedback or success stories.

>

> My son for the most part seems quite normal and generally is a

happy

> child -- he just needs to speak. Should I seek the advice of a

> developmental pediatrician?

>

> EI will be sending a speech therapist to evaluate my son this

> Friday. Is there anything specific I should request or should know

> before the meeting?

>

> In two weeks, we will be having a meeting with the EI team to

discuss

> cost share? Is the cost of treatment not covered by insurance? Is

> it based on family income only?

>

> I welcome any advice this group can offer. Thank you in advance.

>

[Guest guest]

The archive reminded me of two other things. One sign of his low tone

was that he couldn't do wheelbarrow walking for a long time. It was

one of the last things to happen for us here. The other thing is that

would seem to not be attending well during speech sessions

because he would sit facing sidewise. He wasn't being inattentive, he

was holding onto the back of the (armless) chair to stay upright. By

the end of a session, he was practically falling out of the chair. The

SLP just thought he was bored. Untreated, hypotonia can lead teachers

to believe there is a behavior problem/ADHD where there is none.

in NJ

>

> Wheelbarrow walking is great for building tone, monkey bars, sitting

> on a big bouncy ball for postural stability are all good ideas.

> Occupational and/or physical therapy can work on low tone.

>

> Re: truncal hypotonia

>

>

> Great suggestions for truncal hypotonia! Here are a few others we

> did for Tanner who was diagnosed with truncal hypotonia:

>

> Try to get your child to watch TV, play games etc. while laying on

> their stomach propped up with their elbows and arms so their upper

> body and head are raised. As easy as this sounds to us -Tanner

> tired quickly in this position and would collapse.

>

> Have your child lay on a skateboard with their feet up in the air -

> ankles crossed. Make a wall out of cardboard blocks, legos, or

> whatever and while keeping their head and upper body raised enough

> to see -they navigate using their hands to steer the skateboard to

> knock down the wall. (knocking down the wall isn't the therapy -

> keeping their upper body and head raised as long as possible while

> on their stomach is)

>

> Hold your child's legs and see if they can use their hands and arms

> to " walk " For this one we pretty much had to hold Tanner up at

> first, and closer to the hips than the ankles at first, to get them

> to do it at all. I know Tanner used to " walk " two steps with his

> hands and collapse!

>

> I'm guessing this question came up due to this archive:

> " Tanner has mild hypotonia throughout his body and mild sensory

> issues -pretty much resolved now thanks to therapy but not 100%, and

> fine motor planning aspects in his body also pretty much resolved.

>

> Most aspects didn't show till later, as he got older.

>

> It was once said to me that children with apraxia are typically very

> bright and " know " what they should be doing because their receptive

> skills are so superior to their expressive skills. In preschool

> years it's quite easy for most of them to push themselves enough to

> keep up " to blend " -it's as they get older and the pressures become

> more intense of what is expected of them -they break down.

>

> While the average person can go through life perfectly fine with

> mild hypotonia -the child with a communication impairment that has

> hypotonia in the truncal area will greatly benefit from

> interventions to strengthen their truncal area to support breath

> control which is crucial for speech.

>

> In addition -the child with hypotonia in the truncal area will have

> trouble sitting at a desk for hours -upright- holding a pencil and

> expected to write. They will be the children laying on the desk -

> and viewed negatively by teachers and all as " lazy " etc. Not good

> for self esteem -not your child's academic career either.

>

> An apraxic child like my son Tanner can be the one that passed all

> developmental milestones on time -but due to hypotonia needs a

> stroller long after the other children his age don't. A child who

> can climb to the top of the monkey bars, and throw a baseball like a

> pro... at three -but due to the bizarre motor planning aspects of

> apraxia -many times could not put on his socks or catch a ball even

> when large and thrown from a short distance. Doesn't make sense all

> the time -anything about your child -take them to a

> neurodevelopmental MD just to make sure it's not apraxia. "

>

> provided some great clinical clues of truncal hypotonia. Here

> are some parent friendly clues. If you suspect low tone in your

> child, this could be confirmed or ruled out by a neurodevelopmental

> exam.

>

> Here are some quick parent friendly signs of mild hypotonia:

>

> A child with hypotonia will feel heavier than a child of the same

> weight without hypotonia (kind of like the difference between

> picking up your child when he's fast asleep vs. awake) Hypotonia can

> be anywhere in the body. Does your child appear to tire faster than

> other kids his age walking in the mall etc.? Will you and your wife

> not dream of taking him anywhere without the stroller because you

> know if you don't bring the stroller you will be stuck carrying him

> because if you don't pick him up he will sit on the floor crying

> with his arms in the air for you to pick him up again? And since

> he's nonverbal -you will get looks from people passing by, or

> perhaps even comments -that your child is acting spoiled. When you

> pick him off the floor -it's not as easy as it looks for you -or

> others that try! Most will say " wow he's solid! " when picking him

> up. " Solid " is the word used by almost everyone to describe your

> child when people pick him up come to think of it. His body may

> look small and light -and many times both look like a cherub, and

> feel a bit like a marshmallow -rounded and soft. He may sit in

> the " W " position. If a child has severe hypotonia -he may look a

> bit like a rag doll (those are the children however that are spotted

> early however) -gravity just pulls them down. For a school age

> child -look for the child who can't sit at the desk long before

> leaning down on it. The child who when waiting on line will either

> lean or sit down. The child (or adult) with rounded shoulders who

> is always being told " stand up straight! " or " sit up! " etc.

> http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html

>

> There is more in The Late Talker book (from a neurodevelopmental

> pediatrician's point of view as well as mine) and here is the link

> for that. BTW the book is now out of stock at most and Noble

> stores -even online so you may have to wait a week or two if you

> want to buy there. Perhaps in the UK it's different? If not in the

> meantime you can try other book stores or Amazon - and Noble

> will have more as soon as they are printed (the demand I guess

> shocked them and now they are printing trying to keep up!)

> http://www.speech-express.com/late.talker.html

>

> =====

>

[Guest guest]

We have won and lost battles against tone issues but I like to think

we will win the battle enough. Dare I ask, what is the negative

research you all are referring to? I never researched tone as I

already was researching so much. Not planning on running down another

road as our plan of attack mostly has helped him and we have NACD

eval today and our old OT looking at what they are doing so I feel

like we are doing what can be done but want to be sure I am not

missing something I should at least be aware of.

[Guest guest]

My son has low muscle tone and has made great strides via

occupational therapy. He's still clumsy, but progress is being made.

I'm sure that your son, with therapy, can improve in that area.

The part of your post that raised some concern with me was that you

said your son's language has " regressed. " Not to scare you... but,

for that reason alone, I would definitely suggest you see a

Developmental Pediatrician.

Also... the early intervention program is really great in some

counties and kind of stinky in others. So, if you are not satisfied

with the services they provide, don't hesitate to add your own

private therapists. We did and we should have done it sooner.

Good luck!

>

> Hello. I am new to the group and would like some advice and

opinions.

>

> My 25 month old son was recently evaluated by an OT provided by

Early

> Intervention. My son was a late walker -- he did not walk until he

> was 17 months old and when he did he ran! During his 2 year old

> wellness visit, I mentioned to his pediatrician that he does not

> speak much. The pediatrician referred us to EI and thus an

> evaluation was done.

>

> Much to my surprise, the OT diagnosed him with low muscle tone.

This

> news is very upsetting to my husband and I but it did make sense.

>

> My son runs around a lot but will also fall a lot. When he sits,

he

> prefers the " W " position. He seems to understand most things that

> are going on but is unable to verbalize. Prior to turning 2 years

> old, he was able to speak more words, but now he seems to have

> regressed.

>

> Upon the advice of the OT, I took away the night time bottle

feeding

> and my son is eating more, especially foods of a harder texture.

Now

> I am working on taking away the sippy cups, but he seems to have a

> hard time with the straw cups.

>

> I read everything I can get my hands on regarding hypotonia and

quite

> frankly it is very scary to me! I am looking on some feedback of

> others who have children with this condition and what the ultimate

> outcome of EI was. I need some encouragement and hopefully some

> positive feedback or success stories.

>

> My son for the most part seems quite normal and generally is a

happy

> child -- he just needs to speak. Should I seek the advice of a

> developmental pediatrician?

>

> EI will be sending a speech therapist to evaluate my son this

> Friday. Is there anything specific I should request or should know

> before the meeting?

>

> In two weeks, we will be having a meeting with the EI team to

discuss

> cost share? Is the cost of treatment not covered by insurance? Is

> it based on family income only?

>

> I welcome any advice this group can offer. Thank you in advance.

>

[Guest guest]

I'd have to say that it's second best-- second to SWIMMING! which takes

more effort and muscular work-out

bek

In a message dated 3/27/2008 2:34:21 P.M. Eastern Daylight Time,

jscott@... writes:

Horse back riding in general is probably the BEST exercise to increase

muscle tone throughout the body; it also works proprioception.

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom00030\

000000001)

[Guest guest]

Welcome to the group.

My son, Liam also has hypotonia (w-sitter too) which for him is a more

minor issue- just compared to everything else he is dealin with. He

also has apraxia of speech, developmental dyspraxia (global), fine

motor dyspraxia, sensory integration disorder, and suspected auditory

processing disorder. Basically this means he has severe problems with

speaking, and delays across the board with motor skills like jumping,

holding a pencil etc, little quirks like hating his teeth brushed and

need for auditory information going to to be repeated and repeated

again before he understands at times.

That's Liam.. he uses sign language some too.. but everyday using more

and more verbal. I'm going to make a new video soon to show my family

how much progress he's made since that last one.

Anyway-- I think everyone has answered some of your questions.. so I

just wanted to introduce myself .. My name is Annie! I also am married

to Judah and have another cutie son named Elliot ! Let us know how it

goes or went? with the meeting with the speech therapist. This is a

great resource here, everyone is kind in donating their time to help

each other out- and we have a variety of opinions here which helps to

get a different perspective and many ideas/resources/input etc. I know

this list and the support I've gotten here has really helped my son

and our family.

You are always welcome to email me off list if you ever need anything.

AnneDevlingHoag@...

(this goes for everyone of course) )

Annie

> >

> > Hello. I am new to the group and would like some advice and

> opinions.

> >

> > My 25 month old son was recently evaluated by an OT provided by

> Early

> > Intervention. My son was a late walker -- he did not walk until he

> > was 17 months old and when he did he ran! During his 2 year old

> > wellness visit, I mentioned to his pediatrician that he does not

> > speak much. The pediatrician referred us to EI and thus an

> > evaluation was done.

> >

> > Much to my surprise, the OT diagnosed him with low muscle tone.

> This

> > news is very upsetting to my husband and I but it did make sense.

> >

> > My son runs around a lot but will also fall a lot. When he sits,

> he

> > prefers the " W " position. He seems to understand most things that

> > are going on but is unable to verbalize. Prior to turning 2 years

> > old, he was able to speak more words, but now he seems to have

> > regressed.

> >

> > Upon the advice of the OT, I took away the night time bottle

> feeding

> > and my son is eating more, especially foods of a harder texture.

> Now

> > I am working on taking away the sippy cups, but he seems to have a

> > hard time with the straw cups.

> >

> > I read everything I can get my hands on regarding hypotonia and

> quite

> > frankly it is very scary to me! I am looking on some feedback of

> > others who have children with this condition and what the ultimate

> > outcome of EI was. I need some encouragement and hopefully some

> > positive feedback or success stories.

> >

> > My son for the most part seems quite normal and generally is a

> happy

> > child -- he just needs to speak. Should I seek the advice of a

> > developmental pediatrician?

> >

> > EI will be sending a speech therapist to evaluate my son this

> > Friday. Is there anything specific I should request or should know

> > before the meeting?

> >

> > In two weeks, we will be having a meeting with the EI team to

> discuss

> > cost share? Is the cost of treatment not covered by insurance? Is

> > it based on family income only?

> >

> > I welcome any advice this group can offer. Thank you in advance.

> >

>

[Guest guest]

Thank you Annie and to all the wonderful moms that have provided me with such

good feedback and advice.

The speech therapist evaluated my son yesterday. She was very thorough in

explaining all my questions regarding hypotonia. She suggested that my son get

a hearing test to rule out any fluid in his ears, which we will do right away.

I'm planning to take my son to see a pediatric neurologist and/or developmental

pediatrician just so I can have my sanity back! Does anyone have a good

pediatric neurologist or developmental pediatrician to recommend? We live in

Hoboken, New Jersey (Hudson County) so we can travel anywhere within 1 hour

drive in NJ or NYC is very close.

Kind regards,

[ ] Re: Low Muscle Tone

> Welcome to the group.

>

> My son, Liam also has hypotonia (w-sitter too) which for him is

> a more

> minor issue- just compared to everything else he is dealin with. He

> also has apraxia of speech, developmental dyspraxia (global), fine

> motor dyspraxia, sensory integration disorder, and suspected auditory

> processing disorder. Basically this means he has severe problems with

> speaking, and delays across the board with motor skills like jumping,

> holding a pencil etc, little quirks like hating his teeth

> brushed and

> need for auditory information going to to be repeated and repeated

> again before he understands at times.

>

> That's Liam.. he uses sign language some too.. but everyday

> using more

> and more verbal. I'm going to make a new video soon to show my family

> how much progress he's made since that last one.

>

> Anyway-- I think everyone has answered some of your questions..

> so I

> just wanted to introduce myself .. My name is Annie! I also am married

> to Judah and have another cutie son named Elliot ! Let us know

> how it

> goes or went? with the meeting with the speech therapist. This

> is a

> great resource here, everyone is kind in donating their time to help

> each other out- and we have a variety of opinions here which

> helps to

> get a different perspective and many ideas/resources/input etc.

> I know

> this list and the support I've gotten here has really helped my son

> and our family.

>

> You are always welcome to email me off list if you ever need anything.

>

> AnneDevlingHoag@...

>

> (this goes for everyone of course) )

>

> Annie

>

>

> >

> > My son has low muscle tone and has made great strides via

> > occupational therapy. He's still clumsy, but progress is being made.

> > I'm sure that your son, with therapy, can improve in that area.

> >

> > The part of your post that raised some concern with me was

> that you

> > said your son's language has " regressed. " Not to scare you... but,

> > for that reason alone, I would definitely suggest you see a

> > Developmental Pediatrician.

> >

> > Also... the early intervention program is really great in some

> > counties and kind of stinky in others. So, if you are not satisfied

> > with the services they provide, don't hesitate to add your own

> > private therapists. We did and we should have done it sooner.

> >

> > Good luck!

> >

> >

> >

[Guest guest]

-

I have a few recommendations of who NOT to go to-- but would feel better

saying it privately in an email rather than posting their names publicly. There

definitely are a few that I would NOT go to because they aren't too helpful

in the Apraxia area, and others that I've had great results from personally.

please feel free to email me privately and I can give some suggestions

_TBNiesh@..._ (mailto:TBNiesh@...)

Becky

In a message dated 3/29/2008 3:24:28 P.M. Eastern Daylight Time,

lindaching@... writes:

I'm planning to take my son to see a pediatric neurologist and/or

developmental pediatrician just so I can have my sanity back! Does anyone have

a good

pediatric neurologist or developmental pediatrician to recommend? We live in

Hoboken, New Jersey (Hudson County) so we can travel anywhere within 1 hour

drive in NJ or NYC is very close.

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom00030\

000000001)

[Guest guest]

I've only heard good things about neuroMDs Dr. Agin and Dr. Cargan in

the NY/NJ area- and perhaps Dr. Ming does more with autism? Here's

their contact info below from this archive

/message/74804

I would definably call Dr. Agin's office because even if she isn't

taking new patients her office can refer you to someone else. I know

Dr. Abba Cargan who has an office in both NJ and NYC is a pediatric

neurologist that some here speak highly of as well. Most

neurodevelopmental MDs don't have a background as an SLP for a number

of years prior to medical school -that is what sets Dr. Marilyn Agin

(my co author of The Late Talker book) apart from many others.

Here's info on 3 neuroMDs in the metro NY area

> Pediatric neurologists

>

> Dr. Abba Cargan out of Columbia in NY -and in practice in NJ.

> http://www.drcargan.yourmd.com/

> http://www.theodora.com/teddy/newyork/presbyterian.html

>

>

> and Dr. Ming

>

> http://www.umdnj.edu/njmsweb/neuroscience/faculty_bio/old%20bios/Xueming.htm

>

> And in the " NJ area " -Dr. Agin of course! She is a

> neurodevelopmental pediatrician, Medical Director of EI for

NYC, my

> child's neuroMD and my co author of The Late Talker!

>

> Marilyn C. Agin, MD, FAAP

> Neurodevelopmental Pediatrician

> Medical Director,

> NYC Early Intervention (EI) Program

> 79 Laight St. #1A (private office)

> New York, NY 10013

> 212-274-9180 (private office phone)

> 212-219-3688 (fax)

> http://www.cherab.org/information/aginmdapraxia.html

=====

[Guest guest]

Thank you! I will call Dr. Agin's office tomorrow.

[ ] Re: Low Muscle Tone

> I've only heard good things about neuroMDs Dr. Agin and Dr.

> Cargan in

> the NY/NJ area- and perhaps Dr. Ming does more with autism? Here's

> their contact info below from this archive

> /message/74804

>

> I would definably call Dr. Agin's office because even if she isn't

> taking new patients her office can refer you to someone else. I know

> Dr. Abba Cargan who has an office in both NJ and NYC is a pediatric

> neurologist that some here speak highly of as well. Most

> neurodevelopmental MDs don't have a background as an SLP for a number

> of years prior to medical school -that is what sets Dr. Marilyn Agin

> (my co author of The Late Talker book) apart from many others.

>

> Here's info on 3 neuroMDs in the metro NY area

>

> > Pediatric neurologists

> >

> > Dr. Abba Cargan out of Columbia in NY -and in practice in NJ.

> > http://www.drcargan.yourmd.com/

> > http://www.theodora.com/teddy/newyork/presbyterian.html

> >

> >

> > and Dr. Ming

> >

> >

> http://www.umdnj.edu/njmsweb/neuroscience/faculty_bio/old%20bios/Xueming.htm>

> > And in the " NJ area " -Dr. Agin of course! She is a

> > neurodevelopmental pediatrician, Medical Director of EI for

> NYC, my

> > child's neuroMD and my co author of The Late Talker!

> >

> > Marilyn C. Agin, MD, FAAP

> > Neurodevelopmental Pediatrician

> > Medical Director,

> > NYC Early Intervention (EI) Program

> > 79 Laight St. #1A (private office)

> > New York, NY 10013

> > 212-274-9180 (private office phone)

> > 212-219-3688 (fax)

> > http://www.cherab.org/information/aginmdapraxia.html

>

>

> =====

>

[Guest guest]

Dr. Cargin was one of the names given to me to call when things didn't work

out with the guy that we tried.

I haven't tried them, but HAVE heard good things

the phone number is:

Abba Cargan (908) 233-5000

becky

In a message dated 3/31/2008 5:52:10 P.M. Eastern Daylight Time,

kiddietalk@... writes:

I've only heard good things about neuroMDs Dr. Agin and Dr. Cargan in

the NY/NJ area-

**************Planning your summer road trip? Check out AOL Travel Guides.

(http://travel.aol.com/travel-guide/united-states?ncid=aoltrv00030000000016)

[Guest guest]

Amela,

AcetyL-carnitine or even L-carnitine helps with low muscle tone along with the

fish oils and COQ10. Those items should be available in Europe.

Janice

[Guest guest]

Dear Anne,

I am new to the group, I have posted for the first time this morning.

If I got it right, you started your son Liam on Carnaware last fall. My daughter

has apraxia

of speech, as well as oral motor apraxia, minor SI problems and minor fine motor

problems.

I am thinking about carnaware, but as we are from Europe it is not quite easy

for me to

have it shipped over here due to certain custom regulations.

What is your experience with it? Would you say it helped?

Thank you in advance for your help!

Best regards,

Amela Gavazzi

---

[Guest guest]

What kind of things have you tried to strengthen Devin's ability to hold a pencil.

Karac's use to be so weak that he couldn't flush the toilet. We worked on it for

several years; squeezing playdoh, balls, cutting playdoh with scizzors, squeezing

clothespins. stringing beads, stringing spools, cutting paper, cutting leaves.

We used pensils with grips. The first thing he was able to write with was a marker because

it was larger than a pencil, easier to grip and it wrote with less pressure.

I think typing also helped strengthen karac's fingers, and we had Karac do a lot of coloring which he hated

at first. He would break the colors and throw them across the room.

I'm a bull-headed grandmother so I persisted. Now he and I enjoy coloring together almost every day during

the long days of summer. Oh, and he can flush the toilet just fine; in fact he says, "good flushing toilet" LOL, LOL, Pat K

Low muscle tone

Hello all,

I just had Devin's IEP meeting and learned that Devin is still having problems with holding his pencil for even a short period of time.. He has no strength in his hands arms and shoulders. I did find out that he is reading at grade level which is 1st grade . If any of you have any suggestions that might help me figure out how to help Devin with his muscle tone issue that would be great..

Lesley.. Hugs to all......

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

Occupational therapy through the school. Should be on his IEP...if not get it there.

From: lesley hicks <lesley_hcks@...>Subject: Low muscle toneautism Date: Monday, June 22, 2009, 8:49 AM

Hello all,

I just had Devin's IEP meeting and learned that Devin is still having problems with holding his pencil for even a short period of time.. He has no strength in his hands arms and shoulders. I did find out that he is reading at grade level which is 1st grade . If any of you have any suggestions that might help me figure out how to help Devin with his muscle tone issue that would be great..

Lesley.. Hugs to all......

[Guest guest]

Hi, lesley...get some tweezers and let him pick up cotton balls from one place and put them in another....he can also clip tiny paper clips around a dixie cup and or paper plate...he can do lots of playing with play-doh --- do wheel barrow walking...his feet up "walking on hie hands" --- get a fun tunnel and get him to crawl through it.......putty, finger painting, pull toys or small windup toys...all work fine motor skills -- they have some fantastic things at www.lakeshorelearning.com under fine motor (I got john some of there magnet boards they are totally cool...he adores them)...as well as www.therapyshoppe.com under fine motor....you can get some ideas and creat a protocol for him whereby you

engage in building these skills say every three to four hours for 15-30 minutes...change it up, make it fun!!!!!

Love to all of you

e

From: lesley hicks <lesley_hcks@...>autism Sent: Monday, June 22, 2009 7:49:52 AMSubject: Low muscle tone

Hello all,

I just had Devin's IEP meeting and learned that Devin is still having problems with holding his pencil for even a short period of time.. He has no strength in his hands arms and shoulders. I did find out that he is reading at grade level which is 1st grade . If any of you have any suggestions that might help me figure out how to help Devin with his muscle tone issue that would be great..

Lesley.. Hugs to all......