Re: Re: recent successes with fish oil dosage for kiddo with apraxia & autism

[Guest guest]

Hey I'm new to the group and am  wondering can anyone tell me what a DAN dr is? 

What does that stand for?  Has anyone used the nourishlife supplements from

speechnutrients.com?

 

Thanks,

Tina

From: pdearmin <pdearmin@...>

Subject: [ ] Re: recent successes with fish oil dosage for

kiddo with apraxia & autism

Date: Saturday, February 14, 2009, 10:35 AM

-

I wanted to thank you for your post! It reminds me to always be

striving for more and play around with what feels right. I have

accidentally given my son more EPA on occasion, and I had noticed the

same thing. I know that a lot of us are going to DAN Drs, but have

to also go with our gut. Our DAN Dr. is actually impressed by the

high doses of fish oil this groups uses-she says that people usually

use too little and that is why they don't see a difference!

This is kind of an OT question (but at least it isn't about Octomom!)-

-where do you go to post questions about DAN protocols? We are just

starting on that journey and there are so many options to consider.

We go next month to get our test results back (we did hair, urine,

and stool), but she has recommended the multi-vitamin (he didn't like

the first one so we ordered other samples), zinc (which is AMAZING!),

b-12 shots (but we have the oral B-12 now and haven't started that

yes), probiotic (totally amazing), and of course we are on the GFCF

diet (most results with that intervention, it is as dramatic as the

fish oils were for my son's speech).

Thanks,

Penny

http://twoplusoneeq ualsfive. blogspot. com/

>

> Hello parents,

>

> I just thought I'd post about my past several months of

experimenting

> with fish oil dosages with my ASD/Apraxic son. Before I really

became

> an active member of this group, I followed the advice of our DAN

> doctor and gave my son Cod Liver oil. Nothing much happened.

>

> So, I started on Nordic Naturals EFAs and, nothing much. After about

> two months, I added one, then two, EPAs and thought I saw some

> improvements including increased pointing, more babbling, etc.

>

> About three weeks ago, I upped the EPA to 3 capsules and, well,

we've

> had a really noticeable spurt in word approximations and clarity of

> words as well as BRAND NEW sounds we've never heard before. He

started

> using " f " (wow) and now asks me for " fuh fries " when he's hungry. He

> used to use mostly " neutral " vowel sounds (uh) so, bear, bus, beans,

> etc. all sounded the same (ie, buh). He's gained dipthongs (/ai/ as

in

> hi! and bye; /ei/ as in say, hey; and /oi/ as in boy). This is not

> just my imagination either as his teacher, both the school SLP and

OT

> as well as his ABA therapists have all noticed this big difference

in

> the last three weeks. I didn't ask anyone their opinions on his

> language; their comments were all offered spontaneously.

>

> I've done a fair bit of reading about this and there is *some*

> evidence to suggest that kids with ASD benefit from a higher ratio

of

> EPA to EFA. I can dig through my articles and post.

>

> My son just turned 5 and I was really beginning to wonder if we'd

ever

> get much more language out of him as his progress was painfully,

> painfully slow. I now feel a lot more optimistic and am looking

> forward to hearing more of what he has to say.

>

> If you have a child with apraxia and ASD, don't give up. The

formula I

> used may not be right for everyone but if you *methodically*

> experiment with dosages, you might just come up with a dosage that

> works for your child. FYI, I didn't change anything else in his

biomed

> regime during this time as I was focused on figuring out the oils

(and

> also I can't keep up with all the costs of DAN!) so, I'm pretty sure

> the changes are due to this fish oil ratio.

>

>

>