Re: I need info on omega3

[Guest guest]

Hi Lilmarmom!

rule number one is as hard as it is -don't blame yourself. Trust me

there's probably very few people that talk as much as me (ask anyone

that knows me) and I had TWO late talker kids. The amount we talk,

sing and play with our kids has nothing to do with the rise in

impairments of speech in children today in families that have no

history of speech impairments. Also I'm from Jersey where

historically everyone talks a mile a minute -and when I lived there

you literally could go block to block to find a child with

apraxia/sensory issues/hypotonia. Why? Don't know -but do know it

had 'nothing' to do with how much the parents talked to their

children.

You need to get a real diagnosis for your child to prevent any self

esteem issues. There's a difference between a child that can't talk

due to an impairment but wants to talk, a child that doesn't

understand what they want so doesn't know how to ask, a child that

just isn't ready to talk (that would be the simple delay which your

current " diagnosis " fits in)and a child that has no interest in

talking to others.

It used to be that if a child was a " late talker " they would just

talk later...today parents should know the warning signs of apraxia

because all " late talker " kids have a expressive delay -you don't

know yet if he has a receptive delay and I wouldn't auto assume

that's there unless someone I highly respected explained why. Since

you don't have a diagnosis (again what you have is a slightly more

professional name than " late talker " )

If in fact your child has apraxia forcing him to try to repeat on

command will create more frustration. With apraxia you do have to

push -but you have to push so you don't break them. So the right

way. No being able to talk doesn't mean the child has nothing to

say. With apraxia for example -he may have an incredible amount of

things to say to you...all day long...every day...but all he can say

is " ma " and " no " and " ca " and " mo " etc. Imagine the frustration.

For all that say " he'll talk when he's ready " That's great for them

to say that -but truth is it's your child and while we hope they are

right -if they aren't right then you have already lost precious early

intervention time. Since you read The Late Talker you know some of

the " soft signs " in parent friendly terms. Do you notice any of them

in your son?

Below is a new member archive which I believe includes info about

fish oils -but again right now in my opinion the most important thing

for you is to seek an appropriate diagnosis. If he's 3 years old he

should be in a preschool special needs placement through your town's

school with an IEP where he is receiving speech and occupational

therapy...and if all he is saying are those simple sounds than he

would probably be evaluated with a severe or profound delay which

could entitle him to 4 or 5 days of week of appropriate individual

speech therapy. You see it's not just 2 days a week of speech

therapy -it's what type of therapy that matters too. Better if it is

apraxia to have 4 days of 30 minutes than 2 days of one hour.

Anyway got to run for now but below is a bunch more info!

Below is a new member archive that keeps it simple on what to know to

start.

Re: Hi! New and wondering about apraxia.

Hi Mrs Laurie and welcome!

Your son sounds like he has some oral apraxia which would of course

need to be confirmed by professionals. If oral apraxia is present

together with your child's delay he should at least be diagnosed

as " suspected apraxia " and appropriate therapy should be provided.

He is entitled by federal law to a free and appropriate public

education (FAPE) in the least restrictive environment (LRE) which

means that if 5 days of one on one speech therapy is appropriate for

him then that's what he should receive. What type of speech therapy

is he receiving from the school right now when you say " some " ?

Below is a very long archive to help -please know that you don't have

to understand it all at once -we're here as a group to help!

Thanks for sharing. This group has from the start been a group

that's made up of parents and professionals who care for children

with many types of speech and/or language delays and/or disorders.

There are parents here for example with undiagnosed " late talkers "

and we just have not heard from them in awhile. It's actually a

really good thing when there is a mix of us to share because we all

learn from each other as many diagnoses can overlap -or down the road

we learn that our child does have co diagnosis.

While this group is open to parents of all children with

communication impairments -including hearing impaired, autistic etc.

it wasn't that all that posted recently had a child with autism, or

autism and apraxia -but because of society focus on autism -many here

started following an autism approach -including ABA in some cases!

That's understandable if the much more basic approach to apraxia -ST

and OT and EFAs were tried first and didn't work -but some were

trying that to start.

The overwhelming majority (if you check the archives) have success

with the basic approach to apraxia.

On the other hand- most of us are dealing with more than verbal

apraxia.we just don't know that when our child is 2 -and we learn

through professionals and observations as they continue to grow and

more and more is expected of them. This is also why it's important

to take your child for a neurodevelopmental medical exam when your

child is suspected of apraxia to confirm or rule out other diagnosis

such as sensory integration dysfunction etc. The earlier you know -

the sooner to start appropriate therapies to get them up to speed by

kindergarten.

Don't let it overwhelm you -perhaps we aren't meant to know more

than what we have to know at each stage. We'll be here to help along

the way. It's OK to have any type of emotion when we find out our

child has more than a simple delay -or " more " than " just " verbal

apraxia. And it's OK to be completely overwhelmed and saddened to

find out your child has apraxia. And as I was one of those parents

it's never " just " apraxia when you find out!!!

It's OK to be upset " just " because your child is a " late talker " too!

Please know that I too believed Tanner to just have apraxia and have

my first message posted to a grouplist about that below.but down the

road found out he had a few other things we needed to help him

address. The incredible news is that the majority of our children if

you check history are up to speed to be mainstreamed by kindergarten-

and of course many have learned with communication impaired children

that it's best to start kindergarten at 6 vs. 5 to give them that one

extra year of therapy and developmental time.

If you have questions after reading the following please share them.

This group has always been a wealth of information for all of us, no

matter how long we've been here.

Below is a new member archived message to hopefully answer more of

your questions for now (did you read The Late Talker yet?) For updated

information on fish oils and vitamin E and more - please visit the

links section here

/links

What type of apraxic like speech behaviors are you seeing that makes

you and the SLP suspect your child has apraxia vs. a simple delay in

speech? Is your child talking at all yet? At your child's age -

without speech, it's difficult to diagnose verbal apraxia -they

could " suspect " verbal apraxia and begin treatment just in case,

which wouldn't hurt your child if he ended up just having a simple

delay. Just a few questions before we could provide more accurate

answers:

Does your child have signs of oral apraxia? (for example, can he on

command smile, imitate funny faces, blow bubbles...if you put peanut

butter anywhere around his mouth can he lick it off no matter where

it is?)

http://www.cherab.org/information/speechlanguage/oralapraxia.html

Does your child have any neurological " soft signs " such as hypotonia

or sensory integration dysfunction?

http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html

Who else evaluated your child? Was it only the SLP through your

town school or was he also in Early Intervention through the state?

(birth to three) Was he evaluated by both a speech pathologist as

well as an occupational therapist? Was/were they knowledgeable

about apraxia? (If your child wasn't diagnosed by an occupational

therapist as well and professionals suspect apraxia -I highly

recommend you request that too either through both the school as

well as private through insurance for many reasons)

To answer any questions you may have about taking your child to see a

neurodevelopmental MD if he has not yet been to one and apraxia is

suspected... in one word - " Yes!!! " I would have your child diagnosed

(private) by a neurodevelopmental medical doctor (developmental

pediatrician or pediatric neurologist) who is knowledgeable about

apraxia and other neurologically based multi-faceted communication

impairments for numerous reasons. Reasons include (but not limited

to)

*having a " hero " on the outside of the school who can assist in a

therapeutic plan and oversee your child's development over the years

*advocacy support with the insurance company

* ruling out or confirming any neurological soft signs or any other

reasons for the delay in speech

*help those that ask " why isn't he talking yet " understand this is a

medical condition -and has nothing to do with your child's cognitive

ability. (if in your child's case it doesn't. Apraxia in itself

does not affect a child's cognitive ability -and speaking early or

late is no indication of a child's intelligence. Also contrary to

popular belief -most who have speech impairments have average to

above average intelligence)

Here's an article written by Neurodevelopmental Pediatrician Dr.

Marilyn Agin that was featured as a cover article in Contemporary

Pediatrics -a trade magazine for hundreds of thousands of pediatric

medical professionals across the US. (I wrote the parent guide)

" The " late talker " -when silence isn't golden

Not all children with delayed speech are " little Einsteins " or garden

variety " late bloomers. " Some have a speech-language disorder that

will persist unless warning signs are recognized and intervention

comes early. Includes a Guide for Parents. "

Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics

http://contemporarypediatrics.modernmedicine.com/radio_peds4

Actual article (where you can read it for free)

http://opsc.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720

There are also many activities parents can do at home with their

child to

promote the development of speech. These are detailed in the Guide

for Parents

http://www.contemporarypediatrics.com/contpeds/article/articleDetail.jsp?id=1363\

15

This guide was written by

[Guest guest]

hi,

totally normal to feel angry at this point, there will be all kinds of emotions

all over the place.

if your child is feeling frustrated, something you can try would be PECS. it is

a picture exchange communication system.

you can google it. basically, you make a bunch of cards and he will give you one

when he wants something.  ie, if you make

a card for cereal, he can go get the symbol and then hand it to you.  i really

advise doing this as the frustration level for ALL

involved will be lessened.

As for omegas.  I use the nordic naturals complete 3-6-9 as well as the nordic

naturals EPA.

the mix that works most here is 2 capsules 3-6-9 to 1 capsule EPA.

the liquid is too unstable and you never know when it has gone rancid.  it's

easy to pierce the gelcaps with a push pin

and squeeze it into a yogourt or applesauce.

i hope this helps

sandy

mom to chris 9 years old

________________________________

From: lgallegos_2001 <lgallegos_2001@...>

Sent: Monday, December 29, 2008 3:11:28 PM

Subject: [ ] I need info on omega3

hi, my son was recently diagnosed w/ receptive/expressiv e language

delay. He will be receiving speech therapy 2x a week. I just

finished reading the " Late Talker " . I am really interested in the

omega 3. But i don't know what will be the correct dosage for him. He

is two years old. He only says no, ca (car) and mo (more. he recently

started to say mama, but only if i have him repeat it. so it's not w/

meaning. I don't know if he even knows what he is saying. it just

breaks my heart to see him get frustrated when we don't understand what

he wants. i also have to say i feel angry about this. why can't he

talk i do everything a mom should do! i read, sing, talk, play I

repeat, repeat everthing! i just don't understand why my baby can't

talk! everybody keeps telling me oh it's ok he will talk when he is

ready!! i tired of hearing that!

SORRY I JUST HAD TO VENT!

i just want more info on the omega 3 so i can talk to his dr about it.

i want to go in there well informed before i go in there.

thanks

lilmarsmom

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