Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 Amen Janice, Amen to that! We have caught this early everyone with my boy who is 3. 5years old. Life is getting better every day and so are the vision issues. I encourage you all to get you kid's eyes checked! Colleen Mother of Charlie 3.5 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 I am in Illinois and am not sure if it is for all 50 states or not but the infant- see program is awesome! You can take your baby and get his eyes examined free of charge.. They found an astigmatism in my 8 month. Eye and now we are keeping an eye on it to see if it corrects itself or if he will need glasses. Sent from my BlackBerry® wireless device from U.S. Cellular Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 I've had a lot of problems with lights and focusing too....so bad, to the point of having to cover my eyes sometimes when I talk or hear or when trying to focus on someones face when talking to them up close. Tunnel vision too, i think is what it would be called when i go to the store and walk down the aisle...if i turn my head and look at things in motion, it totally freaks me out and i need to leave the store. I can't read much anymore, instant narcolepsy and can last10-15 mins on a computer and i'm done. anyone else with these problems? ultra sensitive to sound to and certain pitches....phone calls, after about 30 minutes i start slurring my words and falling asleep on the phone. very weird disease! please tell me if anybody else has heard of anything like this or am i going totally crazy? > > Vision issues are very common with neuro lyme. My LLMD has described > numerous strange vision problems with his lyme patients and there is a > considerable scientific literature linking vision problems to lyme. > > One effect can occur when the spirochete in the brain affects the optic > nerve which then ceases to respond effectively to changes in light and > ceases to focus as it did before. Also, on occasion, optic neuritis. > > I have had vision symptoms since the beginning of my lyme saga....my vision > has always improved when on antibiotics.... This has been one of most > difficult symptoms for me as I live in a large city and simply don't feel > safe crossing streets and so forth with vision which is erratic. Nor can I > drive. Fortunately I can see the computer screen fine.... > > What a dreadful disease. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Nope. Not crazy. Any neurologist will tell you that it's weird if Lyme *doesn't* create vision and hearing problems. I've had severe light sensitivity, which has become markedly better with treatment. (I used to spend days hiding under my covers from the minimal light in a dark room.) But the worst thing was the auditory processing problem, which I didn't really understand until my son was diagnosed with one. Turns out central auditory processing problems run in my family -- my dad and brother both had them, too -- but Lyme exacerbates them. (So does menopause, which of course comes even harder for us.) This is why I am not a phone person. My fortieth birthday gift to myself was permission to turn off my answering machine. I tried to buy a phone without an answering machine, and couldn't find one. So when you call my house, and you get a message that says (politely): Don't leave a message, because I won't listen to it. Most of the time, I won't pick up, either. A lot of people are deeply offended by this -- " I couldn't reach you!! " -- but I'm very explicit that the best way to reach me is e-mail, always. I'll usually respond within an hour or two. (And if you don't have my e-mail, odds are good you're not someone I wanted to talk to anyway.) When I instituted this policy, I didn't even know why I was doing it. I was just trying to set some boundaries around my life, and stop energy leaks. A single phone call could interrupt a much-needed nap, force me to sprint across the house when I could barely stand, or destroy the mental focus on a project that had taken hours or even days to summon up. Often, I just couldn't be polite (or even coherent) on command like that. It was intrusive, a violation of my private space. I had to give it up. So now, even though I'm feeling better, I don't answer the phone unless I'm feeling very, very good (and I like what I see on Caller ID). It's just too hard to listen and process the conversation if I'm getting it in just one ear. Two-earphone headsets work much better (a good thing, since I attended most of my grad school classes online via Skype or Blackboard). My hearing's fine, but the piece of my brain that prioritizes incoming sound doesn't work like it once did. The result is like listening to a cheap tape recorder: everything in the room comes in at the same priority, and I have to work very hard to pick out the thing I want to pay attention to. Language processing is just HARD when you've got this glitch. Besides making phone conversations hell, it also makes it exhausting to be in crowds for very long. And listening to anything for very long just makes you tired. CAPD was the root cause of my son's dyslexia, as it is for many dyslexics. It has a lot of causes -- genetics, hormone changes, brain trauma, infection -- and Lyme is right in there as one of the big ones. This has gotten some better with treatment, and I'm looking forward to more gains. Sara On Feb 27, 2010, at 4:41 57PM, robin c wrote: > > I've had a lot of problems with lights and focusing too....so bad, to the point of having to cover my eyes sometimes when I talk or hear or when trying to focus on someones face when talking to them up close. Tunnel vision too, i think is what it would be called when i go to the store and walk down the aisle...if i turn my head and look at things in motion, it totally freaks me out and i need to leave the store. I can't read much anymore, instant narcolepsy and can last10-15 mins on a computer and i'm done. anyone else with these problems? ultra sensitive to sound to and certain pitches....phone calls, after about 30 minutes i start slurring my words and falling asleep on the phone. very weird disease! please tell me if anybody else has heard of anything like this or am i going totally crazy? > >> >> Vision issues are very common with neuro lyme. My LLMD has described >> numerous strange vision problems with his lyme patients and there is a >> considerable scientific literature linking vision problems to lyme. >> >> One effect can occur when the spirochete in the brain affects the optic >> nerve which then ceases to respond effectively to changes in light and >> ceases to focus as it did before. Also, on occasion, optic neuritis. >> >> I have had vision symptoms since the beginning of my lyme saga....my vision >> has always improved when on antibiotics.... This has been one of most >> difficult symptoms for me as I live in a large city and simply don't feel >> safe crossing streets and so forth with vision which is erratic. Nor can I >> drive. Fortunately I can see the computer screen fine.... >> >> What a dreadful disease. >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
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