Re: HELP! I'm new! Fish Oils??

[Guest guest]

Hi and welcome to the group!!

Here is the link to the link section where you will find many folders

by subject from therapy, at-home-therapy ideas, IEPs, fish oil,

general apraxia info, etc. It may seem very overwhelming right now,

but it will get better with time. There is a huge amount of parents

here that can help answer questions and give you support!

/links

link to folders

As for fish oil-I remember the confusion and decided to use what the

majority of this group was using. Nordic Naturals ProEFA (Omega 3-6-

9) and ProEPA (EPA). Ratio of 2 ProEFA + 1 ProEPA. The amounts for

capsules are below:

Two 1000 mg Soft Gels Contain:

EPA: 270 mg

DHA: 180 mg

Other Omega-3s: 115 mg

GLA: 66 mg

OA: 160 mg

Vitamin E: 30 IU

One 1000 mg Soft Gels Contain:

EPA: 425 mg

DHA: 100 mg

Other Omega-3s: 90 mg

Vitamin E: 15 IU

" starting off " dose...many start with 1 ProEFA. Many use to wait for

a plateau in speech before upping the dose...meaning you would start

to see that your child wasn't making speech progress. I did it this

way with my son and within 6 months of starting the ProEFA, the

plateau was obvious. By the time he was 3, he was taking 2ProEFA +

1ProEPA. Just know that you don't have to wait for the

plateau...there is no set time for upping fish oil. Start with one,

give it a month or two however long you feel comfortable and add a

2nd one and so forth. Some children have more sensory problems or

just seem off when starting fish oil and usually level out within a

week or two. With the sensory issues/behavior, speech sounds

improve. My son doesn't have anything in his medical background

besides apraxia, but some children do so it is a good idea to run all

supplements by your child's doctor(s). There is more info in the

(Advice 101) Essential Fatty Acids - Fish Oil folder or you can ask

more questions if you need more help.

I hope fish oil brings out more speech in your little boy!

Tina

Mom to Landon 5yo

-- In , " texascarebear_21 "

<coodiebug@...> wrote:

>

> Hello all- I just joined a few days ago. We're pretty certain our 3

and

> a half year old son has Apraxia. I've read the book " The Late

Talker "

> and was just shocked. My son has most of the symptoms. I've been

> somewhat devastated, as this isn't the picture I had in my head for

my

> son, for our family. I am trying to find ways to help him and deal

with

> it. We've read quite a lot about the fish oils, but I'm somewhat

> confused as to how much he should be getting daily. How much is too

> much? How many capsules? I've seen some say 3-6 capsules...How many

mgs

> per day is that? Is it different for every child? Is there a

> good " starting off " dose? I've ordered him the Coromega packets,

they

> should be here in a few days. I'm guessing ONE of those daily is

> enough?? For now, I've bought regular Omega-3 Fish Oil. These

capsules

> have 1000mg of Natural Fish Oil Concentrate. And " Total Omega 3

Fatty

> Acids (with EPA and DHA) 300 mgs " ...How many capsules should he

have

> per day? I've only bought them yesterday and only gave 1 yesterday.

As

> a side note, I also bought him the Horizon Organic Omega 3 milk,

and

> the Yoplait Blues Clues Yogurt Smoothies with Omega 3's.

>

> Someone please help me to get started! Thanks!! ~ mom

of

> athan

>

[Guest guest]

Ok, I've found the ProEPA Omega 369..Whats the ProEFA?? What name

brand or what should I be looking for?

Please forgive my seeming completely clueless..

> >

> > Hello all- I just joined a few days ago. We're pretty certain our

3

> and

> > a half year old son has Apraxia. I've read the book " The Late

> Talker "

> > and was just shocked. My son has most of the symptoms. I've been

> > somewhat devastated, as this isn't the picture I had in my head

for

> my

> > son, for our family. I am trying to find ways to help him and

deal

> with

> > it. We've read quite a lot about the fish oils, but I'm somewhat

> > confused as to how much he should be getting daily. How much is

too

> > much? How many capsules? I've seen some say 3-6 capsules...How

many

> mgs

> > per day is that? Is it different for every child? Is there a

> > good " starting off " dose? I've ordered him the Coromega packets,

> they

> > should be here in a few days. I'm guessing ONE of those daily is

> > enough?? For now, I've bought regular Omega-3 Fish Oil. These

> capsules

> > have 1000mg of Natural Fish Oil Concentrate. And " Total Omega 3

> Fatty

> > Acids (with EPA and DHA) 300 mgs " ...How many capsules should he

> have

> > per day? I've only bought them yesterday and only gave 1

yesterday.

> As

> > a side note, I also bought him the Horizon Organic Omega 3 milk,

> and

> > the Yoplait Blues Clues Yogurt Smoothies with Omega 3's.

> >

> > Someone please help me to get started! Thanks!! ~ mom

> of

> > athan

> >

>

[Guest guest]

Hi !

With fish oils name brands do not matter -all that matter are formula,

dosage, and quality of the oil. But since you brought up the Nordic

brand I have a bit of insight to them.

Nordic makes 2 lines -the " pro " professional line and the commercial

line. The only difference is where they are sold and that the

commercial line has less capsules for around the same cost as the pro

line. In this group most here use ProEFA (or Omega 369) or ProEPA (or

EPA) I have found that a 2/1 ratio of ProEFA over ProEPA to be best

for my son Tanner back around 10 years ago and since sharing it here

most find that the same formula brings the best results. I share what

works for the majority however there's always the exceptions to the

rule. I'd start however with what works for most.

Here's an archive for new become a member of our new Facebook page as

well as it's much more contemporary than this for posting links and

videos. There is a large amount of easy to find messages there about

new member topics at http://www.apraxia.org

New member 101 archive:

Below is a new member archive that keeps it simple on what to know to

start.

Re: Hi! New and wondering about apraxia.

Hi Mrs Laurie and welcome!

Your son sounds like he has some oral apraxia which would of course

need to be confirmed by professionals. If oral apraxia is present

together with your child's delay he should at least be diagnosed

as " suspected apraxia " and appropriate therapy should be provided.

He is entitled by federal law to a free and appropriate public

education (FAPE) in the least restrictive environment (LRE) which

means that if 5 days of one on one speech therapy is appropriate for

him then that's what he should receive. What type of speech therapy

is he receiving from the school right now when you say " some " ?

Below is a very long archive to help -please know that you don't have

to understand it all at once -we're here as a group to help!

Thanks for sharing. This group has from the start been a group

that's made up of parents and professionals who care for children

with many types of speech and/or language delays and/or disorders.

There are parents here for example with undiagnosed " late talkers "

and we just have not heard from them in awhile. It's actually a

really good thing when there is a mix of us to share because we all

learn from each other as many diagnoses can overlap -or down the road

we learn that our child does have co diagnosis.

While this group is open to parents of all children with

communication impairments -including hearing impaired, autistic etc.

it wasn't that all that posted recently had a child with autism, or

autism and apraxia -but because of society focus on autism -many here

started following an autism approach -including ABA in some cases!

That's understandable if the much more basic approach to apraxia -ST

and OT and EFAs were tried first and didn't work -but some were

trying that to start.

The overwhelming majority (if you check the archives) have success

with the basic approach to apraxia.

On the other hand- most of us are dealing with more than verbal

apraxia.we just don't know that when our child is 2 -and we learn

through professionals and observations as they continue to grow and

more and more is expected of them. This is also why it's important

to take your child for a neurodevelopmental medical exam when your

child is suspected of apraxia to confirm or rule out other diagnosis

such as sensory integration dysfunction etc. The earlier you know -

the sooner to start appropriate therapies to get them up to speed by

kindergarten.

Don't let it overwhelm you -perhaps we aren't meant to know more

than what we have to know at each stage. We'll be here to help along

the way. It's OK to have any type of emotion when we find out our

child has more than a simple delay -or " more " than " just " verbal

apraxia. And it's OK to be completely overwhelmed and saddened to

find out your child has apraxia. And as I was one of those parents

it's never " just " apraxia when you find out!!!

It's OK to be upset " just " because your child is a " late talker " too!

Please know that I too believed Tanner to just have apraxia and have

my first message posted to a grouplist about that below.but down the

road found out he had a few other things we needed to help him

address. The incredible news is that the majority of our children if

you check history are up to speed to be mainstreamed by kindergarten-

and of course many have learned with communication impaired children

that it's best to start kindergarten at 6 vs. 5 to give them that one

extra year of therapy and developmental time.

If you have questions after reading the following please share them.

This group has always been a wealth of information for all of us, no

matter how long we've been here.

Below is a new member archived message to hopefully answer more of

your questions for now (did you read The Late Talker yet?) For updated

information on fish oils and vitamin E and more - please visit the

links section here

/links

What type of apraxic like speech behaviors are you seeing that makes

you and the SLP suspect your child has apraxia vs. a simple delay in

speech? Is your child talking at all yet? At your child's age -

without speech, it's difficult to diagnose verbal apraxia -they

could " suspect " verbal apraxia and begin treatment just in case,

which wouldn't hurt your child if he ended up just having a simple

delay. Just a few questions before we could provide more accurate

answers:

Does your child have signs of oral apraxia? (for example, can he on

command smile, imitate funny faces, blow bubbles...if you put peanut

butter anywhere around his mouth can he lick it off no matter where

it is?)

http://www.cherab.org/information/speechlanguage/oralapraxia.html

Does your child have any neurological " soft signs " such as hypotonia

or sensory integration dysfunction?

http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html

Who else evaluated your child? Was it only the SLP through your

town school or was he also in Early Intervention through the state?

(birth to three) Was he evaluated by both a speech pathologist as

well as an occupational therapist? Was/were they knowledgeable

about apraxia? (If your child wasn't diagnosed by an occupational

therapist as well and professionals suspect apraxia -I highly

recommend you request that too either through both the school as

well as private through insurance for many reasons)

To answer any questions you may have about taking your child to see a

neurodevelopmental MD if he has not yet been to one and apraxia is

suspected... in one word - " Yes!!! " I would have your child diagnosed

(private) by a neurodevelopmental medical doctor (developmental

pediatrician or pediatric neurologist) who is knowledgeable about

apraxia and other neurologically based multi-faceted communication

impairments for numerous reasons. Reasons include (but not limited

to)

*having a " hero " on the outside of the school who can assist in a

therapeutic plan and oversee your child's development over the years

*advocacy support with the insurance company

* ruling out or confirming any neurological soft signs or any other

reasons for the delay in speech

*help those that ask " why isn't he talking yet " understand this is a

medical condition -and has nothing to do with your child's cognitive

ability. (if in your child's case it doesn't. Apraxia in itself

does not affect a child's cognitive ability -and speaking early or

late is no indication of a child's intelligence. Also contrary to

popular belief -most who have speech impairments have average to

above average intelligence)

Here's an article written by Neurodevelopmental Pediatrician Dr.

Marilyn Agin that was featured as a cover article in Contemporary

Pediatrics -a trade magazine for hundreds of thousands of pediatric

medical professionals across the US. (I wrote the parent guide)

" The " late talker " -when silence isn't golden

Not all children with delayed speech are " little Einsteins " or garden

variety " late bloomers. " Some have a speech-language disorder that

will persist unless warning signs are recognized and intervention

comes early. Includes a Guide for Parents. "

Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics

http://contemporarypediatrics.modernmedicine.com/radio_peds4

Actual article (where you can read it for free)

http://opsc.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720

There are also many activities parents can do at home with their

child to promote the development of speech. These are detailed in the

Guide for Parents

http://www.contemporarypediatrics.com/contpeds/article/articleDetail.jsp?id=1363\

15

This guide was written by

[Guest guest]

Hi,

I just want to throw in that my son could not handle even small

amounts of the fish oils ... it made him very stimmy (he has autism

as well as apraxia). Not sure if it's because of low carnitine or

high oxidative stress or something else. I am waiting to try it

again after getting these things under control and speaking to our

new DAN.

However, the best thing by far I have done for his apraxia is adding

MB12 shots. He has had more improvement on the shots in the last six

weeks that he has been on them than he had in three years of speech

therapy.

Just throwing this out there in case the MB12 shots may help your

child as well. If you want information, just google along

with 'Nuebrander'.

Michele

(proud mom to ... autism/adhd/apraxia/beautiful child)

>

> Hello all- I just joined a few days ago. We're pretty certain our 3

and

> a half year old son has Apraxia. I've read the book " The Late

Talker "

> and was just shocked. My son has most of the symptoms. I've been

> somewhat devastated, as this isn't the picture I had in my head for

my

> son, for our family. I am trying to find ways to help him and deal

with

> it. We've read quite a lot about the fish oils, but I'm somewhat

> confused as to how much he should be getting daily. How much is too

> much? How many capsules? I've seen some say 3-6 capsules...How many

mgs

> per day is that? Is it different for every child? Is there a

> good " starting off " dose? I've ordered him the Coromega packets,

they

> should be here in a few days. I'm guessing ONE of those daily is

> enough?? For now, I've bought regular Omega-3 Fish Oil. These

capsules

> have 1000mg of Natural Fish Oil Concentrate. And " Total Omega 3

Fatty

> Acids (with EPA and DHA) 300 mgs " ...How many capsules should he

have

> per day? I've only bought them yesterday and only gave 1 yesterday.

As

> a side note, I also bought him the Horizon Organic Omega 3 milk,

and

> the Yoplait Blues Clues Yogurt Smoothies with Omega 3's.

>

> Someone please help me to get started! Thanks!! ~ mom

of

> athan

>

[Guest guest]

Okay, still trying to decide what to do as far as supplements!  I understand

most people on here give their kids the Pro EFA's and Pro EPA's. Do most people

use the Nordic?  If so do you use the capsules, liquid or chewables?  Have there

been any negative reactions when given to your kid's?  I'm just really confused

trying to figure out what supplement to get for my son and how much to give and

what I can get that will help him that won't cost a fortune.  As I have said

before I got the Nourishlife Speak supplements (they send you the 1st box free

to try).  But, then I read some things on here that concerns me so now I don't

want to keep giving them to him if there is a risk. Just don't know what to

do,can anyone help me out?  My son is 3 yrs old, it seems like the suggested

amount of capsules seems kinda high for a little one.  Is it possible to give

too much of the supplement?  If anyone could help, I would appreciate it!!

 

Thanks,

Tina

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: HELP! I'm new! Fish Oils??

Date: Saturday, February 14, 2009, 10:35 PM

Hi !

With fish oils name brands do not matter -all that matter are formula,

dosage, and quality of the oil. But since you brought up the Nordic

brand I have a bit of insight to them.

Nordic makes 2 lines -the " pro " professional line and the commercial

line. The only difference is where they are sold and that the

commercial line has less capsules for around the same cost as the pro

line. In this group most here use ProEFA (or Omega 369) or ProEPA (or

EPA) I have found that a 2/1 ratio of ProEFA over ProEPA to be best

for my son Tanner back around 10 years ago and since sharing it here

most find that the same formula brings the best results. I share what

works for the majority however there's always the exceptions to the

rule. I'd start however with what works for most.

Here's an archive for new become a member of our new Facebook page as

well as it's much more contemporary than this for posting links and

videos. There is a large amount of easy to find messages there about

new member topics at http://www.apraxia. org

New member 101 archive:

Below is a new member archive that keeps it simple on what to know to

start.

Re: Hi! New and wondering about apraxia.

Hi Mrs Laurie and welcome!

Your son sounds like he has some oral apraxia which would of course

need to be confirmed by professionals. If oral apraxia is present

together with your child's delay he should at least be diagnosed

as " suspected apraxia " and appropriate therapy should be provided.

He is entitled by federal law to a free and appropriate public

education (FAPE) in the least restrictive environment (LRE) which

means that if 5 days of one on one speech therapy is appropriate for

him then that's what he should receive. What type of speech therapy

is he receiving from the school right now when you say " some " ?

Below is a very long archive to help -please know that you don't have

to understand it all at once -we're here as a group to help!

Thanks for sharing. This group has from the start been a group

that's made up of parents and professionals who care for children

with many types of speech and/or language delays and/or disorders.

There are parents here for example with undiagnosed " late talkers "

and we just have not heard from them in awhile. It's actually a

really good thing when there is a mix of us to share because we all

learn from each other as many diagnoses can overlap -or down the road

we learn that our child does have co diagnosis.

While this group is open to parents of all children with

communication impairments -including hearing impaired, autistic etc.

it wasn't that all that posted recently had a child with autism, or

autism and apraxia -but because of society focus on autism -many here

started following an autism approach -including ABA in some cases!

That's understandable if the much more basic approach to apraxia -ST

and OT and EFAs were tried first and didn't work -but some were

trying that to start.

The overwhelming majority (if you check the archives) have success

with the basic approach to apraxia.

On the other hand- most of us are dealing with more than verbal

apraxia.we just don't know that when our child is 2 -and we learn

through professionals and observations as they continue to grow and

more and more is expected of them. This is also why it's important

to take your child for a neurodevelopmental medical exam when your

child is suspected of apraxia to confirm or rule out other diagnosis

such as sensory integration dysfunction etc. The earlier you know -

the sooner to start appropriate therapies to get them up to speed by

kindergarten.

Don't let it overwhelm you -perhaps we aren't meant to know more

than what we have to know at each stage. We'll be here to help along

the way. It's OK to have any type of emotion when we find out our

child has more than a simple delay -or " more " than " just " verbal

apraxia. And it's OK to be completely overwhelmed and saddened to

find out your child has apraxia. And as I was one of those parents

it's never " just " apraxia when you find out!!!

It's OK to be upset " just " because your child is a " late talker " too!

Please know that I too believed Tanner to just have apraxia and have

my first message posted to a grouplist about that below.but down the

road found out he had a few other things we needed to help him

address. The incredible news is that the majority of our children if

you check history are up to speed to be mainstreamed by kindergarten-

and of course many have learned with communication impaired children

that it's best to start kindergarten at 6 vs. 5 to give them that one

extra year of therapy and developmental time.

If you have questions after reading the following please share them.

This group has always been a wealth of information for all of us, no

matter how long we've been here.

Below is a new member archived message to hopefully answer more of

your questions for now (did you read The Late Talker yet?) For updated

information on fish oils and vitamin E and more - please visit the

links section here

http://health. groups.. com/group/ childrensapraxia net/links

What type of apraxic like speech behaviors are you seeing that makes

you and the SLP suspect your child has apraxia vs. a simple delay in

speech? Is your child talking at all yet? At your child's age -

without speech, it's difficult to diagnose verbal apraxia -they

could " suspect " verbal apraxia and begin treatment just in case,

which wouldn't hurt your child if he ended up just having a simple

delay. Just a few questions before we could provide more accurate

answers:

Does your child have signs of oral apraxia? (for example, can he on

command smile, imitate funny faces, blow bubbles...if you put peanut

butter anywhere around his mouth can he lick it off no matter where

it is?)

http://www.cherab. org/information/ speechlanguage/ oralapraxia. html

Does your child have any neurological " soft signs " such as hypotonia

or sensory integration dysfunction?

http://www.cherab. org/information/ speechlanguage/ parentfriendlyso

ftsigns.html

Who else evaluated your child? Was it only the SLP through your

town school or was he also in Early Intervention through the state?

(birth to three) Was he evaluated by both a speech pathologist as

well as an occupational therapist? Was/were they knowledgeable

about apraxia? (If your child wasn't diagnosed by an occupational

therapist as well and professionals suspect apraxia -I highly

recommend you request that too either through both the school as

well as private through insurance for many reasons)

To answer any questions you may have about taking your child to see a

neurodevelopmental MD if he has not yet been to one and apraxia is

suspected... in one word - " Yes!!! " I would have your child diagnosed

(private) by a neurodevelopmental medical doctor (developmental

pediatrician or pediatric neurologist) who is knowledgeable about

apraxia and other neurologically based multi-faceted communication

impairments for numerous reasons. Reasons include (but not limited

to)

*having a " hero " on the outside of the school who can assist in a

therapeutic plan and oversee your child's development over the years

*advocacy support with the insurance company

* ruling out or confirming any neurological soft signs or any other

reasons for the delay in speech

*help those that ask " why isn't he talking yet " understand this is a

medical condition -and has nothing to do with your child's cognitive

ability. (if in your child's case it doesn't. Apraxia in itself

does not affect a child's cognitive ability -and speaking early or

late is no indication of a child's intelligence. Also contrary to

popular belief -most who have speech impairments have average to

above average intelligence)

Here's an article written by Neurodevelopmental Pediatrician Dr.

Marilyn Agin that was featured as a cover article in Contemporary

Pediatrics -a trade magazine for hundreds of thousands of pediatric

medical professionals across the US. (I wrote the parent guide)

" The " late talker " -when silence isn't golden

Not all children with delayed speech are " little Einsteins " or garden

variety " late bloomers. " Some have a speech-language disorder that

will persist unless warning signs are recognized and intervention

comes early. Includes a Guide for Parents. "

Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics

http://contemporary pediatrics. modernmedicine. com/radio_ peds4

Actual article (where you can read it for free)

http://opsc. mediwire. com/main/ Default.aspx? P=Content & ArticleID= 132720

There are also many activities parents can do at home with their

child to promote the development of speech. These are detailed in the

Guide for Parents

http://www.contempo rarypediatrics. com/contpeds/ article/articleD etail.jsp?

id=136315

This guide was written by

[Guest guest]

I suggest always starting supplements one at a time, low-dose and

working up. As I said before, my son could not tolerate the high

dose fish oil off the bat; there is something else there that we must

address to allow him to utilize the fish oil. So start low dose and

look for reaction and go from there.

I think the two brands that are supposed to be mercury free are

Nordic Naturals and Carlsons. I don't think type matters as much as

ratios of the different of fats. Liquid goes bad faster than

capsules.

As harsh as injections sound, you may want to look into the MB12

shots. It is a blessing in my home with helping with apraxia. I

know other families who had the same experience.

Michele

>

> From: kiddietalk <kiddietalk@...>

> Subject: [ ] Re: HELP! I'm new! Fish Oils??

>

> Date: Saturday, February 14, 2009, 10:35 PM

>

>

>

>

>

>

> Hi !

>

> With fish oils name brands do not matter -all that matter are

formula,

> dosage, and quality of the oil. But since you brought up the Nordic

> brand I have a bit of insight to them.

>

> Nordic makes 2 lines -the " pro " professional line and the commercial

> line. The only difference is where they are sold and that the

> commercial line has less capsules for around the same cost as the

pro

> line. In this group most here use ProEFA (or Omega 369) or ProEPA

(or

> EPA) I have found that a 2/1 ratio of ProEFA over ProEPA to be best

> for my son Tanner back around 10 years ago and since sharing it here

> most find that the same formula brings the best results. I share

what

> works for the majority however there's always the exceptions to the

> rule. I'd start however with what works for most.

>

> Here's an archive for new become a member of our new Facebook page

as

> well as it's much more contemporary than this for posting links and

> videos. There is a large amount of easy to find messages there about

> new member topics at http://www.apraxia. org

>

> New member 101 archive:

>

> Below is a new member archive that keeps it simple on what to know

to

> start.

>

> Re: Hi! New and wondering about apraxia.

>

> Hi Mrs Laurie and welcome!

>

> Your son sounds like he has some oral apraxia which would of course

> need to be confirmed by professionals. If oral apraxia is present

> together with your child's delay he should at least be diagnosed

> as " suspected apraxia " and appropriate therapy should be provided.

> He is entitled by federal law to a free and appropriate public

> education (FAPE) in the least restrictive environment (LRE) which

> means that if 5 days of one on one speech therapy is appropriate for

> him then that's what he should receive. What type of speech therapy

> is he receiving from the school right now when you say " some " ?

>

> Below is a very long archive to help -please know that you don't

have

> to understand it all at once -we're here as a group to help!

>

> Thanks for sharing. This group has from the start been a group

> that's made up of parents and professionals who care for children

> with many types of speech and/or language delays and/or disorders.

> There are parents here for example with undiagnosed " late talkers "

> and we just have not heard from them in awhile. It's actually a

> really good thing when there is a mix of us to share because we all

> learn from each other as many diagnoses can overlap -or down the

road

> we learn that our child does have co diagnosis.

>

> While this group is open to parents of all children with

> communication impairments -including hearing impaired, autistic etc.

> it wasn't that all that posted recently had a child with autism, or

> autism and apraxia -but because of society focus on autism -many

here

> started following an autism approach -including ABA in some cases!

> That's understandable if the much more basic approach to apraxia -ST

> and OT and EFAs were tried first and didn't work -but some were

> trying that to start.

>

> The overwhelming majority (if you check the archives) have success

> with the basic approach to apraxia.

>

> On the other hand- most of us are dealing with more than verbal

> apraxia.we just don't know that when our child is 2 -and we learn

> through professionals and observations as they continue to grow and

> more and more is expected of them. This is also why it's important

> to take your child for a neurodevelopmental medical exam when your

> child is suspected of apraxia to confirm or rule out other diagnosis

> such as sensory integration dysfunction etc. The earlier you know -

> the sooner to start appropriate therapies to get them up to speed by

> kindergarten.

>

> Don't let it overwhelm you -perhaps we aren't meant to know more

> than what we have to know at each stage. We'll be here to help along

> the way. It's OK to have any type of emotion when we find out our

> child has more than a simple delay -or " more " than " just " verbal

> apraxia. And it's OK to be completely overwhelmed and saddened to

> find out your child has apraxia. And as I was one of those parents

> it's never " just " apraxia when you find out!!!

>

> It's OK to be upset " just " because your child is a " late talker "

too!

>

> Please know that I too believed Tanner to just have apraxia and have

> my first message posted to a grouplist about that below.but down the

> road found out he had a few other things we needed to help him

> address. The incredible news is that the majority of our children if

> you check history are up to speed to be mainstreamed by

kindergarten-

> and of course many have learned with communication impaired children

> that it's best to start kindergarten at 6 vs. 5 to give them that

one

> extra year of therapy and developmental time.

>

> If you have questions after reading the following please share them.

> This group has always been a wealth of information for all of us, no

> matter how long we've been here.

>

> Below is a new member archived message to hopefully answer more of

> your questions for now (did you read The Late Talker yet?) For

updated

> information on fish oils and vitamin E and more - please visit the

> links section here

> http://health. groups.. com/group/ childrensapraxia net/links

>

> What type of apraxic like speech behaviors are you seeing that makes

> you and the SLP suspect your child has apraxia vs. a simple delay in

> speech? Is your child talking at all yet? At your child's age -

> without speech, it's difficult to diagnose verbal apraxia -they

> could " suspect " verbal apraxia and begin treatment just in case,

> which wouldn't hurt your child if he ended up just having a simple

> delay. Just a few questions before we could provide more accurate

> answers:

>

> Does your child have signs of oral apraxia? (for example, can he on

> command smile, imitate funny faces, blow bubbles...if you put peanut

> butter anywhere around his mouth can he lick it off no matter where

> it is?)

> http://www.cherab. org/information/ speechlanguage/ oralapraxia.

html

>

> Does your child have any neurological " soft signs " such as hypotonia

> or sensory integration dysfunction?

> http://www.cherab. org/information/ speechlanguage/

parentfriendlyso ftsigns.html

>

> Who else evaluated your child? Was it only the SLP through your

> town school or was he also in Early Intervention through the state?

> (birth to three) Was he evaluated by both a speech pathologist as

> well as an occupational therapist? Was/were they knowledgeable

> about apraxia? (If your child wasn't diagnosed by an occupational

> therapist as well and professionals suspect apraxia -I highly

> recommend you request that too either through both the school as

> well as private through insurance for many reasons)

>

> To answer any questions you may have about taking your child to see

a

> neurodevelopmental MD if he has not yet been to one and apraxia is

> suspected... in one word - " Yes!!! " I would have your child diagnosed

> (private) by a neurodevelopmental medical doctor (developmental

> pediatrician or pediatric neurologist) who is knowledgeable about

> apraxia and other neurologically based multi-faceted communication

> impairments for numerous reasons. Reasons include (but not limited

> to)

>

> *having a " hero " on the outside of the school who can assist in a

> therapeutic plan and oversee your child's development over the years

> *advocacy support with the insurance company

> * ruling out or confirming any neurological soft signs or any other

> reasons for the delay in speech

> *help those that ask " why isn't he talking yet " understand this is a

> medical condition -and has nothing to do with your child's cognitive

> ability. (if in your child's case it doesn't. Apraxia in itself

> does not affect a child's cognitive ability -and speaking early or

> late is no indication of a child's intelligence. Also contrary to

> popular belief -most who have speech impairments have average to

> above average intelligence)

>

> Here's an article written by Neurodevelopmental Pediatrician Dr.

> Marilyn Agin that was featured as a cover article in Contemporary

> Pediatrics -a trade magazine for hundreds of thousands of pediatric

> medical professionals across the US. (I wrote the parent guide)

>

> " The " late talker " -when silence isn't golden

> Not all children with delayed speech are " little Einsteins " or

garden

> variety " late bloomers. " Some have a speech-language disorder that

> will persist unless warning signs are recognized and intervention

> comes early. Includes a Guide for Parents. "

>

> Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics

> http://contemporary pediatrics. modernmedicine. com/radio_ peds4

>

> Actual article (where you can read it for free)

>

> http://opsc. mediwire. com/main/ Default.aspx? P=Content &

ArticleID= 132720

>

> There are also many activities parents can do at home with their

> child to promote the development of speech. These are detailed in

the

> Guide for Parents

> http://www.contempo rarypediatrics. com/contpeds/ article/articleD

etail.jsp? id=136315

>

> This guide was written by

[Guest guest]

I am now looking at the Pro EFA supplements, how many would you give a 3 year

old, 30lbs?  It is not listed under the kid section so is there a reason many

people are giving it to their kids,is it for the higher doses?  I am just so

completely lost trying to figure all this out!!!  I have been looking at the

different supplements, trying to figure out which one would be best to use and

no harmful side effects.  Any suggestions please?

 

Thanks,

Tina

 

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: HELP! I'm new! Fish Oils??

Date: Saturday, February 14, 2009, 10:35 PM

Hi !

With fish oils name brands do not matter -all that matter are formula,

dosage, and quality of the oil. But since you brought up the Nordic

brand I have a bit of insight to them.

Nordic makes 2 lines -the " pro " professional line and the commercial

line. The only difference is where they are sold and that the

commercial line has less capsules for around the same cost as the pro

line. In this group most here use ProEFA (or Omega 369) or ProEPA (or

EPA) I have found that a 2/1 ratio of ProEFA over ProEPA to be best

for my son Tanner back around 10 years ago and since sharing it here

most find that the same formula brings the best results. I share what

works for the majority however there's always the exceptions to the

rule. I'd start however with what works for most.

Here's an archive for new become a member of our new Facebook page as

well as it's much more contemporary than this for posting links and

videos. There is a large amount of easy to find messages there about

new member topics at http://www.apraxia. org

New member 101 archive:

Below is a new member archive that keeps it simple on what to know to

start.

Re: Hi! New and wondering about apraxia.

Hi Mrs Laurie and welcome!

Your son sounds like he has some oral apraxia which would of course

need to be confirmed by professionals. If oral apraxia is present

together with your child's delay he should at least be diagnosed

as " suspected apraxia " and appropriate therapy should be provided.

He is entitled by federal law to a free and appropriate public

education (FAPE) in the least restrictive environment (LRE) which

means that if 5 days of one on one speech therapy is appropriate for

him then that's what he should receive. What type of speech therapy

is he receiving from the school right now when you say " some " ?

Below is a very long archive to help -please know that you don't have

to understand it all at once -we're here as a group to help!

Thanks for sharing. This group has from the start been a group

that's made up of parents and professionals who care for children

with many types of speech and/or language delays and/or disorders.

There are parents here for example with undiagnosed " late talkers "

and we just have not heard from them in awhile. It's actually a

really good thing when there is a mix of us to share because we all

learn from each other as many diagnoses can overlap -or down the road

we learn that our child does have co diagnosis.

While this group is open to parents of all children with

communication impairments -including hearing impaired, autistic etc.

it wasn't that all that posted recently had a child with autism, or

autism and apraxia -but because of society focus on autism -many here

started following an autism approach -including ABA in some cases!

That's understandable if the much more basic approach to apraxia -ST

and OT and EFAs were tried first and didn't work -but some were

trying that to start.

The overwhelming majority (if you check the archives) have success

with the basic approach to apraxia.

On the other hand- most of us are dealing with more than verbal

apraxia.we just don't know that when our child is 2 -and we learn

through professionals and observations as they continue to grow and

more and more is expected of them. This is also why it's important

to take your child for a neurodevelopmental medical exam when your

child is suspected of apraxia to confirm or rule out other diagnosis

such as sensory integration dysfunction etc. The earlier you know -

the sooner to start appropriate therapies to get them up to speed by

kindergarten.

Don't let it overwhelm you -perhaps we aren't meant to know more

than what we have to know at each stage. We'll be here to help along

the way. It's OK to have any type of emotion when we find out our

child has more than a simple delay -or " more " than " just " verbal

apraxia. And it's OK to be completely overwhelmed and saddened to

find out your child has apraxia. And as I was one of those parents

it's never " just " apraxia when you find out!!!

It's OK to be upset " just " because your child is a " late talker " too!

Please know that I too believed Tanner to just have apraxia and have

my first message posted to a grouplist about that below.but down the

road found out he had a few other things we needed to help him

address. The incredible news is that the majority of our children if

you check history are up to speed to be mainstreamed by kindergarten-

and of course many have learned with communication impaired children

that it's best to start kindergarten at 6 vs. 5 to give them that one

extra year of therapy and developmental time.

If you have questions after reading the following please share them.

This group has always been a wealth of information for all of us, no

matter how long we've been here.

Below is a new member archived message to hopefully answer more of

your questions for now (did you read The Late Talker yet?) For updated

information on fish oils and vitamin E and more - please visit the

links section here

http://health. groups.. com/group/ childrensapraxia net/links

What type of apraxic like speech behaviors are you seeing that makes

you and the SLP suspect your child has apraxia vs. a simple delay in

speech? Is your child talking at all yet? At your child's age -

without speech, it's difficult to diagnose verbal apraxia -they

could " suspect " verbal apraxia and begin treatment just in case,

which wouldn't hurt your child if he ended up just having a simple

delay. Just a few questions before we could provide more accurate

answers:

Does your child have signs of oral apraxia? (for example, can he on

command smile, imitate funny faces, blow bubbles...if you put peanut

butter anywhere around his mouth can he lick it off no matter where

it is?)

http://www.cherab. org/information/ speechlanguage/ oralapraxia. html

Does your child have any neurological " soft signs " such as hypotonia

or sensory integration dysfunction?

http://www.cherab. org/information/ speechlanguage/ parentfriendlyso

ftsigns.html

Who else evaluated your child? Was it only the SLP through your

town school or was he also in Early Intervention through the state?

(birth to three) Was he evaluated by both a speech pathologist as

well as an occupational therapist? Was/were they knowledgeable

about apraxia? (If your child wasn't diagnosed by an occupational

therapist as well and professionals suspect apraxia -I highly

recommend you request that too either through both the school as

well as private through insurance for many reasons)

To answer any questions you may have about taking your child to see a

neurodevelopmental MD if he has not yet been to one and apraxia is

suspected... in one word - " Yes!!! " I would have your child diagnosed

(private) by a neurodevelopmental medical doctor (developmental

pediatrician or pediatric neurologist) who is knowledgeable about

apraxia and other neurologically based multi-faceted communication

impairments for numerous reasons. Reasons include (but not limited

to)

*having a " hero " on the outside of the school who can assist in a

therapeutic plan and oversee your child's development over the years

*advocacy support with the insurance company

* ruling out or confirming any neurological soft signs or any other

reasons for the delay in speech

*help those that ask " why isn't he talking yet " understand this is a

medical condition -and has nothing to do with your child's cognitive

ability. (if in your child's case it doesn't. Apraxia in itself

does not affect a child's cognitive ability -and speaking early or

late is no indication of a child's intelligence. Also contrary to

popular belief -most who have speech impairments have average to

above average intelligence)

Here's an article written by Neurodevelopmental Pediatrician Dr.

Marilyn Agin that was featured as a cover article in Contemporary

Pediatrics -a trade magazine for hundreds of thousands of pediatric

medical professionals across the US. (I wrote the parent guide)

" The " late talker " -when silence isn't golden

Not all children with delayed speech are " little Einsteins " or garden

variety " late bloomers. " Some have a speech-language disorder that

will persist unless warning signs are recognized and intervention

comes early. Includes a Guide for Parents. "

Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics

http://contemporary pediatrics. modernmedicine. com/radio_ peds4

Actual article (where you can read it for free)

http://opsc. mediwire. com/main/ Default.aspx? P=Content & ArticleID= 132720

There are also many activities parents can do at home with their

child to promote the development of speech. These are detailed in the

Guide for Parents

http://www.contempo rarypediatrics. com/contpeds/ article/articleD etail.jsp?

id=136315

This guide was written by