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You misunderstood what I said. My child has extreme verbal apraxia.

He does " not " have a behavioral disorder, nor a social disorder.

However, he gets extremely frustrated when trying to socialize with

his family, us, for instance, because we cannot understand what he

wants. Sign language helps in that area, but his peers, like his

little friend (same age) across the street does not know sign

language. Therefore, my son would be considered to have " an

alteration in social skills related to verbal apraxia " , which is how

it would be said in the medical field. He gets extremely frustrated

to the point of screaming sometimes when we are trying to figure out

what he is saying and he does not have a sign for it yet; in the

medical field, this would be written down as " an alteration in

behavior (frustration) due to the inability to interact with his

environment related to verbal apraxia " . These are correct nursing

diagnosis' and they are related exclusively to having the condition

of verbal apraxia and not behavioral or social disorders. Apraxia is

NO social or behavioral problem, but it can certainly lend to the

appearance of them, as explained above. A child with Apraxia can have

social alterations and behavioral alterations from simply having the

condition of apraxia, which is a motor programming problem in the

brain.

>

> it may not be true for your child but it is true for apraxia.

> In itself apraxia is not a social nor a behavioral disorder. Any

> social or behavioral issues that are found in a child with apraxia

are

> not due primary to apraxia -they would be secondary to the apraxia

> due to frustration/inappropriate placement or therapy etc. Also it

is

> possible that a child with apraxia can have a duel diagnosis of

> apraxia and autism or some other disorder.

>

> I know that some don't appreciate how delicate self esteem is, how

> damaging frustrations can be for preschool apraxic children. I

worked

> hard to avoid and reduce frustrations for my apraxic child; by

> learning all I could about his condition and how I could best help

> him. By advocating for appropriate therapies and placements and

> finding alternative ways of communication (such as sign and simple

> picture exchange). By providing multisensory therapies for him that

> were both effective as well as fun. By trying to give him time to

be

> a kid while trying to get hours of therapy in a day. It wasn't easy

> for him and it wasn't easy for me and my husband either. In fact it

> wasn't easy for his brother -but we made it through the frustration

> (which in spite of trying to reduce were still there of course- just

> not to the extreme) and Tanner, as well as many others here in this

> group never had social nor behavioral issues. Unless you want to

> count him being shy in groups of children in his early years. But

as

> I and others posted -our children who were shy in early years are

far

> from shy today.

>

> This is not to say that your child is apraxic and doesn't have

social

> or behavioral issues, but there are simple ways to avoid or overcome

> them if they are due to frustration (and not a co diagnosis such as

> autism). The moral is to do what you can to protect your child's

self

> esteem, to reduce frustration, and to make sure your child has

> appropriate diagnosis, therapy and placement. Make sure you provide

> alternative ways to communicate until they can communicate verbally

too.

>

> I don't know what you mean by

> " then when they get older due to misperceptions in thought "

> Can you explain that?

>

> Apraxia is also not a cognitive nor receptive disorder.

> Most in this group over the years are mainstreamed in school/life.

>

> Of course there are the exceptions -there are always exceptions.

>

> Hope this helps

>

> =====

>

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they are not covered by insurance.   first visist and tests are $500.

 

 

sl

The information transmitted is intended only for the person or entity to which

it is addressed and may contain confidential, proprietary, and/or privileged

material. Any review, retransmission, dissemination or other use of, or taking

of any action in reliance upon, this information by persons or entities other

than the intended recipient is prohibited. If you receive this in error, please

contact the sender and delete the material from all computers.

Sharon Lang

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,

Finding the environmental doctor in Utah was kind of an accident! I was taking

Mark to Utah anyway because that is where we get his home therapy programs

designed at NACD (htttp://www.nacd.org) so someone on this list told me of this

little medical centre in Provo. It has turned out to be a wonderful blessing.

His prices are reasonable and he has a homeopath on site who works on Mark's

food sensitivity issues when we are down there as well. It has been extremely

effective and we hardly have any food issues anymore. We still have a couple to

knock off the list but Mark has really done a profound amount of healing since

we found this doctor this past July.

Sometimes, good testing, good labwork is essential for our kids. Everyone needs

to find a proactive doctor who is willing to become more investigative.

If your interested in doing further reading: I highly recommend a couple of

books for you. One is by Dr. Bock. " Healing the New Childhood

Epidemics: Autism, ADHD, Asthma and Allergies " This is a great book and well

worth the read. Another one that is absolutely fabulous is called, " Autism:

Effective Biomedical Treatments (Have We Done Everything We Can For This Child?

Individuality In An Epidemic) " by Jon Pangborn and Sidney Baker. It is a

wonderful resource and I find myself reading it over and over again.

Here are some reviews on Amazon of these books.

http://www.amazon.com/Healing-New-Childhood-Epidemics-Groundbreaking/dp/03454945\

12/ref=sr_1_1?ie=UTF8 & s=books & qid=1234890467 & sr=1-1

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Thanks Janice.   I appreciate the book information.

 

 

sharon

The information transmitted is intended only for the person or entity to which

it is addressed and may contain confidential, proprietary, and/or privileged

material. Any review, retransmission, dissemination or other use of, or taking

of any action in reliance upon, this information by persons or entities other

than the intended recipient is prohibited. If you receive this in error, please

contact the sender and delete the material from all computers.

Sharon Lang

From: Janice <jscott@...>

Subject: Re: [ ] Re: Social skills of verbal apraxia children?

Date: Tuesday, February 17, 2009, 12:17 PM

,

Finding the environmental doctor in Utah was kind of an accident! I was taking

Mark to Utah anyway because that is where we get his home therapy programs

designed at NACD (htttp://www. nacd.org) so someone on this list told me of this

little medical centre in Provo. It has turned out to be a wonderful blessing.

His prices are reasonable and he has a homeopath on site who works on Mark's

food sensitivity issues when we are down there as well. It has been extremely

effective and we hardly have any food issues anymore. We still have a couple to

knock off the list but Mark has really done a profound amount of healing since

we found this doctor this past July.

Sometimes, good testing, good labwork is essential for our kids. Everyone needs

to find a proactive doctor who is willing to become more investigative.

If your interested in doing further reading: I highly recommend a couple of

books for you. One is by Dr. Bock. " Healing the New Childhood Epidemics:

Autism, ADHD, Asthma and Allergies " This is a great book and well worth the

read. Another one that is absolutely fabulous is called, " Autism: Effective

Biomedical Treatments (Have We Done Everything We Can For This Child?

Individuality In An Epidemic) " by Jon Pangborn and Sidney Baker. It is a

wonderful resource and I find myself reading it over and over again.

Here are some reviews on Amazon of these books. http://www.amazon. com/Healing-

New-Childhood- Epidemics- Groundbreaking/ dp/0345494512/ ref=sr_1_ 1?ie=UTF8 &

s=books & qid= 1234890467 & sr=1-1

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A child with Apraxia can have

social alterations and behavioral alterations from simply having the

condition of apraxia, which is a motor programming problem in the

brain.

 

I agree.   We hired a behaviorlist to differentiate between  Maddy's true

non-compliance issues and her motor planning issues.   her motor planning issues

led to the noncompliance...  

 

Both issues have to be addressed in different ways.   Noncompliance with aba ie 

task/reward and motor planning with segmentation fo the tasks, for the most

part, sometimes prompting.  It is important to why the frustration.

 

a-b-c is the basic fomula   antecedent, behavior, consequence.   what happeneded

before, what is the behavior, what happened after?   sometimes the before (a) is

the problem.  there could be too much sensory or not enought or a task that is

too easy or too hard or one that is very difficult due to motor planning.

 

on the other end, there could be some sort of reward ©.  this could be simply

that the child gets out of the task by throwing a fit (B) or gets to leave the

store by misbehaving (B).   A behavioralist will look at a,b, and c and I think

we parnts only tend to look at the b and the c.

 

 

sl   . 

The information transmitted is intended only for the person or entity to which

it is addressed and may contain confidential, proprietary, and/or privileged

material. Any review, retransmission, dissemination or other use of, or taking

of any action in reliance upon, this information by persons or entities other

than the intended recipient is prohibited. If you receive this in error, please

contact the sender and delete the material from all computers.

Sharon Lang

From: <agirlnamedsuess@...>

Subject: [ ] Re: Social skills of verbal apraxia children?

Date: Tuesday, February 17, 2009, 11:30 AM

You misunderstood what I said. My child has extreme verbal apraxia.

He does " not " have a behavioral disorder, nor a social disorder.

However, he gets extremely frustrated when trying to socialize with

his family, us, for instance, because we cannot understand what he

wants. Sign language helps in that area, but his peers, like his

little friend (same age) across the street does not know sign

language. Therefore, my son would be considered to have " an

alteration in social skills related to verbal apraxia " , which is how

it would be said in the medical field. He gets extremely frustrated

to the point of screaming sometimes when we are trying to figure out

what he is saying and he does not have a sign for it yet; in the

medical field, this would be written down as " an alteration in

behavior (frustration) due to the inability to interact with his

environment related to verbal apraxia " . These are correct nursing

diagnosis' and they are related exclusively to having the condition

of verbal apraxia and not behavioral or social disorders. Apraxia is

NO social or behavioral problem, but it can certainly lend to the

appearance of them, as explained above. A child with Apraxia can have

social alterations and behavioral alterations from simply having the

condition of apraxia, which is a motor programming problem in the

brain.

>

> it may not be true for your child but it is true for apraxia.

> In itself apraxia is not a social nor a behavioral disorder. Any

> social or behavioral issues that are found in a child with apraxia

are

> not due primary to apraxia -they would be secondary to the apraxia

> due to frustration/ inappropriate placement or therapy etc. Also it

is

> possible that a child with apraxia can have a duel diagnosis of

> apraxia and autism or some other disorder.

>

> I know that some don't appreciate how delicate self esteem is, how

> damaging frustrations can be for preschool apraxic children. I

worked

> hard to avoid and reduce frustrations for my apraxic child; by

> learning all I could about his condition and how I could best help

> him. By advocating for appropriate therapies and placements and

> finding alternative ways of communication (such as sign and simple

> picture exchange). By providing multisensory therapies for him that

> were both effective as well as fun. By trying to give him time to

be

> a kid while trying to get hours of therapy in a day. It wasn't easy

> for him and it wasn't easy for me and my husband either. In fact it

> wasn't easy for his brother -but we made it through the frustration

> (which in spite of trying to reduce were still there of course- just

> not to the extreme) and Tanner, as well as many others here in this

> group never had social nor behavioral issues. Unless you want to

> count him being shy in groups of children in his early years. But

as

> I and others posted -our children who were shy in early years are

far

> from shy today.

>

> This is not to say that your child is apraxic and doesn't have

social

> or behavioral issues, but there are simple ways to avoid or overcome

> them if they are due to frustration (and not a co diagnosis such as

> autism). The moral is to do what you can to protect your child's

self

> esteem, to reduce frustration, and to make sure your child has

> appropriate diagnosis, therapy and placement. Make sure you provide

> alternative ways to communicate until they can communicate verbally

too.

>

> I don't know what you mean by

> " then when they get older due to misperceptions in thought "

> Can you explain that?

>

> Apraxia is also not a cognitive nor receptive disorder.

> Most in this group over the years are mainstreamed in school/life.

>

> Of course there are the exceptions -there are always exceptions.

>

> Hope this helps

>

> =====

>

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Thank you, Janice, for the book references. I will see if our

library has them, if not sounds like they'd be valuable additions to

the home bookcase. Thanks ALSO for the link to NACD - and no, I

haven't done everything possible for these kids - I'd better change

that! Esp. since I'm staring at high school graduation requirements

that include writing and public speaking. Ha! We need some serious

healing to get there......

Have a great day -

>

> ,

>

> Finding the environmental doctor in Utah was kind of an accident!

I was taking Mark to Utah anyway because that is where we get his

home therapy programs designed at NACD (htttp://www.nacd.org) so

someone on this list told me of this little medical centre in Provo.

It has turned out to be a wonderful blessing.

>

> His prices are reasonable and he has a homeopath on site who works

on Mark's food sensitivity issues when we are down there as well. It

has been extremely effective and we hardly have any food issues

anymore. We still have a couple to knock off the list but Mark has

really done a profound amount of healing since we found this doctor

this past July.

>

> Sometimes, good testing, good labwork is essential for our kids.

Everyone needs to find a proactive doctor who is willing to become

more investigative.

>

> If your interested in doing further reading: I highly recommend a

couple of books for you. One is by Dr. Bock. " Healing the

New Childhood Epidemics: Autism, ADHD, Asthma and Allergies " This is

a great book and well worth the read. Another one that is absolutely

fabulous is called, " Autism: Effective Biomedical Treatments (Have We

Done Everything We Can For This Child? Individuality In An Epidemic) "

by Jon Pangborn and Sidney Baker. It is a wonderful resource and I

find myself reading it over and over again.

>

> Here are some reviews on Amazon of these books.

http://www.amazon.com/Healing-New-Childhood-Epidemics-

Groundbreaking/dp/0345494512/ref=sr_1_1?

ie=UTF8 & s=books & qid=1234890467 & sr=1-1

>

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Thank you, Sharon, for sharing your experience. Geez, so much money.

Cheers -

>

> they are not covered by insurance.   first visist and tests are

$500.

>  

>  

> sl

>

> The information transmitted is intended only for the person or

entity to which it is addressed and may contain confidential,

proprietary, and/or privileged material. Any review, retransmission,

dissemination or other use of, or taking of any action in reliance

upon, this information by persons or entities other than the intended

recipient is prohibited. If you receive this in error, please contact

the sender and delete the material from all computers.

>

> Sharon Lang

>

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