Does anyone want to add input?/Please help

[Guest guest]

Hi everyone!

is the one that originally asked for the input.

I have just made a member of this group. She is a grandparent

who is in court right now trying to help her grandson. She was

referred to us by the National Institute on Deafness and

Other Communication Disorders. They gave her other places to

contact as well (she mentions who) but so far she reports that we are

the only group that has responded to her. She states that she is not

that computer literate but needs to help her grandson.

I don't know exactly what symptoms of apraxia he has yet either as I

posted the first message from here (which were the questions

for input) I sent our new member archive message which has my

email to one of the parents here. She is looking for a specific

letter that explains what he needs for early intervention.

I know we are all busy with the holidays (I have to run out again

right now) but if anyone has anything handy as we all have been in

this situation at least once (!) please post it if you have it

handy.

Basically this is her question:

" How can I get a copy of that first letter " Hi Mrs. Laurie " , or

something like it to show how much time and committment apraxia

entails and how intensive theraphy can be?

"

And here's another email from as well as my reponse. We were

going back and forth offlist for a bit. But again now is a

member here too -but her direct email address is below as well.

Re: Apraxia of speech

I am not too good at the computer. Right now we are going to court. I

need as much as I can find and print out for court to make sure my

grandson gets early intervention.

Do you have some good articles I can print off from the computer? I

have e-mailed actioncenter@... (American Speech-Language-Hearing

Association, helpdesk@... (ChildhoodApraxia of Speech

Association of North America), nichy@... (National Dissemination

Center for Children with Disabilities), and orphan@... (

National Organization for Rare Disorders).

I asked them the questions I asked you and haven't received anything

back yet.

Yes, I think I would like to become a member, especially if I could

get information. I'm just not sure if I'll have time till this is

over or if I have the computer skills?

Jernigan

-------------- Original message from " CHERAB " <help@...>: -----

---------

& #65279;

Hi ,

Would you like me to make you a member of our online group? We have

received a large amount of responses and so far just as I suspected

the only question that had any number of positive responses was for

jaundice. Pretty much across the board outside of one person for

Aspirger's and 2 people for failure to thrive all said no to all the

other questions.

So

related to smoking marijuana during pregnancy, - no for everyone

failure to thrive, - no for all but 2

or juandice at birth. -yes in a few cases

Could it be related to losing a pound a week the last 3-4 weeks of

pregnancy? - no for everyone (most said they gained)

Or could it be related to Asperger " s -no to all but one parent

As far as the genetic question -not much research in apraxia. There

is the FoxP2 gene that they found a connection with to apraxia -but

in most cases children with apraxia are born into families with no

known genetic predisposition to apraxia. There does however appear

to be a link between apraxia and conditions like ADHD or dyslexia as

that may run in the family of a child with apraxia.

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