Re: New with questions...

[Guest guest]

In a message dated 5/19/2004 12:59:00 PM Pacific Standard Time,

marlaja@... writes:

We are looking

more towards MeDel b/c I don't know how she would do with the body

worn processor? Any info is greatly appreciated:)

I don't like comparing to help you but did you know that Nucleus do have

Behind The Ear (BTE) processor.

I personally am happy with my Nucleus, wearing 3G processor (BTE). And can't

think of any thing against it.

Lee

[Guest guest]

In a message dated 5/19/2004 1:32:40 PM Pacific Standard Time,

marlaja@... writes:

I guess they also don't stay behind the ear as well b/c

they have such tiny ears:)

Actually, thinking about it... i have worn hearing aid for 43 years (since I

was 3), had body aid until I was 20, then switched to BTE and worn it up to

time I walked into Operating Room with it.

The BTE processor, to be honest, with all makes, have one drawback,,, it

falls off more easily than hearing aid, but you can ask for skelton mold made so

it stay in place better. I can " see " where the child's audie is coming from,

he may have worked with many children in school system and I have " heard " that

teacher prefer BWP over BTE for easy checks. Oh,, I guess i am traveling the

memory lane,,, daily hearing aid check! The teachers did it daily until we

were in 2nd grade, after that, they " trusted " us.

The above paragraph had me thinking, why not check with the school where your

child is going, see about what they prefered,,,, BTE or BWP.

Good luck with your decision!

Lee

[Guest guest]

Yes I was actually looking at the Nucleus 3 system(really liked it)

and mentioned it to our audiologist but unfortunately they said they

won't give a child her age the BTE b/c of the programming and there

are more options with the body worn processor. He said they have

given it to children as young as 5 yrs but like to wait until they

are 8 or 9. I guess they also don't stay behind the ear as well b/c

they have such tiny ears:) Thank you for your input Lee:)

Marla:)

> In a message dated 5/19/2004 12:59:00 PM Pacific Standard Time,

> marlaja@y... writes:

> We are looking

> more towards MeDel b/c I don't know how she would do with the body

> worn processor? Any info is greatly appreciated:)

>

> I don't like comparing to help you but did you know that Nucleus

do have

> Behind The Ear (BTE) processor.

>

> I personally am happy with my Nucleus, wearing 3G processor

(BTE). And can't

> think of any thing against it.

>

> Lee

>

>

>

[Guest guest]

sorry, i didnt read this email first before my last post

Re: New with questions...

> Yes I was actually looking at the Nucleus 3 system(really liked it)

> and mentioned it to our audiologist but unfortunately they said they

> won't give a child her age the BTE b/c of the programming and there

> are more options with the body worn processor. He said they have

> given it to children as young as 5 yrs but like to wait until they

> are 8 or 9. I guess they also don't stay behind the ear as well b/c

> they have such tiny ears:) Thank you for your input Lee:)

>

> Marla:)

>

>

> > In a message dated 5/19/2004 12:59:00 PM Pacific Standard Time,

> > marlaja@y... writes:

> > We are looking

> > more towards MeDel b/c I don't know how she would do with the body

> > worn processor? Any info is greatly appreciated:)

> >

> > I don't like comparing to help you but did you know that Nucleus

> do have

> > Behind The Ear (BTE) processor.

> >

> > I personally am happy with my Nucleus, wearing 3G processor

> (BTE). And can't

> > think of any thing against it.

> >

> > Lee

> >

> >

> >

[Guest guest]

Hi Marla, My name is , ma daugter (26 mos) was implanted March 25and

activated May 7. We chose the Nucleus and she wears the BWP and we have had no

problem with her wearing it, in fact less problem with this than her hearing

aids. Feel free to contact me directly if you have any questions.

Marla <marlaja@...> wrote:Hi my name is Marla, my daughter 2 1/2 yrs is

getting a cochlear

implant in the next month. We are currently looking at MeDel and

Nucleus. I was wondering if anyone had any problems with either

(pros/cons). I am beside myself with this decision. We are looking

more towards MeDel b/c I don't know how she would do with the body

worn processor? Any info is greatly appreciated:)

Marla:)

[Guest guest]

Hi Leah

Where do you live. I live in Camarillo, Ventura County.

Cris

________________________________

From: Leah <kaiserfamily4@...>

Sent: Tuesday, February 3, 2009 8:23:14 AM

Subject: [ ] New with questions...

Greetings!

My name is Leah and I am mom to 3 - ages 5, 3, and 1. , my 3 1/2

year old has been diagnosed with Apraxia of Speech by 2 different

SLP's. His comprehended language is age 4 1/2 but expressive language

is less than 2 years old. His last eval showed less than 10%

intelligible speech. We are working hard to incorporate ASL to ease

frustration. Our SLP said we may need to consider an augmentative

speech device if we are not able to pick up the ASL - but I am pretty

sure we will be able to.

Anyhow - my questions. I have read a little bit about EFA's. I have

purchased Nordic Naturals Omega 3-6-9 from a local store (too

impatient to order it off the web) and I wanted to verify that 1 Omega

3-6-9 is the same as 1/2 proEFA. Right? I think i was supposed to

start w/ 1/2 porEFA but my brain is a little hazy right now :-)

Next question...do I NEED to go to a pediatric neurologist. He is

terrified of doctors and I have been to more than our share. Is it

necessary to go to one? What benefit do I get from his blessing on the

diagnosis? Would I be better off going to a DAN practitioner? We saw a

local chiropractor who used to be a registered DAN and he has been

really helpful.

I know these questions are probably redundant and I apologize. I

should probably check the archives, but time is limited w/ the three

littles at home and hubby who works night shift (keeping everyone

quiet during the day). Thanks for your patience.

PS: Anyone in Southern California? We would love to have friends!

Thanks again,

Leah

http://www.2angels2 growme.blogspot. com/

[Guest guest]

Hi

I live in Temecula. I don't think that is too far from you. One of my

best friends used to live in Camarillo and i know she goes there every

once in a while to visit. How old are your kids?

Thanks!

Leah

>

> Hi Leah

>

> Where do you live. I live in Camarillo, Ventura County.

>

> Cris

>

>

>

[Guest guest]

Hi Leah!

We live in Orange County (North Tustin) off the 22 and 55 FWY.

We tried ASL, but it didn't work too well for us because my little guy has fine

motor delay

too. We just started with PECS and it is going great! Larsyn is almost 3 years

old and he

just tested at a 6 month old expressively. Receptively he is at his age level.

1 Omega 3-6-9 is equal to 1 Pro EFA.

We went to a neurologist just to rule out anything else. We are still waiting to

do the MRI

until he is a bit older...didn't want to put him under general anesthesia.

For us, I got more information and help from the developmental pediatrician, but

I do

think it was important to go to the neurologist. Each neurologist is different,

I know there

are some great ones out there!

Does have any other " soft signs " or delays?

My hubby works rotating shifts (days/nights), so I totally understand the quiet

during the

day!!

Welcome,

Jenna (mom of Larsyn 2.10 yo w/severe verbal apraxia, dyspraxia, hypotonia, SPD

AND

Chance 5.5 yo-with no issues besides thinking he knows EVERYTHING!)

>

> Greetings!

>

> My name is Leah and I am mom to 3 - ages 5, 3, and 1. , my 3 1/2

> year old has been diagnosed with Apraxia of Speech by 2 different

> SLP's. His comprehended language is age 4 1/2 but expressive language

> is less than 2 years old. His last eval showed less than 10%

> intelligible speech. We are working hard to incorporate ASL to ease

> frustration. Our SLP said we may need to consider an augmentative

> speech device if we are not able to pick up the ASL - but I am pretty

> sure we will be able to.

>

> Anyhow - my questions. I have read a little bit about EFA's. I have

> purchased Nordic Naturals Omega 3-6-9 from a local store (too

> impatient to order it off the web) and I wanted to verify that 1 Omega

> 3-6-9 is the same as 1/2 proEFA. Right? I think i was supposed to

> start w/ 1/2 porEFA but my brain is a little hazy right now :-)

>

> Next question...do I NEED to go to a pediatric neurologist. He is

> terrified of doctors and I have been to more than our share. Is it

> necessary to go to one? What benefit do I get from his blessing on the

> diagnosis? Would I be better off going to a DAN practitioner? We saw a

> local chiropractor who used to be a registered DAN and he has been

> really helpful.

>

> I know these questions are probably redundant and I apologize. I

> should probably check the archives, but time is limited w/ the three

> littles at home and hubby who works night shift (keeping everyone

> quiet during the day). Thanks for your patience.

>

> PS: Anyone in Southern California? We would love to have friends!

>

> Thanks again,

> Leah

>

> http://www.2angels2growme.blogspot.com/

>

[Guest guest]

Hi Leah, Jenna, or others living in the So Cal area,

I live in La Verne.  My 32 month-old son also is so delayed in expressive

language.  He is also not picking up the ASL signs well; I never connected that

to fine motor delay.  Thanks for the insight.  What is PECS??

I would love to get to know others in the area.

.

________________________________

From: Jenna <imcaligal@...>

Sent: Wednesday, February 4, 2009 9:19:11 PM

Subject: [ ] Re: New with questions...

Hi Leah!

We live in Orange County (North Tustin) off the 22 and 55 FWY.

We tried ASL, but it didn't work too well for us because my little guy has fine

motor delay

too. We just started with PECS and it is going great! Larsyn is almost 3 years

old and he

just tested at a 6 month old expressively. Receptively he is at his age level.

1 Omega 3-6-9 is equal to 1 Pro EFA.

We went to a neurologist just to rule out anything else. We are still waiting to

do the MRI

until he is a bit older...didn' t want to put him under general anesthesia.

For us, I got more information and help from the developmental pediatrician, but

I do

think it was important to go to the neurologist. Each neurologist is different,

I know there

are some great ones out there!

Does have any other " soft signs " or delays?

My hubby works rotating shifts (days/nights) , so I totally understand the quiet

during the

day!!

Welcome,

Jenna (mom of Larsyn 2.10 yo w/severe verbal apraxia, dyspraxia, hypotonia, SPD

AND

Chance 5.5 yo-with no issues besides thinking he knows EVERYTHING!)

>

> Greetings!

>

> My name is Leah and I am mom to 3 - ages 5, 3, and 1. , my 3 1/2

> year old has been diagnosed with Apraxia of Speech by 2 different

> SLP's. His comprehended language is age 4 1/2 but expressive language

> is less than 2 years old. His last eval showed less than 10%

> intelligible speech. We are working hard to incorporate ASL to ease

> frustration. Our SLP said we may need to consider an augmentative

> speech device if we are not able to pick up the ASL - but I am pretty

> sure we will be able to.

>

> Anyhow - my questions. I have read a little bit about EFA's. I have

> purchased Nordic Naturals Omega 3-6-9 from a local store (too

> impatient to order it off the web) and I wanted to verify that 1 Omega

> 3-6-9 is the same as 1/2 proEFA. Right? I think i was supposed to

> start w/ 1/2 porEFA but my brain is a little hazy right now :-)

>

> Next question...do I NEED to go to a pediatric neurologist. He is

> terrified of doctors and I have been to more than our share. Is it

> necessary to go to one? What benefit do I get from his blessing on the

> diagnosis? Would I be better off going to a DAN practitioner? We saw a

> local chiropractor who used to be a registered DAN and he has been

> really helpful.

>

> I know these questions are probably redundant and I apologize. I

> should probably check the archives, but time is limited w/ the three

> littles at home and hubby who works night shift (keeping everyone

> quiet during the day). Thanks for your patience.

>

> PS: Anyone in Southern California? We would love to have friends!

>

> Thanks again,

> Leah

>

> http://www.2angels2 growme.blogspot. com/

>

[Guest guest]

Hi Leah,

 

Also I live in California, Torrance, and I have a daughter diagonised with

Apraxia at 4years after she had done an ear surgery last birthday , tubes in

both ears, also we started to enroll her in speech therapy for twice a week.

From: Nguyen <stacytuan@...>

Subject: Re: [ ] Re: New with questions...

Date: Thursday, February 5, 2009, 7:24 PM

Hi Leah, Jenna, or others living in the So Cal area,

I live in La Verne.  My 32 month-old son also is so delayed in expressive

language.  He is also not picking up the ASL signs well; I never connected that

to fine motor delay.  Thanks for the insight.  What is PECS??

I would love to get to know others in the area.

.

____________ _________ _________ __

From: Jenna <imcaligal (DOT) com>

@groups. com

Sent: Wednesday, February 4, 2009 9:19:11 PM

Subject: [childrensapraxiane t] Re: New with questions...

Hi Leah!

We live in Orange County (North Tustin) off the 22 and 55 FWY.

We tried ASL, but it didn't work too well for us because my little guy has fine

motor delay

too. We just started with PECS and it is going great! Larsyn is almost 3 years

old and he

just tested at a 6 month old expressively. Receptively he is at his age level.

1 Omega 3-6-9 is equal to 1 Pro EFA.

We went to a neurologist just to rule out anything else. We are still waiting to

do the MRI

until he is a bit older...didn' t want to put him under general anesthesia.

For us, I got more information and help from the developmental pediatrician, but

I do

think it was important to go to the neurologist. Each neurologist is different,

I know there

are some great ones out there!

Does have any other " soft signs " or delays?

My hubby works rotating shifts (days/nights) , so I totally understand the quiet

during the

day!!

Welcome,

Jenna (mom of Larsyn 2.10 yo w/severe verbal apraxia, dyspraxia, hypotonia, SPD

AND

Chance 5.5 yo-with no issues besides thinking he knows EVERYTHING!)

>

> Greetings!

>

> My name is Leah and I am mom to 3 - ages 5, 3, and 1. , my 3 1/2

> year old has been diagnosed with Apraxia of Speech by 2 different

> SLP's. His comprehended language is age 4 1/2 but expressive language

> is less than 2 years old. His last eval showed less than 10%

> intelligible speech. We are working hard to incorporate ASL to ease

> frustration. Our SLP said we may need to consider an augmentative

> speech device if we are not able to pick up the ASL - but I am pretty

> sure we will be able to.

>

> Anyhow - my questions. I have read a little bit about EFA's. I have

> purchased Nordic Naturals Omega 3-6-9 from a local store (too

> impatient to order it off the web) and I wanted to verify that 1 Omega

> 3-6-9 is the same as 1/2 proEFA. Right? I think i was supposed to

> start w/ 1/2 porEFA but my brain is a little hazy right now :-)

>

> Next question...do I NEED to go to a pediatric neurologist. He is

> terrified of doctors and I have been to more than our share. Is it

> necessary to go to one? What benefit do I get from his blessing on the

> diagnosis? Would I be better off going to a DAN practitioner? We saw a

> local chiropractor who used to be a registered DAN and he has been

> really helpful.

>

> I know these questions are probably redundant and I apologize. I

> should probably check the archives, but time is limited w/ the three

> littles at home and hubby who works night shift (keeping everyone

> quiet during the day). Thanks for your patience.

>

> PS: Anyone in Southern California? We would love to have friends!

>

> Thanks again,

> Leah

>

> http://www.2angels2 growme.blogspot. com/

>

[Guest guest]

Thanks for all of your suggestions! I think I may try the subling. B complex and

see if that helps. do you take it along with the iron supplements? I take mine 3

times a day.

MJ