Re: Hi...just got a diagnosis of apraxia 2 hours ago......

[Guest guest]

Please try not to be sick with grief, I know it is hard to think of your

child having to struggle with this but with the proper therapies these kids do

get better. I agonized for the longest time and it robbed me of joy with my

son. He is five and a half and has severe apraxia, he just said N's today for

the first time. Know you are not alone. Jen

In a message dated 3/6/2009 6:31:31 P.M. Eastern Standard Time,

drtraceyburrell@... writes:

Hello....my name is Tracey and my 2 and a half year old son has had speech

issues for quite a while and has been receiving occupational and speech

therapy for the past several months. Today we visited a developmental

pediatrician

that confirmed our suspisions that he has apraxia. The pediatrician is saying

that is it likely due to a stoke he had in utero (because he has low tone

and less use of his left side). We have a MRI scheduled next week to see the

extent of the problem.

I am sick with grief. Please...I need hope. I need anyone to share any

stories of process and success you have as well as any recommended treatment

agencies in the Southern California area (we live in Simi Valley).

I just didn't know where else to go for support. Thanks in advance.

Tracey

P.S. You can also e-mail any resources or therapist recommendations to be at

_DrBurrell@..._ (mailto:DrBurrell@...)

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[Guest guest]

Hello,

I know exactly how you feel. I've so been there! I posted on this site myself

several times in emotional agony. The good news is that this site is great and

you can get any type of info or support that you need. has helped me many

times just by writing that I was doing what I could and giving me suggestions to

do as well. When I first suspected apraxia, I wasn't that upset beacuse it

hadn't become real. When I finally got a diagnosis I was devastated even though

i wasn't surprised. I can tell you that even after I cried for a few nights or

so- and days driving to work- I still have had and still have moments when I

feel the same dreadful feelings. But I don't want to stay negative because I do

feel sooo much better now. He has been diagnosed about 10 months or so. I feel

in control again. I feel hope again. I see a bright future for my son again.

I would caution you about internet research. Some of the sites on apraxia are

very informational but can be scary and negative. Some only point out that kids

with apraxia may never learn to talk and if they do they are not understood. I

think that today, even some professionals feel that if a child with a dx of

apraxia improves, then they didn't have it. There are soo many things you can

do. Stay informed, get the right therapy, get dx form several doctors if you

can beacuse it helps when getting services. Please don't give up hope because

there is so much of it.

erin