Regression

January 26, 2009

my son seemed to have regressed from two days, he has been on fish oil , vitamin

E, phospholine from over a year and Cod liver oil,piracetum and glutonine from

one month, He has seemed to regress socially, and need prompts to respond when

his name is called. I have never seen this happen to him in the past, he was

gaining steady progress . I have been testing him to see if he has lost words ,

he has not , but the speech is not clear and the eye contact is not their.

please advise , if some one has gone through this phase.

thanks,

roopa

January 26, 2009

Hi Roopa:

Below is an archive message that wrote for causes of

regressions that she has seen in her son ph. In my house, my son

will get slurry speech when he is getting sick. I can usually tell

when he is getting sick before he even mentions feeling yuck.

HTH,

Tina

--------------------Beginning of archive--------------------

One reassuring thing we have found is that the set-backs are all

reversible, at least in ph.

Causes of set-backs/regressions in my experience:

1. Fish oil gone bad. If old, left out of the fridge, top off the

liquid or heated (ie left in hot closet...even the pills)...the fish

oil oxidizes and is pretty much toxic, depleting your body of

antioxidants (particularly vit E)...to detoxify it.

Start a fresh bottle.

2. Illnesses - simple colds and otherwise benign viruses seem to

induce regression that is temporary. (suspect that like triggering

asthma...the viral illnesses are triggering enough inflammation to

effect the apraxia symptoms).

3. Not getting in or taking the supplements...like when he is sick or

with stomach flu...vomiting and not keeping anything down. No

supplements = regressions in our house. Or if doses were skipped for

some reason (ie babysitter forgot etc).

4. Exposures to allergens - eating the foods he is allergic to. We

have seen this so many times that I am now 100% sure it is a trigger

for neurological symptoms...at least in my boys. In addition to

gluten and milk, ph has a now documented yeast/mold allergy (skin

test positive, confirms his penacillin allergy that we knew about

from an antibiotic reaction too, but also tested positive to baker's

yeast (so no baked goods with yeast or fermented items)...but also

some supplements like selenium, and vit B complex are made from

yeast...so if you have a true yeast allergy...you will react. Lipase

is made from aspergillus (a mold)...again will induce an allergic

reaction in those allergic to aspergillus. Yeast ingestion was the

cause of the regression back in Sept...not only did he have a cold,

but I started baking bread with the new bread-maker that had a gluten-

free cycle. We did not regain the losses until he was started on

nystatin (an antifungal - started for thrush he had from his inhaled

steroid asthma medicines). (But I was continuing to give him bread

and expose him to yeast). The antifungal was not treating " toxic

yeast " as much as it was helping decrease the burden of an allergen

in a truly yeast-allergic child. Unfortunately mold and yeast is

everywhere. But it can be avoided in foods, and that has make a huge

difference.

5. Starting supplements that are made from molds or yeast : lipase,

selenium - induced BAD regressions that I only now understand after

figuring out the yeast allergy, and then investigating the

manufacturing of every supplement he had an adverse reaction to.

6. Weaning his asthma medicines caused regressions. So seems that

the anti-inflammatory effects of Jospeh's asthma medicines were

helping his apraxia. Makes sense if there is an allergic link to the

cascade of inflammation in kids like ph. ph lost significant

amount of speech when we took him off his inhaled steroids...regained

losses and had a huge surge when we started him on singulaire...a

different form of asthma med. Fish oil also has anti-inflammatory

effects. Perhaps this is one way it is helping our kids. Vit E is a

potent antioxidant. At least in our case...the root of the apraxia

keeps pointing back to allergic disease and inflammation of the gut.

In children with multiple food allergies...would make sense that a

casein-gluten free diet would help.

Every child is different...but if there is a regression in an apraxic

child, there is likely an explanation. Have you changed brands of

vitamins/fish oil or vit E? Not all are the same, even if the labels

look like they should be the same. You need to be a detective to

figure it out.

-

>

> my son seemed to have regressed from two days, he has been on fish

oil , vitamin E, phospholine from over a year and Cod liver

oil,piracetum and glutonine from one month, He has seemed to regress

socially, and need prompts to respond when his name is called. I have

never seen this happen to him in the past, he was gaining steady

progress . I have been testing him to see if he has lost words , he

has not , but the speech is not clear and the eye contact is not

their. please advise , if some one has gone through this phase.

>

> thanks,

> roopa

>

January 26, 2009

For us, we get regressions with food issues and sometimes new vitamins that are

not being well tolerated.

So.... my quick 'healing' with regards to regressions is this (I have it down to

a science).... We use the following:

- Tri Salts: These are sodium bicarbonates and they work extremely well. They

are not expensive and last a long time. We never travel without them as MSG in

restaurant food literally 'contaminates' my son's system!

- Epsom Salts bathes - Whenever Mark is regressing, he gets an epsom salts bath

every night until it is gone.

- No starchy carbohydrates or processed sugar of any kind. We completely pull

the carbs and eat extremely 'clean'. No processed foods. We will eat meat,

veggies, fruit until his system is cleared.

Our regressions used to last for weeks and they were extremely depressing. Now,

I can get through them in one night! If he comes home after school regressing

with slurred speech, I have him drink a glass of distilled water mixed with 1

tsp of Tri Salts. We then have a really zero starch dinner and I will drizzle

olive oil or walnut oil 'slightly' on his food just to add some extra good fats.

Omega 3 is a wonderful anti-inflamatory so it really helps. Then that night he

has a nice epsom salts bath and in the morning, he is generally 'cleared' any

type of item that he is sensitive to. On the rare occasion he has not, we will

do this regime daily until he has..... it works very, very well.

Janice

Mother of Mark, 14

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